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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

915 replies

LucindaE · 06/02/2018 14:30

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.
MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk
If you need help in obtaining medication, phone them on:
024 7638 2020
Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy
I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.
Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

Hyperemesis Support
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9
Anatidae · 13/02/2018 08:47

I found vomiting on the patronising git’s desk helped him see the point.

I will actually deck the next person who mentions ginger to me. Maybe I need a T shirt with ‘the first rule of hyperemesis is Dont Suggest Ginger.’

Boredoftryingusernames · 13/02/2018 08:59

Anatidae good work - that definitely would help get the point across!
One GP said to me that as long as the meds were working well enough for me to keep down sips of water that was fine and the best I could hope for.....apparently not eating for months was just fine Hmm

Anatidae · 13/02/2018 09:09

I’ve heard that too. And frankly I’m sick of it. I’ve asked every HCP who has said that to me (politely of course, but directly) something like ‘I do t think that’s acceptable. Could you carry on with your job, family and work responsibilities if you’re were vomiting x amount and only able to keep dips of water down? It’s. It normal or healthy to be in a state like that and I don’t think it’s acceptable that women are left in that state.’ incomfortable shuffling, i fix them with a beaming polite smile ‘right, so how do we proceed?’

bitzy12 · 13/02/2018 09:52

Another moan from me sorry.....

Been sick twice this morning, waiting on a go to call as I'm going down hill again.

My kids are going to their dads tonight and I won't see them until Sunday now. I've spent no time with them, I shouted at them all day yesterday :-( my son made himself and dd breakfast this morning as I just couldn't manage it.

I know they will have fun with their dad and a better time than I could give them but I just feel so bad I've not done anything with them. They've just been stuck in the house.

I don't know how I'm going to get to the shop to her dh a vday card either x

Emu31 · 13/02/2018 10:49

So sorry to all of you having to fight so hard for meds, and just to be taken seriously. It is so infuriating and as you say sleepybadger just so difficult to advocate for yourself when you are feeling so unwell. Anitidae I absolutely love your response to GP, I feel you should write something on HG as your advice and responses on here are always so so helpful.

So I spent the night in the hospital as they thought I might be developing pre-eclampsia due to protien in my urine. Thankfully they have let me go home for regular monitoring with community midwife and didn't insist on inducing, but it was a pretty crappy night. To be honest though all I kept thinking was this is just a million times better than being in here with my sick bowl in the throws of HG. It's strange to feel so much more listened to and cared for but to actually feel relatively fine in myself!

shez and just sorry your both having a stressful time with measurements/weight of little ones. It does sound like these things are a very inexact science and most often turn out just fine, but that doesn't necessarily help the worry at all. just I really hope it goes ok for you weaning off the steroids, it's so shitty for the nausea to return even if it does feel more manageable than before.

nailsathome · 13/02/2018 12:56

I thought the cyclizine was working so I decided to get up today. I was out of bed for an hour before the nausea hit and I had to come back again.

Does anyone else find meds only work if you're not trying to actually do anything?

bitzy12 · 13/02/2018 13:53

I'm back in hospital. No messing from my gp this time. Sent me straight in without seeing me. No idea what I am ketones wise but I'm on that downward spiral so I'm praying I don't get sent home

Anatidae · 13/02/2018 14:54

Oh poor bitzy :( hugs

Yes nails any exertion, even ridiculously mild, makes me feel dire. I have to have a sit down after I’ve had a shower. Makes me feel so useless. I have to go drive and get my son from nursery now and that’s me floored for the rest of the night. By the time I’ve put him to bed I will just go to bed myself.
I’m so thankful I’m signed off (although als not being paid much.) I honestly can’t manage even simple stuff

bitzy12 · 13/02/2018 15:19

They are sending me home again as keytones are only +1 but they are sending home finally with ondeastron (or however you spell it) he said it's the last thing they will usually prescribe if all else fails so FINALLY I have some. He said with this, he would doubt I would need to come back in again....fingers crossed. I'd do anything to feel normal x

E2017 · 13/02/2018 16:09

I've been back to drs this am as not held anything down at all since yesterday. Scales this am showed I've lost another 1.1kg since Sunday. Doctor said Ketones just below the limit for requiring a drip. Different anti sickness meds now. Been signed off work for a week though as dr doesn't think I'm fit to work and wants me to rest. Fingers crossed that this anti sickness stuff will work.
For the first time I'm considering a private scan just to make sure everything is ok as I've been feeling so rough.
Any advice?

bitzy12 · 13/02/2018 16:22

@E2017 not that it can ever be guaranteed, hypermesis is commonly a sign of a healthy pregnancy. Baby will be taking everything off you as well remember. If you are worried then book one, worrying won't be doing anything to help you feel better x

nailsathome · 13/02/2018 17:02

Thanks anat, sorry you're suffering so much. I was hoping to go back to work next week but I don't think I can.

SleepyBadger · 13/02/2018 17:17

@bitzy12 glad they’ve given you the best available antisickness meds now 🤞 for you they make a difference.

I took my first dose of stematil today and whilst I’m still throwing up I definitely feel slightly more human. I’ve made it on the train...feeling ropey but I have sickbags, lemon sweets, chewing gum and lucozade with me. God knows how I’m going to cope on rush hour tube though. My friend is meeting me at St Pancras so at least I won’t be on my own if I keel over etc! 😬

Low point of the day was having a coughing fit in supermarket carpark which then started non stop retching for about 15 minutes...I couldn’t breathe properly and had tears streaming down my face...what a mess!

Anatidae · 13/02/2018 17:18

I found ondansetron worked for about an hour then I felt twice as bad. Let’s hope it works for you!

I’m now out of drug options I guess :( just a matter of trying to cope as best I can.

Shehz21 · 13/02/2018 18:19

justtheonethen Oh darling poor you. I know exactly how you feel since I stopped Phenergan. The come back of the nausea really gets me down but with other worries popping up atm, I am a big stress ball anyways.
How are you coping?are you being able to keep food down atleast?
P.S - Thanks for the reassurance and explaining about the 90th centile. Nobody bothered explain at the scan.

Ana The perfect reply! Grin
Hope you turn a corner soon if those meds aren't working for you. I remember lying as still as possible on bed for endless days except for washing up cus nothing would work for me. Those early days were really hell on earth.

Bitzy Glad you got ondansetron and fx it works for you.

Sleepy Argh i feel so bad for you about that coughing/retching episode in the car parkSad
Hopefullu the stemetil keeps working for you.

nails Rest as much as you need.
And repeat after me.. YOU NEED REST. forget work as of now until you feel mildly better.

Sorry to all those suffering. Brb puke timeSad

LucindaE · 13/02/2018 18:25

Welcome to E2017 My goodness, I can't imagine what that doctor was up to, not even dipping that stick in the urine! Do phone Pregnancy Sickness Support on 024 7638 2020. They will phone back with excellent advice about getting meds. What the GP says is just not true. Also, do invest in some kesostix, available from any chemists, to help check for the early stages of dehydration. Other signs are dry lips and skin, blurry vision , a headache, and of course, scanty, dark urine. Here''s the list of fluids and what roughly passes for food, which has helped others. Flat full sugar coke, the juice of tinned fruit, ice lollies, Elderflower Water, Lucozade, Fizzy Orange, Dr Pepper, Lemonade, Soda Water, for some, orange juice, sips of chocolate milkshake - maybe soya, ice cubes, tinned fruit, nibbles of crisps and chips, cuppa soup, cheap ice cream and slices of melon and mango. Also, recently, cornflakes and Robinsons fruit squashes have been suggested.
Emu I am so sorry to hear of the pre-eclampsia worry. I am glad they are monitoring things carefully.
bitzy I am glad you have got Ondansetron. Do make sure you get in something for constipation, which inevitably follows. I am not sure if you can get lactulose over the counter? Would the GP prescribe it? Also, some swear by the gelatine suppositories available from Boots. Though they use them in hospitals for pregnant women, the pharmacist won't sell them to a pregnant woman, however. Some brave souls manage to drink Fibregel - goodness knows how.
SleepyBadger You brave thing, staggering into work. Is there no possibility of sick leave? The idea of commuting in rush hour, and as for Kings Cross; I used to go that way myself, my goodness. As you are a veteran you certainly don't need my advice about the need for a laxative for that, and how an anti acid really helps, too. That anyone should recommend ginger to you after three previous Hyperemesis pregnancies astounds me!
sonypony Little and often is very annoying, too, however well meant.

Anitidae Much sympathy. I hope things get better soon. Shoes would have been a fine target, too.
justtheone Glad it is 'only' nausea.
Bored That is an excellent tip as doctors so often assume you must be exaggerating wildly.
Another annoying comment is one from midwives: 'You can't vomit, if you haven't eaten.'
Apologies if I've overlooked anyone.

OP posts:
Endora44 · 13/02/2018 18:27

bitzy so happy they've finally given you the ondansetron. I imagine it will help a lot towards feeling more normal, if not completely normal. word to the wise, get some glycerin or an enema to keep at home, because ondansetron causes constipation. i really hope it helps you!

sleepybadger and Ana - don't you love how people assume that you've never heard that ginger is soothing for an upset stomach. You're sick countless times a day but you must be from Mars because -hey, it never occurred to me to try ginger, thanks so much for the suggestion Shock Wink

nails I am with you. If I'm sitting in bed, on the meds, I feel like maybe I'm not so sick, but as soon as I try to do anything, I'm weak as a shaking leaf and sick. Don't remember who it was just yesterday, maybe justtheone who advised me to remember that the meds are helping, but it doesn't mean that I'm not sick, it just means that I'm sick and dependent on the meds to feel some semblance of normalcy.

Had an appt with my midwife today. I've lost so far 7 kg this preg. She was alarmed I think. I don't know why. I've been sick all day everyday for 2 months. That's a long time of malnutrition and starvation. Day in and day out, when you complain of being sick, it doesn't move them, but when they see a big number of weight loss, that worries them. Hmm. It really disproves the theory of not being able to lose weight when your body goes into starvation mode.

I have to start checking my blood sugar daily starting tomorrow because my blood sugar was just over normal limits on the last test. Joy. Anyone here have experience with that?

Don't know what's going on this preg. Every few weeks it's something else. First my thyroid, then magnesium deficiency, now this. Like HG wasn't enough.

nailsathome · 13/02/2018 18:35

I've eaten a pancake whoop whoop!

Anatidae · 13/02/2018 18:41

I think thyroid dysfunction in the early part of pregnancy is found in a significant portion of hg sufferers.

You know if I was still a researcher I’d be writing g grants to study this. Something systemic is at the root of this. I feel ill - not just nauseated but all the symptoms I have with actual infectious illness / tiredness ‘sickness behaviour’ shivery, crawling skin, aching muscles. The lot. It’s like I’m having an immune response.

I find it fascinating but it’s so so awful to feel so bad for so long.

Dh has been appalled tonight by my informing him that when I’m sick it comes out of my nose too. I thought that was normal?? He’s horrified. I’m so out of it at the moment I gave him his valentines choc today - convinced it was today!

Bah. Hugs to all, I’m jealous of your pancakes!

LucindaE · 14/02/2018 11:41

Endoorra Oh dear about such a weight loss. As you say, why is the midwife surprised? Maybe they always believe that you must be exaggerating a bit - because so many women do complain of awful pregnancy sickness in the mornings, but are able to eat lunch and dinner, so they see it as only a more severe version of the same and somehow don't take in what you say? It's hard to say. Much sympathy.
Anitidae and about through the nose. I remember that from my run in with Hyperemesis, and really bad migraines. It's alarming, as you can't breath at all, and it really stings.
I have heard that Hyperemesis is associated with travel sickness when younger, menstrual problems, particularly menstrual migraine, cystitis, and that helibactor virus (spelling). I have no medical training, but I have noticed that lots of people on the thread seem to suffer from some or all of those, but not necessarily. As you say, it seems to be part of a bigger pattern.
nails Wonderful about the pancake. Did you manage lemon and sugar too? I haven't eaten any because I forgot it was Shrove Tuesday! .
I hope everyone is coping.
I am so annoyed with my PC,and the people who were supposed to have fixed it. It may need to 'go in' again - admitted for the PC equivalent of fluids - and the library is closed this afternoon and on Thursday. I will be down on Friday. I am sorry. Blush

OP posts:
LostMyBaubles · 14/02/2018 12:19

Shez when is your next scan?

My youngest was over the 4.5kg mark.
Natural delivery. Not cuts/ tears. Fantastic delivery compared to the previous ones. Don't want to go into too much detail as i don't want to scare anyone.

So sorry to hear some are struggling to get medication! It's disgusting.
Gps should be doing more to help.
There's a new gp (not too new lol) that I specifically ask for when booking appt as I know he goes of what the patient looks like as well as symptoms etc rather than text book. He's fab. The gp I tried to get telephone appt with (as my fav gp was on hol) didn't speak to me, refused to give medication and booked me in for accupunture. In that time I had developed uti most likely from dehydration which is what happens to me as I've got kidney problems.

Bitzy how are you feeling?

Ana the carrot made me lol!

Sorry if I've missed anyone had a fair bit to catch up on.

Someone asked me how many weeks I was. According to first and second scan I should she been 10weeks today but according to the one I had this week im 11 weeks tomorrow! I don't mind a week vanishing like that lol

Natsku · 14/02/2018 16:11

I have to start checking my blood sugar daily starting tomorrow because my blood sugar was just over normal limits on the last test. Joy. Anyone here have experience with that?

I had to do that for a few days after one of my results on the GTT was borderline. Not too fun - get those tiny little plasters to put on your fingers after pricking. They were able to tell after a few days of testing that my levels were fine and that one was just an anomaly (although I just read my discharge notes and I've apparently been diagnosed with GD despite not having it...)

Endora44 · 14/02/2018 17:39

Thanks Natsku I had an appt with a dietician consultant today and she was actually extremely understanding about HG and the difficulties in changing my diet right now due to having a very limited list of safe foods. Since I am so early - GDM isn't generally diagnosed before 24 wks, and I'm just 14 wks - she is willing to work within my constricted diet. Hopefully it won't be too difficult. I found a very helpful website detailing the change in mindset between HG and GD, so I suppose it isn't too rare to have both. Interestingly, the consultant said that GDM is known to cause nausea.

LucindaE · 14/02/2018 18:26

Mother Hen sighs with relief. My PC in fact, was able to keep on going with some of that team viewer stuff from Mario the Computer Man who is back again.
Endorra I am so glad that she understood the excessive restrictions of your diet. Great advice from Baubles and Natsku.

OP posts:
Anatidae · 14/02/2018 18:37

Yeah I’ve read about h pylori too!

Having GD on top is just awful - I hope you can get some specialist advice on how to deal with that, it sounds very difficult to cope with. Hopefully the sugar reading was a blip. They don’t do GTT here as routine unless you meet about a million criteria (overweight plus certain ethnic backgrounds plus high sugars.) I assumed I’d get tested but apparently not (bloody Sweden, so laid back they are horizontal...)

Tell them to feck off with the acupuncture lost unless they can provide peer reviewed clinical evidence it works (spoiler, they can’t.) you can’t be fobbed off like that. What a waste of NHS resources as well! You need proper treatment!