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70
feellikeanalien · 13/06/2025 12:20

I wrote to my Labour MP about this. DD is still at school but once she leaves our income will drop dramatically. I was aware of this but with LCWRA being taken away from those under 22 it will now be even worse. I asked the MP why, if I was still going to be doing exactly the same amount of caring, if not more, as DD seems to be having increasing health issues this should be the case. DD will never be independent and struggles to understand even the most basic of concepts.

He completely ignored my specific question and gave me a big spiel on how the most in need will not be disadvantaged which is clearly a load of nonsense.

I despair as there is quite clearly no party who is prepared to stand up for disabled people and now feel completely politically homeless as well as increasingly worried for DDs future.

Orangesandlemons77 · 13/06/2025 12:32

I have a Lib Dem MP, will find their response

We have to bring the welfare bill down and support more people into work - it’s what’s right for people and our economy.
But you don’t do that by slashing support for disabled people - some of whom will never be able to work, while others need PIP precisely so that they can continue to work.

Limiting eligibility for these people will do nothing to get more people into employment.
We have long said that the best way to bring down benefit spending is to fix health and social care and fix it quickly. This involves investing in preventative health measures by boosting the public health grant, properly funding mental health support, especially for young people, and reforming social care.

That is why it has been so disappointing to see the government’s lack of urgency in this area, taking three years to complete their social care review and kicking projects like new hospitals into the long grass.

Everyone knows the previous Conservative Government left our economy and public services in a mess, but the Chancellor’s budget failed to grow our economy or create new jobs for people to turn to.

Liberal Democrat Leader Ed Davey raised this directly with the Prime Minister at Prime Minister Questions on Wednesday 12th March when he asked:

“Does the Prime Minister recognise that the best way to help many disabled people into work is to support them properly, through more special equipment, training, better healthcare and so on? Will he also today calm anxieties that he himself has raised for many of us by saying that disability benefits for people who simply cannot work will not be cut?”

You can read it here: https://hansard.parliament.uk/commons/2025-03-12/debates/9AA67121-4A80-41B4-9409-3F81D4B0D6BB/Engagements

If the Government wants to boost the finances quickly, they could be asking the banks, big tech and online gambling firms to pay a bit more out of their massive profits, rather than going after people with disabilities.

We will keep raising this with the government. Thank you again for getting in touch.

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Orangesandlemons77 · 13/06/2025 12:32

(that was the reply below btw)

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Dropthepilots · 13/06/2025 12:35

Given that the government has a large majority it is likely that the green paper will pass, maybe a few tweaks here and there like the new 3 months transition for those losing PIP under new rules. What really depresses me is how the green paper deliberately paints PIP as an out of work benefit, I’m sure they assumed this would be a vote winner, and there is a large section of society who would be happy to see disabled people being further disadvantaged.

DiscoBob · 13/06/2025 12:39

Fingers crossed it won't pass. It's brutal and shameful and goes against the wishes and needs of millions who voted in earnest thinking Labour cared about the sick and poor.

bestcatlife · 13/06/2025 12:49

13 week transition period is a joke.

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LadyKenya · 14/06/2025 08:32

🤔

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LadyKenya · 14/06/2025 14:09

Some of those comments on the petition, are quite sad, and desperate. The Government needs to make it clear, and soon, what will be happening. The whole affair is a complete farce.

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LadyKenya · 15/06/2025 09:21

.

justkeepswimingswiming · 15/06/2025 09:26

LadyKenya · 14/06/2025 14:09

Some of those comments on the petition, are quite sad, and desperate. The Government needs to make it clear, and soon, what will be happening. The whole affair is a complete farce.

couple of weeks and the vote will ne in place. Think its funny how theyre now sending RAF fighter jets to Israel and getting involved in ANOTHER war that isnt ours to fund/fight yet have no money for the disabled in their own country. It’s disgusting and disgraceful.

LadyKenya · 15/06/2025 09:38

justkeepswimingswiming · 15/06/2025 09:26

couple of weeks and the vote will ne in place. Think its funny how theyre now sending RAF fighter jets to Israel and getting involved in ANOTHER war that isnt ours to fund/fight yet have no money for the disabled in their own country. It’s disgusting and disgraceful.

There is always money to be 'found', when it suits the powers that be. I will not claim to understand the ins, and outs, of all that is happening here, and why they are sending fighter jets, etc. I do not have the head space to educate myself on it either. What I do know, is that it is indefensible, to try to disadvantage the more vulnerable people in Society, in the way, that they are planning to do.

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MrsKypp · 18/06/2025 17:45

Some countries give support based on the diagnosis / diagnoses. I'm not saying that's better but I don't see why PIP shouldn't have 3-part input:

(1) diagnosis/es
(2) medications and their effects

The above stated by medical proessionals

(3) effects on the person as PIP now - but a better written and better assessed form

So many PIP applicants say how the assessor got things wrong, or that they try to deny people the level of benefit they need. This is so wrong and needs to be looked at urgently.

PIP currently does have weaknesses leading to certain people receiving too little and others too much.

Example: I personally know someone who got high level PIP for both daily living and mobility for her daughter. The daughter is so minimally autistic nobody would ever guess: she has friends, laughs and jokes, travels around by bus with her friends, goes to parties, enjoys cooking, goes jogging etc but due to PIP also has a blue badge. (no face to face assessment of the daughter and the payments go to the mother). That daughter went on holiday to Spain with her friends last year. She's 20.

I am also convinced that a lot of people who should be getting PIP aren't because the application process and assessment method is so wrong. For some people I think PIP should be awarded based on the doctors' diagnosis and reports without making the person fill in the ridiculous form and endure a stressful assessment.

It does need changing but I don't agree with the way Labour are doing it.

Orangesandlemons77 · 18/06/2025 18:08

Well I think that's how they used to award DLA. Pip does need reform just not in the way they're doing it

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LadyKenya · 18/06/2025 19:16

MrsKypp · 18/06/2025 17:45

Some countries give support based on the diagnosis / diagnoses. I'm not saying that's better but I don't see why PIP shouldn't have 3-part input:

(1) diagnosis/es
(2) medications and their effects

The above stated by medical proessionals

(3) effects on the person as PIP now - but a better written and better assessed form

So many PIP applicants say how the assessor got things wrong, or that they try to deny people the level of benefit they need. This is so wrong and needs to be looked at urgently.

PIP currently does have weaknesses leading to certain people receiving too little and others too much.

Example: I personally know someone who got high level PIP for both daily living and mobility for her daughter. The daughter is so minimally autistic nobody would ever guess: she has friends, laughs and jokes, travels around by bus with her friends, goes to parties, enjoys cooking, goes jogging etc but due to PIP also has a blue badge. (no face to face assessment of the daughter and the payments go to the mother). That daughter went on holiday to Spain with her friends last year. She's 20.

I am also convinced that a lot of people who should be getting PIP aren't because the application process and assessment method is so wrong. For some people I think PIP should be awarded based on the doctors' diagnosis and reports without making the person fill in the ridiculous form and endure a stressful assessment.

It does need changing but I don't agree with the way Labour are doing it.

You have made some interesting points in your post.

Orangesandlemons77 · 19/06/2025 13:58

I saw something on social media that Jeremy Cornyn and some other MPs have scheduled an amendment - not sure how this works does anyone know

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LadyKenya · 19/06/2025 14:01

I have no idea what is happening. They mentioned PIP yesterday, at PM questions, and I still have no clue, as to what is happening.

PandoraSocks · 19/06/2025 14:28

The bill was published yesterday and will be debated/voted on on 1st July. Which is when amendments can be tabled. That is my understanding.

It is a bit strange how it is all being kept quite quiet at the moment. Nothing much in the press.

PandoraSocks · 19/06/2025 14:30

Here is the bill.

Eta: these are explanatory notes I think, not the actual bill, sorry.

https://publications.parliament.uk/pa/bills/cbill/59-01/0267/en/240267en.pdf

LadyKenya · 19/06/2025 15:19

It is a bit strange how it is all being kept quite quiet at the moment. Nothing much in the press.

That is what I thought as well. The press seems to work in tandem with the Government, so it is hardly surprising on reflection.

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