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Miscarriage/pregnancy loss

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Recurrent Miscarriage Support Thread 26 - tests, treatment and trying again

999 replies

bythesea82 · 17/06/2015 14:40

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread here

OP posts:
OneStep2015 · 19/06/2015 11:47

Sebs I think thats amazing seeing a little hb at 5.3. Big hugs to you. x

mrsdiddlydoo · 19/06/2015 12:55

sebs sounds positive to me x

OneStep2015 · 19/06/2015 12:58

JR 48hr repeat blood test results - HCG= 617 (I think?! ...beginning to question whether she said 670 now, my head is all over the place) WTF, I hate my body sometimes!!!!!!!!

Off in the car to Coventry Hosp now for no doubt more bad news, god give me strength. Angry Sad Confused

Brummiegirl15 · 19/06/2015 13:00

fackinell (great name btw) welcome and so sorry you are here.

Yes I would definitely think about going to Coventry - I have been and am currently 7+2 pregnant on my 4th attempt and I'm taking progesterone and Heparin as per the Coventry protocol.

Tanny had her lovely Bertie at 42 after going to Coventry so there is definite hope Flowers

Brummiegirl15 · 19/06/2015 13:00

Good luck Onestep

texta · 19/06/2015 13:18

Fingers crossed for you sebs. Bloody sonographers don’t really know what’s going on a lot of the time. Hopefully you can sleep and distract yourself for a bit longer. For now you are definitely pregnant, and saw a heartbeat, that’s all you can hope for. My MMC3 measured the right size all along, had a heartbeat, strong preg symptoms, no bleeding, and still didn’t work out. So having a good scan really means nothing anyway. But i’m being a negative nancy rn. Sending you all my hope to get you through to the next scan and the one after than and the one after that because just maybe it is your turn this time.

welcome fackinell and sorry you’re needing to join. The ladies here are lovely. Have you read it all starts with the egg? I’m rereading it after some ladies here reminded me and am considering looking at ordering DHEA today after rereading the chapter on how it can improve eggs, although controversial seems really interesting. It takes a couple of months to take effect but might be of interest. I haven’t met ProfQ but I saw her colleague ProfB four weeks ago and am waiting for my uNK results.

At this end, feeling super down. Am a contract worker so no access to EAP atm but sucha good idea to use it if you have access. Am on HRT (one pill left phew) after the hysteroscopy and it’s really messing with me. A friend’s brother just lost his twin girls, who were born at 27 weeks. One passed within 24 hours and the other little one fought for 10 days before passing. So freaken sad, I can’t even. My mum had stillborn twins at 24 weeks, on top of two second trimester mcs and three first tri mcs (and also five live children) but sometimes everything is just too much.

In other news got results back from immune blood tests but no consult yet so spent many hours trying to work them out myself (bad move). Tested high concentration and normal-high on number of NKs (not sure what treatment'll be recommended), have one DQA match with DH (so only 25% chance but not the bad one), and have below normal cytotoxicity (which have no idea what means).

Qq...on acupunture does anyone have any recommendations for south london, around london bridge area? I really miss it. I used to see an awesome guy in north london - he practices japanese acupunture and chinese medicine and does a lot of fertility work and is £60 per 60min session. in the end I couldn’t afford it and it was too far away (based on a recommendation). But really want something like it back in my life and if can avoid the commute would be nice.

Take care all

OneStep2015 · 19/06/2015 13:19

This pregnancy was over before it begun, hcg rise should be over 60%.

Never been in for operation or serious hospital treatment before, hate the places, absolutely c**ping myself if it's ectopic.

mrsdiddlydoo · 19/06/2015 13:34

I'm no good at understanding the hcg rises onestep but as a fellow hospital fearer I've always got through any procedures needing a ga. They'll look after you if heavens forbid that's what's required. What tine's your appt at Coventry?

inamaymaybewrong · 19/06/2015 13:37

texta - your poor mum and friend! Tragic. My mum and sister both lost 1+ pregnancies. I'm not sure what trimester. I know someone who conceived twins on her 9th IVF cycle and they're now about 2. She'd conceived on every other IVF cycle but miscarried each time. How she stayed sane I don't know!

Acupuncture - I used to live in south London and went to Claire Battersby on Lordship Lane, East Dulwich for my primary infertility. She's highly qualified. Look her up.

OneStep2015 · 19/06/2015 13:43

texta that's so sad.Sad

MrsD it's at 4:30pm, currently in traffic near Bicester.

fackinell · 19/06/2015 14:33

Thank you for the warm welcome, I knew joining you all would be a good step in the right direction.

Congratulations on your successes and commiserations for the losses. I know how much it sucks. I shall have a look for it all starts with the egg. Thank you for that. I think this will be the last year of trying so all info will help. Spoke to DP and we will definitely book for Coventry after a +opk in July. Smile

SashaKerr · 19/06/2015 15:49

This reply has been deleted

Message withdrawn at poster's request.

MrsConfusion · 19/06/2015 16:29

onestep sorry you didn't get the numbers you hoped for. I've got fx Coventry can get some better answers from a scan. I completely understand how scary it is, just try to keep focussing on getting a clearer picture before worrying about hospitals. I had total panic about general anaesthetic but the staff were so kind, they got me through it and back to my husband super quick. You will get through this, and we're all here for you Flowers

sebs what a headfck of a scan with uncertainty to start with but it sounds positive by the end. Remember that heart beat! Hugs.

OneStep2015 · 19/06/2015 16:37

Arrived, told we weren't on the list, no appointment, appears somebody else had been covering reception. Professor Quenby kindly popped over from another part of the hospital. Just scanned me. Nothing seen, pregnancy already gone or in unknown location. Feels like a wasted trip.
Back to Aylesbury, feel like downing a bottle of wine and throwing myself in the lake

Marchgirl · 19/06/2015 17:07

So sorry its not better news onestep. I hope they are still monitoring you for potential ectopic. Big hugs xx

MrsConfusion · 19/06/2015 17:12

Oh onestep you're having such an awful time Sad. Lots of tlc tonight and definitely no throwing yourself in any lakes!! What's the next step with JR? Do they want more bloods next week? Hugs hugs hugs

Purplefrogshoes · 19/06/2015 17:17

Hi all, sorry I've been absent, became really unwell just after I got home from hospital and had to be readmitted. Infection now finally under control and I feel a lot better. Thank you for all your good wishes, John is now 5 weeks old.

Congratulations cat I'm so happy for you

Off to read back and catch up

Marchgirl · 19/06/2015 17:22

Lovely to hear from you purple. Sorry you had such a bad time of it with the infection but glad it's better now. 5 weeks already. Time flies!

Minnie74 · 19/06/2015 17:28

Oh onestep so sorry it wasn't better news. Huge hugs. X

sebs bit of a bad start to your scan. No idea about sizes so can't help there. Hold on to seeing the heartbeat as a positive though. X

purple sorry you've been so ill- not what you need with a new baby. Glad you're back home and feeling so much better though.

Purplefrogshoes · 19/06/2015 17:33

Thanks March minnie

Sorry to read your recent stats march (hugs)

bootles · 19/06/2015 17:34

So sorry onestep, what a nightmare this all is for you. The unknown are often the hardest to bear. It was a very sensible idea to get a second opinion, sorry that wasn't straightforward either. Perhaps with such low rising hcg, IF it was an ectopic it isn't developing, which would mean surgery is very unlikely. Plus as hopefully you are still being monitored for an ectopic, they can give you injections to prevent any further development if tbey did start to see anything in your tube, so again no surgery. I know that's of no comfort and right now you feel dreadful, but please chose talking to us over the lake option xx

sebs poor you with such a confusing start. I think generally it goes like this: around 5 weeks you should see the start of a of sac and possibly the start of the yolk sac. Then the foetal pole appears, which should have a heartbeat around 2mm. That can appear as early as 5 and a half weeks, but not necessarily. There's a good site I'll try and find in a mo.. So I think what they have seen is positive, but understand your fear goeswould ignore the sonographer's reaction, they are being cautious, which I think is better than blind optimism that I have previously had when things were clearly not right. I'd say there's definitely cause for hope. Hope the time to the next scan goes fast xx

girliesaints · 19/06/2015 17:37

Welcome Fackinell, hope we can provide some support.

Sebs, sounds like a promising scan for this stage....small breath for the moment?

Onestep, big hugs as remember from my last MC the frustration/ headf**k of inconclusive scans. Sometimes you just need conclusive news either way.

Purple, sounds like you've had a right time. I had a similar experience with dd and it's not fun. Hope you've still managed to get lots of cuddles with John.

One week to holibobs and realisation that another gift of the last MC is that I will be fat before I've even touched a cocktail. Nothing fits in wardrobe and I'm loathed to buy anything new as determined to loose the weight (again for the 5th time) DH is annoyed with me for moaning and keeps telling me I need to give myself a break. I know he's right but doesn't help....

mrsdiddlydoo · 19/06/2015 17:41

Oh onestep. 2nd everything mrsC says. Lots of TLC tonight and this weekend. What happens next? Please be kind to yourself. And I know what I'd be doing to a bottle of Wine xx

BumbleBee0 · 19/06/2015 18:05

I'm so sorry onestep. It's just awful. SadFlowers
I had similar with my 2nd mc which was suspected ectopic. I had a scan and they found a small sac but said it may have been a pseudosac and therefore still couldn't rule out ectopic. In the meantime I was having hcg checked and they rises slowly at first then peaked at just under 1000. They gave me the choice of having surgery to check my tubes (sorry forget the correct name) or wait and see. I chose to wait and see as my spotting was getting heavier and my hcg seemed to have levelled by then. My hcg was monitored until it was below 20 and I was then discharged (which took another couple of weeks).

I hope you are being looked after and please be kind to yourself. It is a horrible process to have to go through and I hope you will keep talking to us on here so we can support you. I know everything is dark at the moment but there will be days in the future when it will be lighter. xxx

BumbleBee0 · 19/06/2015 18:06

sebs I'm sorry your scan hasn't left you feeling more positive but it does sound generally positive to me. Seeing the heartbeat is a hugh milestone. xxx