Hi Kiwi - we're getting DD1 a clock from Mothercare that shows them when it's time to get out of bed. I think it's called a Groclock - anyway, it's here and meant to be quite good. But only, I guess, if your DD1 is happy to do as told. The other thing my friend does it put her DD to bed with a few books in her bed and tells her under no circumstances to come out until called to on pain of no treats!! Can you put her to bed later? It works with our DD1, but not DD2.
So, sadly have had bad news on Dad. Honestly, this is like emotional rollercoaster from hell. He met with the radiographer yesterday and the new tumour in his leg is very aggressive and growing very fast. As a result, he now needs 3 weeks of radiotherapy, not the 5 days as originally thought. So it means he won't be able to get his final summer in North Wales, where he loves so much. Fortunately, he popped up for a week last week and managed to play some golf and go sailing, but he won't get the time with his grandchildren that he was so hopeful of. And, the horrible reality is that he probably won't be around to do it next summer, or if he is, he'll be terribly ill.
I know that's not the be all and end all, but it does seem like extra sand thrown in his face. The radiotherapy won't get rid of the tumour, but will hopefully stop it growing and will help with the pain. Mum says he is frequently grey with pain and can hardly manage the stairs any more. She wants to move his bedroom downstairs at home, but he won't hear of it yet. I think he doesn't want to admit that that time has now come. I think they'll wait til after the radiotherapy, unless the pain really does get too much. Sadly, they can't operate on the tumour if the radiotherapy doesn't work, as it's too near his vital organs. And he is now too weak to have chemo again. It would kill him.
He's off to the hospice on Friday to talk about pain management and get some massive painkillers. All rather horrific and depressing. I think we've had a lovely reprieve and now the real business of cancer is setting in. It's going to be a taxing time for a while. Mum said Dad was in floods last night, just with the pain and from having to tell us the bad news. Although he did want to do it himself. Must be so very very hard for them both.
Anyway, must go and play with my little bears, who are a welcome relief from my weeping and gnashing of teeth!
x