Immune/NK Issues - aka Pred Thread no 26

[KtAgs]

This thread has been running for many years and has proved invaluable for so many of us who have suffered recurrent miscarriages as we go through this incredibly tough journey.

Discussions cover immune issues, NK (natural killer) cells, thyroid issues, PGS and many many more.

Welcome to the group no-one wants to be in

@HoldingOn2Hope*@Crystal2020 @Wishing5tar*@hrtbrk2 @VenusStarr @jellystar23 @3verhopeful35 @hazlet2 @whyisthistakingsolong @NICK7nick7 @LR12 @Lalaifa @lookingforanswers86

Please tag anyone else I've missed.

@LaurenAB94 congrats! What a lovely start to the new year.

I would probably ask the clinic if they think Thursday is ok and mention re your husband. It would definitely be nice to have him with you, given it's a long drive:)

Not sure re scans but guessing some of the other girls can help x

@LookingforAnswers86 thank you.
If not I can drive there Tuesday or Wednesday I was just thinking I have Thursdays off work so if i could arrange all my scans and intralipids on Thursday that would be easier if not then I'll be able to sort it with work I'm sure xx

Thank you Rebecca, you also responded to me the first time I posted. I really appreciate it. I’ve emailed the clinic and I’m waiting for a reply. I did read online that cyclogest may delay/stop ovulation. No idea if that’s true but I’d rather not risk it. May have to wait yet another cycle. So hard :(

I completely agree with you. I have 3 wonderful girls and I know how lucky I am. But going through 3 mc in 4 months shattered my heart into a million pieces. I went to a really dark place, especially after the first mc. People have said to me, at least you have 3. Yes I do. But it doesn’t make the losses any easier. To me, they were my children from the first positive pregnancy test 💔💔💔 i understand how upsetting it can be. sending you lots of love Rebecca x

Does anyone feel irrationally upset when celebs are pregnant?
This week it’s Christine lampard . 🙄 I know it’s silly but I can’t help it and I don’t know her journey . She’s 41 . I’m 36 with 5 miscarriages under my belt makes me feel like I must have terrible eggs .
Sorry feeling sorry for myself 🥲x

@Finleysmom84 yes 100% 😆 I felt the exact same when I saw Laura Whitmore was pregnant...I am not sure why her one upset me more than others 🙈

🤣me too 🤦🏻‍♀️x

@Finleysmom84 yep exactly the same, and of course any announcements on SM. Even now I'm pregnant I feel exactly the same as I did when I wasn't because I just don't know the outcome of this pregnancy, and it's so unfair that many others get to enjoy it. I've booked a private scan for tomorrow because my next one isn't until 20th and I've already worked myself up into stressing about whether it's still alive or not that I just can't wait another 11 days 🙈

@Daffodil21 good luck tomorrow! I have everything crossed for you. Let us know how it goes xx

Congratulations @LaurenAB94 scans are £275 and then Intralipids & any other meds on top he also recommended another scan with the professor at 12wks that you need to have the blood test for at 10wks so I did all me scans at the clinic as it was easier.
I can’t remember the name of the one with the professor but I would highly recommend it and is £350 so not much more then a scan with Dr S and you get a lot of information/ detail.
I think they like you to have Intralipids within 5 days of positive test so Thursday should be ok 👍🏼 hope you receive Cyclogest soon it’s ok it’s way xxx

@LRL12 thank you that information helps 😊 hopefully the clinic says Thursday is ok xxx

I found it difficult to wriggle out of any of the recommended scans. I’d sometimes have one on the NHS and another by Dr Shehata the following day. It did feel a little like it was a money making machine BUT the one scan they don’t insist on but which was actually far and away the best, most detailed and most reassuring was the one with Dr. Akolekar. He was fantastic.

@Naticle thanks I know the NHS wanted to scan me every 2 weeks from 6weeks so that means I'll be having loads of scans so wondered if they would count those but I imagine they won't xx

Gentle congratulations @LaurenAB94 I think they will make you have scans there too I'm afraid.
I'm going mad symptom spotting.. I'm 5w which is when most of my losses have happened. My boobs were incredibly tender yesterday but a lot less today, so I'm convinced I'm having a miscarriage.no bleeding though. Does anyone have experience of this and it turning out OK??! I can't remember what it was like with my son.. X

@Whyisthistakingsolong thank you. I thought he might. I hardly have any symptoms apart from being a bit hungrier and urinating more but breasts aren't sore yet 🙈 Pregnancy symptoms can come and go unless you've had any bleeding or cramps try not to worry I know how hard it is... only a week until your 6week scan xx

Thanks @LaurenAB94my scan isn't until 21/1 which feels like a long time away. In the past the only thing I've had before a disappointing scan has been a fading of nausea and breast pain so I'm v paranoid. With any luck it'll be OK. So hard to stay positive. I hope you're doing well though, were you excited at all? I just felt dread in a way when getting the bfp...

Just catching up on everyone’s messages, I keep not getting notifications for some reason. I’ve had really bad pregnancy sickness so that has been rough but a good distraction from the anxiety of my 8 week scan tomorrow.

I usually take meds the day after solid smiley, I did that with this pregnancy and so far it is working OK even though I ovulated late based on my scans and measurements.

It is hard either way for different reasons suffering miscarriages whether you have a child/children or don’t have any. It must be so difficult not having a child as then, as you say, you have the added fear of ‘can I ever have a child?’ I can’t even imagine how heartbreaking and difficult that must be. I have a 6 year old and my challenges are that I can’t avoid play dates, baby showers, etc. My daughter is always the only one without a sibling and I get questions from her, see the negatives of her being an only child (especially during lockdown with all the schools shut and so she has no interaction with another child), have watched her be heartbroken when I have lost babies (she knows about some as I had such bad sickness and because I lost 2 in the second trimester and was showing etc), get asked by other school mums why I ‘only’ have the one, and have a lot of guilt for these things plus have had to hide lots of my grief, depression, anxiety and now sickness in this pregnancy from her because I can’t bare for her to know I’m pregnant in case I lose it again. So sending lots of love to everyone.

If you need to have a break from here it is completely understandable and you have to do whatever is best for you. We will be here when you are ready to come back and we are all on your team as we know how heartbreaking this journey is. It did help me to sometimes have a break, even if I didn’t want to stop from fear of being even more left behind. Having a goal also helped me - I did a couch to 5K and another time did a 8 weeks F45 fitness/nutrition challenge where I was able to lose a lot of the weight the fertility journey had caused me to put on. I’ll need to do that one again at some point as I currently have major steroids moonface and weight gain! Xxx

Thanks @LookingforAnswers86 - scan went well! Heart is still going and measurements are bang on! So relieved, but still early days and a long way to go.

@NICK7nick7 right there with you on the weight gain and moon face!

@Daffodil21 amazing news! So happy for you! Hopefully the moonfaces will be worth it!! Xx

@NICK7nick7 thank you! Afterwards I said my husband 'I don't mind that I'm fat now' 😂

@Whyisthistakingsolong I was happy and excited at first and then I became nervous and scared and today I'm second guessing everything. I hardly have any symptoms and I'm so scared of it going wrong again just keep telling myself I'm due some luck and I've got the best Dr behind me

@Daffodil21 congratulations that's lovely news. Hopefully the moon face side effect will stop soon xx

Congratulations @daffodil21, good news.won't stop you worrying I'm sure though.

@LaurenAB94 you're so early to be getting symptoms, try not to worry (she says). I keep telling myself I have no control now, no point worrying but it's not really working. My boob pain has come back with a vengeance, so that's cheered me up. Who would have thought we'd be desperate for all the horrible pregnancy symptoms!

@Whyisthistakingsolong thank you xx

I’ve just had my results appointment. Feeling quite positive - he’s discovered I have PCOS, which wouldn’t have caused my late losses but needs to be treated. And he’s also found my NK cells are high and react in a way that could cause CHI / later pregnancy losses.

I’ve got quite a complex plan - hydroxy, aspirin, metformin and inofolic acid now, pred and monthly intralipids from a positive test. Plus obviously all the vitamins/prenatals.
He did say I’d have to shield once I’m on the pred for 4 weeks, but I don’t mind that. Will be worth it if this all works out!

@Tinpo at least you've got a plan and are getting sorted xx