Recurrent Miscarriage Support Thread 27 - Tests, Treatments and Trying Again

[BumbleBee0]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread
www.mumsnet.com/Talk/miscarriage/2404797-Recurrent-Miscarriage-Support-Thread-26-tests-treatment-and-trying-again

hopeful I'm guessing from your mention of St Mary's that you are based in the South so Coventry might be an option, but I'm sure someone else has mentioned nk testing in London? I had mine done in Sheffield. I've also got factor V leiden but my losses have been earlier (6/7 weeks) and my consultant didn't think they were linked to the factor V.
I've also tried acupuncture and Chinese medicine and found that my cycles were much improved after a few months (my cycles went awol after my first mc and I've always had a late ov and a short lp, but they got much closer to 'normal').

Hopeful gosh what a time of if you have had. So very sorry for all your losses. This forum is awesome. Wonderful wonderful ladies here, hope you can find some support here. Xxx

BumbleBee good luck for tomorrow's scan xxx

Ooo bumble** - hope you're ok for tom and update us!!! You will be in my prayers!!!

Hopefull** 3 mc here in past year. June '14 @ 6 wks, oct '14 @ 7 weeks then mmc @ 11 wks feb'15 (didn't progress past 7 weeks). Now on progesterone from 7 days post ovulation and hopefully hcg and heparin next preg.

March** are you ready with the prog for tom???!!!

hopeful - what a journey you have been on hun. So sorry for your losses but welcome. These ladies are amazing and have a wealth of knowledge on RMC.

bumble - have everything crossed for you tomorrow lovely. We'll all be in there with you. x

Sun, feeling very annoyed with your friend on your behalf!

Bumble, good luck tomorrow for the scan

Hopeful, welcome to this wonderful thread. It's sound like you've had a very painful time, so hopefully we can provide some support/ therapy/ light relief from the reality of mc c

Welcome hopeful. I wish i could just come and give you a big hug right now. What an incredibly awful journey you've had. I'm so glad you've found us. I absolutely second the suggestion of Coventry/Sheffield to get your unk cells tested, or there are a number of private clinics that do blood nk (although there is some debate over which is more relevant).

Best best best of luck for the scans tomorrow bumble and flen (i think?). And good luck for the FET appointment barking. Do you think they could start you this month or is it too soon?

Bumble, thank you. So sorry for all of your losses. I have all my fingers and toes crossed for tomorrow. I hope that this is your sticky bean. x
Justonemoretime and barkingtreefrog, thank you for the information on testing for NK cells etc. Will definately schedule an appointment with one or the other. Barkingtreefrog... I have had consultants suggest my losses could not be attributed to factor v lieden since my losses were before 12 weeks (before the placenta takes over) but others say that there is definitely a link but there has not been enough research studies carried out. A bit of a mindfield!!!
Frecklefire, sorry to hear of your losses. Has your GP prescribed or have you had further testing?
Sunandrainbow, thank you for your supportive comments too :-)

March Annoyingly, AF finally showed this morning. If it had held out until tomorrow there's an outside chance I could have started this cycle! Bloody typical!!

Oh, pants barking!! Stupid witch that she is

Welcome hopeful and so sorry to hear what you've been through. I'm a high NK cells Coventry success story, and I saw HBs with 3 of my 4MC (one not scanned before losing it) before losing them at 9-10 weeks. I think that is relatively unusual as a pattern of losses and I think it'd be well worth you pursuing the Coventry route. Nk cells are not tested by the NHS, it's still experimental/research.

Welcome hopeful pom pom waver for Coventry here. I'd totally recommend having your uNK cells tested there.

Good luck for scans tomorrow ladies. Will be waiting for your updates

Meant to say, freckle, I'm just taking the prog from bfp as per advice from the prof (because I've taken it from 7dpo for 4 cycles without a successful pg). Are you taking from 7dpo or bfp?

I was thinking. I know we've talked about this before, but it would be good to put together a list of all the available testing, who does what and where, prices and treatments etc. I'm pretty sure we could somehow create a doc in the cloud that we could post a link to and can be updated by everyone (might be better than a thread, which could easily end up being a bit sprawling as people add things, and potentially contradictory)
I've not done it before (only done personal docs). Anyone know how?

Welcome hopeful so glad you've found this amazing crew.

bumble thinking of you for tomorrow. I'm just 2 days behind you

barking darn AF!

sun I really hope your friend was trying to help, somehow, in a totally cackhanded way... So proud of you for telling people and starting the journey to feeling like a pregnant woman. This is definitely the right thing to do. Such an important step.

Waves to everyone else. flen thinking of you.

Yes, March, we could have a Google sheet. I could sort one out tomorrow unless someone beats me to it (can't do it easily from my phone!)

Amazing idea march** - you are such a cool lady, i totally dig how organised you are! X oooo...am really tempted not to take prog or do half doze, just as a little experiment...

Welcome hopeful what an absolutely awful time you've had. I'm so sorry you've had to fight so hard for help from your GP- what a crock of shit! Excuse my French! This is a lovely place to rant, share worries and get advice from some very lovely ladies. I really hope we can help you too. I'd consider Coventry too. Lots of ladies here have had success on their protocol. Xx

baking great link - thanks

bumble everything crossed for you tomorrow. I've got a really good feeling about it for you- this is your one!

barking sorry the witch got you. Crappy timing!

freckle did you decide on when you're going to take the prog? I'm on 5 dpo today but I'm really thinking I'm not going to bother and see what happens. I'm probably totally wrong doing that though!

Anyone had two lots of ewcm in a month? I did 6 days ago on the day my monitor said peak but now have again at 5dpo. Could my cbfm have been wrong? obviously I'm symptom spotting like mad

Shittiest day at work again today. A parent basically told me to my face that I'm crap after her daughter didn't get the report she wanted her to get. Am desperately trying to find ways out of bloody teaching!!! Anyone who's managed it (barking pop and I feel like there's others too) please feel free to share! Still, only two weeks to go- that's a bonus!

Waves to everyone- sorry if I've missed anyone x

freckle x-post.

Thank you so much ladies, it will definitely help me picturing you all there too holding my hand.
I hope they manage to get the fannycam up there ok coz I'm sure my legs will be shaking so badly.

Good luck for your scan too flen, didn't realise it was tomorrow too!

And barking grrrr to stoopid af showing...bitch! I hope your app is still useful though and moves you forward.

Night night like I'm going to sleep tonight!

Evening ladies! Wow I've only been away a day and already so many stories of support to read, you all really are amazing women.

Well first day back at work after last MC and I survived. Was ok until I walked in and my admin girl gave me a hug and I cried, then the accountant whose male was really nice and had a chat and told me about his 2 losses 20yr ago, and I cried again. Was so nice they acknowledged it and listened it really helped. Some others weren't as good and hardly said but guess you can't have everything. It's true, support does come where you least expect it at times. Feel bit better about going in tomorrow now. Went for follow up after op tonight, forgot to ask when it's safe to swim/have sex again after op, any ideas? Had nice dinner on way back with DP, important to reconnect again.
Good luck for your scans tomorrow bumbleand others, you must be so nervous, everything crossed!
Bellendevery wise words and so true about friends not understanding, they still disappoint and surprise me now with that
Marchgirland girliesaints thank you for your wishes for my first day back at work
Sun can't believe your friend, how insensitive was that, he must've been speaking from his own experience not yours, what gives them the right?
Sacha HR are not all like that, I work in HR and would never dream of treating a colleague like that after MC. sounds like you're doing all you can be interested to hear what Shehata says
Hopeful sorry you're here and how on earth have you got through 10 MC? You must be one very tough lady, though you don't feel it now, glad you've found us, I've only just joined and the advice and support I've found so far has been a lifeline really. I also trying to have a sibling for my son, I understand your pain.
Re Coventry, does anyone have the right number to call? I rang yesterday and left message but no reply yet.

OK, March, just for you I've started a spreadsheet .
Anyone can add any information they like to it, as you suggested. I've just started one bit to try it out (in bed on my nexus, not as easy as on a computer or laptop!)

Click here

Minnie I left the classroom and started working for an educational publisher. Massive pay cut, but massive cut in hours as well and although everyone at work remarks on my workload and what my stress levels must be, I can honestly say I don't find it stressful at all given what I was used to! apart from when other people are incompetent but that's just my failure to suffer fools pm me if you want details!!
That parent doesn't surprise me. Of course it's your fault. It's not going to be anything to do with her child is it?!

Good luck for the scan tomorrow bumble

flen are you up tomorrow then? And bumble....great big hand hold from me ladies.

barking I love the article, thank you. I have been thinking alot about how utterly useless my mum and sisters have been since I told them about the further losses they didn't know about. They never, ever mention it, or ask how I am, and the most I got after I told them was two e-mails and a phone call. Then nothing. For some reason I'm v angry about it today. Slightly off topic of article, sorry.

sun, argh!!!! Sounds like he has a history to me, but I'm so sorry he said that to you! How completely idiotic of him. Listen now, you have every reason to start preparing to have a baby in January, you are doing really well - you are going to get there x

barking sorry about af, and may I'm deferring to barking on the bleeding/clomid issue. It does seem like an idea to wait for the wtf cycle to pass?

hopeful hello, I'm also glad you have found us. I'm so sorry to hear about your losses, you have clearly had a dreadful time of it, and my heart goes out to you. Between us we have all sorts of different losses (cheat sheet on page one of each thread to help keep track of where everyone is on their journey) and experiences between us. I hope you find us helpful.

minnie that sounds like a properly crap day. Hope tomorrow is better. Why can't the parents be nicer?!

Ugh too tired again.

Sorry baking i put barking by mistake re article.

emerald well done on getting through your first day back.

march and barking I seriously need you to come and organise my life into data and spreadsheets!! Thanks for starting the spreadsheet on here, good idea.

emerald glad you've got the first day over with and that some people were supportive. It's nice to know people in rl care too isn't it.

barking that sounds lovely. Unfortunately I'm the main breadwinner so a pay cut isn't workable at the moment. Dh only works 3days a week (he's a teacher too but hated it and went on supply when I went back after mat leave- now he just teaches ict (his dream!) 3 days a week) I need him to get back full time really! It's the lack of respect from parents that gets to me most. The kids are generally lovely and to be fair I love the long hols! Xx

HOPEFUL That is one brutal history you have there. Cannot believe you have struggled to get referrals at this stage. It sounds like you need advice on options for where next. I think the ladies on here have a collective experience that is unparalleled. I am sure you will get some good advice and I hope you get better results
emerald sounds like you work with a few people with some emotional intelligence. You might want to point them in suns direction.