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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
CustardyCreams · 31/03/2021 02:12

Signed. Wishing you the best, I’m so sorry for your diagnosis.

BensonStabler · 31/03/2021 02:13

I have signed 💙🎗I hope you reach your goals. You are doing incredible and helping so many others.

Horrendous Disease. 😭

I am so sorry you have been dealt this truly unfair hand in life. I hope you are surrounded by loved ones and supported throughout. I wish you to be well enough for as long as possible so you can enjoy the precious time you have left with your beautiful Baby girl. Her Mummy is a true warrior. Praying for a breakthrough.

~ Sending you and your family much love and strength. Flowers xx 💕

ismiseeire · 31/03/2021 02:15

I'm sorry to ask, but what is MND? I have googled, but can't find anything which makes sense. I'm sorry to hear that you're suffering, whatever it is.

msssm · 31/03/2021 02:19

Signed. I truly hope it helps 💐 xxx

Jenasaurus · 31/03/2021 02:25

Signed it x

braceletsandbangles · 31/03/2021 02:27

@ismiseeire

I'm sorry to ask, but what is MND? I have googled, but can't find anything which makes sense. I'm sorry to hear that you're suffering, whatever it is.
Motor Neurone Disease.

Signed OP Flowers

3beesinmybonnet · 31/03/2021 02:28

Signed. My mother died from MND 11 years ago. You are so brave OP and I wish you all the best. xx

@ismiseeire
this link will explain MND for you
www.mndassociation.org/about-mnd/what-is-mnd/basic-facts-about-mnd/

EnglishRain · 31/03/2021 02:35

Signed x

Izzy24 · 31/03/2021 02:36

Signed. I’m so sorry OP.

Jeds55 · 31/03/2021 02:42

Signed. I hope it reaches it's target. Thinking of you and your little girl

Fueledwithfairydustandgin · 31/03/2021 02:49

Signed and wishing you all the best x

JockTamsonsBairns · 31/03/2021 02:49

Signed it. I'm thinking about you and your wee girl, and I'm so sorry.

Tess3 · 31/03/2021 02:50

Thoughts with you OP its a horrible horrible disease 💐
Signed and shared on Facebook in the hope it will get more signatures.

ismiseeire · 31/03/2021 02:51

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Stopyourhavering64 · 31/03/2021 02:53

Signed....I have 2 friends who have had relatives succumb to this dreadful disease, I also work in medical research so know the importance of increasing funding and hope a cure or better treatment can be found

MercyBooth · 31/03/2021 02:54

Signed OP. Im so sorry you have been diagnosed with this cruel disease. Flowers

ismiseeire · 31/03/2021 02:55

I hope that you can get it to the 100k. I see that the government have not yet responded despite the required 10k. Very annoying. Until one of their own get it - then it will be looked at. God forbid, but that's how they work.

MercyBooth · 31/03/2021 02:57

shared on fb

pinkprosseco · 31/03/2021 03:04

Signed. Thanks

thesecretvoter · 31/03/2021 03:09

Signed xx

patchysmum · 31/03/2021 03:17

signed

Oneeyeopen · 31/03/2021 03:34

Signed.
Good luck to you and your family.

WomenAreBornNotWorn · 31/03/2021 03:36

Signed and shared.

MrMeSeeks · 31/03/2021 03:41

I am so very sorry for you&your little one. It is a cruel disease.
I wish you well, you are so brave.

CuriousSeal · 31/03/2021 03:42

I'm so sorry OP.

My uncle died from MND.

Signed x