Hyperemesis Support

[LucindaE]

I hope everyone suffering from the Horrors of Hyperemesis will find this thread useful as a source of support and information.
There's no TMI on here - can't be by definition - and nobody should feel ashamed of moaning as much as they feel the need to.
MOH's wonderful website is full of useful information on this illness:
sites.google.com/site/pregnancysicknesssos
Another invaluable website is:
www.pregnancysicknesssupport.org.uk
If you need help in obtaining medication, phone them on:
024 7638 2020
Lastly, the NICE guidelines on treatment are useful:
cks.nice.org.uk/nauseavomiting-in-pregnancy
I would like to thank everyone who has given such invaluable support and advice on this and on previous threads.
Remember when you are at your worst, 'This Too Shall Pass'. It really will.
So many women on this thread have thought they couldn't get through this, but they did.

Thinking of winky too

Urgh Just that's terrible assessment of you, glad you stood up for yourself and told the doctor to re-check your urine!

just that is so shitty, am so sorry you've had to fight for treatment and spend all morning sat in a&e whilst you're feeling so awful. Why do they make it so hard? There is research which has been promoted by pregnancy sickness support to say that ketones shouldn't be the main thing that they are using to check dehydration now anyway (even though obviously yours were very high in the end) and they should be looking at other signs like dry skin around the mouth (!) To be told you are looking well when you are feeling like death and just want to be looked after properly must feel like a proper kick when you are down. I do despair sometimes. Hoping you get the fluids you need asap and get some better treatment. Virtual gentle handhold coming your way.

Sorry I haven't checked in for ages, there's been loads going on in the thread and sounds like lots of suffering all round, waves and hugs to all. I've thankfully had a few much better days in a row which has been a lovely relief. Really hoping this might be the sign of a more sustained improvement, and that the dreaded 30 week relapse doesn't hit me next week.

Shehz how is the spd? Did you have any joy finding a physio privately? Mine improved quite a lot but seems to have come back a bit lately, am walking like an 80 year old.

Totally agree with everyone about hating pregnancy. I really thought it was going to be the most wonderful time, and that I was going to feel and look amazing. It's been the total opposite and I think we shouldn't be made to feel bad about hating it, or not wanting to do it again (nobody will believe me that I won't put myself through it again).

Lucinda it's interesting to hear a bit more about you and about the thread, it's such an amazing support and you run it so brilliantly - always on hand to say just the right thing. It's been a lifesaver for me.

Sorry this is so long!

Emu Thank you! What a lovely thing to say. It has been hectic on here of late.
justtheone Steam is coming out of my ears . Somebody was negligent -imagine if you had been sent home with 5+ ketones. Outrageous. Besides, they must have asked about, as others say, other symptoms, and if you had manaaged to retain liquids in the last 48 hours etc etc.

It really annoys me that if I hadn't fought to be tested properly I would have been sent away. How the nurse thought Iooked well I don't know.

Ended up in maternity ward, on second bag of fluids and feeling better already. They are keeping me overnight. The doctor here was annoyed I haven't been referred to an obstetric consultant.
So much nicer in maternity than a&e, actually feel like I'm being taken seriously.

Just That is awful! I am glad you're feeling a bit better now though . How do you check your ketones at home? I am good at keeping liquid down now though, I can tell because I am doing proper wees most of the time including first thing in the morning, so I don't think I need to worry about dehydration atm. I'm about 3kg lighter than I was pre-pregnancy but still in the normal BMI range though. I can't believe I haven't lost more weight because I feel permanently hungry but I guess it's because I'm eating tiny things that don't fill you up but are actually very high calorie.

Lucinda Yes to echo the others you do a great job. I am also an active trade unionist Goats, so that makes at least three of us.

I am vomiting less over the last two days, whenever that happens I start to feel really guilty and like I should be back at work but then as soon as I start to try and move about I vomit loads again. One part of me feels like I need to push myself in to work one day just to show people how horrendous that would go but then I think I shouldn't have to make myself even more sick just for people to take me seriously.

Re: MH, mine is getting worse by the day. The last two days I've been crying loads. I'm in the last fortnight of coming off my anti-depressant now and having horrible physical withdrawal symptoms so I was like a cabbage most of yesterday and in bed the vast majority of today too. I am wishing I was dead a lot and thinking about self-injury too - I used to self-injure on-and-off all through my adolescence but eventually managed to kick that habit and it's been a number of years now but when I feel very low the thoughts pop up again. I am wondering whether to mention this to the GP when I call later this week for my sick note or whether there's no point? I don't want to take medication and I don't think I could/would comply with any kind of talking therapy.

Meadow sorry to hear your MH is worsening too. If it helps, you are not alone in this battle.

I absolutely think it's worth mentioning to your GP. Do they know you're coming off the AD's? I also think it's worth telling them about the self injury thoughts and views on potential non-compliance. If I've learnt one thing recently it's that im not the best judge of my own health - I'm having to be uncomfortably honest with health care professionals so that they can guide me. I say this as a very senior health care professional who regularly fails to heed own advice or admit that I need support!!

Get all the help you can, this is horrific and we need others to help us through it.

Winky if you're reading this, I just want you to know I've been thinking of you and I hope you're ok

Just I actually have no words!! I said to my mil who is a dr about this and she said ppl make mistakes, gobsmacked. If my dr had said nah no ketones I'd have accepted that. Well done for stand g your grounds I hope you better.

Sorry Meadow, I honestly think mh cbt should be offered as standard with hyperemisis.

I hope so too emu. Iv been bad but it isn't as bad as the first trimester well I say that I don't know if it helps that we are in the last weeks.

Nat that sounds stressful with the fundal measurements and blood stuff. Hope you got to enjoy some baking and birthday celebrations for the cat lol.

Nat that does sound worrying as she is not taking you seriously.

Just that sounds absolutely horrific. They were so negligent I am glad you are in maternity where they know what they are doing. Hopefully they will let you contact them directly if you ever need to go in again rather than having to go to A and E.

Winky I was also thinking of you today. I hope you feel better and that you have good support.

Lucinda how wonderful that your daughter is a vet. You must be so proud of her.

I have had a much better day today. I managed to keep down my lunch which was Yorkshire pudding, mashed potato and vegetables. Somehow that makes a huge difference to my mental wellbeing.

There was talk of cake earlier. I had a piece of lemon drizzle cake on Sunday. It was wonderful. There is something about lemon which does make things easier to eat somehow.

I do apologise to everyone I have missed.

Oh Elephant I read your post at 5am this morning it was a bad idea too much food chat . I'm so glad you managed those yummy things though it does help to eat.

Meadow you need ketostix to check ketones. I got them off amazon but the chemist sells them.
Also think you should go to gp: do you need to come off meds?

Mustang really pissed me off, I get that people make mistakes but this guy was a knob. All imperious and "we have been checking urine for a long time" . "Try some buccastem."
Twat. If I hadn't insisted I would have been sent home with off the scale ketones and meds I told him wouldn't work. I'm going to complain as ketones shouldn't be used for diagnosis anyway, it should be patient reported/obvious signs like all the skin peeling off my face.

I've missed lots as not well read back beyond my last post. Sorry.

Was sick again last night but feeling a bit better this morning so should be going home.

Lucinda how lovely that your daughter is going to be a vet how long have these threads been running then? Fantastic that you've kept the support /advice going for so long, it's so vital especially to people who can't move without throwing up!

just that's bloody awful, I'm so glad you're being taken seriously now

meadow yes I think you should be honest with the hcp about how you are feeling. It's not easy, I know

I have started the ondanestron this morning and haven't been sick once it's definitely much better than the cyclizine. Hopefully this is the start of feeling more human, though I'm only 7 weeks today, so still plenty of time for things to get worse. Awful thought, the last week or so has been hellish enough and the thought that this is just

Posted too soon! The thought that this is just the start fills me with dread, that should have been!

Hi all. I got as far as being on the bed ready for sedation and I walked out. I couldn't do it. I had too many of other people's opinions going round my head and I felt guilty. Needless to say I regreted not getting it done as it would have all been over now. I have booked back in but it is miles from me and I don't have anyone to take me. The first appointment was bad enough in its location but this one is even worse. Jesus Christ why in the world do I get myself into this mess.

Oh winky poor you . Huge hugs and here if you need to chat.

Oh winky I'm sorry, much love and strength to you

I need strength. I truly do.

to Winky and everyone else struggling.

I spoke too soon about feeling better. weeks 14/15 I felt a lot better - almost normal some days - but now (just over 16 weeks) I’m back to vomiting. Couldn’t even keep porridge down today, which is something I’ve normally been ok with.

I’m so, so fed up.

Justtheonethen I swear my 1st instinct when I read your post about the Doctor being a smug know-it-all piece of shit and tryna send you home, instinctively made me want to come wherever you are and give him my 2 cent
I really feel helpless and pity myself when I get dismissed like that by Drs and wish I had someone to advocate for me, so really understand how much you must have hated having to fight for treatment but proud of you girl to have fought your way and received the the treatment you needed!
I would have probably gone home while accepting my lame fate but the surge of rage I felt at your post,I wish I had that for myself as well...
So glad you are feeling better this morning and hope you are home by now cosy in your bed

Lucinda I have to say I have been in absolute awe of you ever since I was desperately looking for a hyperemesis thread on here during my very early weeks and saw a thread from 2012! Kept searching until I came across the current one and tbh I had no hope/idea that someone could have run this thread for so long but you did despite having given birth 24 years ago! I am so thankful for this thread for all the amazing support and advice, very honestly this is one of the reasons I still have my sanity and this baby. A huge thank you and hug to you! You run this thread so amazingly and I will definitely miss you and my other HG sisters a lot once this whole mess of a pregnancy is over!

Goats Yay for the ondansetron helping! You will soon be over the worse and while you are in the pits of it, remember to rest a lot,sleep the days away, don't ever miss out on a dose of ondansetron and moan away as much as you want with us here, we are all gonna be here to support you

Meadow Really sorry about your MH taking a toll because of HG. If it continues agravating in the next few days, maybe you could give a call to the GP earlier than planned and do mention the self-injury thoughts. My mind was in a very dark place(still wanders there sometimes) and I got brilliant support from the MH team when referred by my midwife. Hope you get the help you need soon.

Winky Oh love I'm so sorry.. Hand hold here.

Bunny I was at the same when I got into the second trimester. It was more of a 1 good week then 2 bad weeks and the same kept going on until now , only change is its more of balance of 2 bad weeks and 2 good weeks or good week-bad week-good week-bad week.
Argh I hope I am making sense,I tried to explain it to my level best while still being dazed from lack of sleep
Keep on top of the medecines though and REST REST REST

Sounds like everyone is having a tough time :( Hope everyone is feeling better soon!

I'm now 33 weeks and I THINK my HG has finally decided to subside......... I don't want to jinx it but I am having very few nauseous days and haven't been sick in 2 whole weeks which is crazyyyyyyy! I'm still taking some anti sickness tablets but have cut them right down now. Honestly never thought I'd make it out of this HG hell but it looks like i might finally be!! Now just to deal with the ICP itching which is driving my CRAZY and SPD which is leaving me almost unable to walk.... I just don't do pregnant very at all :(

spearo Big HURRAY!! This is like the best news for me today,if one of you feels better on the HG front I feel like one battle won to HG! I'm taking this very personal I know don't mind me
In bed with severe SPD here as well but I am sure the relief from HG must be making up for the rest of the pregnancy related woes!
For the itching did you try piriton? Works well for me most times
Do keep the tablets handy though just in case but praying you don't need them ever again!

Oh bunny, the old 16 week relapse. Rest up love

Shehz I'll stick up for you! I don't know where I found the strength to be honest but I was so desperate. I was sobbing throughout so it wasn't too kick ass!
I'm so angry about it.

Lucinda totally second what the others have said. You're our HG heroine. What would we do without you? Interested in what books you write now!

Goats ondansetron is the nuts! As shehz says NEVER miss a dose!

Spearo that is fantastic!!!!

Home now. They suggested I add cyclizine to my ondansetron/metoclopromide/ranitidine cocktail. Figure it can't hurt and at least I'll hopefully sleep more days away.
They have said I can go straight to mat assessment unit from now so no need to go to a&e.

Winky

Justtheonethen It's great you can go to maternity unit directly now, the wait in A&E is horrible with a big H! My cocktail is very similar to yours with avomine added in the mix instead of ondansetron. Yessss to sleeping the days away. Oh such a relief to wake up everyday knowing I am a day closer to the D day.

I ended up calling triage yesterday due to a random bleed and really bad upper abdominal pain as well as baby hardly moving and was instructed to come directly to mat unit.
Had a listen to baby's heartbeat and everything ok, checked cervix still closed and I was given cocodamol 10mg for the abdominal pain.
Oh and never knew I had to get the anti D injection whenever I have a bleed or blow to tummy as I am rhesus negative and hubby is rhesus positive.
Oh well the joys of pregnancy

Oh shehz that sounds scary! Glad you got some reassurance and baby ok. With that, the HG and the SPD you aren't having a good time of it at all.
That reminded me that I had to have metoclopromide as an intramuscular injection yesterday- massive bum injection