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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
lockdownvino · 09/04/2021 19:28

Signed

ElysiumFeels · 09/04/2021 19:39

Signed, shared and emailed my MP.

I wish you courage and strength OP x

wheresmymojo · 09/04/2021 20:48

Signed Thanks

HastingsIsSuckingDiesel · 09/04/2021 20:55

Signed- 96745, almost at 100k!

MrsPerfect12 · 09/04/2021 21:02

Signed. I hope the medical funding comes thought. Wishing you all the best. X

EachandEveryone · 09/04/2021 21:11

Signed

Vickles20 · 09/04/2021 21:13

Signed x

nzborn · 09/04/2021 21:28

Signed x

persistentwoman · 09/04/2021 21:34

Signed Flowers

AnnaFiveTowns · 09/04/2021 21:40

Signed X

GingerFigs · 09/04/2021 21:43

Signed! X

ImSoMagical · 09/04/2021 21:44

Signed and shared x

SciFiFan · 09/04/2021 21:48

Signed x

youvegottenminuteslynn · 09/04/2021 21:58

Signed and it's now on 96,993 signatures.

You're so brave and I'm really sorry you're going through this OP Thanks

champions55 · 09/04/2021 22:09

Signed and I'll share it too.

I'm so sorry that you have this horrible disease. I do hope they find a cure but even something to slow down the speed at which it progresses would be a gd start. My fil is very ill with mnd and it's just heartbreaking 😢

WillBillHal · 09/04/2021 22:21

Signed and thinking if you. I've followed your story on social media as my Mum died from MND last year.

Muchtoomuchtodo · 09/04/2021 22:22

Signed. You’re amazing and I’m sending lots of love x

itbemay1 · 10/04/2021 05:34

Signed. Hugs OP

whiteroseredrose · 10/04/2021 07:53

Done. Very close to 100,000 signatures now.

wizzler · 10/04/2021 11:16

Bump again

Gibbonsgibbonsgibbons · 10/04/2021 12:40

Lunchtime bump
98,572 signatures

Genehuntsfanclub · 10/04/2021 12:57

Signed 💐

Gettingthereslowly2020 · 10/04/2021 19:24

99658! Almost there!

GiantKitten · 10/04/2021 21:43

Over the line!
Thank you, @MummywithMND, for reminding us Flowers

I'm dying of MND and I need your help. Please.
Kitkat151 · 10/04/2021 21:59

Amazing!! but sad too....God Bless OP x x