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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Asperger's and relationships (again)

158 replies

MrsMiss · 27/11/2015 12:36

I've been married for 10 years, and have four children, the youngest of whom is 3. Last year my husband was diagnosed with Asperger's. The psychiatrist said it was 'mild asperger's'. We'd waited a year for the diagnosis, and my dh refused to go for couples counselling until the diagnosis was made. In that time my mental health spiralled and I have had many points where I've felt at the end of my tether. I've been on anti-anxiety meds, and had counselling myself, and manage to drag myself to a place where I am now supposedly looking after myself.

I have good friends (none of whom know about the ASD), and have time away from the children (once a week I meet my friends for our 'sewing night' ) which is a big improvement on a couple of years ago where my life seemed to revolve around the young children, and I didn't have any time for myself.

We started seeing a relate counsellor in the Summer, but it wasn't great. We got lots of practical advice like maybe we could go on a weekend away, or ask for help blah blah blah… but nothing really addressing the issues within the relationship which are numerous.

Dh seems to think that the main problem is that we argue, and I shout and get angry. He would like to think we can compromise and have a rational discussion, but in truth, it is his way or nothing. He won't go out at all with other families or friends. He won't help out e.g. at the kids school, or cubs/beavers etc. It is hard to put across what it is like without it sounding like I'm being extremely unreasonable, wanting to have a certain life and having unrealistic expectations of him.

For me, I feel like I'm a single parent. He won't be part of a 'team'. He'll go out and buy presents for the children on his own, and arrange to do things with them on his own, for example when I'm out, but will have no part of 'sharing' anything as a family. He spends more time with our oldest daughter chatting and cooking etc than he does with me. I feel completely isolated, like a lodger in the house who has to serve all the people who live in the house, but otherwise keep out of the way and keep my thoughts and feelings to myself.

We've been on the same holiday for the last 10 years, we see one couple (his school friend and his wife) socially… I've carved out a new life with friends I've made through having the children, but dh won't have anything to do with them. He is rude to them - one husband of a friend asked if he'd like to join them (the other husbands) at a local pub quiz, and his flat response was 'no'.

When we initially got together he was very attentive and kind, and we were 'in love' and had the children in quick succession. Being pregnant 4 times has 'protected' me from the worst emotional problems if you like, because he has been 'on his best behaviour'. He did actually say that he couldn't cope if I was pregnant again. Now, he just doesn't speak to me. I feel that we job-share. Our responsibility is to look after the children, and we speak to share arrangements for the children. In the evening he can spend ours looking at videos and clips etc on his phone, and then will come to bed late. I try to carry on as normal, but am beyond lonely. I hate the constant atmosphere that he is oblivious to. He thinks if I'm not shouting, we're happy. I only shout out of complete exasperation, when I am completely worn down with his arguments, which are always logical and evidence-based and always right. Anything I say is just a waste of time.

We've been seeing a psychodynamic couples counsellor for a few months now, and it has been enlightening in some respects, but I'm just not sure she understands this asperger's thing. She sees it as a label, an unhelpful label, and thinks dh is no different from anyone else. That may be the case but he thinks he is different, and since he had the diagnosis it is as if all kindness and willingness to work together has evaporated, and I'm now supposed to accommodate what he calls his 'disability'. I've obviously tried the usual things - to communicate clearly, to be direct, to not expect him to want to be 'life and soul' of the party etc, but I can't cope with a life that is completely dictated by one person. I am trying to do my best for the children. I have supported them to join different groups and activities, to spend time with friends and other families even if I have to do it all on my own. Their friendships matter a lot to me, whereas I know dh wouldn't care if they never saw their friends.

I don't really know what I'm asking here, and I know that some people are going to tell me to leave him, and some people are going to say that I sound like a demanding monster. I wish I could get an objective view on whether I should continue to try to navigate through my emotions and the bleak loneliness and distress, and try to ignore every hope and dream I had of being a family and doing things together, or whether it would be a waste of my energy. I can't talk to people in real life about it all (he doesn't want them to know) and I worry that they wouldn't really understand anyway. I have times when I'd just like to walk away from it all. The children all show signs of similarity with dh, which makes it unbearable at times. I'm on egg-shells, dealing with tantrum after tantrum… just so lonely.

OP posts:
RiceCrispieTreats · 20/12/2015 17:50

"Understanding that he doesn't 'mean' to be ignorant or rude, or unkind, thoughtless or cruel doesn't help me."

IME, it does help to heal hurt when we understand that people just are who they are. And sometimes, who they are just doesn't work for us.

But it helps to know that it's not personal; that way we can stop fighting it, or wondering why or what if.

Twgtwf · 20/12/2015 18:01

Are you able to stop it from hurting you, Treats?

4Wmbvp2 · 21/12/2015 08:47

It helped me to realize it wasn't personal. Initially it was a relief to know that it's his Asperger's (although my boyfriend didn't realize he had this) but after the relief came despair: he won't change.

ModerationIsKey · 09/01/2016 20:15

OP I hope you don't mind, but aspergers DP has asked me to explain the concept of "needing a specific someone"... How do I tell him... Anyone know?

Chrsitmasishere123 · 22/12/2019 22:07

I know this thread hasn't been active for a long time but I'm in the same shoes. DP always thought he had aspergers. I'm currently sitting in my car as had just exploded at home. I feel I can't deal with him endlessly sitting on his phone as if he doesn't want to look or deal with the world and 4 dc but when it's absolutely necessary to deal with them he will just shout at them how fed up he is when in reality he had barely spoken to them all day. I feel very sorry for him as I know he dearly loves them and has good intention but I can't help but feeling more and more resentful towards him that I'm left to raise dc. We have struggled for the last 15 years (ever since we met) but obviously haven't picked up the warning signs and now we left it that from the new year he will go and look for a rented place to stay. My heart is breaking for the kids but 100% know they will be better off. They might have a chance to learn/see what a loving relationship should look like. And I know I deserve to be happy

EarthSight · 09/12/2020 20:02

@enderwoman

Christmadcracker I have Aspergers and children and was shocked to read your post. As the famous saying goes if you've met one person with Aspergers, you've met one person with Aspergers. People with Aspergers vary in the same way that women as a group vary.

I have Aspergers but enough emotional intelligence and resilience to know that I have to work on myself to be a good human being and parent. Relationships are about give and take and as someone who is not NT I have had to learn things that are seemingly obvious. For example I had to learn how to be a physically affectionate parent. Hugging is not something that comes naturally to me but I have learnt to enjoy it because of the reaction I get from my kids.

I have lots to offer my children and lots to learn but don't we all?

Ok. That seems to suggest that you think every person with Aspergers is incredibly different to each other, by your statement if you've met one person with Aspergers, you've met one person with Aspergers

Well....no. If that were the case, how on earth would a diagnosis even be possible? Now matter how variable something is, something like Autism or Aspergers must have common traits, must have some common ground for it to be classified as a real syndrome. In fact, if there was no pattern, no one wouldn't even know it exists because those variables would be common within the population.

We're talking about behaviour here, where finding a commonality is essential. That is different from physical condition where you can test someone's blood for xyz, but have people with wide ranging symptoms. Because no such test exists for Aspergers, finding patterns and in people's behaviour and condition is absolutely essential to diagnosis.

Because of this, I don't agree that if you've met one person with with Aspergers, you've met one person with Aspergers. It defies logic.

Aerial2020 · 09/12/2020 23:01

@Coco7841

I agree with the therapist who said aspergers is label. Sure it describes a list of symptoms but a person can learn to be more sociable, they can learn to understand feelings better. The minute we justify these behaviours as a disability then it's the green card to excuse it.

The world has gone mad imo and wants to label everybody and fit them in little boxes. The fact is we are all different and variations of normal really.

Your choices are either accept his ways and the arguing should lessen, although you might be frustrated.

Tell him his ways aren't an excuse and you want to see an improvement

Or leave.

Labels create lazy people, it's not their faults they trust what they are told from professionals they trust.

A few weeks ago my son's school raised concerns my son may have aspergers. With my understanding of brain plasticity and behaviour I set to work. When out socially I encouraged him to speak with people, pay for himself in shops etc. We also worked on feelings, discussing them etc. Within 1 week he was showing more empathy, discussing his feelings and asking to pay for things himself and wanting to go call for friends. Had I just allowed the label and not tried then he wouldn't have changed would he?

I don't want to undermine illness. I know there are lots of illnesses that aren't mind over matter but sometimes the answer really is to learn new behaviours or change your thinking.

Labels don't create lazy people. Sometimes they give you access to services you wouldn't get without it. It is only a label to get through society but you don't have to use the label at home. Teaching your son empathy is all well and good and I would encourage that but that is your experience.
ittakes2 · 09/12/2020 23:20

It bothers me that you did not say in your op anything you like about him / enjoy spending time with him / love him. Try counselling but I would hope you get to a place in your life where you are happy.

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