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Recurrent Miscarriage Support Thread 28 - Tests, Treatments, Trying again, Trying to stay sane and most of all TREMENDOUS support!

1000 replies

Kazz2112 · 19/07/2015 12:24

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!

Previous thread:
www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again?

OP posts:
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6
Flen · 01/08/2015 09:39

oneday that is good news, and I totally understand not wanting to jinx it! Just hang on in there.

minnie you hang on too, thursdayvwill come. It's just so blinking terrifying isn't it?

Am impressed with any of you watching anything even vaguely emotional/baby related. My tactic is very much avoidance!

I'm glad to read about the Mark Zuckeeberg post and glad that someone visible has said they've been through it, it definitely makes me feel less alone.

barking thinking of you lady.

mrsb well done for getting through this week, hope you get to do a few nice things this weekend.

sebsmummy1 · 01/08/2015 09:47

Minnie I feel exactly the same as you xx

Marchgirl · 01/08/2015 10:05

Nice to hear from you minnie and glad the break helped keep your mind off things. Good luck for Thursday. Big scan day again. (At least 3 of us).
I've found it really hard to convince myself that this one is different. bumble gave me an idea which has really helped me, which was to write a list of all the things that are different this time (on treatment plan, feels stronger, good line progression, 3+ on digi, etc). It really helped me on the first few weeks to just have it there in words for when the negative thoughts took over and I've just added to it as it progressed.

How's the sickness flen? I had my first heaving incident today but narrowly avoided actually puking. Think it's coming soon. Just so scared to be throwing up the steroids as I'm convinced that's what's keeping this one alive.

BumbleBee0 · 01/08/2015 10:10

Congrats oneday Smile

brummie your comment about your parents celebrating made me well up! Smile

minnie I think of the 1 in 4 stat too and also that I might be the one to break the run of good scans. You mentioned Prog holding off spotting. I googled this early on and found it will not hold off mc, so if someone started spotting due to mc, the Prog wouldnt stop it. So no spotting is positive.

I thought of the film Up when films were mentioned last night. The first bit is so sad when they lose the baby. Sad

I also watched obem (thought I'd be brave). That poor couple. Sad

Frecklefire · 01/08/2015 10:16

Congrats oneday**!

Flen · 01/08/2015 10:19

march sickness has settled into a kind of routine the last few days. I am having almost constant heaving and retching but am being sick once in the morning, once late afternoon and once over night. Food aversion is pretty sucky though, especially when combined with wheat and dairy free. Feels like there's not many options left!

Kazz2112 · 01/08/2015 10:25

Thinking of you and finger crossing this morning Barking.

OP posts:
Frecklefire · 01/08/2015 10:27

barking** if you are lurking, i am thinking of you and we are here to support you whatever the result... X

Homeboddy49 · 01/08/2015 11:02

Morning all!

Thanks for the advice March. Everything you have said is true. It is rare for them to find something so really we should keep trying. We had our tests done at separate GPs and I guess the results will go to the hospital but I think they will get that wrong as well as I don't have much faith in them at the moment. So I guess I'm worried that by waiting for the results it will be for a really long time.
My DH is very caring and understanding and we do talk a lot about everything that's happened and our feelings so I hope there isn't another reason for him not wanting to try at the moment but you never know. You are right there could be something else I don't know about. He is 47 and I know that makes him worry about about an older dad.

Congratulations to the one day fantastic news

Justonemoretime · 01/08/2015 11:12

Who'd have thought we'd be in the same section of a Venn diagram with Mark Zuckerberg?! Good for him for speaking out. AFAIK, Hugh Jackman's wife also had 2x MCs. So good that its in the public domain, and the taboo is being broken down.
Waves and hugs to all. xx

Marchgirl · 01/08/2015 12:45

home, perhaps that sounded a bit harsh on your dh. I only meant to say that sometimes it hits men more than we realise and i wonder if he's scared to see you going through it again. Xx

Brummiegirl15 · 01/08/2015 14:39

Hi all!

Oneday congrats!! Got everything crossed for you. I fully admit it was easier to share Mark Zuckerberg's post and be very open as I'm past the 12 week mark.

I doubt very much if I wasn't I would have done. Same way it's probably very easy for him to be open, he's on the "other side" but that said, the fact is - the news channels and social media are talking about the taboo of miscarriage and that's a great thing.

Barking big hugs and thinking of you

Well my symptoms have eased and I feel ok now. Which of course worries me! Can't win.

Got my cervix scan on Monday. That's worrying me too Confused

Hope everyone is having a good Saturday x

Brummiegirl15 · 01/08/2015 14:43

And Sebs forgot to say, that is awful about that poor girl on OBEM and I'm appalled at MNHQ for pulling the thread.

She was so brave and to so publicly tell her story, well I can't even begin to comprehend it.

It was heartbreaking - I was glad I watched it, but if that had been a few weeks ago, no chance!!

Emerald72 · 01/08/2015 16:17

Wow only went out for a night and how fast the thread moved! It's great though, really feel everyone is there. Sorry for long post but catching up.

Barking hope you're ok?

Bootles. thank you for sharing your testing results, it sounds like some have given you answers and some have not, and each loss has been a different reason which must be hard. I think once we've been through something like this you'll never fully relax until the baby is here safe and well unfortunately. I'm sure all is fine with your current little one. You are right what you say about men and women and how they deal with it and I think that's been exactly the case with my DP. It really did bring it all back about his brother, and he wants to bury all that again. Anyway, I've persuaded him to have the karyotyping done locally so we shall see, and in meantime I'm going to find out about that counsellor. Thanks for your help.

Kazz fab news!!!

oneday I like your mantra! I'm going to adopt that and hope that I've joined the lucky thread getting pg club.

Sebsmummy. good luck for weds scan everything crossed for you

March. that's good they're going to scan you again next week too, I hope the hepatoma buggers off

Mrsb glad being on here has helped you, I feel the same, it's def kept me sane and probably saved my relationship

Brummiegirl. that's lovely news re Zuckerberg, and good on him for sharing that. I find I'm really glued to hearing about celebs who've been through it. Thanks for link Sasha. There's quite a few celebs been through it: Claire Sweeney, Adele Silver from Emmerdale and always fascinated by the Caprice story.

Mrsc glad scan went well

Girlie oh no yes I remember the MC part of film found it so sad, and that was before it had happened to me. I didn't realise it was in time travel novel either. It's good that it's brought to public attention if in right way.

Brummiegirl I saw that too on one born how very sad that was, I sobbed too. Heartbreaking, she was so so brave. Oh god Sebs I didn't know that how bloody awful for her, what a strong girl oneday I feel exactly the same about coming out. I don't feel ready for some acquaintances to know yet really.

Homeboddy don't lose heart at DH opinion, my DP was same last feb when we were going on holiday, he's soon changed his mind now but they have to be on board too with it and he sounds like he's trying to protect you both. Hard though when you just want to be pg again soon as possible

oneday. wow big congratulations to you!! Completely understand you not saying before and don't worry at all.

mrsb0710 · 01/08/2015 16:33

barking how are you doing today?

I posted about my mmc this time on facebook. Just to say that people should remember those who may be going through a silent struggle. I'd got sick of some 'friends' pressuring me to get back to normal, or 'at least you can get pregnant - yay'. I didn't want likes or comments, just for people to know that we needed love and support. Everybody I know respected it. My SIL was twat...but don't even get me started on that.

Did a preg test today, still a faint bfp. I'm not bleeding, but still have some discharge. If its nit bfn in another week I'll get checked over. I guess hcg takes longer to.drop when you're further along.

I hope its sunny and warm where you ladies are today Flowers

Monten · 01/08/2015 17:24

Hi ladies, just quickly dropping in to say hi, still lurking but trying to keep head in sand so not posting much.

Congrats oneday. I know how you feel Flowers

Big big hugs and high fives for all the great scans on here lately. There are getting to be so many happy outcomes, it really does give hope.

As for me, I made it to 3+ on a digi the day after I posted in a panic so since then have been trying to largely forget about it. I have to go away on business at the beginning of this week so will go in for first scan on Thursday. I should be 8w then so it'll be definitive one way or the other. I have massive boobs but absolutely zero sickness which is freaking me out Sad

barking I hope you're doing okay. I just met my best friend for lunch, she is going in on Monday for her egg collection. I felt like I knew a bit about the process thanks to you. I'll be thinking of you over the next week Flowers

Marchgirl · 01/08/2015 18:02

Sorry you're struggling with the sickness flen. I honestly don't know how you manage without wheat or dairy as well as aversions. Are you permanent no wheat no dairy or just for the short term? Is it something you could relax or would it make you ill?

Sorry you're still getting a faint positive mrsb Sad. I had the same issue and they said it was retained products but that it would come out naturally but i needed to come in straight away if i got a fever as it could be a sign of infection, so your plan sounds like a good idea. Hugs though, is such a horrible waiting game.

monten, glad things are progressing for you. Great to have a reassurance scan booked. So that's 4 of us on Thursday!

fififolle · 01/08/2015 18:39

This reply has been deleted

Message withdrawn at poster's request.

Minnie74 · 01/08/2015 18:53

Thanks bumble for trying to reassure me on the prog! I think I'd read that it won't stop a mc too- I'm just worried it delays it so where I'd have bled at 5 weeks previously, the prog would delay that till say 7 weeks, even though nothing was growing. I realise this is just doom thinking but I'm fully prepared for another terrible scan on Thursday, especially as there are four of us going for a scan! Feel actually sick at the thought of going!

monten I'm feeling the need for head in the sand too. Being away was great as I didn't think about it too much. Struggling a bit more now I'm back (along with post holiday blues!)

mrsb sorry you're still getting a faint line. It's so frustrating when you just want everything to be sorted. My first MC took 5/6 weeks to get a bfn. I had to go each week to the hospital for them to check the levels were falling even though the tests weren't changing. They were falling just really slowly. Hoping you get it sorted very soon.

mrsb0710 · 01/08/2015 19:06

Thanks ladies. Last time they just said to wait until AF arrived. So I'll wait and see. I don't feel ill or feverish and my discharge is just brown (sorry TMI).
Frustrating is all, kind of want to get on with it and have my body back to normal.

Really interesting reading about the genetic testing/karyotyping. Kind of makes sense - the only way we could 100% prevent a mc or passing on something genetic would be to stop ttc. Which is not an option. So I guess just have to carry on and be brave.

Flen · 01/08/2015 19:18

mrsb I remember that too, waiting for the negative, such a weird turning on its head of the ttc process.

minnie also weeing my knickers about Thursday. Solidarity.

march how's your sickness today? I have been doing no wheat/dairy as a fertility thing, trying to reduce any inflammatory response in my body. Pretty sure I have genuine wheat issue as if I've had any tiny bit, have immediately bloated up and upset stomach, but I'm less convinced by dairy. My plan is to last as long as this pregnancy does! Currently sitting in front of the TV, sick bowl in lap...

BumbleBee0 · 01/08/2015 19:47

minnie 4 of us had a scan on thur this week and all were good! Smile

mrsB sorry you're still getting a positive test. It's so cruel for it to drag on like this when all you want is to be back to 'normal'. I bled for 6 wks after mc1 and it was a horrid reminder every time I went to the toilet Sad. Big hugs lovely Flowers

Good to hear from you monten Smile

Sorry your sickness is so bad flen. Hoping you can get some food down soon. X

OneStep2015 · 01/08/2015 19:53

fifi think you are getting me mixed up with OneDay ! Wish I was pregnant. Have to admit finding it a bit difficult lately with all the wonderful positive results here lately. I'm very happy for everyone it's wonderful... But I'm not coping with it.

fififolle · 01/08/2015 19:54

Bugger, sorry OneStep what a stupid mistake. It will be your turn very soon. Flowers

fififolle · 01/08/2015 19:55

Congrats OneDay

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