Recurrent Miscarriage Support Thread 28 - Tests, Treatments, Trying again, Trying to stay sane and most of all TREMENDOUS support!

[Kazz2112]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!

Previous thread:
www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again?

Bootles, so pleased for good scan news. And reassuring on the cervix issue.

Yay bootles!!

Bootles great scan news!

Thank you all for the warm welcomes - Barking I'm happy to have a welcome with a side of soapbox! . You sound like such a passionate advocate for good quality of care. I'm sorry to hear about your dad as well as your losses. Crossing my fingers for you on the 8th

Emerald my consultant is at Lewisham University Hospital - we had a relatively short appointment (20mins) with her and they're just looking at blood tests for now. Lewisham in general haven't been great as I had to chase to get the RMC appointment booked but the consultant said that she'd prescribe progesterone even if the tests were negative, so I feel positive about having something else to try which hopefully will help us get a sticky bean when we are trying again.

Thanks March, I think you're right that it can be good to have a break. I hadn't realised until af kicked in a week early this month just how much pressure I'd been putting on this cycle. More and more I'm learning to try to put my expectations to one side and just see where things take us.

MrsB it was our first anniversity this month - DH and I exchanged books, a picture and some origami as paper's the traditional gift for year 1. It was a really emotional anniversary for me too as I was convinced that I'd be pregnant by this time. I was glad that I called to check up on my results as now I won't be watching the post every day. But at other times I haven't been able to get through to the hospital and ended up feeling even more down. I hope your results come through soon.

Hello lost and welcome, I'm so sorry to hear about your losses and the frustrating time you've had with lack of support.

Hi all, can't keep up with this thread, I don't know how you all manage to read and reply when there are pages of posts, I forget who said what so quickly! But wanted to add that I am also in the back to back gang. Ds1 was back to back, and ended up with emcs cat 1! With a major PPH as the cherry on the top. Ds2 was ELCS and he was also back to back. For added measure he was wedged in so much not onky was he a cs but they also had to use forceps to drag him out.

I have a niggle eating away at me. Can't shake the thought that what if me taking progesterone is killing the embryos. I had a spontaneous MC, then a mmc, then a spontaneous one. All were between 5 and a bit weeks and possibly 7 weeks. Since taking progesterone I have had 3 bfps that have been lost within days of finding out and thus within days of starting the progesterone. So since being on progesterone I haven't even managed to get to 5 weeks or beyond.

Catching up a page at a time..

cloud that's awful about the 27 week loss. How horrendous. Try to hold it in your head that your pg is going well, it's a terrifying journey for anyone with a history.

emerald what a shame your friend couldn't have been more sensitive - maybe steer clear for a bit.

march scary to have a bleed from the back - piles irritated by progesterone sounds reasonable as a cause to me. 111 is exactly for situations like that, don't be put off by the questions at the start - they have to read them off a chart and send you to a and e if you display any worrying symptoms. The first person you speak to is not a nurse/dr, so they have to use the chart. Hope it stops altogether now.

flen hope the spotting stays away and glad wednesday is coming closer.

sasha sorry about your sister - very insensitive of her.

Still catching up..

Loopy I can't help feeling my last miscarriage/ectopic/ pregnancy in unknown location/whatever it was!!! ...was caused by Progesterone from Day 21. So from now on, i'm going to take it from BFP and see what happens...

bootles good scan news, fingers crossed.
Thanks all for the nice welcomes.

loopy I can understand what you feel. I've been on cyclogest. I read in a research paper that women who had miscarriages have a very good chance of carrying the next one to term without any medical intervention. A bit positive result although in my case It's not the case yet I feel scared
not to take it if advised by specialist.

girlie the book is yours!

just I had a feeling someone else had read it, couldn't remember who!

bootles whoop!!!

Flen when I read sasha's experience with her sister it did remind me of yours .

March/Mrsb I also cried during 1at dtd post mc . Bit of a mood killer!

I swallowed my pride and sent out a plea to my not-so-close but local friends - I now have company post hospital on the Saturday and someone else is keeping me company on the Sunday. But I'll be relying on you lot getting me through Friday night /testing on Saturday morning! .

barking good news on the local support network. xx

Hi ladies thought if just give a quick update, I introduced myself the other day & told you that I was 7weeks & suffering with brown spotting...well today I had my scan & i saw my little bean with heart beating away! Feel so relieved! My dr said the brown spotting is probably implantation bleed that's only just come away or I could have had a small polyp near cervix, nothing showed on scan so we can't be sure of the reason but thankfully it's stopped for now.

Great news Brummiemum

Welcome forest and sorry for your losses. The waiting to ttc and mixed feelings about it is so hard, and something I think we all are familiar with.

Welcome lost, what a heartbreaking you have been on - so sorry to hear of your losses. Were any of your losses tested for chromosome abnormalities? I'm kind of assuming they probably were?

I hope you both find us helpful.

Mrsb sorry your first anniversary is not turning out as you hoped. Everything crossed for the second.

barking sorry your family are not able to offer more help - lots going on there. May e have several plans for testing day and see which one feels right on the day?

morgan hi, honestly I don't know what I would do about the progesterone. Sorry not to be more helpful! Any further thoughts?

Sorry to those let down by the system, it just makes things so much harder without the proper support.

And sorry for all the traumatic births! Mine was ok but I would describe the next year as quite traumatic in different ways and very stressful (Not due to ds!). Things only calming now. The mind body connection is certainly an interesting thing to think about.

Still catching up..

brummiemum, that's great news! So glad all is ok

barking, glad you've found some local support, and of course we are all here for support in bucketloads, but hoping you don't need it and will instead be beaming from ear to ear and shouting your bfp from the rooftops

loopy, it was also my concern with the last two mc, but it's such a hard one. Like you, i am used to getting pg v easily so to have months where i didn't get pg or mc early was frustrating/upsetting. It seemed impossible that i could hit that many 'bad eggs' in a row (of course its not impossible though).
I really can't decide if the two early mcs were bad eggs that for other people wouldn't have got that far (in which case the prog still wasn't working correctly, as it should have stopped them before bfp), or good eggs that were 'contracepted'. Last month i was convinced the latter was true (hence why i didn't take it from 7dpo), but if I'm honest, looking back, this pg has felt very strong and different from mc5 (which felt weak) and i think that one actually might have been a bad egg. Mc4 did feel strong at the very start, so that could be either. I was terrified of starting the prog with this pg, but started at 14dpo as that spotting was actually freaking me out more than the worry of taking the prog. It stopped the spotting and doesn't seem to have done anything bad (although the jury is of course out until scan Friday).
I honestly think prog works differently for different people and that from 7dpo just doesn't work for some people, but i think once the pg is established i would no longer worry about it 'contracepting' anything (assuming scan is OK. If scan is bad I've pretty much decided i will not take it again.)
It's such a balancing act. If it's stressing you out more than its helping then i would def say to just take it from 14dpo (or not at all if you're worried). I think the main benefit from the Coventry POV is taking it early to make your lining selective, but if that doesn't work for you then maybe you don't need it at all?
Sorry for the ramble. I found it hard to be objective last month as i just wanted to get past 5 weeks, but it's easier to look back now and admit that mc5 wasn't as strong.

Fantastic brummiemum!

Hmm the progesterone is a real issue it seems. I guess if one thing doesn't work, then trying it differently is the next step.

barking good move. No-one should have to go through these horribly tough things alone. And we'll be here!

Argh to such long posts, sorry all!

And thanks for continued support x

Made it through the first day back. Huge pile of work to do, but it keeps me busy.

Bit of a pissing contest as assistant manager was there, but not manager, so she tried to push me a bit. I pushed back. No way am I apologising or feeling shit for not being there.

My other colleague opened up and shared her pregnancy loss story, which made me emotional, but nice to know I have someone to talk to if needed.

Rang the midwife for my results, but she is away until next week. Oh well, I'll just wait, that's all I can do.

Better go, been out for dinner with DH so need to get ready for work tomorrow.

Yay bootles**!!!!This thread is having a lot of luck right now!

Barking** glad you have sime rl support set up! You know we'll be heare anyway... X

Loopy** - you know, i just KNEW you were goinh to day back2back too...

Sasha, March, Loopy i've decided not to take prog until i get a bfp again too. I know i should be hoping that my body is being more selective and the fact i'm 40 now may mean it could take more time, but it is extremley unusual for me to not fall pg within 4 months.

mrsb sorry I missed it was your first day back. Well done for getting through it, and I am angry on your behalf that your assistant manager pushed you at all - what a total lack of empathy and understanding. Definitely good for you to know there is someone else to talk to in your colleague who shared their experience. Hope tomorrow goes ok.

Sounds like a plan freckle

Thanks bootles - huge smiles for your scan today :)

March

I had a bleed out the backside too about a month ago which was scary. Just got blood test results now as they took it really seriously and thank goodness everything ok...they think it's possibly an internal pile maybe a side effect from all the progesterone I shoved up my bum ...lol. Hope you are ok and get it checked if it's worrying you. I felt much better after I went to the doctor...before that I was stressed out. Hope everyone else on the thread ok xx

I am also struggling to keep up with following this thread but pleased to see there are some good news stories on her!

Great news Brummiemum bet that's a huge sigh of relief! Barking I am so totally rooting for you this week! Massive crossed fingers for you!

I've got to start pg testing tomorrow (I'm signed up to the Response trial) and I'm totally bricking it. I'm pinning soooo much on this cycle and will be so devastated to get AF at the weekend. Praying I don't but I keep swinging as to whether I feel like I could be pregnant. I fooking hate this. I'm also off on school holidays and in all honesty wish I wasn't as there's nothing like 6 classes of teenagers in a day to distract me!

To top off the worry a close mate sent out a group whatsapp today announcing she is pregnant - at 5+5! I'm happy for her, scared for her and of her all at the same time and also a little at her insensitivity as she knows all about what's been going on with us! I've had to then put up with my phone buzzing all day with all.the congratulations messages!

Good luck to anyone else this week hoping for their bfps or you lovely ladies with scans. Let's hope we can continue the good positive run

Barking glad you've found someone to be with you - but we will be there with you Friday night / Saturday morning.

Loopy I wish I could offer some progesterone advice, maybe it's worth waiting a bit. Your gut instinct is potentially weird listening to. Wish I could say something better

BrummieMum (still feels strange calling someone else Brunmie) that's great news!!

*Bootles. Yay!!!!

Hello all newbies - sorry you find yourselves here, but we are a great bunch.

So am going to start easing of the progesterone and I admit, the thought really scares me. Cyclogest has become a bit of a crutch.

So did 400mg only last night and none yesterday morning and none this morning. Going to swap to 200mg once a day now for a couple of days.

But worried about stopping. Crazy I know

Hooked on cyclogest - who knew!!!!