Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Asperger's and relationships (again)

158 replies

MrsMiss · 27/11/2015 12:36

I've been married for 10 years, and have four children, the youngest of whom is 3. Last year my husband was diagnosed with Asperger's. The psychiatrist said it was 'mild asperger's'. We'd waited a year for the diagnosis, and my dh refused to go for couples counselling until the diagnosis was made. In that time my mental health spiralled and I have had many points where I've felt at the end of my tether. I've been on anti-anxiety meds, and had counselling myself, and manage to drag myself to a place where I am now supposedly looking after myself.

I have good friends (none of whom know about the ASD), and have time away from the children (once a week I meet my friends for our 'sewing night' ) which is a big improvement on a couple of years ago where my life seemed to revolve around the young children, and I didn't have any time for myself.

We started seeing a relate counsellor in the Summer, but it wasn't great. We got lots of practical advice like maybe we could go on a weekend away, or ask for help blah blah blah… but nothing really addressing the issues within the relationship which are numerous.

Dh seems to think that the main problem is that we argue, and I shout and get angry. He would like to think we can compromise and have a rational discussion, but in truth, it is his way or nothing. He won't go out at all with other families or friends. He won't help out e.g. at the kids school, or cubs/beavers etc. It is hard to put across what it is like without it sounding like I'm being extremely unreasonable, wanting to have a certain life and having unrealistic expectations of him.

For me, I feel like I'm a single parent. He won't be part of a 'team'. He'll go out and buy presents for the children on his own, and arrange to do things with them on his own, for example when I'm out, but will have no part of 'sharing' anything as a family. He spends more time with our oldest daughter chatting and cooking etc than he does with me. I feel completely isolated, like a lodger in the house who has to serve all the people who live in the house, but otherwise keep out of the way and keep my thoughts and feelings to myself.

We've been on the same holiday for the last 10 years, we see one couple (his school friend and his wife) socially… I've carved out a new life with friends I've made through having the children, but dh won't have anything to do with them. He is rude to them - one husband of a friend asked if he'd like to join them (the other husbands) at a local pub quiz, and his flat response was 'no'.

When we initially got together he was very attentive and kind, and we were 'in love' and had the children in quick succession. Being pregnant 4 times has 'protected' me from the worst emotional problems if you like, because he has been 'on his best behaviour'. He did actually say that he couldn't cope if I was pregnant again. Now, he just doesn't speak to me. I feel that we job-share. Our responsibility is to look after the children, and we speak to share arrangements for the children. In the evening he can spend ours looking at videos and clips etc on his phone, and then will come to bed late. I try to carry on as normal, but am beyond lonely. I hate the constant atmosphere that he is oblivious to. He thinks if I'm not shouting, we're happy. I only shout out of complete exasperation, when I am completely worn down with his arguments, which are always logical and evidence-based and always right. Anything I say is just a waste of time.

We've been seeing a psychodynamic couples counsellor for a few months now, and it has been enlightening in some respects, but I'm just not sure she understands this asperger's thing. She sees it as a label, an unhelpful label, and thinks dh is no different from anyone else. That may be the case but he thinks he is different, and since he had the diagnosis it is as if all kindness and willingness to work together has evaporated, and I'm now supposed to accommodate what he calls his 'disability'. I've obviously tried the usual things - to communicate clearly, to be direct, to not expect him to want to be 'life and soul' of the party etc, but I can't cope with a life that is completely dictated by one person. I am trying to do my best for the children. I have supported them to join different groups and activities, to spend time with friends and other families even if I have to do it all on my own. Their friendships matter a lot to me, whereas I know dh wouldn't care if they never saw their friends.

I don't really know what I'm asking here, and I know that some people are going to tell me to leave him, and some people are going to say that I sound like a demanding monster. I wish I could get an objective view on whether I should continue to try to navigate through my emotions and the bleak loneliness and distress, and try to ignore every hope and dream I had of being a family and doing things together, or whether it would be a waste of my energy. I can't talk to people in real life about it all (he doesn't want them to know) and I worry that they wouldn't really understand anyway. I have times when I'd just like to walk away from it all. The children all show signs of similarity with dh, which makes it unbearable at times. I'm on egg-shells, dealing with tantrum after tantrum… just so lonely.

OP posts:
Memeto3boys · 06/12/2015 08:07

Not all relationships with people with asd are this with me. My Dh tries to be social he's fully committed to our children and is very hands on. Yes he struggles but he never uses asd as an excuse and refuses to let it stop him. It takes him longer to achieve than anyone who's nt but he doesn't stop till he teaches his goal.
We live so well together but me and the husband are both asd 2 out of 3 of our children are asd. And we are happy we work together work hard and achieve our very best.

Galvanised · 06/12/2015 10:02

Christmascracker, you are posting about your own experience, please don't extrapolate that to everyone else with asd.
As for why we have children, when we find it hard to cope with them? I just don't know how to answer that, it's upsetting and offensive really.

PhilPhilConnors · 06/12/2015 10:20

Christmas, those are damning posts, and quite unfair, and extremely generalising.
I hope no-one reads them and believe this is how it is.
I've been married for 16 years, my dh wouldn't identify with any of your posts, and if he did it would be because I was abusive, not ASD.

MarkRuffaloCrumble · 06/12/2015 10:21

Meme, that's the key I think - they need to be willing to look at what they do once it's been brought up and be prepared to make an effort.

The lack of willingness to change is not the ASD part, it's the using it as an excuse which causes incompatibility.

To be fair, in the beginning our relationship worked well because we were total opposites, but once kids were in the mix it was just too much for him. That doesn't mean that anyone ASD shouldn't have kids, but they need to expect to make the usual changes and sacrifices if they do and not everyone is willing to do that.

christmascracker2015 · 06/12/2015 10:47

I am hoping I can change things as there are more interventions in modern society. I see most of my parents behaviours in my ASD child at the moment and who knows if it will change. My husband was also brought up in an ASD family which caused a lot of issues for him. I think that is why we were drawn together as we want to recreate a family together. It is definitely why we both want a lot of children.

christmascracker2015 · 06/12/2015 10:54

It is an issue that is hard to discuss op. There are support groups but they usually are closed down as people with ASD themselves come on and say it isn't how it is. It is hard to discuss these issues with others who haven't experienced this themselves. I totally understand how you feel and there are blogs that I could pm you. Unfortunately I have found nothing to work so far, and after it put me on medication I am taking the smile and don't rock the boat approach.

Galvanised · 06/12/2015 11:06

Christmascracker, have you considered that you may also be on the spectrum yourself? I grew up with quirky parents, everything fell into place once my child was diagnosed and I now see both my parents quirkiness is asd-related. I suffer lots of anxiety and our family dynamics doesn't help that, but I have to work with what I've got! I now try to take my folks with a pinch of salt (and vice versa I'm sure). I think talking to someone would help you. If you don't change anything nothing will be different in the future.

christmascracker2015 · 06/12/2015 11:12

No I definitely haven't am not on the spectrum. I score really low in the tests and I am totally the opposite to my parents. My sibling is like my parents and so it is easier for them to relate. I have a counsellor as well as doing CBT. I am in online and rl support groups. I have read everything on cassandra syndrome and autism including interventions, journals, books, you tube videos, classes. I am also going to start a masters in Autism as soon as I have raised the cash. I studied it in my first degree as well. I try to make the best of it as I have my own family now which helps the most.

NettleTea · 06/12/2015 12:06

christmascracker you know, I think you are right. If I think about my DD rather than my DP then your statement is true.

enderwoman · 06/12/2015 13:16

Christmadcracker I have Aspergers and children and was shocked to read your post. As the famous saying goes if you've met one person with Aspergers, you've met one person with Aspergers. People with Aspergers vary in the same way that women as a group vary.

I have Aspergers but enough emotional intelligence and resilience to know that I have to work on myself to be a good human being and parent. Relationships are about give and take and as someone who is not NT I have had to learn things that are seemingly obvious. For example I had to learn how to be a physically affectionate parent. Hugging is not something that comes naturally to me but I have learnt to enjoy it because of the reaction I get from my kids.

I have lots to offer my children and lots to learn but don't we all?

NettleTea · 06/12/2015 16:13

just the point about the 'angry with the neighbours'.
My child gets obsessed with particular people - can be either in a good way or a bad way. Its the fixed B/W thinking.

christmascracker2015 · 06/12/2015 16:15

I did say they are my own experiences in my original message. I know people with ASD vary. I think I find it difficult as on top of my Mum, Dad, and I think my Nan dhs Mum and Nan I also think dh is on the spectrum. My child also is. DH is better than the rest of them, but you know like people who saw domestic violence often go on to be in a relationship with domestic violence? Well I am like that with ASD! It is hard and I get the op.

christmascracker2015 · 06/12/2015 16:19

yy to nettletea. Dhs is technology items, my Mum and Dad reinforce each others world view about everyone being not normal but them, but they pick on each other about aspergers things. DD would do something right in front of you and deny it, as would my parents. Sometimes you just feel like give me a bloody break. A personal favourite thing of mine is going out in the car and screaming! Grin

Twgtwf · 06/12/2015 16:21

Wherever we live, dh dislikes the neighbours. Our next door neighbour is an angel. Dh does like their dc, who are cute. Interesting point, NettleTea. Thing is, dh would find it tough to survive in our small community if it weren't for me constantly smoothing things over with people. And, to refer back to the OP, I can now say he has AS so people don't feel too hurt/suffer by taking it personally.

Twgtwf · 06/12/2015 16:22

Cracker, there is a very old song by Dory Previn called Screaming in the Car, which I recommend.

MrsMiss · 14/12/2015 22:46

Just trying to catch up. Will have to look out for this Cassandra thread, still can't quite work it all out. After Christmas dh is seeing our counsellor for some sessions on his own. We had an interesting session last week which was all about ASD. I said that I thought it was like the elephant in the room in our counselling sessions, and wanted to discuss how I felt about it. She then seemed to accuse me of seeing ASD and not the person behind it. I was trying to explain that after years of trying to 'encourage' dh to not let it hold him back from learning/trying new things/being sociable etc, I am beginning to accept that he is as he is and this is my lot, but it does make me sad. She seemed to think I was making the problem myself by reading too much into a label. Frustrating. Anyway, it will be interesting to see how she gets on with him on his own, I'll have a few weeks off. Sick of leaving the sessions in floods of tears while he sits and contemplates how he traffic flow varies at different times in the evening.

OP posts:
Themodernuriahheep · 15/12/2015 00:12

For NT partners of AS people, there are both the tea cakes for Cassandras thread in otbt ( under other stuff) but also may I remind folks of the website founded by a MN r called different together. Lots of these views and questions come up.

I completely agree with the poster who pointed out that one should distinguish between AS and Arse. AS is not an excuse for bad behaviour. Nor is being NT in a neurologically mixed marriage.

Themodernuriahheep · 15/12/2015 00:16

Mrs, I found counsellors who didn't understand AS and the strains it can out on both partners worse than useless. I was the madwoman, DH the logical one who got all the affirmation. Have sworn never to go to a counsellor who is not expert again. This is a common finding.

4Wmbvp2 · 19/12/2015 11:02

I was engaged with a guy of whom I am sure he had Asperger's. I only found out after the relationship. He said he loved me but did not show it really. He was a Christian and seemed obsessed with it. His faith and evangelizing was more important than being with me. I've felt lonelier than I had ever been.

Yet, his ideas of a Christian marriage were absurd, I had nothing to say whatsoever. I'm glad that he was not attentive and loving from the beginning; I've read that many ASS man are very loving in the beginning but later on, after marriage or after living together or after the first child it's all over. They become their natural (selfish) selves. Thank God for opening my eyes in time.

I wish all of you who are in such a relationship a lot of strength and courage! Be nice for yourself, please!

ModerationIsKey · 20/12/2015 11:06

Shit 4W, sounds like you were engaged to my current DP - nervous!!! Hmm

4Wmbvp2 · 20/12/2015 12:00

Hi ModerationIsKey,

I sent you a private message I think, but I just wanted to post here.
I'm sorry to hear that you're in a similar relationship. Please don't forget to take care of yourself!

I thought that God brought us together, because we met in a special way, but I kept doubting. That made him mad. He was rushing me to marry him but just in time, I saw what was going on and broke up. I was willing to be there for him, but actually, it was not a relationship. He did not share his heart with me and during our relationship, he asked me 1 personal question, like he was not interested in who I was.

I cried for 1,5 years after I broke up with him but now I am okay. It would have been a miserable marriage of giving, giving, giving and being neglected.
Being alone is much less lonelier than being with him, that is how I feel.

You take care of yourself, listen to your heart and consience/ gut feeling.

All the best to you!

ModerationIsKey · 20/12/2015 12:33

Thanks! Have replied to the PM. x

I just feel that God is separating us more than bringing us together, but that I need DP so much... Even if he doesn't need me.

OP, I hope you're getting some help/guidance. AS partners can be the most attentive partners ever, it's just finding a happy balance.

Twgtwf · 20/12/2015 14:05

Can they?

ModerationIsKey · 20/12/2015 14:36

At times.

Twgtwf · 20/12/2015 16:36

Do you mean lasting longer than/going beyond the courtship phase? How do you make that happen?