Recurrent Miscarriage Support Thread 25 - tests, treatment and trying again

[Marchgirl]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread here

annie hugs to you, love. I’m really sorry I didn’t realise you were having the op today. Glad the painkillers are working nicely.

minnie for you too. I know it's no help whatsoever but I absolutely, completely understand the pain and jealousy and rage. And I really dislike myself for it but when it happens, one friend after another, every time I'm supposed to be pregnant, it really is the most awful kick in the teeth. I know it's a school night but could you have a ? I'm just down the road, remember, if you ever want to meet up and have a shout!

sebs I am well impressed the Welsh contingent are so amenable. I think that’s really open minded of them. Hope they come up trumps.

brummie I am not going to read the thread because I will get involved and end up writing things I shouldn’t. It all sounds slightly unhinged, though, and I would stay well away. Having said all that, I’m quite tempted to have a peek!

cat thinking of you tomorrow. I’m hoping everything will be fine.

Had my phone consultation with Prof Quenby this evening who was lovely. Like my consultant at Leeds, she said that not being able to find anything wrong whilst incredibly hard was actually a really positive thing. (I’m still not at the stage of accepting this though!) Then we went through her recommended treatment plan which would be:
Progesterone from day 21 and continue through to 32 weeks
Heparin from early scan and continue through to end of pregnancy
Aspirin from 10 weeks through to the end
Plus I also asked about high dose folic acid as recommended by Liverpool and she was fine with this throughout.
I really can’t ask for more than that. My worry was that she would say to stop it all at the end of the first trimester but she said it would be best to continue everything as I’d had the second trimester loss. This would be massively reassuring, I think, should we decide to try again. It was really lovely to talk to her and, although I don’t have high nk cells, I’m really glad I went to Coventry and got their opinion. Would highly, highly recommend it.

My due date which is looming up on the 26th. Am trying not to think too much about it at the moment but it keeps creeping in to my thoughts... Have a counselling session booked for the day before and me, dh and ds are off to the Lakes on the day itself/that weekend in order to get away and do some thing 'nice'. I just hope I get through it.

Hugs to you all my lovelies. You really are a bunch of wonders.

Thank you so much everyone. I've chilled myself out a bit ( I'm so lucky to have you lovely lovely ladies who get it and don't think I'm horrendous for these shitty jealous feelings. I know it will all be fine whatever happens and, as my newly pg friend said, I am very lucky to have ds.

annie I'm glad the day is done for you today and you're home. Take it easy and get lots of TV and chocolate in xx

brummie thanks and that feb thread sounds horrible. Stick with us- much more sensible!

cat good luck with the scan and hope dh's op goes well and he's back on his feet quickly.

pop really happy that prof q put your mind at rest. Good to have someone who's thought it all through. Thanks for the offer of a rant too xx

Big hugs for your impending due date pop. I hope you have a lovely time away with your dh and ds and that you also have a little time to reflect. I can't even imagine how painful it is for you and how difficult that day will be buti hope it gives you a small sense of peace once it's passed x
Glad you had a good appt with prof quenby and that she has tailored a treatment plan for you circumstances (unlike some nhs consultants i know! )

Good luck for the scan tomorrow cat, and for your dh's op

Glad the d&c went ok annie. I hope they are able to give you some chromosomal test results from it. Rest up x

Not liking that antenatal thread brummie. Whether she was directing it at you (i actually don't think so) or not, that was a really horrid thing to say. The poor girl is clearly very anxious and is basically told to belt up. Cruel. And a bizarre reaction when the poster herself had a concern that symptoms had disappeared!

Hugs minnie. It's horrible to feel left behind. The last of my nct antenatal group (except me obv) had her 2nd baby last week. The nhs antenatal ones have all had there's too except one who only wants one. I like to console myself with the fact that they will all be back at work when I go on mat leave and I will be able to give my full daytime attention to dc2 as dd will be starting school

Minnie that sounds so hard. It sounds like your friends want to protect you but unfortunately they are also inadvertently causing you pain.

You have done far better than me as I have totally isolated myself off the back of my miscarriages. I stopped going to toddler and baby groups where I had friends, I stopped going on Facebook where I kept in touch with my son's antenatal group. I couldn't face the shame and embarrassment I felt and didn't want the head tilts and pity from everyone. You have allowed yourself to remain immersed in your friendship groups and I actually think that's pretty brave, particularly on painful days like these.

You have done everything correct (unlike myself) and have everything organised now so just focus on having a wonderful summer and some good old fashioned shagging and when you get your BFP you'll be good to go xxx

Pop that sounds like a great consultation and as you said, you couldn't ask for anymore. Hopefully it's put your mind at rest and you feel like you've got a support system behind you now.

Minnie sorry about the pg bomb. The thought of you crying alone on the sofa makes me sad, so consider yourself surrounded by all of us, and cry away, we get it x

Annie glad that your erpc went well (as well as these things can go), do look after yourself.

Twilight glad Coventry went well, and hope you can start to move forwards with a plan soon.

Brummie haven't had a look at that thread yet, but I just have to now! Sorry you were so upset. I am steering well clear of anywhere but here.

cat good luck tomorrow

I have a scan tomorrow - should be 7 wks 4 days, minus 3 days as I O'd later. I hate it when the thought of 'I can't cope if....' creeps in, because I know I will have to 'cope if...'. So far only had a location scan at 5ish. Somehow the stakes seem higher and higher each time. Whilst thinking 'why on earth should attempt no.6 work', I am also trying to be positive and urge the little bean (are you in there?) on.

hadn't got to the last page yet...

pop really glad you were comfortable with Prof Q. I do think that at Coventry there is a very different attitude to that that I have encountered with any other consultants. Massive hugs for your upcoming due date, and vent and rant here as much as you need to if it helps.

Oh minnie. Can I join you on the sofa? I had a bit of a meltdown tonight about my impending due date that will never be. DH is working a night shift tonight so I'm all alone. I know that feeling of trying so hard to be happy for someone and then just feeling like shit because all you feel is pain and jealousy. My brother decided to call me at work during my last pregnancy to tell me SIL is twelve weeks pregnant. I just about held it together to get out of a room full of burly police officers and lock myself in the ladies before the tears started. And then three days later I started miscarrying for a third time. Life sucks noodles

brummie I've never posted on an AN thread but I have followed them. Isn't it weird that all the doctors say that every pregnancy is different but then all these women end up getting the same cravings and all the same symptoms at the same time. Maybe it's psychosomatic

annie I hope you've got people looking after you, bringing you lots of chocolate and trashy magazines. I'm still in the pyjamas I wore all day (think that's a symptom of depression) but I've discovered the wonders of itvbe! I never thought I would watch a whole series of Mob Wives in one sitting but here I am!

pop the problem I'm having with wobenzym is fitting the second dose in on an empty stomach as my stomach seems to be habitually full of biscuits these days! When will you get your coventry results?

bootles and everyone else nervously awaiting scans, I'm thinking of you. I may be an unshowered, pyjama wearing, depressed mess but I'm still hopeful for you guys

Sebs you're just like me. I left Facebook totally and isolated myself from many groups / people. I kind of regret it now but I think it's best not to be too hard on ourselves. Sometimes we just have to do whatever gets us through these trying times.

Good luck for scan tomorrow lovely bootles. We'll all be there with you in spirit, cheering you and your little peanut on. Please let us know how it goes.

Pop I will be thinking of you on due date. Going to Lake District and having a session with your counsellor will help. I'm pleased your conversation with Prof Q went well and you have some plans in place for when you feel ready to try again.

Good luck tomorrow Bootles got everything crossed for you

On a irrelevant unrelated to mc note. Anyone watching the shower of shite that is Love Island?

Christ I'm so old and not down with the kids. When was "mugging me off / pieing me off a thing???

And those Italian twins are about as Italian as Barnsley Pizza Hut

I have shit tv taste I know

Oh ladies you are a lovely bunch! Reading this thread makes me feel like I’m not alone. All the same feels, so much to say. Plus the tears every day, urgh! You’re a tough bunch and hope y’all stay away from the AN threads. There’s so many preggos here already to form a great club – crossing my fingers for y’all.

Good luck tomorrow with your scan bootles, hopefully it is your time.

so...went to greece last week for the hysteroscopy. It was a pretty crazy experience and recommend to anyone who has been given a 15 week wait for a hysteroscopy and can find the cash to do it as it costs 1/6 the price of getting it done in the uk privately. Athens is marvellous and the Serum clinic is tres fancy, with lovely consultants. they found nothing but the ureaplasma infection, which I already knew about from the menses test, and the antibiotics should hopefully get rid of it. Anyone (biscuits) who is thinking of doing the hidden c and life blood tests, go for it — recommend it after seeing what my creepy infection looked like inside my uterus. Urgh! Ureaplasma is apparently considered a reason for second trimester miscarriages, particularly in the states where they test for it more, so might be something to look into for those ladiez looking for another thorough test in the meantime? not that i've even begun ttc-ing yet after mc3 but anyhoo...

Was it cats who recommended inofolic? i’m taking the powder myoinsitol and love it. Want to ask you girls more about the stuff you’re taking to thicken lining but I can’t find the strange long word for the stuff that sounds maybe russian…so will leave it till next time. Take care all.

wobenzym! that's the stuff snoopys are you taking it for lining?

snoopy yes I've discovered ITVBe! Tonight I was allowed to watch made in Chelsea AND real housewives of New Jersey in the living room in my pyjamas on the sofa with a duvet and a some lemonade and a take away on a tray. I am being very well looked after .

Mob wives caught my eye! I'll give it a go tomorrow. Today I found a marvellous programme called Baggage Battles about people who spend $200 on mystery items of unclaimed baggage.

Oh god pop I'm so stupid, didn't see you've already had your consultation. It's great that she listened to your concerns and you have a treatment plan.

texta I was just googling recurrent miscarriage and it came up. I have a long history of auto immune problems in the family so thought it was worth a go. What does it do to your lining?

annie Mob Wives is like RHONJ (of which I am also a fan) on speed!

brummie what is this love island you speak of?! Sounds like the sort of trash that is right up my street.

I'd also like to say that trashy as I sound I also attend many art galleries and watch many foreign and art house films

I'll have to watch Mob Wives then. RHONJ is the only RH series I watch. I think it's the Italian thing.

Need to check out Love Island too, looks a bit raunchy!

I watched a foreign film only yesterday on demand. Force Majeure. It's about a family caught up in an avalanche.

I must re-read this thread tomorrow and catch up properly with everyone. Thank you all again for getting me to a much happier place .

Morning ladies, sorry didn't post yesterday. Did check in during the day but day two at work was very intense (ooh now you're back, can you just...) and I was shattered.

Working from home this morning as have GP telephone consultation to (hopefully) sort out referral back to rmc clinic (although I already have the appointment, don't you just love the NHS paper work!) and then first school settling in session for dd this afternoon, which is bitter sweet.

Annie, glad to hear op when ok and hope you're ok today. I always feel worst on the second day, so take it easy.

Good luck Cat & Bootles with the scans x

Brummie, hope you're feeling calmer after yesterday's drama on the other feed. Love the ladies on here came out in support x

On the subject on trashy TV, nothing bad in that. It's good to have balance in your life I say. Dinner date & Geordie Shore are mine x

Hey ladies.

Wow! I dint know how you all keep up with each other on here. Im Mind boggled!

Everyone seems to be trying so many different routes / options. Are they all consultant recommended or self medicated? I'm currently signed up to do the Response research trial when I get my next bfp but reading all your stories I'm wondering if I should be doing more!

Good lick to all you ladies with scaMs coming up and get well soon Annie.

So I went for to the private recurrent miscarriage clinic yesterday and I don't know what to think of the outcome to be honest, I am no clearer than before. Basically I was told I could have a biopsy of some kind (he said his secretary would send info) all she gave me was the price. And the info for Coventry if I wanted to. But he said that up to you what you do and thinks only 2 miscarriages no great need to. After a mind blowing morning on the long drive home I suddenly thought no one mentioned any detailed blood tests, surely this would be the first thing to do? I've left a message for him and awaiting a reply....hopefully? The outcome was I am likely to be super fertile, meaning my body receives good and bad embryos, whereas "normally" you wouldn't even get pregnant with the bad ones and keep trying over and over again until you get a good one (if I can handle the miscarriages in the meantime) x

Good luck for the scans today bootles and cat. Got fingers and toes firmly crossed.

Meant to reply yesterday to say sebs, I'm not sure photoshopping would work because of the way the letter is written with the results in it, but i did find several useful research papers on the use of heparin as a cytoprotective effect when i was trying to convince my consultant and I'm pretty sure there was one about decidualisation of endometrial cells by the profs which might help explain their thinking. Come back to me if you get stuck

Whereabouts in the country are you leah? The nhs normally do the standard blood tests after 3 consecutive but you can sometime persuade them after 2,esp with other factors like age. I'm not sure what the protocol is for private clinics. I would have expected them to test for the clotting issues if you hadn't already had that done. Coventry implantation clinic you only need to have had 1 mc i think, so presumably that's why that was suggested (along with your history)

texta yes I would recommend inofolic, am sure it helped me. Never heard of wobenzym but have a friend with lining issues so going to recommend she gets some!

Good luck today bootles. I have to wait until 5.30 for my scan xxx

March you set such a sweetie for thinking of me. Thank you so much. I doubt I have a hope in hell of being prescribed heparin as all my clotting results came back normal.

I guess I thought progesterone might be a possibility because of the spotting and as a precaution. I think I'll just throw myself on her mercy and see what happens. I haven't had anymore spotting (touch wood) so I'm just hoping my body might be able to do this on it's own after all.

march I am in Essex. No I havent had any bloods tests. My head was all over the place and completely forgot to mention it. I got the impression it was very much just keep trying until you get a good one and hope you can cope with possible miscarriages in the meantime and if you fancy spending some money do these investigations and the likelihood of a result is pretty much nil x

bootles hugs for today's scan. Will be thinking of you. And cat x

Leah I'm sorry I can't keep up with the thread perfectly at the moment so not sure if your history except having had 2 mc. I would have expected the private clinic to have suggested standard rmc blood tests and then offer up other stuff on top depending on your circumstances. The consultant was right in that sometimes we just have to keep going to get the healthy egg and lining combo that will work. After 2 mc I felt helpless. Did I keep going and possibly have another or seek some treatment and still maybe have another. I'm not one for waiting around but couldn't afford to go private so went to Coventry to feel like I had done something. Only 50% of standard rmc tests find anything. Of the 50% with no result half will go on to have a successful pregnancy next time (correct me if that's wrong ladies). The consultant sounds pretty honest. Others would be seeing pound signs. If it would make you feel better having some testing, I'd recommend it, but if you're strong enough to keep going, the chances of a successful pregnancy next time are greater than you having another mc.

pop for a good consultation

Hmm. How frustrating leah. I really thought a private clinic would offer you the works. You might be able to persuade your gp to do the basic clotting bloods and things like blood sugar, coeliac screen, hormone levels. I think if you think your history fits with hyperfertility then Coventry might be worth a visit. I thought the theory fitted with my history but really just went to tick it off the list,then got a high uNK result . I think jady went after 2mc and also got a high result.
The theory behind this issue is to do with the lining of the uterus not being properly prepared which leads to both any egg including 'bad eggs' being implanted (hyperfertility), but also to 'good eggs' not being properly supported,leading to problems with the interface between mother and baby and placental issues.