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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
MirandasMumIsSuchFun · 31/03/2021 10:01

Signed this, my Dad died of MND end of 2019, broke our hearts, I am so sorry you are going through this

minnie465 · 31/03/2021 10:07

Signed. Thinking of you and your little girl OP Thanks

Kitkat151 · 31/03/2021 10:10

Signed
Sending love x

DrSbaitso · 31/03/2021 12:17

Your daughter is really beautiful.

Gothichouse40 · 31/03/2021 12:23

My lovely, generous and kind-hearted cousin has this awful condition. Signed and will ask others to do so. We already lost another family member to MND. One thing I don't understand, years ago MND was rare, why is it so prevalent now?

luciles · 31/03/2021 12:27

Signed Thanks❤️

Katekeeper · 31/03/2021 12:29

Signed.
My best wishes to you Flowers

dancemusicsexromance · 31/03/2021 12:36

Signed Thanks
Shared and donated. X

FlyingLoo · 31/03/2021 12:40

Signed Smile

PurpleWh1teGreen · 31/03/2021 12:48

Signed. I wish you well OP.

HappyInL0nd0n · 31/03/2021 13:01

Signed. So sorry for your situation. Good luck x

bettyboo40 · 31/03/2021 13:06

Signed. I lost my dad to MND. Wishing you well

RaininSummer · 31/03/2021 13:09

Signed. Thank you for raising awareness of this petition and best wishes.

Iwanttoliveinnarnia · 31/03/2021 13:11

Signed 💐

shreddednips · 31/03/2021 13:11

Signed, and sending love and best wishes to you and your family OP Thanks

PeggyArmstrong · 31/03/2021 19:17

I have already signed and have now forwarded the petition link to family and friends x

lightsoutminty · 31/03/2021 19:21

Signed x

nocoolnamesleft · 31/03/2021 19:27

Signed.

wizzler · 31/03/2021 20:24

Already signed so just bumping

Pinkappleblossom · 31/03/2021 20:31

Signed

25yearsnhsworker · 01/04/2021 08:27

Signed but bumping

Chimeraforce · 01/04/2021 08:33

Signed. All the best I'm sorry this happened to you.

TheSockMonster · 01/04/2021 08:39

Signed

Gettingthereslowly2020 · 06/04/2021 20:44

I hope more people sign this and it can get up to 100,000 signatures

WitchesBritchesPumpkinPants · 06/04/2021 20:48

82,378

Still a way to go...

Bump bump bump