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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
CaribouCarafe · 31/03/2021 07:18

Signed Flowers

Chilver · 31/03/2021 07:18

Signed [heart]

efc1878 · 31/03/2021 07:18

Signed, my Aunt had MND. This disease needs to be a priority in terms of research. Just reading your blog on Facebook. Thank you for all the campaigning you do.

Eatingsoupwithafork · 31/03/2021 07:19

Signed

SukiPutTheEarlGreyOn · 31/03/2021 07:19

Signed. Wishing you and your family strength and thanks so much for alerting us to the campaign. Flowers

WitchesBritchesPumpkinPants · 31/03/2021 07:21

Signed 65,200 now & climbing.

I'm so very sorry, I can't imagine what you're going through. We know what are scientists can do, let's hope they get the funding to do it! X

I don't do Facebook so I can't follow you on there, but I'll be thinking of you.

BlueSuffragette · 31/03/2021 07:24

Signed. I can't even begin to imagine how hard it is for you OP. Flowers xx

zen1 · 31/03/2021 07:25

Signed. You are in my thoughts OP. MND is truly devastating.

Effinell · 31/03/2021 07:26

Signed.

I'm local to Doddie Weir and he has raised so much awareness of this devastating disease. My DD smiles every time she sees the Doddie bus. We've not been out and about for a while though so we've not spotted it for ages. Thinking of you and your family ❤

Heronsnest · 31/03/2021 07:26

Signed.

Pashazade · 31/03/2021 07:26

Signed.

Redskyyy · 31/03/2021 07:27

Signed

canary1 · 31/03/2021 07:27

Signed xxx

Notavegan · 31/03/2021 07:29

I've seen you and V on the family Facebook group. My auntie died of this awful disease. Signed

ABrushWith · 31/03/2021 07:30

Signed.

Ladydayblues1 · 31/03/2021 07:32

Signed Flowers

25yearsnhsworker · 31/03/2021 07:32

Wow your posts on Facebook are so moving.
I am so sorry you are going through this.
Signed.

Misspacorabanne · 31/03/2021 07:34

I'm so sorry op. I've signed xx

Roselilly36 · 31/03/2021 07:36

Of course, I will sign and ask everyone I know too OP.

So sorry you have received a diagnosis of MND, such a cruel disease, that effects too many good people. Handhold to you & DD. Flowers.

Well done for raising awareness, people suffering the effects of MND, must not be forgotten, medical research must be funded, I have MS and have taken a couple of different disease modifying drugs since my diagnosis officially in 2014, there is no cure for MS either, however there are a good choice of DMD’s now, all thanks to research.

If a DMD could be found to help MND patients that would be a huge step forward. Hoping that day will come very soon.

YouTediousShit · 31/03/2021 07:36

Signed, shared, following and sending much love and strength ❤

BlowDryRat · 31/03/2021 08:14

Signed. FIL died of MND before I ever met him. It's a cruel disease. I'm sorry OP Flowers

DumplingsAndStew · 31/03/2021 08:21

Signed (everyone please remember you need to confirm your signature by clicking the link in your email or it doesn't count)

Good luck.

TwoBreakingIntoOne · 31/03/2021 08:35

Signed
I work with people with MBD. Its a horrible disease
Hasn't there been a recent breakthrough and trials for a treatment?

Foo2 · 31/03/2021 09:05

Signed OP, so sorry you're having to deal with this Flowers

kissmelittleass · 31/03/2021 09:49

Family signed too ❤️👍🙏🏻