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what ever happened to the This Is my child campaign?

318 replies

Samcro · 21/07/2017 11:02

i thought it was done to educate people on children with disabilities...
yet here we are with thread 13 about CG full of rubberneckers making disablist comments about brain damage Or should I say ignorant comments.
why is mn hq not saying hang on a minute this isn't in the spirit of the site and reminding posters of the TIMC Campaign .

OP posts:
Dawndonnaagain · 21/07/2017 13:58

Shame on you for using this campaign to further your own agenda.
It has been explained. Read the thread.

BishopBrennansArse · 21/07/2017 14:00

Hmm. I'm pretty sure the numerous professionals who read my kids' reports believe they really know their situation too.

They don't.

This is what I'm saying. There is far, far more to this.

BishopBrennansArse · 21/07/2017 14:01

Tinsel I've seen nothing to say it isn't about brain damaged people in general either.

TinselTwins · 21/07/2017 14:04

Tinsel I've seen nothing to say it isn't about brain damaged people in general either

well that's a leap.

do you think that every post that is clearly specifically about Charlie should have a footer explaining that this view doesn't apply to all variations of brain injury, illness and disability?

vic1981 · 21/07/2017 14:06

TAAT

BishopBrennansArse · 21/07/2017 14:10

Some posts are really not clearly about Charlie.

BishopBrennansArse · 21/07/2017 14:10

It isn't vic, it's about how disablism can be so insidious.

DonkeyOaty · 21/07/2017 14:19

Bish I agree.

User843022 · 21/07/2017 14:23

'do you think that every post that is clearly specifically about Charlie should have a footer explaining that this view doesn't apply to all variations of brain injury, illness and disability?'

Yes just because a tragic case has been discussed that does not mean people hold the same views on all disabled dc. It's insulting and rather simplistic to suggest they do.

quicknamechangeofshame · 21/07/2017 14:24

Have any of you that are claiming disablist behaviour in those threads actually read them? I have and I really don't see your point of view at all. I find them to be very informative, inclusive and not at all disablist.
The fact that there are parents on them who are, unfortunately for them, able to share their similair experiences makes me find your thread fucking insulting. Disablist indeed Hmm

DonkeyOaty · 21/07/2017 14:26

Sigh. Ok. I see, thank you.

BishopBrennansArse · 21/07/2017 14:30

Not all 13, no.
It's depressing, upsetting (after having read a few) and feels horribly voyeuristic.

SumThucker · 21/07/2017 14:33

It's the number of threads I find distasteful. 12,000+ comments and counting. It does feel voyeuristic.

User843022 · 21/07/2017 14:33

'Have any of you that are claiming disablist behaviour in those threads actually read them?'

Yes its all very odd to complain about disablist posts that arent actually there. Mnhq do delete any offensive stuff you know?

TinselTwins · 21/07/2017 14:37

It's the number of threads I find distasteful. 12,000+ comments and counting. It does feel voyeuristic.

case law becomes law, judicial precident and all that
now that it's in court it actually affects us all
Also the case is being used to attack our health system and justice system "in general"

TinselTwins · 21/07/2017 14:39

Some posts are really not clearly about Charlie

Yeah, posts about the behaviour of pro-lifers and right wingers and the press and dignity in dying in general are not just about charlie

posts about charlies quality of existance are clearly about Charlie

SumThucker · 21/07/2017 14:40

I know what they're about Tinsel, I was on the earlier ones.

Samcro · 21/07/2017 14:43

i apologise for my offensive remark. sorry about that.
can't undo it but yep not the best words.

this is not a TAAT i worded the op badly.
i would just really like to know what happened to the TIMC.
i was under the impression that it was to help people to understand about children with sn.

OP posts:
AncientRain · 21/07/2017 14:45

CG parents have fired up social media and turned this into a circus
I find it ridiculous to claim it being discussed in here is voyeuristic
I have a child with brain damage. I don't find any of the CG threads disabalist.
There are many strands to the CG case. Not least, imo, the worry that sm campaign could influence medical or legal decision making
You must spend your life looking for where you can find offence to see it in those threads

Ceto · 21/07/2017 14:49

they give only one side of a debate

There is absolutely no reason why you shouldn't go on the threads and give another side.

cheer to the poster who called her mates over here.
proves that all other debate is not allowed.

How does anyone posting on this thread prevent you from debating? The very fact that you object suggests that you think that no-one should be allowed on this thread to disagree with you. Doesn't that mean that it is you who are trying to prevent debate?

zzzzz · 21/07/2017 14:56

This reply has been deleted

Message withdrawn at poster's request.

NellieBuff · 21/07/2017 15:01

Samcro Thank you for the apology. I was actually very hurt more than offended

Ceto · 21/07/2017 15:04

A lot of sentiment on the CG threads is that brain damage is the end of the world, that brain damaged people have no quality of life and that they'd not want their children to have brain damage.

No, it isn't, Bishop. There, as you would expect with the number of people contributing, differing views. Those who tend to agree with the hospital position tend towards the view that catastrophic and irreversible brain damage in a terminally ill child such that he is blind, deaf, paralysed, in pain, oedematous and unable to breathe is such that nature should be allowed to take its course. Its the kind of decision that is being made by doctors the world over every day. How is it disablist? A number of those posting are parents who have had to take precisely that decision. Are they disablist?

The posts are very definite that there is no hope. This is mainly based on media coverage

Again, no, that is not the case. There has been extensive discussion of the evidence, including what is in the judgments and the statistics quoted by Dr Hirano: that comes from direct quotes of what he said in court, not media coverage.

But who are we (the collective we) to decide in a general way where that line is drawn?

No-one on that thread is purporting to make that decision. The general consensus is that it should be left to the judge, who has all the relevant information. That doesn't stop discussion of developments and a number of very relevant issues around the case, not least the role of social media.

TinselTwins · 21/07/2017 15:05

"the GC threads are really bad"
"how so?"
"this isn't about the CG threads, stop derailing TIMC"

is basically how this thread works now

Ceto · 21/07/2017 15:06

zzzzz, there is space for over 900 more messages in this thread. How does a few people coming on to discuss the subject matter of the thread constitute filling it up?

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