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Premature birth

Connect with others and find premature birth support.

Kanga Mamas/ No NCT/ new thread

387 replies

Valdeeves · 17/03/2014 04:59

New thread - happy Monday!

Just incase you are wondering this is a thread for premmie mums who feel like they have missed out on the NCT classes experience and would like to chat.

I have missed out twice as has had two premies!
One of which seems to be wide awake at 4am - I have just fallen over a toy trying to get to her and am now cuddling her praying she'll drop off fast!
How's everyone?

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Valdeeves · 03/06/2014 20:40

I bet it's lovely having such a big family xxx

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Valdeeves · 03/06/2014 20:47

Begins - not behind!

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MultipleMama · 03/06/2014 20:53

It's perfect and completely content with my life despite all the moaning and the problems that arrive! :)

I hope your other Lo overcomes it soon! Xx

Valdeeves · 03/06/2014 22:51

We decided not to have anymore after the second preemie and unlike you age is not on my side.
Pregnancy was very hard for me so it feels right although I feel sad when I see my last baby get bigger every day.

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MultipleMama · 03/06/2014 23:29

I've been very lucky to have met DH so young so we could start our family; although K wasn't planned!

Spent the say with BiL it was lovely and DC had a great time. Tomorrow is appointment day for Halo (we see his cardiologist & PM technician to check his leaky valve) and Dom is back to outpatients to check his eye. Then PiL and I are taking the DC ice skating! :) Busy!!

I feel sad buying school uniforms! My baby boy is now a child! Scary stuff.

MultipleMama · 04/06/2014 12:40

Who in the right mind agrees to an 7.30am appointment... me that's who. Completely exhausted and walking around with 6 DC looking like a zombie. Just come out from BlueA's cardio & PM appointment, and both of them having given us a 3 month time frame for his OHS. His valve has become very damaged, and his tendons are close to disconnecting, his murmur has also become more pronounced. We'll receive a letter within the next couple of weeks with a date.

I'm getting really nervous now!

Mama1980 · 04/06/2014 13:03

Sorry haven't had a second to myself, I've just been catching up on the thread.
How is everyone?
Glad the drs have a plan of action MultipleMama I know how scary it is but it's better to have them act now. Your family sounds wonderful Smile
Alex by coincidence had a hospital check up too this morning, he is now nearly 18 months (a year corrected) he is walking and getting much steadier after physio. Otherwise he is perfectly healthy the drs are amazed and I am just so proud. He is also participating in a long term preemie study so they drew blood which he was a angel for. He had experimental treatment in utero so hopefully the results and things they learn from him can help other micro preemies in the future.
On the subject of anymore I have 4 children, 2 by birth born 26 and 24 weeks and 2 by adoption (my eldest and youngest) I couldn't have anymore even if I wanted to they performed a hysterectomy after Alex's birth to save my life but I feel completely done. I do sometimes get upset that I missed so much, I never got to enjoy being pregnant, never got to cuddle my squishy healthy newborn but I know how lucky I am. And it's chaos here (I'm a single mum) nearly all of the time and just so much fun Grin

MultipleMama · 04/06/2014 13:23

I am glad that they've been so involved and have respected my wishes to wait as long as possible so that he could grow and get stronger before OHS. They've respected my wish to have him on the least amount of medication possible, and build his immune system as naturally is possible. His care team is great and I trust them to know what they medically think is best for my twins while being respectful of my beliefs. I'm very scared because nobody wants to have to watch their child have to go under the knife.

Great to hear Alex is doing great, soon you'll not be able to catch up with him Grin.

Artie has mastered cruising so now she's causing mayhem with her brothers. They are now 6mo adj, and very proud of them. They grow so fast! :( Artie has amazed her doctors as she's caught up to her actual age milestones, a part from her size you would not guess she was a preemie at all.

Halo is meeting his own milestones, at his own pace. He's a master at rolling over, he's just started taking an interest in certain toys but has yet played with them.

How's your LO, Val? x

Mama1980 · 04/06/2014 13:56

No it's every mothers worst nightmare, I'm so sorry I didn't mean to write in such a blasé fashion I was feeding and didn't read back what I had written. I am glad you feel so supported, I am totally with you in letting their bodies fight and heal as much on their own as possible. I have everything crossed that things go as smoothly as possible for your brave boy.
Wonderful news that Artie is doing so well, she'll be racing off before you know it Smile

Mama1980 · 04/06/2014 13:58

And now I'm pressing post too soon, sorry! Blush
Thanks yes I'm chasing after Alex already, he is glued to his big brothers side, always desperate to do more, go faster, my boy has no patience whatsoever Smile

MultipleMama · 04/06/2014 14:22

Oh, Mama1980, I didn't mean to make it sound like I took your post in a blase fashion! I missed out a few words, "I'm just very scared because nobody wants to have to watch their child have to go under the knife, do we?"

I always type too fast and miss out words! Kinda like how I talk (Yorkshire accent, and lazy with words! Grin)

The boys seem to always to take Artie's hand and try "pulling" her along because they want her to play with them but they don't understand she can't walk unaided yet or cruise as fast as they can walk, one of them tried picking her up yesterday - queue screaming fit at being held!

Although she does want you to hold her hands and walk with her... all the time, which is murder on back especially since Halo is always in his wrap (only time he's put down is tummy time, physio and bath time. He hates not being weighted or left alone) and on o2 24/7 so tubes are everywhere.

I bet he's a little energy ball! :)

Valdeeves · 04/06/2014 18:10

How heavy is Halo now MMama?
Mama 1980, my little one is 22 months so not far behind.'
Still only a couple of spots Mama - we can't decide whether she's got it or not !

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MultipleMama · 04/06/2014 18:50

Halo is now a whooping 11lbs 5oz. He lost a good 7oz in hospital and has yet to gain much back but he's now able to fit in the boba insert with no extra blankets needed - finally. Artie is weighing in at 17lbs 7oz! Shock

Hopefully, she's either passed it or just caught a very mild version of it!

Pipsmilkmaid · 05/06/2014 13:50

Hi all. I'm glad your all doing on and hope your surviving the dreaded pox.
Feeling a little down today so thought I'd pop along while ds is asleep and has me pinned to the sofa. Your positivity really helps.
Everyone in my life seems to be pregnant with their seconds and I feel happy for them but rubbish in my self at the same time. I had a missed miscarriage with mu first baby then because I didn't realise my waters had gone, they trickled for over a week, my ds nearly didn't make it at all. I guess feel a bit like I keep letting my babies down and not looking after them properly. I know that's silly but sometimes it just over whelms.
I won't change anything though my boys too precious.

Valdeeves · 05/06/2014 16:47

You can't choose the way your body works Pip - none of us can - it's just luck of the draw how your birth and labour goes. It's not that you weren't looking after your babies - of course you were! It's that something went wrong medically that you can't control.
I feel the same with my daughter, she's got hearing loss and delayed speech and just feel it's because she missed out on the womb time - but I couldn't control that and neither can you. So don't beat yourself up about it. Glass of wine going your way xxxxx

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MultipleMama · 05/06/2014 17:41

Oh, pip. I know all about those self doubts and self blame. I always thought that if I'd drank more water, ate more iron foods, and rested more then maybe Halo would have had more fluid and lasted full term, allowing his sister to be full term too. That if I'd just taken care of myself more he wouldn't have so many lung/heart problems. DH doesn't blame me, yet on days when I see him struggling to breathe or with his SPD, I start to blame myself.

The overall medical cause (which was placed in my notes) of their preemie birth was Oligohydramnios and IUGR in T1 caused by my body's inability to absorb the iron and B12 it needed.

Some days I find myself speaking in medical terms, just to detach myself.

Through all that chaos and trauma. You have two beautiful boys, who are here because your body carried them for as long as it could and held on to a point where they had a chance of survival. I think you should give yourself some credit :)

Our children may have been born early, but they're strong and they show us that everyday :)

Pipsmilkmaid · 05/06/2014 21:21

Thank you both. I haven't gone to find out why he came early yet it's something I need to do but the thought scares me.
Feeling better now hubby came home and gave me a big hug and my son's doing brilliantly he's so determined to get moving at the moment.

MultipleMama · 05/06/2014 21:41

Glad you're feeling better, Pip. We all have those off days :)

Feel like total crab, today. Luckily PiL cancelled their plans to stay at ours to look after DC and me. Which I am so grateful for! Halp and I have literally been sleeping and eating all day.

Artie moved onto a few more solids today. MiL gave her feta cheese cubes today and she loved them. I know you're supposed to wait until introducing dairy products but she's had no reaction/problem with it.

Valdeeves · 06/06/2014 09:34

Feta sounds lovely - hope the weaning keeps going well.
They never knew why mine came early - no information was given. I think it's to do with my bladder but there wasn't any infections.

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Valdeeves · 06/06/2014 09:35

Mama and pip hope you are feeling better today - handing you over a morning cup of tea xxxxx

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MultipleMama · 06/06/2014 10:03

Still got a slight headache but things to do today.

Weather is lovely so currently at the lake enjoying some time with the DC. Halo is passed out on the blanket, the twins are pushing Artie in their twin tricycle, and K & A are paddling the water collecting pebbles :)

We have a 3rd viewing of a house at 4 this afternoon (maybe be buying our 1st house!!) DH has seen it and so have I but we haven't seen it together but we both love the property. So we have to decide what offer to put in for and how quickly we can move.

Any plans for weekend?

Pipsmilkmaid · 06/06/2014 17:20

That sounds lovely multiple mamma. We're hoping to buy our first home soon. It's really hard to find landlords that take children around here. We live in prime commuter territory.
I often get a headache as part of my hayfever when the sun set bright nothing shifts it if it's one of them but I find if ignored it slips away. Hopefully yours will too.
We swim every Sunday my son really enjoys it and it's gelled him learn to sit well. I'm hoping it will help with his crawling too. But other then that this weekend we have no plans. Sunday is open farm day on the UK our local farm are doing events so might pop along after swimming and lunch I'd it's nice.
Enjoy the sunshine everyone.

MultipleMama · 06/06/2014 17:38

Property is like that hete too. The ho

MultipleMama · 06/06/2014 18:06

Property is like that here too. The house we viewed is just a little over 30 minutes away and known for it's family friend area. It's right at the top end of our budget, and it's only 5 bed (master is an attic room w/ensuite) so if we go for it which are 99.9% sure we are we'll need to work out room sharing, plus side is there is still a garage & basement with a garden that wraps rounds. So fingers crossed!

Been a lovely day, headache is fading so hoping for a goodnight's sleep... if Halo manages to let DH put him down - has not stopped clinging to DH since he arrived home from work. Total dada's boy.

Valdeeves · 06/06/2014 23:04

Pip have you tried local honey to cure your hay fever?
My little DD has chickenpox so not much going on here - although there are two big family bdays this wkend. Can't really take family out as little one in quarantine but got a cake and decorations so hopefully we can celebrate at home.

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