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A new Neurodiversity support thread for those with suspected or diagnosed ASD, ADHD and other NDs

1000 replies

PigPigTrotters · 19/10/2016 17:32

Yet another thread for neurodivergent mumsnetters.

Lots of links in old threads.

Anyone is welcome, it's not just about autism.

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11
BigDamnHero · 03/11/2016 11:45

It seems DS2 is getting better because he's continuously complaining about his hands being wet, which he'd started doing a week or two before he got ill.

I'm pretty sure it must be a sensory/autistic problem he's having so I don't suppose anyone here gets it?

It's like if his hands are ever so slightly clammy or sticky (which is surely just default for young children) he thinks they're 'wet'. But nothing I do helps. I try drying them, I try giving them a wipe with a baby wipe and then drying them, I try washing them and drying them, none of it works and he keeps on complaining about his hands being wet.

DS1 seems to occasionally get this to a lesser extent with toys. If they're made of a certain smooth plastic he gets upset about them being 'wet' when they're not.

I don't know how to deal with it.

PolterGoose · 03/11/2016 11:53

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BigDamnHero · 03/11/2016 12:08

Thank you, Polter. I've ordered it. I'm pretty desperate to try anything that might help because it's causing DS2 quite a lot of distress and is becoming a real issue. Another thing to note down for his assessment this month!

autisticrat · 03/11/2016 12:10

It is also actually okay to use antiperspirant on your hands, too, but that might make things worse rather than better
WRT sickness.

autisticrat · 03/11/2016 12:10

Stickiness

PolterGoose · 03/11/2016 12:14

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BigDamnHero · 03/11/2016 12:15

I did wonder whether antiperspirant might help, Rat, but thought the residue would make things worse and wasn't sure if it would be okay in terms of him putting his fingers in his mouth etc.

BigDamnHero · 03/11/2016 12:16

Good idea, Polter.

LauraMipsum · 03/11/2016 13:52

I love that idea Polter

My DD hates having "dirty" hands - she's fine with actual dirt, being a toddler, but asks to have her hands wiped several times during dinner if she can feel food on them. Those Ella's Kitchen snacks with the carroty coating have been a nightmare as she doesn't like the crumbs!

Albadross · 03/11/2016 20:29

My DS goes nuts if I put my hands anywhere on him when they're wet - so when i'm soaping/rinsing his hands and then don't dry mine properly. He also asks to change clothes if he spills even a tiny bit of liquid on himself. Oh god - now I'm wondering about him...

I went to the GP today about being referred and he had no idea what to do. Cue him on the phone to CAMHS and me nervously twitching not knowing where to look. He said I'd need funding?

I don't know if I can call myself ASD without a formal diagnosis, I fear nobody will believe me!

DeleteOrDecay · 03/11/2016 20:35

I don't even know if I have asd or not at this point. But I feel I fit in on this thread and can relate to a lot of what is talked about here so that's good enough for me at the momentSmile

PolterGoose · 03/11/2016 20:42

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PolterGoose · 03/11/2016 20:42

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DeleteOrDecay · 03/11/2016 21:03

Grr I am so annoyed. I ordered MIL's Christmas present from The Body Shop website at the weekend, they had a 40% off promotion running so I saved a considerable amount. I checked my online banking tonight and can find zero evidence of payment, despite it being a pending transaction a couple of days ago, nor have I had any sort of email (apart from the confirmation just after ordering) to say it has been cancelled or anything.

The 40% off promotion has finished now so if I were to order again I'd be spending more than I originally intended. I've sent them an email to find out what happened but I'm not happyAngry missing out on a bargain is one of my pet peeves.

DeleteOrDecay · 03/11/2016 21:05

It also doesn't help that I checked out as a guest rather than making an account so I can't track it that way either.

PolterGoose · 03/11/2016 21:14

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PigPigTrotters · 03/11/2016 21:17

Hope everyone's ok today.
How's your ear feeling now, Polter?

I've had another day where I've managed to hold it together, used music to calm myself down.

Ds3 has another paed appointment coming up, and I'm thinking about postponing it. I can't decide (despite asking people over and over again Blush) whether we should go ahead with assessment or not, my gut feeling is that where we live, with our experience of CDC, we won't get anywhere. Ds is ok, repetitive, anxious and friendless, but no crisis, no difficulty in managing him, he's generally a happy little thing, he's fine in school, they have no worries at all, he has no motor stims, which are part of the criteria to pass to the next level (he does have vocal stims though). And a big reason is that I'm not sure I can go through it again when we're managing things fine, except I don't want to reach the points we did with ds1 and 2.
When I read that back it seems so obvious to just go along with it, but in RL I know it won't be as straight forward as that, and it's possible that his traits will just stay as traits (if that makes sense!) and not be a problem for him.
Sorry, I know this isn't the thread for this, and I've been over it so many times, I'm just thinking aloud really!

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PolterGoose · 03/11/2016 21:24

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PolterGoose · 03/11/2016 21:25

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DeleteOrDecay · 03/11/2016 21:28

The last time I ordered off the Body Shop website I remember it being a PITA. I haven't been back on since.

Oh no don't say that! I'm determined to get my body butter festive dome for £18 rather than £30Envy I have had no confirmation that my complaint email was sent so I have no idea if they will even receive it. Will give it a few days for them to reply and try again. As long as I don't have to actually phone them.

DeleteOrDecay · 03/11/2016 21:35

That sounds so difficult Pig, I really have no idea how these processes work so I can't offer any useful advice I'm afraid but I think Polter has hit the nail on the headFlowers

I have been ok, not great but ok. House is a tip, me and the dd's have been out quite a lot this week and when I have been home I've not felt able to do much around the house. I feel completely out of sorts. Dishwasher and kitchen cleaning is about as far as its gone. It's all a bit overwhelming now though and I have this horrible feeling of dread about how I'm going to get back on track again.

I really hate how much my emotional state is dictated somewhat by the state of the house. Objectively it's not even that bad, mainly toys all over the living room and laundry piles upstairs, but I get so overwhelmed so easily by it all.

PigPigTrotters · 03/11/2016 21:41

Thank you Polter (again Blush) and Delete.
Pleased you're feeling a bit better now Smile

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BertieBotts · 03/11/2016 21:48

We are having a party on Saturday night. DH borrowed a load of Hallowe'en decorations from his friend who always throws a Hallowe'en party but didn't this year but then got annoyed with my suggestions for arranging them because "It's not a Hallowe'en party!" Confused and because he's annoyed that I didn't feed DS until late and because I haven't finished painting the hallway like I intended to.

So I have spent the last 2 hours making a Hallowe'en songs playlist instead Grin It is six hours long and we definitely won't need all of it, but I'm happy!

autisticrat · 03/11/2016 22:09

My house looks like this, so I probably wouldn't worry if I were you.

A new Neurodiversity support thread for those with suspected or diagnosed ASD, ADHD and other NDs
autisticrat · 03/11/2016 22:19

Agree, the state of the house does have a massive, massive effect on my mood too. My therapist talked about home as a safe, ordered place to retreat to. I showed her pictures of it, and, well. She tried to help me start to get it sorted out, but at this point it's just impossible. It really does wear you down Flowers

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