Immune/NK Issues - aka Pred Thread no 26

[KtAgs]

This thread has been running for many years and has proved invaluable for so many of us who have suffered recurrent miscarriages as we go through this incredibly tough journey.

Discussions cover immune issues, NK (natural killer) cells, thyroid issues, PGS and many many more.

Welcome to the group no-one wants to be in

@HoldingOn2Hope*@Crystal2020 @Wishing5tar*@hrtbrk2 @VenusStarr @jellystar23 @3verhopeful35 @hazlet2 @whyisthistakingsolong @NICK7nick7 @LR12 @Lalaifa @lookingforanswers86

Please tag anyone else I've missed.

Thank you all ❤️
Scan with Mr S confirmed no pregnancy, he was sure that id had a very early miscarriage and the thick lining on my uterus was a period lining. However, before I left my local EPU rang with my BHCG results and they are at 4350 so high considering we can’t see anything. Nobody was expecting that result, so now it’s all back up in the air again because nothing can be ruled out 🤷🏻‍♀️
I have repeat bloods first thing tomorrow so 🤞🏻 they have dropped significantly but knowing my luck they’ll have doubled 🙈

I will add that I am so glad this time I have the clinic. I know we pay a lot for the services but they are all so so helpful, lovely and personal every time I visit. For anyone reading this, thinking about whether they should book or not - if you can afford it, do it! It’s the best decision I’ve made x

@Jellystar23 that is so confusing. Yup with them levels you would expect be able to see something but the fact two people have scanned you, it sounds like neither of them think ectopic which is good....what could it be? 🤦‍♀️ so sorry you are going through this...have you scheduled another appointment with Dr S or just going public for the mo until this is sorted? Agreed re the clinic...

Randomly I tried to get a prescription here in Ireland for intralipids just as an absolute backup if I needed them and could not fly over...and they told me with COVID they weren't prescribing them to anyone but steroids were fine 😆 😤🙈

Been thinking of you @Jellystar23 what a confusing time for you ❤️

I agree about the clinic, I do feel looked after and it does feel like they're rooting for you. X

@Jellystar23 hope you get some answers soon... and really really hope it’s not ectopic xx

Also, completely agree with what you said - it is Mr Shetata and all the rest of the staff and wonderful nurses that kept me sane and gave me hope through all this. The level of care is just outstanding. It made me quite jealous of people who can afford the best of private care all the time, it’s in a different league! ;)

Hi all :) I introduced myself a while ago but went off the radar as I had another mc since. We are now ready to try again and I was hoping to get someone’s advice. I was told to do ovulation tests to pinpoint ovulation day and take all the meds from then. My app (which is always off by a few days) said I ovulated this week Tuesday but I’ve been testing every day and I’m not getting a smiley face. I can tell I’m definitely fertile due to CM. My husband thinks we should just dtd and start the meds today or tomorrow before the fertile window closes.
Every time we tried for a baby previously (7 pregnancies), I got pregnant straight away, even if we did it just once. I’m saying this because we think it’ll definitely happen even if I don’t get a smiley face on the ovulation tests.
What are your thoughts please? Is this too risky? I’m scared of getting this wrong but also worried I’ll miss this window if I rely on the ovulation tests.
Sorry for the long msg. Any help appreciated. Xxx

Hi @FruitandNut1 I would speak to the clinic to be sure as it involves taking meds - I’ve found emailing the nurses is a really good way at getting a response quickly (the phone never seems to get picked up!). It sounds like a judgment call for you as to when you ovulated tbh and I would go with what you think is right. Do you ever get ovulation pains? I always did and that really helped me know for sure when I ovulated (backed up by the clearblue smiley face!).

Like you I also used to always get pregnant first time but then for some reason after the final miscarriage didn’t for a couple of months and wondered if it had all eventually affected my ovulation, so maybe there is a chance you didn’t ovulate this month after all (just an idea though not saying you didn’t). Dr S then put me on superovulation and bingo we got pregnant and kept it - again just an idea maybe for the future.

But hopefully this is your month of course! Xx

Hello :) I was wondering, how long after lh surge do you start using cyclogest? I can’t remember what Mr S said. Thank you xx

@Marabouchoc I asked this yesterday and the nurse said to do it the day after ovulation. I asked if I should wait a couple of days to make absolute sure I had ovulated and she said I couldn't and it wouldn't matter but it also wasn't necessary. Hope that helps!

Thank you @rainwillmaketheflowersgrow! Is that one day after the lh surge? X

@Marabouchoc sorry just saw you said after Lh surge - I think ovulation is normally 12-36 hours so maybe leave it 48 if you can't pinpoint ovulation?

Perfect thank you @rainwillmaketheflowersgrow

Hi all, it has been months since I last wrote on here but I thought to come say hello and offer some hope.

I have had 3 losses and then under the care of dr S, I gave birth to a healthy daughter 5,5 months ago.

I will read your posts but please know that I am thinking of all of you. I have been in the deepest place and I have come to the other side myself and I know how it feels. Sending love to all of you. ❤️

@Marabouchoc I did my cyclogest 48hrs after positive ovulation test. So got a positive OPK on. 29th And started cyclogest on 31st. That's what I was told hope that helps 😊 xx

@MrsMargot thank you for coming on and giving us hope. Congratulations on the birth of your little girl. Hope your doing okay x

I'm really struggling to hold onto hope right now. I just feel like anytime I have a bit of hope, the bubble gets burst. Part of me needs a break but I then feel like I'll be left even further behind. I'm just feeling consumed by my failures - failure of my body to keep my babies safe, failure to concieve when it seems to come easily to others, failure to just crack on with it and hope it will one day be me.
I'm still rooting for you all, but I need to step back. I'm just comparing myself to everyone and it's not putting me in a great headspace. X

@VenusStarr I'm sorry you feel this way, I know this journey can be crappy. Why don't you try the SO program next month? It'll increase your chances and also you'll have Dr S support when you have the scans and injection ect ...
just know we all support you and if you need to have a break then that's ok too. Have you got any distractions you could use? A book or maybe a fitness goal or something in the house you've always wanted to do or a craft project? Sending you big hugs xx

@VenusStarr sorry to hear. Hope you get into a better headspace, it is so hard when you’re going through it. Just remember every single one of us here understands loss after loss after loss, even if we’re now all at different stages. I only joined this forum after already falling pregnant on Dr S’ plan - before that I hid from the world (and especially anyone who was pregnant) for a long time, so totally get where you’re coming from. I expect we all do. Look after yourself, try not to compare to others as everyone has completely different issues, maybe think about counselling (it really helped me), and just remember we’re all here if/when you’re ready xx

@VenusStarr I am so sorry :( I do think we all feel like this. I also think its even harder to go through when you have no kids yet, I always think that gives you a reason to get up early every morning and have tasks/ activities to do.

I agree with @LaurenAB94 maybe you should try SO, that is definitely worth a try. Also maybe taking 1 or 2 months off is a good idea and try book something every week / go on a holiday (so maybe in a few months time because obviously this isnt possible at the mo...😪). I definitely needed a month or two after my last MC instead of just trying straight away like with the others.

I find since going to Dr S I feel more positive, I keep reminding myself of his success rate and the fact he really believes he knows what's wrong with us. I also think eventually most people who have recurrent miscarriages go on to have kids so that keeps me going to ..so hopefully our time will come soon:)

Also agree with trying to keep busy (I dont always succeed but I try :))...I've started reading again lately and a few good netflix shows always distract me. I binged watched Bridgerton last week! Every day I make sure I do some exercise or go for a walk... anyway I know its easy to say and harder to do x

@MrsMargot thanks for sharing your story 💛

@VenusStarr I am so sorry that you’re struggling right now. I’ve been there and it’s a really hard place to pull yourself out of. None of this is your fault. It’s just an incredibly unfortunate hand that we have all been dealt.

I’ve been walking a lot lately and on my walks I’ve been listening to the Life After Miscarriage podcast. There are hundreds of episodes with women who have been through this and have come out the other side. It’s really helped me to hear positive stories. It’s very inspiring and uplifting for anyone who needs it x

@LookingforAnswers86 sorry I don’t agree that it’s necessarily easier to cope with miscarriages if you already have a child/children. In my darkest days I couldn’t get up early or do all the activities you mention - and I was racked with guilt over it. One of the hardest things for me going through them was lack of sympathy from people because I already had a child. Yes I love my son and am so grateful for him; it doesn’t mean I coped better (and I felt terrible for not doing so). I wouldn’t want someone reading this to feel they are not doing what they “should” as a parent or should cope better because they have a child. Everyone is different and has different circumstances, I don’t think you can make generalisations. I have thought long and hard about replying - I don’t want you to think I’m arguing just trying to show you that generalised words can have an impact (it’s certainly hit a nerve with me) xx

@Rebecca9876 I dont at all think it's easier to cope with, I never said that. Its horrific for anyone to go through. One of the hardest things of recurrent miscarriage for me is the not knowing if I will ever be a mam...so I disagree with your point above..but anyway I am not here to argue the point it's obviously absolutely horrific for everyone to go through such an awful thing :(

@LookingforAnswers86 yes it’s definitely awful to never know if you will be a mum and my heart goes out to people in that position. But you said it’s easier to cope with loss because you “always think” that as a parent you get up early every morning and do lots of activities. That’s not necessarily the case (and those activities invariably often involve having to be around other children and other pregnant women). My point was everyone is different and in different circumstances; loss is still the same. Wish you well on your journey - I always found this forum non-judgemental and helpful but think it’s time for me to go too as this has been really upsetting today x

@Rebecca9876 we are all the forum for support...not to upset each...I think we have had all had enough of that to last us a lifetime x

@NessyT91 thanks a mill. I downloaded it, will keep me busy :)

I got a faint positive at 10DPO today I did 3 tests 2 FRER and a Clearblue so I feel happy that I am pregnant.
I've emailed the nurses to book intralipids but wondered so you think Thursday would be too late? I can go any day it's just my husband can drive down with me for the intralipids on Thursday otherwise I'll need to go on my own and it's 4hours there and 4 hours back.

Also my plan says scans at 6,8,10,12,16weeks do you have to have all these scans with Dr S or can you have a few with the NHS ?
Just wondered if I could maybe have the 10week scan with NHS as all the rest I'll be at the clinic having intralipids anyway?
Does anyone know if he does any scan deals or is it just £350 per scan anyway?

Sorry I'm asking a lot of questions.
I'm trying to stay positive that this is a new pregnancy and everything will be alright without getting my hopes up xx