Anyone saying this is not/has not received a PIP award - which is to contribute to the extra costs of disability. Note contribute. There is official recognition that disability is expensive and that PIP does not pay all the extra costs. Adult recipients use the care component to pay Carers - are parents of child recipients not entitled to be 'paid' from that same care component? The assessment process for children takes into account the 'normal' amount of care that parents are expected to provide and only pays out for significant extra.
When people have disabled children, childcare can not only be a great deal more expensive but is more often not available at all. That means that one parent, at least, cannot pursue a career in the same way as other parents, even if they are able to work at all. That is a major extra expense - usually borne by both parents, not just one of them.
Just 16 years of low, or no earnings is a huge amount of money to lose, without thinking of pension contributions. PIP does very little to redress the balance, while that parent saves the state all the costs of a residential placement. This is the reality of caring for disabled children.
There are many of us pensioners who have sacrificed health and financial security for our disabled children and I for one, am 100% supportive of those who choose to do it today. It is a thankless task, and people who don't know what they are talking about being dismissive about what life is like for parent carers do not help the situation. PIP, Carers Allowance and Family Allowance, when payable, help a bit financially and that is a good thing, but nothing replaces the years of caring and the toll that takes on body and mind.