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One in six PIP claimants have no extra costs linked to their disability

1000 replies

Allseeingallknowing · 15/10/2026 14:39

https://www.thesun.co.uk/money/40693771/pip-claimants-disability-benefit/
So, can money be saved here?

OP posts:
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12
ExpectMore · 15/10/2026 23:29

Kirbert2 · 15/10/2026 23:25

Parents of disabled children keep their child benefit?

Or… lose it (to keep the solution simple) but get enhanced (vs current and to a great extent than purely to offset loss of child benefit) disability provision for their children? Ie it’s recognised that can’t access the mainstream enhancements but they’re “compensated for” via alternative means?

just a thought

ExpectMore · 15/10/2026 23:32

roaringdragon · 15/10/2026 23:26

Neither. I am suggesting that you saying they “would benefit all kids” is wrong and such provision should not be instead of disability benefits.

To be devils advocate…: surely in that school of thought, nothing benefits “all kids” as there’ll always be someone who for some nuanced reason misses out?

it doesn’t mean they’re not widely considered as benefitting “all kids”, for example.

I mean, we couldn’t even say free education benefits all kids in your logic as not all kids can access it… which feels unnecessarily restrictive language

ExpectMore · 15/10/2026 23:35

roaringdragon · 15/10/2026 23:26

Neither. I am suggesting that you saying they “would benefit all kids” is wrong and such provision should not be instead of disability benefits.

I should have added: I never said it would be instead of disability benefits. It was instead of child benefit.

XenoBitch · 15/10/2026 23:36

ExpectMore · 15/10/2026 23:27

Wow. That’s incredible. I bet there’s some crossover in terms of how those that have the skin condition that means they have to avoid sun light have to live, and can see how it’d affect the family.

Can I ask, is it a condition she / that is developed or is it from birth? No problem of course if you don’t want to share

It does not affect her skin. She gets crippling headaches and fatigue after light exposure.
She used to have a great job that sent her all around the world. She came down with some infection when abroad in her 40s. Her consultants said it came from that. I met her in a MH support group. She was there after being inpatient due to hitting the booze and losing the plot. She really loved her job and the travel and missed it all and the lifestyle.
She is still classed as employed by them due to some sort of insurance, so despite not being able to work for years, she is still on about 75% of her old income. She still has her laptop despite not being able to use it.

She loves gardening and walking her dogs. She can't do either for a lot of the year. It really gets her down.

Kirbert2 · 15/10/2026 23:38

ExpectMore · 15/10/2026 23:29

Or… lose it (to keep the solution simple) but get enhanced (vs current and to a great extent than purely to offset loss of child benefit) disability provision for their children? Ie it’s recognised that can’t access the mainstream enhancements but they’re “compensated for” via alternative means?

just a thought

That isn't going to save money though which I thought was ultimately the goal? It would cost a lot and is probably a reason why it doesn't already exist.

ExpectMore · 15/10/2026 23:39

XenoBitch · 15/10/2026 23:36

It does not affect her skin. She gets crippling headaches and fatigue after light exposure.
She used to have a great job that sent her all around the world. She came down with some infection when abroad in her 40s. Her consultants said it came from that. I met her in a MH support group. She was there after being inpatient due to hitting the booze and losing the plot. She really loved her job and the travel and missed it all and the lifestyle.
She is still classed as employed by them due to some sort of insurance, so despite not being able to work for years, she is still on about 75% of her old income. She still has her laptop despite not being able to use it.

She loves gardening and walking her dogs. She can't do either for a lot of the year. It really gets her down.

I can imagine. Thanks for sharing

roaringdragon · 15/10/2026 23:39

ExpectMore · 15/10/2026 23:32

To be devils advocate…: surely in that school of thought, nothing benefits “all kids” as there’ll always be someone who for some nuanced reason misses out?

it doesn’t mean they’re not widely considered as benefitting “all kids”, for example.

I mean, we couldn’t even say free education benefits all kids in your logic as not all kids can access it… which feels unnecessarily restrictive language

I wasn’t the one who said all DC would benefit from it. If you didn’t mean all DC, then your post should have explained all DC.

However, all DC are entitled to a free education. If that cannot be accessed in schools, there is EOTAS/EOTIS/C and s19 provision. Although LAs act unlawfully too often and parents are forced to enforce the law.

roaringdragon · 15/10/2026 23:39

ExpectMore · 15/10/2026 23:35

I should have added: I never said it would be instead of disability benefits. It was instead of child benefit.

Sorry, replace where I said disability benefits with CB then. The point still stands.

XenoBitch · 15/10/2026 23:41

ExpectMore · 15/10/2026 23:39

I can imagine. Thanks for sharing

Thank you for wanting to understand. Some people thing photophobia is just needing sunglasses. It affects so much more.

OonaStubbs · 15/10/2026 23:42

Why are there so many more people with life limiting disabilities in this country than there used to be? That is the real question. And would they have these disabilities if there were no benefits and they knew from day one that there was no alternative but just to suck it up and get on with life?

XenoBitch · 15/10/2026 23:44

OonaStubbs · 15/10/2026 23:42

Why are there so many more people with life limiting disabilities in this country than there used to be? That is the real question. And would they have these disabilities if there were no benefits and they knew from day one that there was no alternative but just to suck it up and get on with life?

Do you know what 'life limiting' means? Fucking hell.

Kirbert2 · 15/10/2026 23:48

OonaStubbs · 15/10/2026 23:42

Why are there so many more people with life limiting disabilities in this country than there used to be? That is the real question. And would they have these disabilities if there were no benefits and they knew from day one that there was no alternative but just to suck it up and get on with life?

Well, my son had cancer which almost killed him and now he'll be disabled for the rest of his life.

Would he have still had cancer and be disabled for the rest of his life without benefits? Yes.

He sucks it up and gets on with his life. More than most people I know who haven't had to face half of what he has.

Any more questions?

Twilight7777 · 15/10/2026 23:50

LivingDeadGirlUK · 15/10/2026 15:20

I would have also told you at age 16-24 that being disabled didn't cost more. I was young and nieve. When you grow up disabled you don't know any difference.

Exactly, same here as I denied I was disabled.

roaringdragon · 15/10/2026 23:57

OonaStubbs · 15/10/2026 23:42

Why are there so many more people with life limiting disabilities in this country than there used to be? That is the real question. And would they have these disabilities if there were no benefits and they knew from day one that there was no alternative but just to suck it up and get on with life?

Yes, my DSs would still have their disabilities, including the LLI, without benefits.

twocrumpets · 15/10/2026 23:57

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JustAnotherWhinger · 16/10/2026 00:03

OonaStubbs · 15/10/2026 23:42

Why are there so many more people with life limiting disabilities in this country than there used to be? That is the real question. And would they have these disabilities if there were no benefits and they knew from day one that there was no alternative but just to suck it up and get on with life?

Both of mine would likely be dead as young children had they been born years ago.

DD2 would have got an infection from one of her cataplexy injuries and died. I’d likely have been told/made to put her in a home as late as the 70s.

DD3 wouldn’t have survived her first year without two heart surgeries.

Nothavingagoodvalentinesday · 16/10/2026 00:35

XenoBitch · 15/10/2026 19:52

And?
Blame the government. They are the ones in charge. Don't blame the disabled.

What a naive comment! It isn't a question of blame. We all have to pay, either now or in the future. Our children and grandchildren will be in a lot worse state than we are now if something isn't done to curb expenditure. Everyone has to live within their means. That applies to countries as well as people.

XenoBitch · 16/10/2026 00:37

Nothavingagoodvalentinesday · 16/10/2026 00:35

What a naive comment! It isn't a question of blame. We all have to pay, either now or in the future. Our children and grandchildren will be in a lot worse state than we are now if something isn't done to curb expenditure. Everyone has to live within their means. That applies to countries as well as people.

So why punch down?

Nothavingagoodvalentinesday · 16/10/2026 00:45

Sirzy · 15/10/2026 20:02

And it’s the job of the most vulnerable in society to fix that?

We are living beyond our means. Either we make tough choices now and maintain some sort of a welfare safety net, or our grandchildren will have no welfare at all and still be paying down the debt.

selffellatingouroborosofhate · 16/10/2026 00:50

OonaStubbs · 15/10/2026 23:42

Why are there so many more people with life limiting disabilities in this country than there used to be? That is the real question. And would they have these disabilities if there were no benefits and they knew from day one that there was no alternative but just to suck it up and get on with life?

https://www.statista.com/statistics/1041714/united-kingdom-all-time-child-mortality-rate/

200 years ago, one child in three didn't see their fifth birthday.

People died a lot younger and a lot more easily prior to the advent of modern medicine and public health measures. A disabled person can be treated and survive for longer compared to 200 years ago, but that doesn't translate into being able to work.

I was born autistic. Before I was diagnosed in my 40s, I was autistic. I didn't decide to become autistic because the Govt introduced PIP. it has adversely affected me all my life, including self-esteem so bad that I've attempted suicide, getting fired from jobs, and being raped repeatedly by the kind of predatory men who see a vulnerable woman and think "oh goody". On that last point, nine-tenths of autistic women are sexual assault victims. But sure, we are faking it for the benefits 🙄

United Kingdom: child mortality rate 1800-2020 | Statista

The child mortality rate in the United Kingdom, for children under the age of five, was 329 deaths per thousand births in 1800. This means that approximately one in every three children born in 1800 did not make it to their fifth birthday. Over the cou...

https://www.statista.com/statistics/1041714/united-kingdom-all-time-child-mortality-rate/

selffellatingouroborosofhate · 16/10/2026 00:52

Nothavingagoodvalentinesday · 16/10/2026 00:45

We are living beyond our means. Either we make tough choices now and maintain some sort of a welfare safety net, or our grandchildren will have no welfare at all and still be paying down the debt.

I don't see the Duke of Westminster making tough choices. Funny how it's the poor and the workers who always end up making those.

selffellatingouroborosofhate · 16/10/2026 00:54

Nothavingagoodvalentinesday · 16/10/2026 00:35

What a naive comment! It isn't a question of blame. We all have to pay, either now or in the future. Our children and grandchildren will be in a lot worse state than we are now if something isn't done to curb expenditure. Everyone has to live within their means. That applies to countries as well as people.

We aren't £3trillion in debt because of PIP. Look at the State Pension bill first.

ExpectMore · 16/10/2026 00:57

selffellatingouroborosofhate · 16/10/2026 00:52

I don't see the Duke of Westminster making tough choices. Funny how it's the poor and the workers who always end up making those.

You’re obsessed with the Duke 😅

Move on maybe?

Lis947 · 16/10/2026 01:00

XenoBitch · 15/10/2026 23:06

There is no such thing as "automatic acceptance" with PIP.
Maybe when someone is terminally ill.

I can only go on what I have been told by the claimant. I do know that my claim took months and hers 2 weeks with no other illness or disability other than alcoholism so we will have to agree to disagree. Either way the system is broken, although how to fix it without alienating those in need, I do not know!

XenoBitch · 16/10/2026 01:05

Lis947 · 16/10/2026 01:00

I can only go on what I have been told by the claimant. I do know that my claim took months and hers 2 weeks with no other illness or disability other than alcoholism so we will have to agree to disagree. Either way the system is broken, although how to fix it without alienating those in need, I do not know!

The timeline and decisions with PIP depends on the desk they fall on.

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