Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Other subjects

Zombie's Surgical Adventures and Beyond

960 replies

IamtheZombie · 09/11/2015 17:02

There's still plenty of room for posts on the current thread but I'm starting this one now as I may be offline for some time.

I've asked iklboo to keep an eye on my FB timeline and to copy / paste the updates here so they should appear as and when.

Make sure you have your chianti and fava beans ready for the 11th!

OP posts:
Thread gallery
32
FattyNinjaOwl · 02/03/2016 21:50

I'm sure she wouldn't mind.

BewitchedBotheredandBewildered · 02/03/2016 22:12

It would just feel a bit high handed.

Wish some of the others were around.

IamtheZombie · 02/03/2016 22:13

I saw the post but didn't click on the link. Sounds like a wise decision as I really can't do gory.

Today was my 3rd good day in a row. It wasn't quite as productive as yesterday but not far off. All in all I'm quite pleased and proud of myself.

I have an Oncology Clinic appointment at 1.30 tomorrow afternoon. I should get the results of my CT scan. It doesn't look like the QEHB have reported my MRI results to my oncologist yet. My appointment with the Liver Clinic when I was told the results was 2 weeks ago FFS. How long does it take to write a frigging letter?

I have a few things I'd like to do in the town centre so plan to leave home around 9.00 / 9.30am and use the Park & Ride. That will at least limit what I buy to what I can easily carry.
smile emoticon

After the appointment I'll call into Sainsburys for a few items. When I get home I think I'll award myself the rest of the day off. Don't want to push my luck too far. Grin

OP posts:
BewitchedBotheredandBewildered · 02/03/2016 22:25

PomPoms for 3 good days in a row Z

Make sure you get a lovely treat from Sainsburys.

magimedi · 02/03/2016 22:31

Major apologies to all - have just asked for post to be deleted - done in a hurry & with Wine .............

Am I forgiven??

BewitchedBotheredandBewildered · 02/03/2016 23:16

Of course you are magi, there but for the grace an' all Smile

Glad you turned up.

And extra glad it turned out to be a mistake Shock there was always the possibility that you thought it was fine!

clincalissimo Phalanx Smile

BewitchedBotheredandBewildered · 02/03/2016 23:39

It didn't seem very Doobie Brothers either.

Can people just piggy back anything they like on to YouTube clips?

magimedi · 03/03/2016 08:25

I am guilty of not watching the whole clip before posting it!

Lesson learnt & am glad to see it has gone.

Fiderer · 03/03/2016 08:40

Must admit I wasn't entirely sure who the Doobies were & may have confused them with the Beach Boys.

Quick check on YouTube brought up a v pleasant West Wing mix which was just the thing to stop me actually doing what I should be doing this morning. I'm now teaching a drama class and I've done it before but not with giddy 10 yr olds and not in German.

So I am now making soup Hmm

IamtheZombie · 03/03/2016 18:43

As expected, my oncologist hasn't yet heard from the QEHB with the MRI results. However she is also concerned about my liver as the CT scan shows a couple of unidentifiable areas. These may just be residual something or other from the surgery or it could be something serious. The good news is that my bloods and liver function are "perfect".

She rang the liver surgeon as she isn't happy about waiting 4 months for the next MRI; she'd rather it be done at 3 months. She also needs the MRI so the radiologist who reviewed the CT scan can look at them side by side. She gave the surgeon her mobile number and asked him to get back to her this afternoon or evening.

If my current chemo is no longer controlling the cancer she wants me off the current regime ASAP. There are apparently several chemo drugs still available to try.

BUT, none of them include Herceptin (for the HER2+). Also at the moment there are no other HER2+ drugs available in the UK. She and some other oncologists are trying to get approval for a clinical trial for a new drug. She will also search the country for any existing clinical trials that may include Herceptin as part of the regime. I must say it had never really occurred to me that I might have to travel somewhere else for treatment. As my cancer is heavily HER2+ I really, really need a regime that includes something which targets that. Other chemo drugs may help but without blocking the HER2 receptors they won't be as effective as they could be.

So yet again I wait. I will continue with the current treatment until more information is available.

Bastard fucking cancer.

On a slightly brighter note I snuck in a MaccyD breakfast and my shopping foray into Shrewsbury town centre was 100% successful.

OP posts:
Fiderer · 03/03/2016 19:42

Your oncologist seems v good. Glad to hear your liver function is 'perfect'

Bugger about the drugs.

Wish I were nearer, I'd give you soup. Won't cure you but might take your mind off things for a bit. Plus a glass of Jameson.

Fiderer · 03/03/2016 19:48

Blimey 'Won't cure you' is incredibly crass, you know what I mean Zombie

IamtheZombie · 03/03/2016 19:59

Grin Grin Grin

I do know what you mean, Fid. But you were right, you know. Nothing will cure me. It's all about controlling it from now on.

OP posts:
Fiderer · 03/03/2016 20:08

Might cheer you up a bit to hear that FidGirl would really like you as a virtual godmother - not sure how that works but she doesn't have another one so you can't be outvoted.

Fiderer · 03/03/2016 20:15

Missed a Wink there

Grin
BewitchedBotheredandBewildered · 03/03/2016 20:19

Big bugger about the drugs.

As always your care team sound excellent Z

100% successful retail therapy is a rare these days, whoopwhoop GrinWine

iklboo · 03/03/2016 20:49

Damn bugger fuck and a side order of wank spanners about the drugs Z. Again, everything crossed that the 'something' is nothing sinister or serious and easily dealt with. You do sound like you've got an excellent team and are in very good hands.

Yay about the retail therapy and the MaccyD. Are you resting up for the weekend?

daffodilsandbooks · 03/03/2016 20:51

Hi Zombie, I just wanted to stick my head in and give my love and warmest best wishes for hopefully smooth times ahead Flowers

Mummylin · 03/03/2016 21:08

Bastard fucking cancer indeed Zombie. I do hope that what they have seen turns out to be something innocent. Hope they will be able to sort out ASAP the drugs that you need to take. Thank god you have a good team looking after you. Flowers

magimedi · 03/03/2016 22:32

Your team sound great, Zombie

But another 'fuck cancer' goes up to the rafters from me.

FattyNinjaOwl · 03/03/2016 22:46

Cancer can fuck off.
But perfect liver function means you should be drinking more gin...Grin

BewitchedBotheredandBewildered · 04/03/2016 22:21

Grin good prescription NinjaOwl

IamtheZombie · 06/03/2016 00:50

My passport expires in 6 weeks. I have everything organised and tomorrow I will fill in the application to renew it. That has to be done online and then immediately printed off when complete. I also need to download and fill in the authority for the application fee to be charged to my debit card. On Monday I will ring the authorised courier company to arrange for them to collect the above and deliver them to the American Embassy in London. Then I wait for my new passport.

I do have to make one decision about an option on the application. Do I order just a “normal” passport or do I order the one with extra pages? At renewal there’s no difference in the fee. My expiring passport is full. I’m just lucky the last couple of stamps were squeezed in.

One thing of which I am certain. This will be my last passport. It will be valid for 10 years – until April 2027. There’s most probably less than one chance in a million that I’ll still be around in 5 years, never mind 10 years.

Over the last couple of weeks there have been a few extremely exciting announcements about advances and breakthroughs in treatments for many kinds of cancer. The “cure” word is even being used. If true, these advances will be the most incredible things to have happened in my lifetime. But it’s almost sure that they are coming just that little bit too late for me. The clinical trial protocols need to be completed. Then it will remain to be seen which, if any, of them the NHS will fund. Nope. I don’t have that sort of time.

I probably won’t need the extra pages passport after all.

So, now I’m thinking about “lasts”.

My birthday is only 7 weeks away so odds are excellent I’ll see another one of those. But, will it be my last? I like birthdays. I like feeling that there’s a special day for me (and however many other millions who share it). I haven’t been able to celebrate my birthday since 2011. In 2012 I was in the midst of my first regime of chemotherapy. In 2013 I was recovering from a Large Loop Excision of the Transformation Zone (LLETZ) to remove severely abnormal cells from my cervix. In 2014 I was 5 days post-op after my second mastectomy. In 2015 I was suffering from chemo side effects and becoming progressively less well. I became so unwell that just 8 days after my birthday I was admitted to hospital for what turned out to be a 5 week stay. Five weeks during which there were times when not even the staff could be sure whether I’d live or die.

This year (2016) I have chemotherapy the day before my birthday. Even if it’s a good cycle I won’t be up to celebrating that weekend. But, as there is an outside chance that this will be my last birthday, I want a celebration to end all celebrations. So I’m thinking of delaying the celebration for a week. That would be appropriate in another way. Michael’s birthday was exactly a week after mine. Well, technically it was 8 years minus 1 week before mine. It could be a double celebration. I’m still thinking about the logistics. I can’t host the party I want to have at home. I need to pick a city, find a venue, find a cheapish hotel to recommend (and book myself into) and then just throw it open and see who wants to come along.

What other “lasts” are there? I’ve already been through several. I won’t detail them but realising in retrospect that they are done is painful. Parts of me have already died. I mourn for what has gone. But I must accept that they are indeed no longer part of my life.
What about travel? Will my new passport be unused? It will be difficult, but, NO it fucking well WILL be used. I WILL go to Kos again. I WILL go to Virginia again. I WILL cruise again. I may well only be able to do each of these one more time but do them I will. I hope.

What about Thanksgiving? It’s not done here in the UK and I do miss it. If I can I may try to make that my Virginia visit. Waifs and Wastrels calls. I hope.

Christmas. Ah, Christmas. We’ll have to see if I make it that long.

The really HUGE question is when will I have my last active treatment for my cancer? Do I go on grabbing frantically at every option offered to me? Even if/when those options continue to debilitate me to the point where the things I WANT to do recede ever more rapidly into having been the last. Or do I have my last treatment while I’m still “well” enough to go out and exploit my bucket list to the max?

I’m not asking for advice. These decisions must be mine and mine alone.

OP posts:
FattyNinjaOwl · 06/03/2016 00:58
Flowers I can't imagine what you're going through.
BewitchedBotheredandBewildered · 06/03/2016 02:49

I know you will have been contemplating all these things for a long time and can really understand how the passport renewal brings it all right to the frontal lobes.

I can't imagine you doing anything but grabbing frantically at every option and every bit of information.

AS you say, you are the only one who knows how you feel and how much you can take, fgs you've taken more than most people would/could.

As Ninja says, I/we can't possibly imagine what you're going through.

Team DBF has your back and the Phalanx is on parade, flags fluttering.