what ever happened to the This Is my child campaign?

[Samcro]

i thought it was done to educate people on children with disabilities...
yet here we are with thread 13 about CG full of rubberneckers making disablist comments about brain damage Or should I say ignorant comments.
why is mn hq not saying hang on a minute this isn't in the spirit of the site and reminding posters of the TIMC Campaign .

I agree. It's bloody insulting and hurtful as well as disablist.

I agree

I agree too.

I agree too.

I have read through every one of the Charlie Gard threads. In each one I have only seen sympathy towards the child and his parents.
There have been numerous posts saying the difference between living with a disability and being able to enjoy life, and the terminal genetic illness that Charlie is suffering from.
Many posts from people expert in their fields. These threads have been informative and compassionate.
Where have they been 'disablist'?

I agree.

The CG threads are not disablist. They consist of a wide ranging debate about a current, very complex issue.

Nice of you to link this to the 13th Charlie Gard thread Mamagin.

The threads are not of themselves disablist. Read Sam's OP again. Disablist and ignorant comments.

Yes they call it a debate, I call it a witch hunt and extreme discrimination of kids and parents of kids with severe disabilities, a huge insult.

It's not disablist, you repeatedly go on them and say that they are.

It's a discussion of a huge media campaign, ethical debate and legal issue.

How dare you try to yet again shut it down with your basic interpretation.

I have a child with severe disabilities and it is helping me work through my personal thoughts on her welfare.

You ought to read them then because they are nothing like this thread suggests.

There have been disabilist posts, and they have been reported and deleted. They have been a tiny tiny minority though imo. I don't think the discussion itself is disabilist, or I wouldn't be part of it (it is interesting to me personally as a good chunk of my degree is focussed on inaccurate media reporting of health/science news)

But perhaps my interpretation is wrong - that does happen! I'm happy to be corrected.

I haven't read those threads but this sounds awful
have a look then.
and please do point out and report any disblist comments you find on there. I think you'll struggle to do that though. However I don't mind being corrected/educated.

I haven't read those threads but this sounds awful May I suggest that you read them and you will see that it is in no way a witch hunt or disablist and that everyone is full of compassion for Charlie and his parents.

How can people comment unless they have read the thread?

Also, it's useful to read the CA Facebook page too for context, although since the judges comments, some of the most abusive posts against GOSH staff have been removed.

i do not repeatedly go on the threads, i have posted a few times. as there are 13 threads to date. I am not going to post on them all!!
i have read enough to know that they are not helpful. they give only one side of a debate and the comments about brain damage are often ignorant.
friendlysnakehere I have an adult child with severe cp and yep that is caused by brain damage(hate that term) so each to their own.

I am sorry to hear of your daughter's condition. I think he CG threads are treading a fine line; open discussion is vital but there is a lot of denigrating of the parents.

Certainly when I last looked, the CG threads did not have anything I would have described as prejudiced or unpleasant against people with disabilities.

Forgive me, but I sometimes think there is an eagerness not to understand, and I think this can apply equally to both sides of the debate.

Of course, parents of children with disabilities form strong bonds with them, and these bonds I imagine will be in some ways even stronger than parents of NT children (the bond, not love itself) because of the nature of caring for them, interceding on their behalf and so on, lasts beyond childhood in many cases.

The debate around Charlie isn't just about disability, however, it's about pain. They are different things. Many people without disabilities experience pain; many people with disabilities do not (or at least, not notably more than any other person.)

It is therefore not disabilatist to express concerns that prolonging Charlie's life prolongs his pain. Nor is it disabilatist to contemplate what his quality of life might be if he were 'allowed' to live.

cheer to the poster who called her mates over here.
proves that all other debate is not allowed.

i have read enough to know that they are not helpful

Okay so they're not helpful to you

But they may be helpful to parents who have been through the heartbrake of watching a terminally ill child die, only to read on facebook that they obviously don't love their kid enough, to read that not everyone thinks like that?

It might be helpful to people who have to put their childrens lives in GOSHs care to read that they're not in fact delivering them to the gallows etc

It might be helpful to HCPs working in similar situations to read that not everyone thinks they're all liars and murderers

People are just giving a balanced view Samcro

In fairness, the majority of the threads here aren't 'helpful' in the sense that they necessarily domanything purposeful or meaningful, and nor should they have to.

cheer to the poster who called her mates over here.
proves that all other debate is not allowed

Posters on this thread were also invited back to the CG thread so that a meaningful discussion could take place about exactly what about the threads it is that they find disablist, which is the opposite of not allowing debate

"I don't like what you're saying but I won't engage and tell you why" is not debate or discussion.