Another posifrickintive thread for those pregnant after miscarriage #4

[Treaclepie19]

Welcome aboard ladies - bumps big and small :)

metal glad you've got a harmony test booked. It's what we'd do in your position. Fingers crossed that shows everything's fine. What crappy news x

ginger things never seem to get easier do they. Have they given you a date for the amino? Hope you're surviving ok x

Welcome zeu

amnio is tuesday. the dr we spoke to seemed quite optimisitic about the limb things being corrected if that is the only problem. he did also say he didnt think it was chromosonal. on my notes it says 'exclude trisomy 18' which to me means rule it our for certain. looking at the symptoms online the issues with my baby dont seem to fit either.

it says vacterl - more likely. even that though from what ive read up on so far should be a combination of things and although these wont all be able to be seen on the scan they dont seem to fit either.

i an just hoping that it is just deformities as such and nothing else to be concerned about.

i know this sounds really silly but after my mmc i just never expected to have something like this happen.

that thread would be helpful if you could find the link.

i kp thinking whether i should or shouldnt have the amnio. been reading online people who refused them and had healthy babys. now i know it isnt going to magically grow a leg but if they are just physical disabilies do i need an amnio?

ginger and metal I am sorry you're going through such worrying times. metal I hope you get the reassurance you need from the harmony test. ginger it's a totally personal decision but I think amnios are low risk these days.

i know i keep swinging. when we were at the hospital my first thought was have the amnio and if anything happened following it it was probably going to anyway. then i flip to why risk it. i guess for peace of mind? if i can get through this pregnancy knowing its just going to be a bad leg and a club foot that needs to be fixed it doesnt seem so bad.

metal and ginger I am so sorry to hear you have added worries.

metal I hope the harmony test can reassure you. As others have said, scary that they call it high risk but very good odds everything is fine.

ginger I can see it's a very hard desicion to make and a very personal one. As you say having the amnio would rule anything unseen out and allow you to focus on the know physical things. Is there anyone you can discuss the amnio further with, doc/midwife, to see exactly what they are trying to check for? I think though, you have to go with what feels right for you though. Good luck

they want to rule out trisomy 18 and probably trisomy 13 and 21. ive got a number for arc im going to ring to discuss. i think i will have to go through with it as i dont know how i would cope going full term and having a problem. i know we all handle things differently but i really suffered after my mmc and it was only this pregnancy that pulled me through properly.

metal re the HCG levels, i have just been through this and most hospitals want it to be 1, they consider 1-4.5 acceptable, then above 4.5 to indicate a potential for higher BP in late pregnancy. I had no idea about this comparison, they dont advise you of it. Anyway, basically having spoken to the screening midwife she said that it is completely possible that a recent miscarriage could mean your body produces far too much hcg to protect the pregnancy, or that it may have been twins, but there is a thing called disappearing twin, where the twin doesn't make it past very early stages.

So with regards to treatment, they offer extra scans from 28 weeks, so one a month along with extra bp checks. I have currently declined further consultant care as i feel the risk is low and plan to home birth. They sometimes suggest aspirin before 20 weeks and bp medication if your bp creeps up

Hugs ginger a good friend of mine has a boy with vacterl so if you want/need to discuss that at all I can point you in the right direction

Hugs ginger a good friend of mine has a boy with vacterl so if you want me to point you in the right direction for info and support for that let me know x

Thanks for that info topsy. I don't think my mmc can be classed as 'recent' (it was a year ago) and I don't think it could've been twins as I had my first scan at 6+6 where there was only one embryo. I did have some very high BP readings at the beginning but only at the doctor's, so put it down to white coat syndrome. The midwife I spoke to didn't say anything about the HCG apart from that it was "very high".

thanks brickie.

ive looked on the vacterl association site but it doesnt sound like what were looking at unless more things present after birth?

is your friends son doing well? the dr we spoke to said his niece had it too.

My friend didn't know anything before birth, it wasn't picked up on ultrasound scan. Only once born did they realise he had an impreforate anus and look more closely at him. He had the tof and ea and vertebra abnormalities. He doesn't have any radial deformities though. It's an association with a vast vast spectrum of occurrence.
He's a great boy and good friends with my boy of the same age. He'll always have health issues to manage but you wouldn't know it when you meet him.

im sorry i dont know much about this at all, what is tof and ra? also what does radal difficulties mean?

im glad it sounds like he is doing well.

He had tracheo-esophageal fistula and esophageal artresia. His trachea and esophagus were basically plumbed in the wrong way round plus interconnected and had pouches on them. He had surgery for that immediately after birth.

Ginger and Metal thinking of you both.

Tori I didn't realise your little one had arrived! Congrats!!! There is actually a thread of the mc board for baby photos. - celebrating success after mc. It's a separate thread so people can look if they want

ok thanks brickie and thank you everyone else.

next week will be tough will try and keep you updated. thanks again.

thanks sunbathing really appreciated.

trying to debate whether to go to work or not tomo. i think i need the distraction but its a big place and lots of people know im pregnant and scan was today so worried about answering questions.

Oh no, some tricky news to digest on here today

metal, I have the exact same odds as you re Down's syndrome - 1:85. We declined the amnio and cvs because of mc risk and we didn't go for the harmony either because it would not make the slightest bit of difference to us as we don't believe in abortion. The only thing it would have given us (apart from huge dent in wallet!) is the worry for the rest of the pregnancy re whether the downs is severe or mild as no test can tell you this. The consultant we saw for counselling told us that yes 1:85 is in theory classed as high risk but there's still a huge chance baby is super duper average too. She had counselled a couple last year who were given a 1:1 chance of downs and you know what? Baby came with not a single sign of downs at all! then she said about a lady who had received 1:100,000 chance but had a baby with severe downs so what the actual point in all this testing is, I shall never know! It all depends on what you'd do with any further test results really and only you and your dh can discuss that. One final thought though.... If you were a gambler and you saw a horse with odds of 85/1, wouldn't you say it was a rank outsider? Xxx

ginger, equal hugs to you too. You must be so worried as well. As others have said, could you search on here for more info of other babies who've had the same or similar? Hope you find some answers and your test goes ok next week x

Ginger metal so sorry to hear about the difficult news today. Metal can only echo what others have said- The odds are upsetting of course but there's still a very small chance of downs. The amino decision is so hard I imagine but I do think that the risks from what I've read previously are not quite what they were

thanks envious and everyone else. ive tried looking for similar on here and struggled but will read what envious has found. thanks.

Oh Metal that must have been a horrible phone call to receive. As others have said though, although it sounds high it might not necessarily be. I haven't got any experience of the harmony but it sounds like a few of the others have. Fingers crossed for you xx