Recurrent Miscarriage Support Thread 28 - Tests, Treatments, Trying again, Trying to stay sane and most of all TREMENDOUS support!

[Kazz2112]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!

Previous thread:
www.mumsnet.com/Talk/miscarriage/2416801-Recurrent-Miscarriage-Support-Thread-27-Tests-Treatments-and-Trying-Again?

Hi All - I had a MMC on 28th May, it was the most devastating experience of my life, but made us realise how much we want a baby. We waited for one AF cycle, and then started trying again and now I've had a BFP, literally last night on a clearblue test - 1-2 weeks pregnant. I want to be over the moon but I am just now in a constant state of worry. I guess everyone has feelings like this after a MC. I just want the safe zone timing to be over with ASAP xx

Hello ladies. Long time no speak .

How is everyone? Amazing to see so many BFPs and positive news! Truly, no one deserves good things to happen to them more than the amazing women on this thread.

I’ve been awol for a couple of months, DP and I had an amazing wedding and an even more amazing honeymoon. I felt like I just needed to focus on something else for a while.

Well anyway, 12 long months after my last MMC I finally got a BFP a couple of weeks ago. I should be 6.1 today. But I’m in some serious need of some posifrickingtivity. The first CB digital I did 10 days ago said 2-3 weeks. I did another last Sunday (a week later) and it said 2-3 weeks. And it did another one this morning when I should be 6.1 and it still says 2-3 weeks . I know this means from conception (so 2-3 = 5 weeks) but am just filled with doom and dread. I also have no pregnancy symptoms apart from slightly bigger boobs. Can someone knock some sense in to me. I know I’m stupid for carrying on testing. But now I have I can’t stop. Has anyone had the same? Did it turn out okay? I suppose I could go for a scan but last time I had such traumatic weeks waiting between ‘inconclusive’ scans I just want to try and wait as long as possible before I go in.

monten! So lovely to hear from you and massive congratulations on the bfp. Glad you had such a lovely time with the wedding and honeymoon, i felt like you really needed the break so I'm delighted you had a great time but it's good to have you back. I'm really not sure about the digis. I gather the conception indicator can be a bit inaccurate and I know that some people just have different levels of hcg and it takes them longer to tick over, but completely understand your worry and you're not stupid at all for continuing to test. I think it's perfectly normal to want to reassure yourself. It's hard, but i really think you need a scan to know what's going on. Maybe if you book one for a few days time, when you will be close to 7 wks, then you should see the hb. Are you sure of your dates? Big hugs. Such a worrying time xx

Monten**! It is so good to hear from you - totally get that you have been in a different place but loads of people were sending you good wishes and 'waves' incase you were lurking! Congrats on the bfp firstly and i hope your fears are unfounded. I don't want to give false hope but i do think that the clear blue digi's are a complete bag of crap, really. Quantity of hcg is unique every time. Blood test would be best bet - contact epu? Hope this is the one for you. X

Welcome panda, and sorry to hear of your loss. Plus congratulations on the bfp! You are bound to be worried after what you've been through. We all understand that terror mixed with joy. You have the odds in your favour that everything will be ok this time.
I should warn you that this thread is filed with people who have had multiple mcs, so please don't be scared by the things you might read here about testing and treatment. This will not apply to you now (or hopefully ever) so don't be alarmed. You are most welcome to hang out here with us, but there is also another thread that you might find helpful, the pregnancy after miscarriage thread, which is here. Good luck with your continuing journey and hopefully I'll see you on the other thread too.

Monten massive squeeze, so delighted you had a wonderful wedding and honeymoon and over the moon to hear about your BFP.

One recent example of those conception indicators causing unnecessary worries was on the February antenatal thread where one poster was totally convinced she was going to miscarry as her pregnancy test wouldn't move past 2-3 weeks. She recently had her 12 week scan I think and all was fine. I think I would get an early scan in your situation and put your mind at rest xxx

march big hugs back to you too.
Wish we could organise a national RMC meet up day in the middle of the country for everyone!!

pandapops welcome if you are new here. Congratulations on your BFP. You will find enormous support on this thread. X

Monten congats on your wedding. It's really up to you and how you feel I think, but for me, having also experienced MMC, I just won't allow myself to sit and wait it out anymore. As soon as I can, I book in a reassurance scan. Yes it can cause extra stress and worry with the scans, but I'd much rather know what is going on in there as early as possible. Realise it's difficult to get early appointments in different healthcare trusts etc. I hope everything will be ok for you. X

Hey monten - congratulations on you wedding and bfp!!!

Hhm on the cb digis - I have a slightly different view of them. I don't think they are rubbish, I just think the issue is that there can be a huge variation in hcg levels in each pg. I've had every which way with them:

• I've had them tick up perfectly from week to week, only to find at a scan that the baby is measuring behind and it has then become a mmc
• I've had one that never progressed past 1-2 that ended in an early mc
• and I've had this last one which went up each week but a week or so behind where I thought I should be and 7 week scan also measured a week behind, then by 8 weeks the baby had had a growth spurt and was measuring bang on what it should and is now nearly 16 weeks and squirming away.

I guess what I'm saying is, I think while these tests do measure hcg levels, they are no indication of what will happen in the pg and the only way to know for sure is by going for a scan - torturous though they are to wait a week between them to asses the growth. I do think if you can, waiting till 7 weeks is a good idea as you should hopefully be able to see hb by that point.

Anyway big hugs lovely and I have everything crossed that this in the ONE!!! X

Hello, true to my name I have been lurking as one-handed typing is a bit slow, but I wanted to wave to everyone and say big woohoooooooo for Bootles, Brummie, March and Monten, whose good news of different sorts has really cheered me. I shall continue to cheer you on and a special good luck to Barking for the FET. xx

Thanks ladies and hi! Thanks for the lovely welcome back and the reassuring words. After extensive Googling, it seems loads of women have panics about those conception indicators and it turns out fine but there are also plenty examples where it didn’t turn out fine. And we all know which ones stick in your head…..

March and sebs congrats on your BFPS too! How far along are you both? Amazing news. What about you freckle how’s it going? I’m sure I must have missed loads of other bfps. Quick read back suggests flen and mrsc and brummie??? And also some thread babies – someone was due??

onestep I do know what you mean, the sitting and waiting it out is just excruciating. If I wait till next week (which still seems an eternity away) I should be seven weeks and it should be more clear cut.

sunandrainbow congrats on your squirmer!! That’s amazing news. What you say is very wise. In previous pregnancies the weeks have gone up like clockwork, bang on date and…..well, look how they turned out . And, as we all know, rising HCG doesn’t necessarily mean healthy baby.

God I hate this bit. I literally had about ten minutes of elation and have just felt worried sick since then. Although I wish I actually DID feel sick!!!! Come on symptoms…..

I'm 5+2 today monten, so just a week behind you. The stats sheet on page 1 will give you a quick run down of everything that's happened while you've been away (a lot!)
We had a big rush of thread babies, but have been quiet this month. I think betty and then bythesea are next up, due date wise. Eek!

monten congrats on wedding and bfp, will keep fingers crossed

barking how did you get on? do you have to wait until this afternoon for blood test results again?

Can I just ask a question, possibly for those that struggle to conceive but maybe others too. If you had a hsg that came back clear did you also go on to have a hysteroscopy? When Dr referred me I forgot to ask why potential septum or bicornuate wouldn't have been picked up by hsg. I'm now booked in for hysteroscopy on sat privately but they're seeing if they can get copy of my hsg results, they're saying if they are fine then I don't need hysteroscopy I'm minded to have it anyway but a bit confused!

Well pregnant again after 4 recurrent MC at age 41. Had scan today as fell straight away after MC .... heartbeat there and measuring 6 weeks 3 days but haven’t got past 9 weeks so very early days yet. After visit to fertility specialist and told IVF was not an option as conceiving wasn't our issue we had all but given up hope. Fingers crossed this time. I'm now on 5mg of folic acid and 150mg of aspirin through the fertility specialist.
Time will tell. Best wishes sent to those TTC ... don't give up xxxx

monten lovely to hear from you. So glad you had an amazing honeymoon and wedding. And woohoo on the bfp! The digis do seem to be a bit random in how they change. Hasn't stopped me buying some this time round though! I think I'd have to go for a scan like the others have said, though can understand why you want to wait. I'm 4+5 today and zero symptoms so totally empathising with you there too x

chrystly good news on the scan. Hope this is your sticky one.

barking how did today's test go?

Loved the freckle bootles barking thoughts on prof b he must feel like a celeb if he's reading!

Afm did a cb digi today and it said what I expected for 4+5 so I guess that's good. Still no symptoms, though feeling sick last time didn't help so trying not to worry. Got a bag full of tests to take away with us in case I start bleeding and pads etc. So we're on our way to Cornwall now - not sure on the wifi so may be awol for a bit. Good luck to everyone with scans, tww, bfps and egg transfers! I'll be keeping fingers crossed for everyone! Waves to all xx

Lovely news chrystley, and long may it continue! Such an anxious time but you're doing great.

flower, from what I've read, i think they can't always see everything clearly on the hsg as they are imaging from the outside, whereas the hysteroscopy they actually put a camera in and can visualise the inside directly (and deal with any issues at the same time). I can't quite remember now, did they say at your scan that there might be adhesions? If so (and assuming you can afford it), then I'd be tempted to get the hystero anyway. They could also maybe give you an endo scratch to improve your lining again. At least then you've covered all the bases and you'll feel happier that you've done all you can.

Lovely to hear from you monten! I had been wondering how you were doing. Congratulations on your wedding and BFP!! Yey!! Glad you enjoyed your break and had a lovely wedding and honeymoon...and now pg!!
I agree that the conception indicator can be quite inaccurate and a scan would be your best bet. Got my fingers crossed that this is your time! x (I think I changed my name whilst you've been away, I'm cheesymash in case you missed it)

That's wonderful news Chrystley. Hoping this one is it for you! X

Have a great holiday minnie. Hope the time passes quickly whilst you're having fun xx

Busy day but had to jump on to say hooray for weddings and a bfp monten!

And omg... How I have chuckled ... Thank you ladies! I feel like I need a 'I've been to Coventry/ I heart Prof B tshirt'!!

I know my 19 wk bump could have just been my turn, but I totally appreciate those lovely peeps at Coventry and am sure it wouldn't be here if it wasn't for their kindness and support.

Thinking of you barking. Hand holding from a far x

So lovely to hear from you monten! Glad you had a lovely wedding/honeymoon/break. I should be 7+3 today so we are pretty close. It's bloody terrifying isn't it?!

minnie have a lovely hol.

march I cannot stop eating tangfastics. I blame you entirely.

Chrystley great news, fingers crossed for you.

Monten bloody hell chick, lovely to hear from you!!!

We all guessed you'd taken so you time with wedding and honeymoon - sounds like it was amazing , and yay a BFP for you too!!!!

I'm currently 12+4, how the fuck did that happen. I'm kneeling at the statue of Prof B - he's a Coventry legend.

Chrystley yay congrats to you too !! Fab news

Hi ladies. Just back from our Devon break, a mountain of clothes to wash but I wanted to check in with you all.

Need to go back and read in detail, but I'm so happy for the wonderful scan news on here :)

Had a lovely time away, it was nice for dh and I just to have time together. I really got upset about coming home, but I know that's just the shock of coming back to reality.

No news from the hospital yet about test results, but I know it can take time.

Back to work monday, physically I feel ok, but still emotionally wrecked at times, so I'll be taking it easy.

freckle My clinic does bloods and scans every morning from 8-9.30. It's first come, first served. I can see that seeing everyone in order as they wait is the most efficient way of getting through everyone, and they can't predict how long each scan or blood test will take (and as you have both, by different nurses, they'd have a knock on effect, especially as sometimes you don't even know if you need a blood test until you've had your scan). In order to be first in the line you usually have to turn up by 7.30, earlier if it's a Monday morning as they're closed on Sundays so there are twice as many women... When it snowed, they did let us in to the waiting room 10 minutes early...

monten!!!!!!! So glad you had a lovely wedding and honeymoon - and a honeymoon bfp!! I think the clearblue tests are shit - it's definitely been said on this thread before that the dates are not reliable. I would go for a blood test - you don't have to go through a scan but they'll know what your hcg levels should be at this stage so that should give you some info without having to look at a screen?

floweroct I had an hsg (very traumatic after effect, turns out they shouldn't have used the iodine dye with me as I have a shellfish allergy - ended up admitted to hospital later that evening hooked up to morphine and in agony). They didn't pick up any issues, both tubes clear etc, and I never had a hysteroscopy.

chrystley

minnie hope you have a lovely break

mrsb reality can hit you hard sometimes, keep looking after yourself

Did my first injection tonight. Blood test this morning showed that I had made little progress since yesterday, despite showing a follicle on the scan at 17 and expecting to ovulate naturally. The nurse said that the levels were rising very very slowly and I wasn't going to ovulate therefore would need to take the injection tonight. I'm now wondering if this is what happens every cycle - the follicle grows to size then everything slows down and it just sits there while my body attempts to ovulate. This, combined with the 7 day LP the other side would obviously be very unhelpful in terms of trying to get pregnant and also indicate that it's not just my LP that is a problem.

Anyway, that means that embryo transfer will be next Thursday, and the day of reckoning will be Saturday 8th August. At least that's not a working day so I won't have to get the news then go into the office. There was a bit of confusion with the fragmin. Despite what I was told yesterday I was told today that I shouldn't take it until embryo transfer, the same time as I start taking the progesterone. Apparently the effects only last 24 hours so before the embryo is there is nothing for it to do.

I've got to wait for a phone call from the embryologist next Thursday and she will tell me whether the embryo has survived the thaw and what time I need to be at the hospital. My lovely acupuncturist has told me to text her as soon as I know and she will make sure she gets an appointment booked for me afterwards.

_

Have a lovely holiday Minnie and welcome back mrsb glad you had a nice break away and hope you're feeling slightly better now. Good luck for work Monday!
March can imagine you're a great analyst as very thorough on all the test stuff on here.
Hi to Chrystley and Monten and congrats on bfp and wedding.
My last experience of digi was not good, I think the weeks indicator can be abit inaccurate and not to be relied on. A scan from 7wks is only way but that's a tough wait! I also loved tangfastics when pg with DS.

Just googled prof b to see pic of him, he's turning out to be abit of s legend!