Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

My stats....
Me 29 dh 32
DS 2013 - straight forward pregnancy and labour
Mmc1 sep2014 - a few bouts of pink spotting followed by red bleed, scan (few days before 12wks) revealed baby had died 8+5 (had medical management)
Mmc2 jan2015 - started pink spotting around 6 wks which eventually led to natural miscarriage a couple of weeks later, however scan showed empty sac measuring 4-5wks

Diagnosed with factor v Leiden clotting disorder and high uNK cells of 9%.

Just had 1st cycle ttc since last mc but bfn

Great news Brummie, yeyyy!!! So pleased for you!

Sorry the spotting has returned cloud, wish it would F off for you! I too had constant travel-like sickness and have never actually been sick. It was worker when I was hungry so I found snacking and ginger beer helped.

Sorry little Scott is back on the tube just, that must be so frustrating when all you want to do is give him a cuddle and feed him yourself. It will get better though and he will manage to feed on his own soon, he just needs a bit more time then you will have hours and hours and hours together where you can just sit, cuddle and stare at him for hours.

So sorry to read of all the newcomers. It really makes me sad when you join us because I really wish you didn't need to. But it is the best place to be. The collective amount of support and knowledge these ladies share on here is quite amazing.

As for me, I got a bfn this cycle! Boooo! I also got one almighty and scary crash from the progesterone and don't know if I want to take it again now. I think I'll give it one more go by trying to wean off it more gradually (I'm on 400mg x2) but if it's not much help I think I'll leave it and take from bfp.

Found out my cousin had her baby yesterday, nearly 8 weeks early!! A little girl, about 4lb 12oz. They are both ok, but obviously she is in the special baby unit. Strangely, I think I'm looking forward to buying a (teeny) outfit and visiting once they're home and settled.

About breastfeeding tips....I recommend having a constant 24 hr supply of snacks (flapjack worked for me) as I had trouble filling myself up in those first couple of months and would often be starving in the night when feeding.
I also had trouble feeding my son and had to be re admitted to hospital. I think mainly because he had a small mouth (and my big boobs) and a really good tip if got was to squash your boob and insert it like a sandwich into their mouth so they can fit more in. Also make sure you're comfy first with pillows to support your arms. It also does hurt for the first couple of weeks, but your nipples toughen up and you get used to it. It is really hard for the first month, and I got very upset feeling like the bottle would have been so much easier (and I would've got some sleep!), but after that first month it gets easier and easier and very convenient when out and about.

just hugs. He'll get there soon x

Hey all.

Am officially between jobs for a month now so have finally got some time to try and catch up with this thread! Apologies that I'm not going to be able to name check everyone but my memory simply isn't good enough.

Just - I've been AWOL so long I am yet to say congratulations on the birth of Scott. Lovely news to come back to, though obviously I am sorry to hear that he was early and has needed some extra care. Good luck with the next attempt to get him off the tube.

Tins - Glad to hear Faith is doing well though sorry to hear there is still so much uncertainty about the future. Your summer plans sound fab - I hope they give you and your family some much-needed normality.

Cloud - I'm so sorry that you've been dealt such a stressful early pregnancy on top of everything you've already been through. Perhaps I'm still naïve but surely your history plus spotting should equal fairly easy access to regular scanning?! When was your last one and how many weeks are you? Could you call in sick tomorrow and just dedicate the day to getting a scan - even if it ends up being private - just to put your mind at rest a bit? Huge hugs.

Longest, Bootles and Cat - I can't believe you're all so close now. It feels like only yesterday you guys got your BFPs probably not to you though!. Glad your cold has eased off Longest. I also think eating alone is the height of sophisticated maturity (though I have never managed to stretch that attitude to going to the cinema on my own).

Brummie - tentative congrats on the bfp. I liked the idea of 'new sperm, new egg, new lining' (sorry I can't remember who said that). Unavoidably stressful time ahead but stats continue to be on your side. I have everything crossed for you my lovely.

Spam, Texta and Snoopy - I don't think you'd joined the last time I was here so waving help to you guys. Sorry you have to be here - though this is the best place to be in these shitty circumstances. I don't post much but still consider these women to be my lifeline and what keeps me vaguely sane.

MrsD - big hugs. Knowing you're in your own 'danger time' is so horrid. We'll all be counting down the next few weeks with you. Glad you're also shifting your cold and nausea is being kind (though I appreciate that's sometimes a difficult thing in itself).

Sebs - glad you've made the decision that feels right for you and your family. Hugs.

Girlie - and hugs. Sorry to hear your news.

Waves at everyone else - sorry not to name check everyone.

No news really. For introductory stats purposes I had MC5 in Feb at 9/10 weeks. Have had testing at St Mary's which didn't find anything. MC5 was due to Tripliody and was a molar pregnancy so I am currently having follow-up testing at Charing Cross Hospital. This means an enforced break so I am also going to Coventry for NK testing, though I know Triploidy couldn't have been prevented. I'm doing ok mentally - have shitty days which we'll all be familiar with. Looking forward to starting my new job which should be far less stressful so that feels like a positive move.

brummie Congratulations! Am so happy for you but really sorry the worry is there as well.

cheesy sorry it's a bfn. x

I got my Coventry results through and it's a negative. Am so, so, so, so about everything. Fuck fuck fuck fuck fuck. I have nothing, now - no pregnancy, no dd and no reason for all of this loss. Feel absolutely gutted. And now have absolutely no way forward as we've got no reasons for everything that's happened. This has truly been the shittest year of my life. I've lost my pregnancy, my interest in my job, and my whole sense of what I'm doing nd why I'm doing it. For no reason whatsoever. Fuck fuck fuck fuck fuck.

Thank you for letting me rant again. x

(((Pop))) I'm sorry. I know how much you needed an answer and preferably a 'fixable' one.

twilight good to see you! How much longer is the molar follow up for?

Oh Cheesy I'm really disappointed for you!!!!

The 2 days I didn't take progesterone from I didn't have much of a crash, but it was only 200mg x 2 and I pick up my prescription tomorrow for 400 mg

Still really confused about Imp and ov'd dates. I ovulate round about day 9/10

I'm more worried about progesterone and am getting that tomorrow - well the bigger dose!!!

Hugs to everyone. Can't believe how close another 3 of you are. 3 more thread babies will soon be arriving.

Just how are you feeling???

Tanny how is stuff at home? xx

Still can't quite believe. I'm scared I'll start bleeding and it will have just been a chemical pregnancy..

Acupuncture really calmed me down though and I'm booked in now every week until I'm 10 weeks - if I get that far. I got told off for saying that. Apparently I will get that far.

It's going to cost a bloody fortune but I'll just have to suck it up

Nice to see you back Twilight. Hope you're ok.

Oh Pop god I'm sorry that you don't have the answers you wanted / needed. As others have posted on here in the past that you're actually more likely to be successful in the future if no issues are found but I know that's no comfort after your heartbreaking loss. Hugs to you and your DH.

X post Pop

I was exactly the same. Had negative results from Coventry and felt exactly the same. It was a real kick in the teeth. It felt like id lost 3 babies for absolutely nothing xx

Twilight good to hear from you xx

Pop, sorry you don't feel you've got the answer you so hoped for. Were you on the heparin and progesterone before? Maybe they'll help in the future. Hugs to you.

Twilight, good to hear from you

Waves to everyone. Thanks for all the well wishes to Scott. I am conscious that its a far cry from where this thread is supposed to be. I was upset earlier but I know that he's getting the best possible care. He'll get the hang of feeding in his own time. He/I would have been 36 weeks tomorrow, so I suppose I can let him off for needing a rest day.

brummie I echo what others have said and would add 2 weeks onto to ov date rather than go on lmp as I think that only applies to 28 day (ov day 14) cycles.

Oh pop, big hugs. Please continue ranting away as much as you need. xxx

Cheesy, thanks, and all the best to your cousin. Life visiting the neonatal unit daily is a whole new world...

Oddly, (perhaps not oddly ) quite a few of the mums in there have a history of MCs or infertility needing ivf. The wonders of modern medicine, supporting us at the TTC and preemie end of the problematic pg.

I'm sorry it's a BFN Cheesy. Always gutting. Hopefully it's simply your uterus being choosy and it'll implant a lovely healthy embryo next cycle.

Pop - I know the feeling of disappointment after clear results. It's just the feeling of wanting an answer as to why this is happening and not getting one feels horrible. And trying again in the absence of a sense of what'll be different 'this time' is really hard. Sorry - I'm just telling you what you already know only too well. I'm sorry about your DD too. Hugs.

Baking - I've been really complacent about molar pregnancy and have only just sent my first lot of bloods etc back for testing. I'm actually not sure how long it goes on for; I think it depends on HGC levels. St Mary's Dr said it's usually 6 months in cases of partial molar. I think I've been a bit 'head in the sand' about it all but it's the only way I cope sometimes.

Brummie, as others have said, the accurate way is that doctors say you are 2 weeks pregnant on the day you ovulate, so you will be 4 weeks minimum, assuming you are at least 14dpo but can't remember when you said you ovulated.

Pop sorry you didn't get anything back from coventry that could suggest why your loss might have happened.

Welcome to the newbies, sorry for your needing to be here, but I've learned so much from this thread.

Just, hope Scott improves. Feeding is very tiring for a newborn at term anyhow, never mind when so small, the bigger he gets the easier he should find it.

Cloud have you managed to arrange a scan? Hope bleeding has stopped.

Here my temp is continuing to rise, and can definitely feel things happening, sometimes wish I couldn't feel ovulation and Implantation, makes it permanently on my mind. I think I will be 7 dpo tomorrow, and am in a quandary re what to do. I have 37 x 400mg progesterone left over from last BFP. It had been prescribed last time from BFP. From reading on here, I think the coventry protocol is 200mg twice a day from 7dpo? Should I chop the 400mg ones in half and take them. Or should I wait until BFP? Am worried about taking them and them causing a mc because of the rumours of them acting as a contraceptive. But just as worried about not taking them and my body being broken and not producing enough progesterone or a decent lining and causing a mc too. Brain fried not knowing what to do. Thoughts?

Also freaking out that the Julie's told you they won't scan until 6 weeks Brummie. Mr Watts told me because of my positive anti lupus coagulant, he would want me on clexane next time instead of aspirin from BFP. 3 of my last 4 losses have been before 6 weeks, and the other was a mmc which had stopped growing at 6w 4 days, so I just feel like with my history 6 weeks is too late

just don't apologise. I like hearing your updates. It gives me hope that one day I will have a real life baby.

I wish everyone who got pregnant would come back and give positive updates so we could see there is light at the end of the tunnel.

pop I'm so sorry. Have they offered you any treatment at all? It seems some people respond to treatment even if they aren't any actual problems identified. Even if it's just a placebo effect some doctors seem more proactive than others.

The only thing my tests found were high NK cells and I'm heterozygous mthfr. I paid for those privately after mc 2 but now after 3 I'm being referred on the nhs. The nhs doesn't really recognise NK cells (I remember the look on the a and e doctor's face last week) and no one thinks heterozygous mthfr is a problem so I've taken it on myself to get methylfolate instead of folic acid. At the moment I'm clutching at straws but I'm willing to try anything.

Loopy I think in your case you would get it straight away. But Julie Brassington said to me she had to the sign off first from Mr Watts.

So do what I did and get straight on the phone.

My protocol from Coventry was 7 days of 200mg twice a day from 7 days post ovulation. Now I've got a BFP it's now 400mg

So if you were going to start now take the 200mg would be my advice

cloud damn that spotting. So sorry you are having such a tough time. I agree with the others, and hope you manage to get a scan fitted in. Sickness comes in all varieties, I have had both the types you describe. Huge hugs.

twilight lovely to hear from you. I hope the molar doesn't hold you back for too long, and that the new job brings you what you need. Its boozle80 who is nearly due, not me. Confusingly similar names I know.

cat woo hop mat leave! Enjoy every minute.

just like you say, its a blip. A very frustrating one, but a blip. Crossing everything that Scott is home soon.

brummie I agree with the dating. It must be just a bit more headf**k for you though, as if there wasn't enough. I think Prof B would have meant his message kindly. If I were him, I would worry about all these heartbroken couples hoping his treatment provided the answer. I think he just tries to manage expectations. But I totally understand how it's difficult to hear. And we already know. Besides, this really could be your one x

So, just me who is weird about overloading myself with information then, and feeling guilt tbat tbere are still books on rmc I haven't read? I don't think my long post yesterday made much sense. Whilst I want to throw everything at it, I want to focus on what I already have (ds). And I do of course take the basic supplements (in case it sounded like I wasn't taking the essentials eg folic acid!)

Am feeling a bit insane. The anxiety is ramping up, Went to the toilet at work in the hope of calming myself down, to find a colleague I only vaguely recognise having some sort of hysterical crying episode. I asked if she was ok, and it turns out she is 16 weeks pg, and has no idea why she is crying but doesn't feel well. First pregnancy. Her symptoms were entirely normal ones, I reassured. I didn't mind, but the irony was not lost on me.

Am panicking about all medication, about progesterone, prednisolone, heparin, and the soon to be prescribed hcg. I am very very tempted to throw them all in the bin. I know this is silly. I need to GET A GRIP. Grr..

Quiet day on here today!

Cloud, big hugs coming your way. Hand holding all the way x

Just, remember it's a marathon not a sprint. Sure Scott will be better tomorrow after his rest today x

Mrsdiddly, remember to focus on a day at a time and keep breathing x

Pop, sorry you've found no answers. Hope your local consultant still has a plan for you next time x

Twilight, welcome back & hope you're relaxing between jobs x

Sorry for anyone that I've missed. Hard to keep up via phone.

Feeling strangely calm and even planning on going out on a girly meal tomorrow evening. I'm either accepting the likely outcome well or I'm in complete denial. Not sure which...

Thanks for the kind welcome ladies :)

Cat I am thinking about acupuncture, will give it a try. Doing a bit of exercise and have a nice summer hol booked. Enjoy your mat leave, will be fab with summer coming up! And best wishes for your imminent arrival.

Sorry pop I missed you out...hopeless at keeping up. I can see why you are so devastated by the normal Coventry results. Having no answers must be so very painful xx

girlie go with whatever coping mechanism works x

I know what you mean about research bootles. I keep looking back through my results and googling like a maniac. I keep thinking 'look at this, this must be it!', and then I read some contradictory research and I get depressed again.

In terms of supplements I'm taking - pregna care conception, methylfolate instead of folic acid, vitamin d3, omega 3, baby aspirin and I'm using up some acidophilus that I was using just in case. I also received my wobenzym today so I'm starting that. I read a really good study on it, who knows if it will help?

So much to comment on but I'm struggling to find the time to do a proper long post...

Bootles have some hugs sweetpea. It is a headfuck. All of it.

You too Girlie.

Loopy I took 400mg from 7dpo because that was what I had already been prescribed by local RMC and Prof B just kept it the same. I took them all the way through to 12 weeks. I also mc early and got a location scan (after a frantic few phone calls to Kerri) at 4+3 in Coventry. Brummie would this be open to you too?

Off for tea...

Oh god pop I'm so sorry you haven't been given any answers. So fucking unfair! Please keep ranting away, you're more than entitled. I'm so sorry about you dd xx

loopy How do you mean prog is a contraceptive? In the way it's selective do you mean? Worrying about taking it now- I'm not particularly fertile at the best of times and don't want to waste the scratch!

girlie enjoy your night out- hope it gives youa break from the stresses. Still holding out hope for you x

Sorry to the people I've missed! Which I know is tonnes.

snoopy x-post don't know how much this will help but Prof Q at Coventry told me not to take the baby aspirin I'd been prescribed by my RMC as recent studies showed that women taking it were more likely to MC than those on a placebo. I don't know if that was during or before pg though. I'm not taking it anyway to be on the safe side. I know a lot of docs do prescribe it though. Just noticed it in your list of supplements Xx hope I haven't spoken out of turn in telling you. I haven't any other research to go on though x

Thanks tanny and snoopy.

snoopy as minnie says I believe aspirin is now considered not to be as beneficial as once thought. Theory is that it interferes with implantation I think. However plenty of consultants still think it is helpful - I think cat was on it early on? And look at her now about to start her mat leave!