Pro-Cuts Rally

[smashingtime]

I wonder if this rally will be given more air time than the 'Hardest Hit' one on Wed. AIBU to think this is going to be seriously inflammatory?

It would be bloody great SWC and a vastly more effective 'therapy' than those involving constant meeting, awareness sessions, care pathways and data bases, overseen by earnest sorts getting off on their overriding concern for society's 'vulnerable'.

God yes.
My sentiments entirely.
Were 3/4 of the special needs 'community of professionals' effaced from the earth, it would only be a good thing.

My number 1 piece of advice to parents is to say 'Just becasue something is offfered does not mean it will benefit you. If it causes more hassles/upset than benefit, let it go.'

I'd rather have hot pins driven throguh my eyes than have people intefering in my life (althoguh sadly, many have ot for various reasons)

(haven't yet decided which way to go, but teachers being amde redundant at rate of knots locally so wondering if there's any point in that any more!

The lcoal community farm supplies it's cafe with veg grown by Sn people on their allotment, I would lvoe ds3 to do that; he does want to be a gardener and I think could certainly help out on that sort of scheme. OK so won;t be raising fancy pure bred orchaids and day soon but watering cabbage and planting up tomatoes he is fine. DS2 as well is not academic but wants to follow my sister down the animal route- he tends to have a worm or seaslug handy, very Gerald Durell, and it will suit him to a tee.

MD your sentiment is IMO bang on right; I have to say i worry about some of teh therapies pushed becuase of the time parents feel they ahve to give to the ASD. Sometimes it fits with a family but I think for many tehre is less stress and more value just in being a family and showing love and doing family things as far as you can; ASD doesn;t go away so a decision to back off whilst stress is at it's highest around dx / statementing stage is not irreversible a year or so later on.

Am thinking about contacting SSD to see if they can help me set up a siblings group as Young carers no longer accepts sibs; won't hold my breath though!

Oh and yes; friend has a former farm in Devon that now houses carnival club and land. Loads of adults to keep an eye, friendly dogs to run with, jobs to do or ognore at will (manual stuff, [ainting etc)- ds3 clearly cannot go atm and ds4 is too young but I reckon for teh older two it's by far the ebst therapy available: freedom. Safe freedom. And whilst it's a fair drive (did I damn that bridge enough? ) it's cheaper than most other things people try and flog you....

No Peachy, go for the course-either!
Much easier to effect change from within the system than the outside.

Remember what Nixon said?
'Better to have them in the tent pissing out than outside the tent, pissing in.

'I have to say i worry about some of teh therapies pushed becuase of the time parents feel they ahve to give to the ASD. Sometimes it fits with a family but I think for many tehre is less stress and more value just in being a family and showing love and doing family things as far as you can.'

Yes, absolutley.
The issue also with swathes of 'professionals' is that it disempowers people-makes them believe they are helpless automatons and only the 'professionals' know what they are dong, which would be laughable were it not so sinister.

Goes back to original point-cut state sponsored inteference to an absolute minimum and never be afraid to cut throguh the jargon and concerned but pitying looks and papers, and meetings. Ask
'Is this doing me or my family any good?'If not, tell 'em to bugger off.

Well yes I would agree MD ecept thatr eality as I see it right now is that youc annot cut it back becuase the minimum still isn't ther. I took a beating from ds1 today; have told SW I fully accept he may kill me. Am still waiitng for treturn of carers assessment but have been told nothing meets our needs so nothing offered.

From that, what do you remove?

Friend's son has ASD, GDD, is blind, severe LD- been refused resi at 18 as she is not dying or abusing him.

This is it; there's core services that should always be available and they are no longer there. relying on otehrs is a great idea and I am helping a lcoal single mum with after school care tomorrow so do try, but thr's nobody I woudl trust ds1 to on a meltdown; mum maybe but she's in Somerset and can't drive. I know from experience that if you put the boys in the car when ds1 is on one then you won;t amke it past The Celtic without an injury.

So what do you cut without putting people at risk? Snu bases? Respite where it is? Statements? Otherwise as far as I can see there's nothing left.

I'd do an FoI request on how much 24/7 residential care costs and wave that at them.
Or if desperate, bring on a breakdown.
Or do a sit-in.

Embarrass people in short.

We could have fewer meetings and email sending and much more practical help such as trainnig up a SWAT team of trained childcare providers. We always thought that would be a great business idea-SN and CB friendly babysitiitng.,

I'd do that but of course the tenancy forbids! Actually tooms for anything are a big issue: tried to set up an ASD group for local kids last eyar but coudn't find a lcoation; SSD wanted me to either pay ££ to rent myself, or drive to teh otehr side of city. There's helpful and there's mug- and I don;t have the cash, just the time and will.

There's an Sn Nanny at uni; clearly being at uni she is dedicated but she does make a fair amount from it so there is demand.

Dh did have a breakdown ywo yeras ago but we were asked to prove it was the ASD. And how do you do that? . I don;t do breakdowns I am afraid, well only brief ones. not in my make up; too many generations of matriarch in my genetics . Basically if you won't kill the kids then you're not a concern to them. I know that from my homestart days, I used to beg them to remove kids and they wouldn't (they being SSD) even bother putting anything in at all.

It's my opinion that a lot of the issue is with education; if you get proper qualified professionals teaching SN kids and inputting instead of know nothings who either want to help but ahve no training or fell into it through chance, then chidlren mightmake better proress and need less anyway- if you send the chidlren home stressed then things WILL go tits up. I don't think anyone should be allowed to teach SEN / SN without some accredeitation in the field. Teachers get too much of a chance to make a difference to waste. yet it's what- half day on SEN locally. Useless.

I'd also look at more flexible intervention; had ds3 been able to access some base / some MS he may have been able to stay that way throughout ecucation saving ££££. the terrible mess they amde of his MS year has removed any chance of him accessing MS again. Short termism is of course the enemy of proper economic stability: if £££ put in aged 4 saves £££££££ aged 36 it's obvious (esp. given length childhood comapred to length adulthood) but it's all separate budgets and governments so won't happen.

Oh i've got stats from 2004 stating care in resi + care package was arund £2k per week; ds1 would probably need a secure placement so extra on top, and then with 3 ASD kids...........

Well yes. Suddenly CA and DLA seem a cheap way to hold it together for famillies like ours.

But then I explained to the DWP that if weould have the same childcare credit as others but use for an au pair / Sn Nanny it woudl make things so much more doable (we being carers); nada. Because carers are worth the mmoney even if they don't want to admit it.

And the rest!
I agree.
I owuld have respite for families with challenigng kids as a nUMBER ONe prority-for everyone's sakes.

'I don't think anyone should be allowed to teach SEN / SN without some accredeitation in the field. Teachers get too much of a chance to make a difference to waste. yet it's what- half day on SEN locally. Useless.'

And this
SEN education standards are diabolical amd so variable.Not the teachers fault-they are given so little meaningful training it is pathetic.

No it isn't teacher's faults absolutely (although the old SEN Lectuerer on the PGCEs at local uni tells me it was the most skipped session as the student teachers saw it as irrelevant to them- they dont want to teach SEN so won't right? Okaaaaaaaay LOL. Coz that works in the real world).

But it's something the professions as a whole can address. Not including our local school I have seen some of the worst and best etaching of ASD kids lately and it's sp easy to tell why: whetehr the teacher wanted to be in that class, and whether they had bothered to elarn basics such as transition.

Mind I know of a base with 80 kids in that thinks it only has one ASD pupil; makes me almost want to laugh (or weep) , when I visited for a day I could have pointed out so very many......

wow well about time want the benefits reduced to £0 and let them bloody starve if they don't want to work well done David

And my disabled kids maypole?

ou gomna explain to them why tehy cant eat

fuckkheaded wankery no brained shite that you clearly are

And do I dont care if I am deleted. It's still true

Actually I don;t wish a car crash: you will have so many people who love you who do not deserve that

I wish there was a way you could know how it feels for a while without there being any comeback on those who are innocent, but there is not.

wish I hadn't opened this thread
maypole1 Wed 18-May-11 19:19:33
wow well about time want the benefits reduced to £0 and let them bloody starve if they don't want to work well done David

I hope you learn the hard way and second what peachy said, bloody hell you are an arse imo

Anyone who says it won;t hit the genuine claimants
Just had a letter from MAria Miller

(Go on someone tell me she is labour and anti tory or summat )

Apaprently disability income will be cut after UC comes in for all but teh HR DLA recipients. Now the only difference is night care: someone on MR care may need total attention and be impossible to get care for but HR only applies to night caree needs (in fact I have one of each). I will lose mroe than I gain by enough that I finally have to apply for housing in the next 12 months.

So- teaching places in Wales cut dramatically beciuase fo 40% unemployment in profession.

SW MA bursary cut so i can;t do it.

Tories- the party of opportunity eh?

Yes, the 'no cuts to frontline services' is certainly an interesting claim. We've lost 1 of 3 specialist nurses and 1 of 2 specialist physios. This is not a cut?

If there's 40% unemployment in the profession then it makes sense to cut teaching places as there is already an oversupply of labour so why train more and excerbate the problem.

Sorry the above post should be on a different thread . I've reported it to get it removed.

inappa I agree

Still, after spending years and years already getting my degree etc in place that does not help me does it? I wanted to teach a nice subject so have a niche degree (RE).

Am still applying, have enquired about other training as well in fact but when a SN Nanny here charges more than most jobs I could take X2, my options are very limited: tesco will not cut the mustard basically. Not becuase I don;t want to work there but becuase my basic costs are far higher than other people's.

Am not saying cut is wrong- just that it has kncocked my cahnces agian. And I am now ready to give up.