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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
chickenfordinner · 31/03/2021 00:39

I've signed. X

SoEverybodyDance · 31/03/2021 00:40

Signed, so sorry you are going though this OP... good luck.

biscuiteer · 31/03/2021 00:46

Signed. Thank you for your words

octoberfarm · 31/03/2021 00:46

Just signed too. I'm so, so sorry you're dealing with this OP, and am keeping everything crossed that this petition brings lots of positive momentum Thanks

Mogs43 · 31/03/2021 00:49

I've signed - I am so sorry about what you and your family are going through. Terrible.

Elasticizer · 31/03/2021 00:50

I wish I could do more, but I’ve signed. Wishing you the best.

Cherrysoup · 31/03/2021 00:52

Hello sweetheart. I signed and shared the shit out of this when I saw it on your Facebook. I love your pics of V! She’s amazing! ♥️

Myamoth · 31/03/2021 01:06

Signed xx

IdblowJonSnow · 31/03/2021 01:06

Also signed OP.
Wishing you all the best. Flowers

naggynora · 31/03/2021 01:08

Signed. My heart goes out to you both x

Karmakamelion · 31/03/2021 01:11

Signed x

Glitteryone · 31/03/2021 01:18

Signed ❤️

halfgirlhalfturnip · 31/03/2021 01:21

Signed 💓

imsoinmyhead · 31/03/2021 01:22

Signed. So sorry you are going through this

NorthernBirdAtHeart · 31/03/2021 01:23

Signed and really hope funding gets increased. Love to you and your family x

Seeingadistance · 31/03/2021 01:24

Signed.

Love to you and yours.

NameChange74567 · 31/03/2021 01:24

Signed 💖

MissBattleaxe · 31/03/2021 01:26

Signed.thank you for bringing this to our attention. I will fight harder thanks to you. Xxx

IHateCoronavirus · 31/03/2021 01:30

Signed with all of my ❤️

VonWeasel · 31/03/2021 01:33

Signed and thinking of you Flowers

WinterRose92 · 31/03/2021 01:38

My heart goes out to you ❤️ Signed xx

subbysammiexoxo · 31/03/2021 01:46

I have done one better and contacted my constituent lead, in the hope they will raise it further x

Justilou1 · 31/03/2021 02:01

Oh darling... I lost my dad to MND. No words. If only I had a magic wand.

kissmelittleass · 31/03/2021 02:01

Signed and will forward to family, with lots of love and prayers for you op 🙏🏻❤️

CatChant · 31/03/2021 02:07

Signed. You and your little girl are in my thoughts. Wishing you all the best.