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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
Mrsorganmorgan · 06/04/2021 22:16

Signed

mumsiedarlingrevolta · 06/04/2021 22:16

signed. x

chocolateoranges33 · 06/04/2021 22:19

My MIL had MND. Just signed and I hope it gets the funding it deserves.

FreakinFrankNFurter · 06/04/2021 22:25

I’ve signed. Sorry for what you are going through. Wishing you and V well x

noblegreenk · 06/04/2021 22:25

Signed xxx

tsmainsqueeze · 06/04/2021 22:30

Signed , thinking of you .

debsrose56 · 06/04/2021 22:35

Signed, so sorry you are going through this ❤

Atreus · 06/04/2021 22:37

Signed x. My mum had MND and died 6 years ago. Sadly no treatments then and still very little that can be done now so research funding desperately needed. Thank you OP for highlighting this, sending you warmest thoughts.

sodoffmenopause · 06/04/2021 22:37

Signed x

HedgeSparrows · 06/04/2021 22:44

Signed this very worthy petition

Ikeatears · 06/04/2021 22:45

I've signed. Seen you on fb. V is beautiful (as is her mummy) sending much love to you both.

JanuaryJonez · 06/04/2021 23:52

I've signed it.

Sending you huge love OP.

Gibbonsgibbonsgibbons · 07/04/2021 11:30

Bump

LunchBoxPolice · 07/04/2021 22:30

Signed and shared.

HarrietLong · 07/04/2021 22:35

Signed Flowers

wizzler · 08/04/2021 08:19

Bump for the morning crowd

Gibbonsgibbonsgibbons · 08/04/2021 11:26

Bump

Gettingthereslowly2020 · 08/04/2021 16:29

93006 signatures! Can we get it up to 100,000?

GiantKitten · 08/04/2021 16:41

I’ve just signed (93035) and posted it on my FB.
MND is such a horrible thing, it’s quite shocking to hear how underfunded it is.

Gibbonsgibbonsgibbons · 08/04/2021 20:19

@Gettingthereslowly2020

93006 signatures! Can we get it up to 100,000?
Good question!
Shimmyshimmycocobop · 08/04/2021 20:24

Signed Flowers

GiantKitten · 08/04/2021 21:53

93995 now!

LadyWithLapdog · 08/04/2021 22:00

94,023

There’s a response from yesterday, although a lot of it refers to Dementia research, rather than MND.

Best wishes to you, OP, and to all those struggling with this disease.

Gettingthereslowly2020 · 09/04/2021 19:24

96349, we're getting there!

Wishihadanalgorithm · 09/04/2021 19:27

Signed