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PIP REVIEW, STILL WAITING!

268 replies

Queenanne20 · 12/02/2025 13:31

Dh's PIP award is due to end in April this year. We received a review form which I completed and returned by due date of 20th September 2024. I sent it tracked so know they received it, it was a large package as I included lots of evidence. We still haven't heard anything, payments are still going in to the bank account but I'm worried as what will happen when we get to the end of the award date in April. It was granted for three years and the three years will be up in April. We are Preston, Lancashire area. Does anyone have any advice?

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Orangesandlemons77 · 04/03/2025 12:36

How do they triage the review forms please? Mine seems to be taking ages wondering if that is good or not.

I just keep sending them stuff as it comes in. been referred to the memory clinic and diagnosed with memory problems but not getting much mental health support at present. Hoping the memory clinic and pain stuff will do.

Queenanne20 · 04/03/2025 16:11

@Orangesandlemons77 I'm wondering exactly the same thing. The previous poster who said they work for PIP said they review and prioritise forms. I also want to know if it's a good thing or a bad thing if you haven't heard from them, does it mean your form has been quickly looked at and put to one side as it needs more careful consideration or whatever? I wish the previous poster who worked for PIP would answer this question!

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Orangesandlemons77 · 04/03/2025 16:15

Queenanne20 · 04/03/2025 16:11

@Orangesandlemons77 I'm wondering exactly the same thing. The previous poster who said they work for PIP said they review and prioritise forms. I also want to know if it's a good thing or a bad thing if you haven't heard from them, does it mean your form has been quickly looked at and put to one side as it needs more careful consideration or whatever? I wish the previous poster who worked for PIP would answer this question!

I guess some need looked at my a HCP and others just get renewed? Not sure. Mine has some changes I think, so would probably need a HCP.

It's quite stressful isn't it. Mine runs out in April and still not been looked at, I just keep sending in any paperwork I have

Queenanne20 · 04/03/2025 16:23

@Orangesandlemons77 My dh's also runs out in April. I phoned them yesterday and the man said they are currently working on the ones sent back last June, ours had to be returned by 20th September, so I'm guessing it's going to be a couple more months yet at least. I didn't realise you could keep sending extra evidence in. My fear is that if they only look at his review form in May or June they'll say it's a long time since it was returned last September and make us fill in another one or ask us to provide more up to date evidence. It's so very stressful isn't it!

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Orangesandlemons77 · 04/03/2025 17:04

Queenanne20 · 04/03/2025 16:23

@Orangesandlemons77 My dh's also runs out in April. I phoned them yesterday and the man said they are currently working on the ones sent back last June, ours had to be returned by 20th September, so I'm guessing it's going to be a couple more months yet at least. I didn't realise you could keep sending extra evidence in. My fear is that if they only look at his review form in May or June they'll say it's a long time since it was returned last September and make us fill in another one or ask us to provide more up to date evidence. It's so very stressful isn't it!

OK, mine had to be sent back in June so they might get to it soon. I'm not sure about if you can send in stuff, I just have because I have had more recent medical appts etc, I did ring once and they had it on their system so hopefully it will be there for the assessor.

I don't think they make you fill in another, it is their fault surely they have taken so long..

Orangesandlemons77 · 04/03/2025 17:05

It also seems to make no sense why they ask for some a year in advance and others a few months later.

Queenanne20 · 04/03/2025 17:10

@Orangesandlemons77 It probably depends what area you live in. I'm in Preston, Lancashire but other areas may be working through reviews quicker or slower. Yes, realistically, if they start asking people to re do forms as it's been such a long time since they were completed, then it's going to cause even more of a backlog. Good luck with yours and hope you get some good news soon!

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Orangesandlemons77 · 04/03/2025 18:03

Queenanne20 · 04/03/2025 17:10

@Orangesandlemons77 It probably depends what area you live in. I'm in Preston, Lancashire but other areas may be working through reviews quicker or slower. Yes, realistically, if they start asking people to re do forms as it's been such a long time since they were completed, then it's going to cause even more of a backlog. Good luck with yours and hope you get some good news soon!

Thanks, you too.

GoNoSixx · 12/03/2025 10:41

Mine is due to end in April 2025, I had to return by October 2024, I just had my telephone assessment today and was told upto 6weeks for a decision to be made,literally 30 mins after my call ended I had a measage from dwp saying they have received the report from the health advisor. Now I'm worried she's only put snippets of the call onto the report for her to have already sent it 🤦‍♀️

Phase2 · 12/03/2025 11:45

Ours was end of last year, no renewal yet so have rung twice with updates and just sent reports (tracked). Not sure what else I can do but it's scary if they go down a band etc and I have to repay. I've been scaring myself with Google.

Queenanne20 · 12/03/2025 13:01

@GoNoSixx We are in exact same position. Award ends April 2025 and we had to return review form by September 2024. We've still not heard anything and all this in the news is terrifying. I wonder if the changes will only effect new claimants or will they effect people who are being reviewed?

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Queenanne20 · 12/03/2025 13:03

@Phase2 I don't think you'd ever have to repay anything that's already been paid out to you if they change the descriptors on pip.

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GoNoSixx · 12/03/2025 13:04

Queenanne20 · 12/03/2025 13:01

@GoNoSixx We are in exact same position. Award ends April 2025 and we had to return review form by September 2024. We've still not heard anything and all this in the news is terrifying. I wonder if the changes will only effect new claimants or will they effect people who are being reviewed?

Honestly I'm just trying to put it to the back of my mind 😩 it's alot isn't it, and it is worrying! I'm just prepared to go for MR & tribunal if needs be. I'm in greater Manchester so maybe the health care professionals who do assessment for my area arnt overloaded with work and are on track. There isn't alot we can do apart from wait but it's the waiting that's the most stressful.

Queenanne20 · 12/03/2025 13:12

@GoNoSixx I'm in Chorley, almost bordering Wigan but we come under the Preston area. I was told last week that they are currently working on renewals dated last June, so my dhs might be a couple of months away yet. The possible changes to PIP are frightening, I'm the full time carer for my dh so if he loses PIP we also lose my carers allowance, there's been no mention of the effect of possible PIP changed on carer's in the news. If they force dh as a PIP claimant to find work then I'll just have to hope his new employers will let me accompany him to work every day!

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LadyKenya · 12/03/2025 13:31

There will always be some people who will never be able to work, full stop. They will not be expected to, and should absolutely be supported. It is all very well the Government wanting to get more disabled people into work, who are not at present, but will they be able too, and the people, who possibly could, would employers be willing to make all the adjustments, that they would need to, in order to facilitate some people?

Queenanne20 · 12/03/2025 14:10

@LadyKenya It would have to be a very understanding employer who gave my dh a job, with his history of being a danger to himself and, inadvertently, a danger to other people. I agree there are disabled people, dh included, who can't work and never will. My fear is they will punish him by stopping his benefits completely. Luckily, we have a social care assessment in place and I'll just have to ask them to carry out another, as without PIP and Carers Allowance, I'll have to find a job but I'd no longer be able to care for him 24/7 (that is the care package he has been assessed as needing but we only receive respite care at the moment as I'm his full time carer) and he'll probably end up in a council funded nursing home. This will cost the government far more than his standard rate PIP and my measly £327 per month Carers Allowance.

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Orangesandlemons77 · 12/03/2025 14:23

Still nothing here, (due mid April, returned last June) SW England.

Phase2 · 12/03/2025 16:30

@Queenanne20 I mean if they are assessed as dropping down etc

Queenanne20 · 12/03/2025 16:48

@Phase2 If they drop your PIP award at review, either ending it or for example dropping you to standard rate from the higher rate, you won't have to pay anything back that they've already paid you, please don't worry about that.

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bagheera92 · 12/03/2025 16:49

Also still waiting on a review here in the north east

Phase2 · 12/03/2025 17:22

Queenanne20 · 12/03/2025 16:48

@Phase2 If they drop your PIP award at review, either ending it or for example dropping you to standard rate from the higher rate, you won't have to pay anything back that they've already paid you, please don't worry about that.

That is a relief as Google has been quite scary. I've always updated but you never know.

Orangesandlemons77 · 13/03/2025 20:46

I'm expecting to be turned down and have to appeal again due to longer being under MH team. This seems to be something they use to turn people down despite there not being a lot of support long term

GoNoSixx · 14/03/2025 11:15

So i just called to request a copy of my assessors report from my medical assessment on Wednesday, I'm claim doesn't end until July 🤦‍♀️ she said there is a 33 week backlog currently so chances are ill get a letter extending my award for 12 months to give them time to make a decision. Atleast I can put this to the back of my mind until atleast July now

Orangesandlemons77 · 14/03/2025 14:12

It's stressful isn't it all this waiting about. But they expect us to send things back asap

Queenanne20 · 14/03/2025 18:15

{mention:Orangesandlemons77}if@Orangesandlemons77if you don't mind me asking, how long were you with the mental health team for? My dh was with the Psychosis team for 3 years then they transferred him to the Community mental health team. He's been with them over 2 years now and I'm dreading them telling him he's discharged as I don't know who'll take over his care after them, it'll probably just revert back to the GP but it's a different person every time and they don't know him.

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