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Neurodiversity support thread for women with suspected, diagnosed or self-diagnosed autism, ADHD and other NDs #18

999 replies

PolterThreadStarter · 14/06/2017 07:01

As usual, latest support thread.

Welcome Easter Smile

OP posts:
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The1andonlyFrusso · 04/07/2017 17:24

This reply has been deleted

Message withdrawn at poster's request.

Polter · 04/07/2017 17:30

Makes complete sense Frusso, I didn't know I'd been having meltdowns my whole life until I had a big one post assessment and realised what it was, it was only when I had one and knew what it was and felt like that I could recognise all those I'd had before. There's very little research on this stuff but it's not an uncommon experience.

weaverofnonstories · 04/07/2017 20:17

I feel like this. I think I'm more aware but also more intolerant and less patient as I'm
Getting older. Years of taking people's crap has worn me down.

HerRoyalFattyness · 04/07/2017 21:53

That makes perfect sense frusso

Work is wiping me put at the minute. Having to interact with people. Ugh.

BertieBotts · 04/07/2017 21:59

My finger is better although I keep neglecting it so it keeps trying to fuse in a curled position. I need to go back to the doctor's but he asked me to go in two weeks and I'm sure that was about four weeks ago but I really have no idea Blush At least I have DH's stuff as an "excuse" oops!!

He didn't drop something on them, he jumped off a children's climbing tower in a playground and forgot that he wasn't 15 and bendy, he is nearly 30 and, um, not bendy. He is really feeling sorry for himself though so I have to be a bit sympathetic Blush it's nice to know it's not only ADHD people who have impulsive moments and that split second "Shit I shouldn't have done that at all" reaction afterwards.

MrsNutella · 04/07/2017 22:14

Bubbles I think I'm back down now Confused I didn't eat enough and had a couple of large strong coffees. Delicious but argh the jitters!

Faith sorry you're still in hospital! CakeBrewFlowers hope you aren't just fobbed off and you get some kind of answers or treatment.

I've been slowly reading more bits about ADHD and diet. I now have a handy E numbers for phosphates list, from our nurse friend. First accidental hit with them. Sausages. DS ate sausages Saturday night.

Cue wild behaviour all day Sunday and Monday and odd habits - lining up all sorts of random things in the middle of the living room, which he never does.
Plus he was awake at 5:15 Sunday and Monday morning.

It almost always takes 48 hours for him to "recover" IYSWIM. So yesterday evening he was calmer and today he slept until after 6:30. Much more himself.
I will be reading more about this stuff!

Ginandelderflower · 04/07/2017 22:15

Just catching up
Hello Bon

Faith hope you get somewhere with the pain problem.

Can't do jewellery or make up here. Mascara is torture. I pick it off if I do put it on for a big occasion. I think my biggest issues are sensory though.

Ginandelderflower · 04/07/2017 22:16

Mrs Nutella, it's a shock to find out we don't bounce like tigger like we did as kids

MrsNutella · 04/07/2017 22:17

Bertie. Hope you and DH are fully recovered asap. Are all the dr's you want on holiday? I still do not understand how dr's can just shut for two weeks several time a a year Confused I have also managed to time my children's birthdays really badly with dr's holidays.... ho hum...

Ginandelderflower · 04/07/2017 22:17

Sorry Tigger comment for Bertie

Bubblesbubbles · 04/07/2017 22:39

MrsN I have a couple of books on ADHD (and autism diets) these are them

Neurodiversity support thread for women with suspected, diagnosed or self-diagnosed autism, ADHD and other NDs #18
MrsNutella · 05/07/2017 06:24

Bubbles would you recommend any of them? The one I'm planning to order is the low phosphate diet ....

Hertha Hafer - a german Chemist is the author... this is their webpage http://www.phosadd.com/diet/diet.htmm* it's not a fantastic layout like lots of German websites but it comes highly recommended again and again.

Polter · 05/07/2017 07:19

Asking to help a parent on another thread. Anyone been diagnosed privately around Herts/N London border and/or have a recommendation?

FaithAgain · 05/07/2017 10:41

I'm home Smile Been discharged with lots of painkillers, waiting for another test as an outpatient (would have been another long wait in hospital and I'm more comfortable at home).

I can tolerate minimal jewellery (rings, tiny earrings) but only wear more for a special occasion). Hate heavy necklaces etc. I do wear makeup but not much.

I don't know much about food but I am much better since I started doing SW. Less highs and lows related to sugar crashes.

Bubblesbubbles · 05/07/2017 15:04

I like the far left one the kid friendly cookbook, easy to follow, LOTS of recipes etc but omg keeping to the diets is hard lmao but I always feel better the very brief amount of time I keep to it. Grin

Glad your home faith hope it all gets sorted soon and you feel better BrewCake

Polter · 05/07/2017 20:35

Hope you feel better for being at home Faith Flowers

Can any of you who are diagnosed with ADHD please direct me to some resources that help (and don't require much effort) because my executive function is worse than ever and I have had a few near fuck ups and I have to get myself together.

bubblesbubbles · 05/07/2017 20:46

I've tried drugs and doctors (even private) for adhd tbh very little help, the best thing for me is exercise regulary (every day) good food at proper times not just not eating all day then binging and getting on a sugar high, lists, lists and more lists and ticking stuff off as I do it, the homeroutine app for break downs of what to do on what day.

But I basically do this stuff for a week then fall off it for months! But when I do it, I have such better concentration, more impulse control etc.

Polter · 05/07/2017 20:54

See, I would say that if you can only sustain it for a week then it's not really working Grin

I don't have ADHD diagnosed but I definitely need to address my EF fails.

bubblesbubbles · 05/07/2017 21:02

See, I would say that if you can only sustain it for a week then it's not really working grin

lol I see your point! But even keeping at something for a week is a massive improvement for me, for the brief while it lasts my thoughts feel more focused, less pent up energy, less impulsive. Epsom salt baths really help too, I find they relax me.

Polter · 05/07/2017 21:07

I can manage a week if I really try. But it's not enough, I've got so much random shit going on I need to find a way. I don't think there really is a magic fix, I just need to try harder.

Spookle · 05/07/2017 21:28

[wave]

Thank you Polter for pointing the way to this thread.

I'm not even half way through the first page and my mind is boggling that other people have experienced this.

autisticrat Thu 15-Jun-17 11:47:31

Am attempting to resist the urge to go into the "cut everyone off completely, isolate self and wait until I find a whole new group of people" part of the socialising cycle.
_

autisticrat Thu 15-Jun-17 11:48:43

Maybe it's just me who has that. Maybe it's a part of the personality disorders that psychiatrists spent a decade and a half convinced I had, until I was diagnosed with ASD instead.

Polter Thu 15-Jun-17 11:53:35

I have spent a lifetime cutting myself out of friendships.
_

Is there anywhere you recommend I can read more about the socialising cycle?

It's nearly bedtime for me so I can't really read any further on the thread now or I will end up staying up until the wee hours/all night. Not good.

I think I will be back tomorrow.

Polter · 05/07/2017 21:31

Hey Spookle, glad you found us Smile

I haven't come across anything on this sort of stuff yet. Might have to write it myself Wink

autisticrat · 05/07/2017 21:44
autisticrat · 05/07/2017 21:55

My friend has strongarmed me into going to the college achievement day on Friday Hmm

bubblesbubbles · 05/07/2017 22:03

What is that autisticrat?