Please or to access all these features

Money matters

Find financial and money-saving discussions including debt and pension chat on our Money forum. If you're looking for ways to make your money to go further, sign up to our Moneysaver emails here.

One in six PIP claimants have no extra costs linked to their disability

1000 replies

Allseeingallknowing · 15/10/2026 14:39

https://www.thesun.co.uk/money/40693771/pip-claimants-disability-benefit/
So, can money be saved here?

OP posts:
Thread gallery
12
Nothavingagoodvalentinesday · 16/10/2026 01:07

selffellatingouroborosofhate · 16/10/2026 00:52

I don't see the Duke of Westminster making tough choices. Funny how it's the poor and the workers who always end up making those.

That's always the answer, isn't it. We can afford to pay limitless welfare simply by taxing the rich. The 10% of earners who pay over 60% of the tax must be taxed more so that 35% of people can pay no tax at all.
You seem to want a fairer society. How is any of that fair?
Besides which, as we have seen over the last few months, if you tax people too much they leave the country taking not only their own tax input with them, but also the jobs they help to create.
We do have to get real about this. Politics is the art of the possible and the practicable. There are answers but paying people with mental health issues and neurodivergent conditions not to work is not one of them.

Lis947 · 16/10/2026 01:20

XenoBitch · 16/10/2026 01:05

The timeline and decisions with PIP depends on the desk they fall on.

Mmm..ok

selffellatingouroborosofhate · 16/10/2026 01:25

Nothavingagoodvalentinesday · 16/10/2026 01:07

That's always the answer, isn't it. We can afford to pay limitless welfare simply by taxing the rich. The 10% of earners who pay over 60% of the tax must be taxed more so that 35% of people can pay no tax at all.
You seem to want a fairer society. How is any of that fair?
Besides which, as we have seen over the last few months, if you tax people too much they leave the country taking not only their own tax input with them, but also the jobs they help to create.
We do have to get real about this. Politics is the art of the possible and the practicable. There are answers but paying people with mental health issues and neurodivergent conditions not to work is not one of them.

Landowners can't take land with them, that's rather the point of a land value tax.

You've fabricated claims of wanting an "unlimited welfare bill", twisting my objection to further cuts into a lie.

ExpectMore · 16/10/2026 03:25

selffellatingouroborosofhate · 16/10/2026 01:25

Landowners can't take land with them, that's rather the point of a land value tax.

You've fabricated claims of wanting an "unlimited welfare bill", twisting my objection to further cuts into a lie.

Edited

Can I check, in this fairer system of yours, would you end up contributing more or less and receive more or less of a handout than at present? Just trying to understand any COI you may have.

Also, if fairness of what you’re after, why not just set everyone’s tax at the same % eg 25%?

ThisZanyCoralShark · 16/10/2026 05:15

OonaStubbs · 15/10/2026 23:42

Why are there so many more people with life limiting disabilities in this country than there used to be? That is the real question. And would they have these disabilities if there were no benefits and they knew from day one that there was no alternative but just to suck it up and get on with life?

I’d have been dead at birth only a very few years before I was born. Even if there was no alternative I’d still have my disabilities.

Should I just have been left to die?

ThisZanyCoralShark · 16/10/2026 05:18

ExpectMore · 15/10/2026 22:38

You’re missing the point.

PP was stating people should be careful what they wish for as they never know what’s around the corner ie the event hasn’t happened yet. Thats what insurance is for…

Clearly insurance isn’t for events that have already happened…by definition.

However, there are still ways to get insurances for yet to come events that discount your history. Many insurances that you can buy through workplaces operate like this. I’ve personal experience as I’ve had to go down this route for a few insurances for a couple of reasons (one medical meaning insurers don’t touch it, the other I do what insurers consider high risk activity so exclude it).

So it’s possible. But clearly only for risks yet to materialise

I tried through my workplace and was declined.

im glad for you that your limitations are such that you were able to get those insurance products. But I can’t. Not through my workplace, anyway.

ChunkyMonkey36 · 16/10/2026 07:25

ExpectMore · 15/10/2026 23:00

i don’t follow, sorry. Why couldn’t they access them? They’d be provided for, all they have to do is attend.

Analogous to breakfast clubs now, all they have to do is attend.

Should they not wish to attend then grand, that’s their (parent’s) prerogative but at least the option is there.

The cost of providing wraparound care and extra curricular activities, with the correct ratios, dietary requirements, experience, qualifications and adaptations to all of the children at my sons school would be astronomical.

Certainly not cheaper than child benefit.

Penguinsandspaniels · 16/10/2026 07:35

RaggedRocks · 15/10/2026 15:23

Should alcoholics receive a pip. After all, it is an illness and they have extra expenses.

What extra expenses do they have ?

as in ex dh - he doesn’t have any extra to pay for

would just spend in on vodka and die even quicker

he gets lwcra and spend a most of the £400 extra he gets on top of uc on booze

but for most people pip is to help benefit their lives whether buying extra equipment or paying for travel /physio costs etc

Fiftyandme · 16/10/2026 08:00

Nothavingagoodvalentinesday · 16/10/2026 00:45

We are living beyond our means. Either we make tough choices now and maintain some sort of a welfare safety net, or our grandchildren will have no welfare at all and still be paying down the debt.

It’s not difficult.

All benefits including state pension, free bus passes, winter fuel payments, all disability benefits should be means tested.

All of it.

LilyBunch25 · 16/10/2026 08:01

DaisyDooley · 15/10/2026 21:26

Stop letting in people who haven’t paid a penny into the system then.

As God is my witness if it comes to pass what people are advocating for on here -vouchers for taxis, vouchers for tesco , vouchers for Electricity etc then I will take my own life.
Sorry if that offends anyone but it offends me that it would push me into that situation.
The daily pressure of looking after two autistic, ADHD people with multiple anxieties, fibromyalgia (DD) and paraplegic (DH) combined with advocating for both of them as neither will speak on the phone/make appts themselves etc, having to do all the cooking, cleaning , washing, coping with the regular meltdowns and occasional punches, attending every appointment, shopping for the ‘right’ foods, the ‘right’ clothes, listening to them drone on with their latest obsession, -I swear to God if I have to take on more admin to request fucking electric vouchers then that will be the straw that breaks this camels back.
YES ITS DEHUMANISING. Just read this thread to see how people look down on you for claiming PIP.

Ive spent over £3000 changing two toilets so DH can use the loo and retain a shred of dignity. DD costs a fortune at the dentist as she can’t barely brush her teeth and goes through an electric toothbrush about once a month as they get broken when she gets so frustrated with it and herself.
DH hasn’t had a shower in a year though as his OT told him he had to stop using the shower as he was at risk of a fall. We are still waiting for the council - I had a letter in July telling me it would be done after April 2027 . I must have made 50 phone calls since then to the council (“the waiting time today is 45minutes,”), the contractor who does the work, the OT, and my MPs office.

It will be nearly two years by the time it’s done -maybe. Two years. How many of you would go two years without a shower.?? If everyone had to rely on the council the wait time would go up and up. So for all of you on here with your ‘get rid of PIP and get the council to do adaptations- oh please fuck off.

How much is it going to cost hiring more civil servants to sift through everyone’s PIP claim and see how much they think each person should be allocated in these ‘vouchers’?? What happens when one month I need oil that’s £700 but none for the next two months? How much extra stress for ME filling out fucking forms and begging ??

Thanks everyone. You really know how to kick disabled people when they are down.

Oh and I cry every day. Every day something happens to make me cry.
Today - The doctors who will send a nurse round to give DH his flu jab but won’t give me one at the same time. I have to make an appointment,get someone to sit in the house with DH, and go to the surgery for my jab. “Rules innit”.
Why? Why ?
How much more are we expected to cope with?

Agreed. Took just over a year for DH shower but we were luckier. Also I'm appalled that as the main carer they won't even give you your flu jab during the home visit. That is sticking by the 'rules' gone mad.

Fiftyandme · 16/10/2026 08:02

Nothavingagoodvalentinesday · 16/10/2026 01:07

That's always the answer, isn't it. We can afford to pay limitless welfare simply by taxing the rich. The 10% of earners who pay over 60% of the tax must be taxed more so that 35% of people can pay no tax at all.
You seem to want a fairer society. How is any of that fair?
Besides which, as we have seen over the last few months, if you tax people too much they leave the country taking not only their own tax input with them, but also the jobs they help to create.
We do have to get real about this. Politics is the art of the possible and the practicable. There are answers but paying people with mental health issues and neurodivergent conditions not to work is not one of them.

Which 35 are paying no tax at all?

Moonbourbon · 16/10/2026 08:04

I thought I’d ask chatGPT to create a chart of modern and historical disability benefits over time, adjusted for inflation. It shows the PIP thing is off the scale.

One in six PIP claimants have no extra costs linked to their disability
LilyBunch25 · 16/10/2026 08:05

Fiftyandme · 16/10/2026 08:00

It’s not difficult.

All benefits including state pension, free bus passes, winter fuel payments, all disability benefits should be means tested.

All of it.

Leaving severely disabled people who have a partner with means above whatever level you're proposing completely at the mercy of others for absolutely everything. You realise what a race to the bottom that could be for some people I assume?

Moonbourbon · 16/10/2026 08:09

Moonbourbon · 16/10/2026 08:04

I thought I’d ask chatGPT to create a chart of modern and historical disability benefits over time, adjusted for inflation. It shows the PIP thing is off the scale.

And here’s the combined spend, also adjusted for inflation. Again, it highlights the significant recent increase in spending.

One in six PIP claimants have no extra costs linked to their disability
Sirzy · 16/10/2026 08:09

If you start means testing things like disability benefits then those who will suffer the most are those who earn just over the threshold who will be left struggling for the sake of earning a few £ too much. It also removes any incentive for those people to keep on working if they can!

the threshold cut off for carers allowance already creates enough hardship!

TigerRag · 16/10/2026 08:09

Fiftyandme · 16/10/2026 08:00

It’s not difficult.

All benefits including state pension, free bus passes, winter fuel payments, all disability benefits should be means tested.

All of it.

Then some disabled people would have to give up work because currently their pip means they can work

CassandraWebb · 16/10/2026 08:10

LilyBunch25 · 16/10/2026 08:05

Leaving severely disabled people who have a partner with means above whatever level you're proposing completely at the mercy of others for absolutely everything. You realise what a race to the bottom that could be for some people I assume?

Well it could be means tested on their individual income

I fail to see why someone earning over 100k or with significant assets should get PIP.

CassandraWebb · 16/10/2026 08:11

TigerRag · 16/10/2026 08:09

Then some disabled people would have to give up work because currently their pip means they can work

If the income level is set high enough that wouldn't be an issue.

GiaGia16 · 16/10/2026 08:12

Moonbourbon · 16/10/2026 08:04

I thought I’d ask chatGPT to create a chart of modern and historical disability benefits over time, adjusted for inflation. It shows the PIP thing is off the scale.

Wow.

Sirzy · 16/10/2026 08:14

CassandraWebb · 16/10/2026 08:11

If the income level is set high enough that wouldn't be an issue.

So disabled people can’t have any ambition they have to just take the basic jobs because they won’t be able to afford to take the promotions others can?

LilyBunch25 · 16/10/2026 08:14

CassandraWebb · 16/10/2026 08:10

Well it could be means tested on their individual income

I fail to see why someone earning over 100k or with significant assets should get PIP.

Benefits whenever they are means tested are for obvious reasons always means tested on the household, not the individual. That is how it will work if God forbid it ever happens. 15 years in welfare benefits as a profession tells me this would lead to some real suffering.

ExpectMore · 16/10/2026 08:16

ChunkyMonkey36 · 16/10/2026 07:25

The cost of providing wraparound care and extra curricular activities, with the correct ratios, dietary requirements, experience, qualifications and adaptations to all of the children at my sons school would be astronomical.

Certainly not cheaper than child benefit.

I don’t think that astronomical given some parents already have to pay for wraparound care (which is a lot cheaper than paying for nursery!).

even if more expensive, I reckon a better targeted investment on kids and society more holistically rather than just given parents a few £££ to spend as they choose

ExpectMore · 16/10/2026 08:19

Penguinsandspaniels · 16/10/2026 07:35

What extra expenses do they have ?

as in ex dh - he doesn’t have any extra to pay for

would just spend in on vodka and die even quicker

he gets lwcra and spend a most of the £400 extra he gets on top of uc on booze

but for most people pip is to help benefit their lives whether buying extra equipment or paying for travel /physio costs etc

Presumably they have the extra cost of having to buy all the alcohol….? Can’t be cheap.

Note: I don’t believe they should get PIP. Nor should anyone for any other disability that’s at the level it is as a result of them not managing it and / or it being self inflicted (I exclude accidents from sport etc as in general there’s a positive ROI on sport but would include alcoholics, drug addicts, mental issues where they’re say doing nothing rather than trying to manage through activity and integration etc).

ExtraHotDoubleShot · 16/10/2026 08:24

ExpectMore · 16/10/2026 08:16

I don’t think that astronomical given some parents already have to pay for wraparound care (which is a lot cheaper than paying for nursery!).

even if more expensive, I reckon a better targeted investment on kids and society more holistically rather than just given parents a few £££ to spend as they choose

I agree.

It’s not just about the expense, it’s about the waste. While many parents will be conscientious with their spending and ensure it directly or indirectly benefits the child, sadly many don’t and I’ve seen this first hand - DLA spent on vapes and rubbish for the parent (as part of the household budget which is then inevitably overdrawn). While claiming a couple of fidget toys from Temu constitutes ‘loads of disability expenses’

ExpectMore · 16/10/2026 08:25

Fiftyandme · 16/10/2026 08:00

It’s not difficult.

All benefits including state pension, free bus passes, winter fuel payments, all disability benefits should be means tested.

All of it.

Why? People often talk of fairness on these threads yet then push taxing “the rich more” and given them even less (means testing), despite them contributing the most and already being asked for more.

Doesn’t seem an overly fair social contract. Seems some have to give give give whilst (being vilified for daring to have money and) others get to take their take.

perhaps a more toned solution in which everyone is more self sufficient and accountable for their own basic needs and contributing to society would be better and needed?

clearly I’m not talking about disabled people having to support themselves, but the countless masses of unemployed, those that have kids they can’t afford, and / or those that choose work part time and / or in jobs they know won’t pay them enough to fund the lifestyle they want. They need to take more self accountability and start providing for themselves or cutting their cloth. Always expecting others to fund them has to stop

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is not accepting new messages.
Swipe left for the next trending thread