Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

Once again I have missed people..struggling to keep up. Bubbly sorry about the due date your friends baby was born on, and that you feel like crying the house down. You are early days post erpc, look after yourself and take one step at a time.

extrablessings I have just realised you are andcounting and have been thinking about you alot over the weeks. Sorry for being so dense.

Absolutely agree about the way rmc knocks confidence away. I am generally terrified of all sorts of things these days, and feel like attempts to change things in general are bound to fail.

Stats:

Me 41, dp 47

DS born 2011 - straightfoward
Mc 1 2012, mmc, died 7 wks
loss 2 TFMR 2013, after crap 12 wk scan
Mc 3 2014 T22
Mc 4 2014 8ish wks, hb seen
Mc 5 2014 10wks died at 9, looked good at scan few days before.

No's 2,4 chromosomes normal
No 5 couldn't get results

Rmc tests normal
Coventry after no.4, diagnosed with high nk cells at 6.1. On their protocol for loss 5.

Currently 5 wks pg and in total denial. On prednisolone and progesterone and aiming to get heparin and bhcg injections next week - still following Coventry.

Also thanks brummie and march for sorting thread and cheatsheet. Just goes to show being on my phone was no excuse brummie, I'm a bit behind with any form of technical stuff.

Bootles doing it on my phone wasn't the easiest - probably why i put things on randomly!!

Me 38, DP 45 been ttc'ing since April 14 - no dc's
Mc 1 at 5 weeks in May 14
Mc 2 at 8.5 weeks in August 14 ERPC
Mc 3 at 9 weeks January 15 after seeing heartbeat at 7 weeks. ERPC. Took baby aspirin for that one, didn't work.

Have seen my consultant Mr Watts at Worcester and all tests have come back clear. Had hysteroscopy end of April , completely clear with no scarring.

Have also been to Coventry and results for lining were only 2.5% which was under the level causing problems for high uNK cells.

So basically absolutely nothing wrong with me, which I've found a bit of a struggle to accept. Been told by both Mr Watts and Prof Brosens at Coventry that I should be taking progesterone and heparin for next time.

Am now waiting for AF so I can start cycle 2 of attempt number 4 of #TTC1 - took progesterone from 7 days ovulation and will do for the next 2 cycles. If I don't catch, I will take it from BFP as advised by Prof Brosens.

Also been having counselling paid for by my employer - and my last one is this week. Feel nervous about it ending as it really has helped.

Also having acupuncture at certain days in the cycle to help with implantation

Yesterday was the anniversary of my first mc. Can't believe quite how much my life has changed in the past year and that I have absolutely nothing to show for it but pain, heartbreak and 3 lost babies.

I never thought in my darkest moments it would ever come to this.

I just want AF to get here now so I can drag myself back on the roundabout

You've all been amazing support and 17 pregnant with 5 thread babies!!
Faith, Bertie, Alice, Scott and John - our little beacons of hope!

Sending you a big hug brummie. It will happen.

I wonder if I am allowed to join? I haven't had 3 consecutive miscarriages so technically mine aren't recurrent but you ladies seem to really know a lot and your insight and advice would be really helpful.

Me: 25 DH: 26

Ds1: Born 2006 (dh not father)
Ds2: Born 2013
Mc1: September 2014 at 6 weeks
Mmc2: May 2015 at 18+4 weeks

Obviously I am both ends of the spectrum. Early miscarriage and late miscarriage. We got our baby boy's ashes back yesterday after his funeral Monday.

We didn't have a post mortum done as he was too tiny. I had swabs, blood tests, and baby was x-rayed and bloods from cord taken I believe. Do you know how long it will be before I hear any results?

I am clueless about it all and would really appreciate some advice. Thank you in advance

Welcome morgan and spam and sorry for your losses. We don't turn anyone away, there's no such thing as 'only' two losses. I hope you can both find some support and info on here. Your late loss must have been particularly hard spam. There are other ladies on here who have also had 2nd trimester losses. And three in less than year is also brutal morgan. I'm the same, 3 in 9 months. Such a difficult time you've both had xxx

Sorry, bf question: just expressed milk and its pink with blood, quite a lot, by the looks of it. I think its just from one side. I'm not too sore but its a bit grim. Obviously binned the milk... anyone with DC ever had this? Sorry, I know its off topic...

snoopy, I think it does sound like time for a change from the shift, but that doesn't mean you have to leave entirely. There are lots of rewarding jobs in the police that are day shift and less mentally/physically demanding. If you're six years in you should be able to transfer to another department. I know it makes it difficult with your dh but it seems like something has to give, and this has to be preferable to leaving completely. You do an important job and it would be a shame to give it up for this.

Welcome Morgan and Spam. I'm sorry for your losses. I hope you find the info, help and support you need on this thread, and that you are well supported in RL, too. x

Sorry just, never had it like that before. Is it sore? Could you have mastitis? I'd say it is probably still safe, if he was taking it direct from you you'd never know, but definitely worth asking the midwife or bf counsellor about

Thanks Brummie and March for the new thread and stats.

snoopy I often wonder about my job being stressful (working with primary kids at risk of exclusion across the city I'm in) but it's nothing compared to yours, you do amazing work. Have you had any counselling? I wouldn't have been able to get through any of this without my counsellor. I've also found that acupuncture helps me, physically I feel more together. Plus I'm taking about eight billion supplements and have changed my diet, and although it's taken about 6 months, I do feel physically better.

bootles I think you asked me what dpo I am. Only 5! Agh!

sun and girlie thinking of you xxx

My stats:
Me 36, OH 35, no DC.
I've had three miscarriages, one in 2007 in a previous relationship and two last year (April and October). Two were missed miscarriages at 13 and 9 weeks, although gestation was 7 weeks and one a full miscarriage at 11.5 weeks.
NHS RMC tests all normal, and chromosomal testing on MC3 all normal. I've also been to Coventry and that was normal too! Really bloody frustrating to have absolutely no ideas about why any of my losses happened.
Am currently in fourth month of ttc, taking progesterone from 7 dpo and prescribed heparin from location scan - the Coventry protocol.

And going a bit potty with it all this month!

Welcome morgan and spam, so sorry for your losses. morgan I lurked on here for ages before joining but I'm so glad I did finally come forward, you will find plenty if support and understanding here. I hope your results come back soon so you can have a plan. Three losses close together is very tough, so hope you are getting plenty of support.

spam that late loss must have been particularly awful - can I ask at what stage the baby actually died? Did you have a good 12 week scan? There are others who will know more, but I imagine they will be looking at chromosomes as a priority - the results for that usually take about a month to six weeks. I really hope you find an answer and are getting plenty if support in RL.

sasha well done re baby blog awards!

flen day 5...argh indeed. Try and have a pleasant bank holiday weekend, then you'll be closer to day 8, which is only a couple of days from day 10, which is when I would start testing, though admittedly I am an obsessive early tester. I hope the days pass quickly for you.

just you probably have a crack on your nipple. Try slathering on some Lansinoh and careful on the expressing next time. Try turning the suction down or using the preemie cycle if you are using a hospital pump, or being less enthusiastic if it's a manual one. I wouldn't think you need to bin the milk. I think I had a total panic with DS1 when he threw up some blood, once they worked out it was mine, not coming from him, nobody gave a toss

morgan and spam welcome and I'm sorry you find yourselves here. I hope you both get some answers for your losses.

Thank you for the welcomes Marchgirl, Justonemoretime & bootles. Real life support is a tricky one - lucky to have people who'll listen but feels like they don't really understand how heartbreaking it is, if you see what I mean? Also DH works away during the week so for the two MMC-after heartbeat scans I was alone when I got the news - stupid! So won't be going to any scans alone ever again - which would need time off work but what can you do? Luckily people the people at work I've told (overall manager & line manager) are generally supportive but we're medical so conversations tend to be technical rather than emotional! This contract ends in about... 9 months - so also feeling pressure to TTC again from a logistics POV! I'm hoping the Counsellor will be helpful...

Spamminit - I really feel for you. In the (insensitive) things people can say to you after a MC I did actually agree with "it could be worse" to me - I can't imagine the pain of a 2nd tri MC or stillbirth. Hope they find some answers for you.

Brummiegirl15 - I totally get it being hard to accept nothing being found wrong. This is one of my fears! Might try to talk it through with the counsellor as I'm meeting her for the first time about a week before our results. Obviously it doesn't mean nothing is wrong just that our tests haven't found it yet but then hard to have faith in things being better next time? Even though the stats are for most that somehow they will be! Good to hear they're giving you something anyway - tho from a research point of view we must be nightmares as I suspect even a placebo will have benefit on our stress levels!

The NHS clinic Midwife I saw suggested if my results are normal then 'just' the supplements/aspirin combo they tell everyone to do & progesterone from BFP. I suspect privately people might throw more at it though... So feeling slightly morally conflicted ;-) but also like I can't cope with more MCs so willing to try anything... Fertility/miscarriage must be pretty lucrative private medicine fields!

Oh & one of my oldest friends had a baby yesterday & seeing the other today who just started mat leave...

As for me, I had 4mc in pursuit of my family of 2DSs and my thread baby Faith, 3 of them in 9 months in 2012-13. NHS tests all normal, had my 4th MC on their protocol of aspirin and progesterone which was tested as genetically normal, then went to Coventry, diagnosed high NK cells and had Faith on progesterone from CD 21, heparin and steroids for first trimester.

Faith was diagnosed (completely unrelated to the MC) with infantile spasms in January. She has now had nearly 4 months seizure free but is very behind developmentally. We are still waiting to see community paeds....
It has been nice to see my parents this weekend, my Dad is a retired paediatrician and he's been very positive about the changes he can see in her since his last visit. I'm feeling quite positive about it all at the moment. I am planning to start back at work in September (have been on unpaid leave for a while since my mat leave has finished) and F is starting short sessions at nursery in July so she can settle in over a couple of months. In June/July we suddenly have lots of review appointments (community paeds - finally, neurology, endocrinology, neurodevelopmental charity) so hopefully we'll then feel like there's a plan. We have got a place at a group for children with additional needs at the children's centre, there was a poor little mite there this week who was born very prem, starved of oxygen, had a stroke ... He was half the size of F despite being older and she is tiny anyway, has cerebral palsy, fed with a tube, fairly unresponsive. It puts her issues in perspective
We've also decided, sod it, we're going to have a nice summer. The boys have missed out on enough in the first half of the year, we're taking madam to Camp Bestival and then to France (with eyewateringly expensive travel insurance for her) with DH's family.

Thank you bakingtins too! This thread does move fast...

just i have no experience of blood in milk I'm afraid, but if it is a crack, you could try nipple shields...they can sometimes help too but can be fiddly...

morgan your losses sound v similar to mine - after a normal first pregnancy, losses at around 9 weeks after good early scans. My uNK cells were 16% ( normal

baking lovely to hear the update on faith, and very glad you are feeling positive and that your dad can see progress. Hope you have that lovely summer you all so much deserve.

morgan absolutely, people can't understand unless they have been through it. Hard that your friends are having babies, wishing you strength.

Am at work and really need to go and do some!

just as baking said it sounds like a bit of blood in the milk. Not sure what you do about it. Is your nipple damaged? Can you take it a bit more easy on that side? Lots of nipple cream.

Welcome to Morgan and spam sorry you both find yourself here but it's the best place for advice and lots of support from amazing ladies.

Morgan I hope you find the counselling useful next week. Quite a few of us have had uncomplicated first pregnancies then difficulties achieving a second.

spam we're not sticklers like the NHS, you don't need to qualify to join us on here. I'm so sorry for your late loss. Hope you have some RL support. Do you know what you're going to do with your little boy's ashes? I hope in the long run being able to have a funeral for him helps you and your dh. I think the results should take about 6 weeks but maybe chase them if it seems to take longer.

It always makes me a bit sad seeing new faces on here. I'm really, really happy you've found us, but it's just a reminder of how shitty life can be and how many ladies are going through this stuff. It's horrible thinking of people feeling alone with little support and potentially a crap hospital or consultant to deal with.

Right I'm getting emotional now. Ignore me. Blame hormones or something. I'm so scared I'm going to mc again it's stupid. And why? All because I didn't get up to pee a trillion times last night... go figure! Complete madness.

Marking my place.

Me 37, DP 46. 1 x DSS 14
MC1 Oct 14. Natural @ 6 weeks
MC2 Jan 15. Saw hb measuring 6+1, but too slow and too low in uterus. Confirmed new years eve. ERPC a week later.
Tested normal for blood clotting issues.
Tested normal for thyroid antibodies (TABLET Trial)
Tested high uNK cell density 7.82%.
Currently pregnant 7+1 on pred, clexane, cyclogest, pregnacare , vit d, vit b complex, folic acid. Was also taking agnus castus.

Welcome Morgan and Spam, sorry for your losses and that you find yourself here. Def know what you mean about real life support Morgan. I have found it to come from the most unexpected places. E.g. Receptionist from my old office suffered recurrent MC over 20 years ago and has been just lovely. Plus of course the women on here I just couldn't do without now.

Yay for positivity from your Dad Baking. So glad you're feeling optimistic for the future.

DP still in doghouse, 1 for giving me another cold when it took over 2 weeks to get rid of the last one! And 2 for staying up all Friday night (keeping me awake) when sleep is so hard at the moment anyway.

A year ago today I said goodbye to my furbaby Mogwai so quietly remembering her.

Totally understand that fear Diddly. I didn't keep getting up to pee last night either. And don't feel even slightly queasy this morning.

Thanks for the new thread.

My stats. Trying #1 since 2011
Mmc 1 -dec 2012 5 weeks discovered at dating scan
Mc 2 - following iui March 2014 6 weeks
Mmc3 nov 2014 natural pregnancy heartbeat seen 7 weeks mc at over 9 weeks foetus no bigger than first scan
All nhs tests for fertility and miscarriage normal, been to Coventry results normal.
Cd1 cycle 3 post Coventry ivf lined up for next week. Getting increasingly concerned we won't get there! Started acupuncture in the hope that may help!

Two baby bombs yesterday - dhs best friend who lives abroad sent message to say his wife is pregnant, ins happy for them but it left shoulder really upset. Then see on fb a girl I used to work with is pg when I know she's not really bothered yet.