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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
gallileofigaro · 06/04/2021 20:49

Signed x

Robieuni · 06/04/2021 20:52

Signed Flowers

Terrysmyorange · 06/04/2021 21:05

Signed

Gibbonsgibbonsgibbons · 06/04/2021 21:13

Bump

sconenotscon · 06/04/2021 21:15

Signed xx

follygirl · 06/04/2021 21:15

Signed

Titsywoo · 06/04/2021 21:27

Signed. I lost my uncle to MND a few years ago and one of my best friends husbands is living with it (14 years after diagnosis) which is very hard for them all.

ChippyDucks150 · 06/04/2021 21:32

Signed. I follow your blog on FB and wish you nothing but love x

GreenTeaPingPong · 06/04/2021 21:33

Signed.
I'm so sorry that you and your family are experiencing this.

AnneShirleysNewDress · 06/04/2021 21:40

Signed OP. Sending love to you and your gorgeous family.

doctorhamster · 06/04/2021 21:46

Signed Flowers

Blackdog19 · 06/04/2021 21:50

So sorry this is happening. I’ve signed for you OP

Morechocmorechoc · 06/04/2021 21:50

Signed

Glitterandmud · 06/04/2021 21:51

Signed x

ShellieEllie · 06/04/2021 21:54

Signed. Now at 82738 signatures,

hangsangwitch · 06/04/2021 21:54

Signed and shared.

I’m so sorry for you. My husband lost his dad to mnd when he was 17, and we lost a very dear friend to it a few years ago. It is a truly devastating disease. X

Lovemusic33 · 06/04/2021 21:54

Signed

RufustheSniggeringReindeer · 06/04/2021 21:59

Signed

Crunchiedelight · 06/04/2021 22:00

Signed x

wanderlustgirl · 06/04/2021 22:03

Signed for you x

peanutbear · 06/04/2021 22:05

Signed x I do hope the government sit up and listen and you get your funding x

Oblahdeeoblahdoe · 06/04/2021 22:07

Signed x

CallaMonkeys · 06/04/2021 22:11

Signed x

tiredoftiers · 06/04/2021 22:12

Signed and shared on Facebook. Destructive cruel disease. My heart goes out to you and your family

ladygindiva · 06/04/2021 22:13

Signed x