Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

brummie if you ovulate day 9/10 then you will be 4 or 5 days 'more pregnant' than your LMP dates would suggest. Since a lot of us have had a location scan at 5ish weeks to get heparin, can you bring it forward? They only need to see where the sac is, no need to have a HB. If you were 6 weeks by LMP that could make you actually 6+5. I honestly don't know at what stage you 'need' the heparin on board, but it's worth raising the issue with them and asking the question.

Not at all minnie. I was told to take it by Dr Shehata who seems to put all his patients on it if you read the TTC on pred thread. That advice was seconded by a gp at my surgery who took part in a study years ago that concluded it didn't cause miscarriage. But I absolutely see where you are coming from if prof Q have that advice. I just wish there was some sort of consensus across the medical profession but really I'm not surprised. My mum's psoriatic arthritis was misdiagnosed for years, my aunt's addison's wasn't diagnosed until she had a complete adrenal crisis and for months doctors told my grandma they were sure she had cancer they just couldn't find it, she was eventually diagnosed with sarcoidosis.

Can you tell I don't trust doctors

Brummie I would see about going to Coventry this Fri for location scan if you're worried. I went and although they said i might need to go back of they couldn't see anything they had no problem doing the scan. Was 5+2 at the time.

Darn we're on a new page so can't read back.

Just sorry feeding didn't go as well as hoped, but hope it's only a minor setback.

Welcome to new folk, but sorry you find yourselves here. I have learnt so much from these ladies as I'm sure you will.

RE research Bootles. I was similar after mc2 in trying to research as much as possible on supplements and all things mc. Only problem has been my mind hasn't felt as sharp so recording everything and organisation in general has gone out the window! But i had an almost desperation to do everything in my power to never go through this again. Yeah I'm a control freak and can't stand not being in control. That's the part that's effected me most I think, realising this isn't within my control.

Pop so sorry you haven't had any answers. Have you been on prog and heparin previously?

Thinking of you Cloud and Girlie. I have a rmc app Thu so hoping to get a scan then. But have def had the generally feeling nauseous all day long with waves where it gets worse (usually if I haven't eaten) and wondering if it's the meds or actual ms. Doesn't seem to get any better when I eat. Not been sick at all yet. The crazy hunger seems to have subsided the last couple of days too (sorry can't remember who said about that) . Bought lots of ginger stuff today, hoping that helps.

Sorry to those I've missed.

Argh it's so frustrating isn't it snoopy how can we know what to believe when they don't agree! Surely they must be able to get together and decide! The ladies o here do a better job at finding things out! I'm sure lots of people are absolutely fine with it (I figure my RMC doc won't be too pleased I've not taken it though)

jady maybe give the travel sickness bands a try too. Like a sweat band with a dot on-not attractive but they dialled down my constant nausea to a reasonable level. Feeling sick (whilst a great reassuring symptom!) is the worst!

Thanks Minnie going to see if I can but one tomorrow. But Cloud, what you described sounds exactly how I'm feeling if that's any reassurance at all.

Was wondering how you were getting on Twilight. Good to hear from you. Good luck with the new job.

And Cat exciting times!

Hello ladies! Sick of bastard camping so crept back to my parents wirh ds and feel no guilt what so ever for leavong dh in a field, he is happy as larry!

Welcome to newbies...so so sorry that you are going through this, pull up a chair, we are very good at holding hands, and hopefully helping to keep the world turning for each other.

Makes me sad how many newbies we've had recently. The monster's been a busy beast...

Oh ffs Brummie! I go away for 3 days and look what happens!!! You get bloody tupduffed!!!! HA HA! Whoop whoop! HA HA again!!!! Whoop whoop!!!
Really - i am far too bloody excited to articulate anything of meaning, but just want to high five you and crack open a bottle of bubbly! And i know you will hate me for being so 'congratulatory', because rmc makes us voodoo-like superstitious, but bloody hell woman, after all that bonking you and dh really do deserve this!!! Xxxxxx

Nope, still too excited Brummie!!! Whoop whoop!!!

Wow this thread moves quickly - baking let's go for Oz otherwise I think it's going to get confusing!

cat About to go on mat leave? That's fantastic - you give me hope. Were you on a specific treatment regime for this pregnancy?

cloud I know the absolute frustration of wanting to know what is going on, particularly when bleeding. Really hope you get your scan soon x

Waves at patience - sorry we have both ended up here.

Hi all, we have nine week scan today and shitting my pants. Not made it this far with other MCs. Think if it does go well some of the meds start to get faded out. People have started to notice I'm pregnant coz of the sickness but it's a weird experience people getting all excited and talking about due dates when in my head I think something is bound to go wrong. Good luck to everyone else on the thread and I do love all the baby updates that people are sharing, it's really lovely xx

Hah thanks Freckle - still can't quite believe it either. I think DP is relieved for more than one reason!!

Little bear good luck today! I'm thinking in my head about it going wrong and I shouldn't

Zooming over to Cov this morning before work to collect new progesterone prescription

What time is the scan Littlebear? We'll be there handholding!

Hand hold from me littlebear, keep us updated.

freckle you really make me smile. Am loving, in particular, the image of you and your DS backing away from the tent whilst your dh tries to make fire or something.

brummie it is Great you are close to Coventry.

Am 5+4 by dates, 5+1 by ovulation, and have location scan in my trusty epu this morning. Know there won't be much to see but you know, scanxiety anyway. I will discuss the beta hcg with them too. The meds are still freaking me out.

Hand holding for you today Littlebear and Bootles. Good luck! x

Also jady that's just how I am..control freak, try and research, mind duller now, then I panic because I'm less in control due to duller mind and too many other things to do...and so it goes on.

Good luck littlebear and bootles

Joining the handholding gang in the scan rooms for littlebear and bootles

freckle

Good luck today little bear and bootles.

I'm sorry the meds are freaking you out bootles. I know I'm only on progesterone and clexane but it was a mind fuck coming round to taking them. I can't imagine how you must feel possibly about to take more. I doubt myself and my body everyday and try to remember new pregnancy, new lining and maybe this time the drugs will help me past 12 weeks. Hope your epu are helpful.

Booking in appt this afternoon. I remember it feeling such a milestone last time, but I mc over a week later. Not looking forward to having to say no to the bloody bounty stuff again. Its just more stuff to get rid off afterwards.

Mrsdiddlydoo, good luck with booking in. I point blank refused to take the bounty pack, and said something very rude about Emma and her bloody diary...

Thanks mrsd. Its my second time on meds and I really struggled with the concept of prednisolone in particular last time. This time its the hormonal ones tbat are bothering me more, progesterone and Bhcg, the latter of which Prof B has said there is some anecdotal evidence only, that it may help. Theory is that it assists the decidual cells in a subgroup of women that I may fall into. Or may not fall into.

Ugh to bounty packs. I practically threw the Emma's diary stuff back at the gp last time. Hope the booking in goes ok, it's hard to do I know, but you are doing really well. Grit your teeth and ward off their more unhelpful questions. Hand holding for it.

Ha just. To be fair to my gp last time, he said, yes I see your point (I may have said 'I can't even look at tbat bloody thing') and he chucked it in the bin for me.

Good luck to you too Bootles. And Diddly is this the first midwife appointment? I've only ever gotten as far as going to a group info session, but have first midwife app next week. Intrigued as to who Emma and her diary is!

Bootles and MrsD big handholds for you today. I understand the issue with taking all the drugs. They all have effects that are unwanted and it made me very aware of my inadequacies. I really struggled as it got close to 12 weeks and actually started taking myself off them from about 10 weeks and then panicked that I was killing my baby

Booking in is strange for us I think. They assume everything is going to be fine and result in a baby. Weird. I was asked last time if I wanted a bounty pack, which gave me an opportunity to decline politely

Bertie is delightful of course, but the big issue is that I am still getting on badly with DH. I don't feel like I used to and am really struggling to have any loving feelings towards him. I think it's linked to this whole journey. I've been looking in one direction for so long I've got a crick in my neck. I keep hoping that some time will make things easier but so far I just feel further away than ever.

Argh. I go offline for one evening and the thread goes crazy! Sorry if i miss anyone. First off hand holding for bootles and little for scans this morning. cloud, did you get one sorted? If so, good luck too. And hope the booking in goes well diddly, a big mental milestone.

bootles, as you've probably guessed, I'm totally with you on the research thing. Read so much information my head is bursting, but still feeling guilty that I haven't read everything and the answer might be in something i haven't covered. I think the reason I've been so manic about the research is because it's the only thing that i can control, and I'm definitely feeling out of control at the moment.

pop, so sorry your Coventry results haven't shown anything. No doubt they will have told you that's a good thing, as it means there's a very good chance you will be successful next time, but personally i always found a hollow platitude, as it doesn't help you to plan what to do next when you don't know how to stop it happening again. I know this is going to be a really hard choice for you now after such a traumatic experience with losing your little one so late, but we're here for you whatever you decide to do. Have you had your consultation with the prof yet?

I think someone else went to Coventry, but i can't remember who. Glad it went ok.

freckle hahaha about camping. It's never quite as fun as you think it'll be,is it!

longest, cat, boozle, so expired that you're all so close now! Enjoy mat leave. Has anyone heard from belle? I'm sure she was about the same time too.

just, hope scotty gets another go at feeding without the tube today x

loopy, minnie, re the progesterone. Prof b said to me that MORE than 200 x2 could Have a slight contraceptive effect on a few people. It was because i only had 400s that i asked him. He wasn't worried at all about the smaller dose of 2x200, although as you know, if you don't get pg within 3 months they suggest to change to from bfp. I spoke to him last night about the massive crash i had coming off it, and he said to try the normal dose again this month and if the same happened then next month drop down to 200 just once a day (overnight). He was still keen that I take it though, despite the side effect, so it must be important. As I've mentioned before, i was taking 400x2 from 7dpo for last ttc and still got pg, so i don't think it would be a problem at this level, but i would cut the 400s in half until you get your bfp, just to be on the safe side.

I think if you have a clotting disorder then they will start the heparin earlier loopy.

Waves to everyone else. There are probably 3 more pages of posts now!

Bugger! I missed off Littlebear! Sorry!