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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
migmogmash · 31/03/2021 06:42

Signed and shared when I saw your post on SEU.

All the best OP, I hope it gets the 100k soon Thanks

munchbunch12 · 31/03/2021 06:44

Signed and shared X

StrawberryLipstickStateOfMind · 31/03/2021 06:44

Signed. I'm so sorry OP and truly hope that the government increase funding x

CloudFormations · 31/03/2021 06:45

I have signed. I lost a dear friend to MND several years ago. He was only in his early thirties, and such a wonderful man. I’m so very sorry you’re experiencing this Flowers

AlwaysColdHands · 31/03/2021 06:53

Signed, and all my best wishes to you and your family x

LazyDaisy22 · 31/03/2021 06:54

Signed and my very best wishes to you 💐

piddocktrumperiness · 31/03/2021 06:55

Signed OP
What a cruel disease
Best wishes to you

Wiglio · 31/03/2021 06:57

Signed xx

Apocalyptichorsewoman · 31/03/2021 06:57

Already signed on SEU 💐🐎 x

Namenic · 31/03/2021 06:59

I’ve signed. Thank your for raising it to our attention.

AwaAnBileYerHeid · 31/03/2021 07:03

Signed ❤

2021mumma · 31/03/2021 07:04

Signed. I’ve been following your story for a while. Sending you lots of love.

GlendaSugarbeanIsJudgingYou · 31/03/2021 07:04

Signed.

Fishlegs · 31/03/2021 07:05

Signed Flowers

Elefant1 · 31/03/2021 07:06

Signed. My grandfather had MND.

Forevercurious · 31/03/2021 07:07

Signed & thinking of you Flowers

DipSwimSwoosh · 31/03/2021 07:11

Signed

RaskolnikovsGarret · 31/03/2021 07:12

Signed xx

brokengate · 31/03/2021 07:12

Signed.

Doddie weir is a family friend of my Inlaws and resides in our locality. I had the honour of attending his tartan giraffe ball and have never, ever in my life had such a magical, wonderful, yet emotional evening.

Sending strength and best wishes OP. I will share this far and wide.

FAQs · 31/03/2021 07:12

Signed x

Grandmaschickensalad · 31/03/2021 07:12

Signed. Good luck xxx

Albern · 31/03/2021 07:13

Signed the petition - good luck with the campaign x

Dashel · 31/03/2021 07:13

Signed and I really hope that the government step up with this.

overnightangel · 31/03/2021 07:15

Signed x

CrunchyCarrot · 31/03/2021 07:16

Signed. I knew a brilliant doctor who died of MND many years ago. It's a dreadful disease. I hope this petition kicks some backsides into action.Flowers