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Petitions and activism

I'm dying of MND and I need your help. Please.

251 replies

MummywithMND · 30/03/2021 23:43

Will you be the women I need to back me?
There have been some very dark days in the time since my diagnosis. I remember the months right after where I would sleep, fitfully, then wake at 4am and sob over V's cot telling her how sorry I was. I remember falling and breaking bones; never to walk again. I remember standing for the very last time. I remember the realisation that I couldn't breathe well enough to keep myself alive...

I also remember finding out that funding for MND research was unjustifiably low and it felt like a kick in the guts. How could I ever hope for a cure with under four million pounds a year?

Now I need you.

The government are listening, they are talking to us, but we don't yet have an agreement and we need to show them how important this is. I need you to fight for us.

Sign this petition, led by Doddie Weir, to tell the government that you want 50 million pounds over 5 years to fund targeted MND research

Sign the petition because MND is devestating and 1 in 300 people will get it.
Sign the petition because 200,000 of the current UK population will die of it.
Sign the petition because MND is not incurable it is just under funded.
Sign the petition because my beautiful little girl needs her Mummy.

Please. Sign it and ask everyone you know to sign it ❤️

petition.parliament.uk/petitions/564582

  • [edited by MNHQ to remove personal info] *
OP posts:
Abi86 · 31/03/2021 03:44

Signed

adeleh · 31/03/2021 03:59

Signed xx

slowtik · 31/03/2021 04:00

Signed for you. Thanks

wizzler · 31/03/2021 04:16

Signed

TitoTipples · 31/03/2021 04:51

Signed. x

wishing3 · 31/03/2021 04:55

Signed xx

IsadoraQuagmire · 31/03/2021 05:06

Signed and shared x

Effiegee · 31/03/2021 05:07

Signed ❤️Xx

Suzi888 · 31/03/2021 05:10

I know someone with this, devastating. SignedFlowers

Tartyflette · 31/03/2021 05:15

Signed. Hope you get the help you need soon.

YouokHun · 31/03/2021 05:16

Signed and tweeted Flowers

1frenchfoodie · 31/03/2021 05:46

Signed. It is a devastating disease and I don’t know why it doesnt have a higher profile and more funding.

SpeckledyHen · 31/03/2021 05:58

SignedFlowers

Marylou62 · 31/03/2021 05:59

Signed..XX

IloveZoflora · 31/03/2021 06:03

Signed. Xxx

DrSbaitso · 31/03/2021 06:04

Signed.

leafygarden42 · 31/03/2021 06:05

signed x

vivariumvivariumsvivaria · 31/03/2021 06:06

You are doing so much good by highlighting this horrible condition and it's disgraceful funding gap.

More power to you.

And signed, obvs.

correctprocedure · 31/03/2021 06:16

Signed x

Fluffytheevil1 · 31/03/2021 06:20

Signed, hoping it gains many more signatures 🙂

JayAlfredPrufrock · 31/03/2021 06:27

Signed. ❤️

BuddhaAtSea · 31/03/2021 06:32

Signed. ❤️

carrotsx5 · 31/03/2021 06:34

I'm so sorry OP. Signed

pinklillie · 31/03/2021 06:39

Thinking of you. I've signed and shared this too. Daffodil

Lostlemuria · 31/03/2021 06:41

Already signed, my good friend is part of this campaign, she also has young kids and is dying. This needs more attention xx