Op - I came across this thread on active and apologises I don't have time to read the whole thread but got the gist. I wanted to post because I've seen you on the chikdrens health boards (i name change) and your story is almost identical to mine.
We also had a very sick baby, suspected sepsis, heart failure, life support that sort of thing and then the ongoing various minor and moderate illnesses and constant follow up drs appointments that seem to go with these once very sick children.
It puts a unique pressure on a marriage.
My oh and I are also at the point of separating - in large because of the pressure on us. It's polarised us. We didn't experience it equally. Some parts of the trauma yes but others we had such difference experiences (me in hospital wards, battling the system, no sleep, missing out on motherhood as it was meant to be), him the financial pressure and going to work. We also dealt/deal with the stress in different ways - I research and dive in and he likes to deny and minimise her illnesses (to the extent that he's refused to take her to the dr several times as he's said she was sick when she had a raging urine infection, he'll also avoid consultants apps (work an easy excuse) and never talk about any of it with me.
Point is we both suffered stress and it's impacted our marriage terribly.
We were offered trauma counselling by the hospital but it was only 1 or 2 hours so not much they can do in that time.
My husband is behaving awfully and I think he's in the midst of depression- he also wants an escape from it all - talking about taking a job abroad and commuting 3 days a week.
I'm trying to get him to counselling but he just says the problem is me not him. I'm asking him to separate as the arguemebts not good for the children and TBH the marriage is just pants and I don't know how to fix it.
Sorry no real advice and apologises if I've missed obvious things in your thread. Just wanted to sympathise. Having s sick child is like putting your life in a washing machine - everything gets mixed up and thrown about.