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Neurodiversity support thread for women with suspected, diagnosed or self-diagnosed autism, ADHD and other NDs #18

999 replies

PolterThreadStarter · 14/06/2017 07:01

As usual, latest support thread.

Welcome Easter Smile

OP posts:
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29
Oddgirlout · 18/10/2019 08:48

Hi all,
I know this thread is pretty dead, but I wanted to ask: has anyone had any luck changing diet to treat asd symptoms? I'm thinking sugar doesn't agree with me particularly but not sure about anything else

toffee1000 · 18/10/2019 17:43

I know some people adopt a gluten-free/casein-free diet, particularly for their kids, but from what I’ve heard there’s no real evidence that it makes any difference to ASD symptoms.

Oddgirlout · 19/10/2019 08:43

Thanks, that's what I'd heard too. I was more thinking low carb/no sugar. Thought it might help me be more 'even'. Also no caffeine etc. Perhaps I should just give it a go. Hate changes though!

toffee1000 · 19/10/2019 18:30

If you think it’ll help from a health perspective then go for it! Change can be difficult, yeah, so maybe do it slowly? Maybe cut down gradually.

minisoksmakehardwork · 13/11/2019 18:41

Good evening. I recently, well 5 months ago, asked about an assessment for me after the dc's came back and disunion about similarities between me and them. Chased it up on Tuesday only to be told no referral had been made! Several phone calls and a very apologetic practice manager later and the referral has been done, I've apparently been successful for phone interview/questionnaire and something else which the practice manager said reads like the mental health people have spoken to me - they haven't. No missed calls or messages.

feedingfrenzyatfive · 07/12/2019 21:44

I posted here a couple of years ago under another user name which I cannot find a link to. Glad to catch up really.

@toffee1000 - glad to hear that the civil service have improved. They weren't great employers to me and getting PT employment was impossible as my son has ASD and I struggled to work FT. They promise loads but don't follow through.

WeirdPookah · 09/12/2019 18:01

I had a phone assessment last week and told that I will be being taken forward to in person assessment at some point. Possibly about 2 months wait.
My husband was diagnosed with Aspergers about a year and a half ago. We think I am along those lines... But is it no longer given as a diagnosis? It's High Function Autism instead?

toffee1000 · 15/12/2019 02:06

I hope when I get a FT job my employer will be understanding feedingfrenzy - since it was an internship through an ASD charity and all of us interns on the programme had it, they may have been more “switched on” as it were.

feedingfrenzyatfive · 19/12/2019 18:23

That's good to hear @toffee1000.

Galvantula · 20/12/2019 14:50

Hi all. I've been reading through your very helpful thread, plus loads of other stuff since I first saw a description of adult ADHD symptoms and went around going Shock for a while.

The worst thing for me is when I've a big list of nice things I could do, after all the things I need to do, bit I have procrastination paralysis so I'm stuck. As per attached Blush.

I'm going to see if I can get referred for an assessment in the new year. It would kind of explain my years of under achieving shitness.

I'm already starting to be aware of doing ridiculous stuff and that night even help. :)

Neurodiversity support thread for women with suspected, diagnosed or self-diagnosed autism, ADHD and other NDs #18
feedingfrenzyatfive · 21/12/2019 13:04

Hey, welcome @Galvantula. Thank you for sharing that attachment, it's so me at the moment. It sucks.

Galvantula · 03/01/2020 21:16

Happy new year all.

Just popping back on for a chat if that's ok.

I went up to my parents loft today and thanks to my mum keeping everything I ever owned, I've been looking at my old school reports.

I'm planning to call for an initial GP appointment next week (so I might get one in February 😅) and I guess I wanted to see if I imagined always being like this.

Um, nope. I think the reports were actually worse than I'd remembered. 🙈

Right from my first couple of years it's all comments like 'struggles to complete work' 'distractible' 'talks a bit much' 'needs to try harder'. A lot of it is all about how I'm well behaved and conscientious and love reading though, so the teachers seemed to like me.

The secondary school ones aren't as clear as some teachers just ticked the boxes and didn't write much. However they do have a lot of 'tries hard, does well in assessments/tests, but works too slowly/doesn't complete work as expected'

It gets a bit messy when I get to the last couple of years of school, with more coursework and studying expected, predicted grades were more all over the place than I remembered. My physics teacher seemed particularly annoyed as my tests were something like "either top or bottom of the class with no pattern I can discern, although less lounging on the desk daydreaming would help" BlushBlush

My mum was wondering why I was after them, I said I'll tell her later.

Overall though, the reports are mostly positive, as I generally didn't cause too much trouble in class. Maybe just some frustration due to my inability to get through my work apparently.

Reading them was a bit sad, but it's given me a bit of confidence to go and ask for help with this. Also to talk with DH about how I'm already trying to notice the things I struggle with, which has been positive so far. (After his initial wtf? 😂)

Galvantula · 06/01/2020 16:52

Oh Blush I forgot to say thanks for the welcome @feedingfrenzyatfive

I've made a GP appointment early next month to start trying to see if there is a reason for me being a bit of a shit human. I'm actually quite impressed I forced myself to phone up!

feedingfrenzyatfive · 10/01/2020 21:12

No probs @Galvatuna. Your school experiences really echo mine - I attended a girls suburban secondary school and my reports were spookily similar, lines such as "If Feedingfrenzy wasn't quite so flippant, she could do very well indeed." During my GCSE years I hid away in my bedroom once my mum had left for work.

Galvantula · 10/01/2020 23:50

I've been reading a really nice book on my Kindle this week "Order from Chaos" by Jaclyn Paul.

www.amazon.co.uk/dp/B07B692G9N/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1&tag=mumsnetforu03-21

It's very friendly and kind and has lots of practical ideas to help get organised while having ADHD. Big problem for me personally, I want to hide from any mess or hard jobs at work.

I'm so excited as I've spent all week remembering a little more, by 'containing' my thoughts and ideas in a little notebook/on a post it as soon as I think of it, so I don't lose it all.

I'm also experimenting with a suggested app for logging tasks to try to get through them.

I've also realised that impulse shopping (especially books) may be a problem for me Blush. Even if I do find nice ones...

It seems a long time until the GP appointment and who knows how long until any referral, so I'm feeling more positive having some coping strategies and recognising what I struggle with. Just knowing it might not be only me being useless is actually nice.

WeirdPookah · 11/01/2020 21:33

It was crazy when I managed to phone up for my initial appointment. I asked for a specific Doctor, they told me to try and phone one morning as they open her spaces... yeah right I would get one! So onto seeing when another appointment with anybody was open, looking at 3 weeks time, or in 10 minutes time!
So I ended up hanging up the phone, grabbing the toddler and running out the house!

Galvantula · 11/01/2020 22:30

I asked for a specific doctor too and I also asked for a double appointment so I ( hopefully) won't panic and talk at 3000 miles an hour. Blush Means a longer wait though.

I did wake up at 6am last weekend and write 3 A4 pages about what I've struggled with... I'm sure that'll be useful 😂

I had a slightly manic chat with DH tonight, to see if he thinks I'm nuts to wonder about adhd. I think he gets it which is a relief.

WeirdPookah · 12/01/2020 06:56

My husband sought a diagnosis for himself a couple of years ago. I didn't understand at the time why it would be useful. Then realised recently that it must be really freeing to know it's not you doing something "wrong" it is just you!

Oddgirlout · 12/01/2020 08:14

Hi everyone, has anyone had any post asd support? I'm starting a new period of studying and finding it hard to manage. Thought maybe if I could get some coaching/counselling but I don't know where to look!

StegosaurusRex · 15/01/2020 18:52

I haven't RTFT, but I wanted to jump on the thread before it filled up.
I've just been referred by my GP for an assessment for inattentive ADHD.
Does anyone have experience with adult diagnosis. I'm 34 and don't know anyone with any form of ADHD who wasn't diagnosed as a child.
I'm not looking to medicate, as I've managed to get this far in life without, but I'm hoping to go to uni in September and am already noticing it hugely affecting me in college this year, so an official diagnosis would be really helpful to take to university

Galvantula · 23/01/2020 10:13

Today's fuckup by my brain:

Making myself sit down and fill in youngest DC school application form. (Good) Did not read instructions (bad) 🙄 and then got part way through realised I've been circling answers rather than deleting as applicable.

but having discovered emotional dysregulation is a thing, I'm not freaking out. I'm talking myself into just completing it and hoping for the best. 🙈🙈

StegosaurusRex · 23/01/2020 21:07

FWIW, I normally end up circling some and crossing out others, so go back and do both on each question. It's never caused me any problems so far. Hopefully, it'll be fine :)

Galvantula · 27/01/2020 13:04

I just went and sat for 2 hours in the GP open access and nervously asked for a referral. I think it helped that I'd filled in and brought the adult self assessment form.

Glad I've done something about this and the GP has put through a referral. She's optimistically said it'll take "a few weeks" to hear back.

Need a lie down in a dark room now 🙈

StegosaurusRex · 27/01/2020 18:14

Good luck! I saw my GP for a referral last Wednesday and got a phone call on Saturday offering me an appointment 8th Feb. Hopefully yours will be nice and quick, too

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