Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

How exciting Longest!!!!!

Freckle those stats are laughable. Fuckers is my answer to that!

Hope all goes well Longest and baby doesn't make you wait too long.

Sorry for the me post but just seen mw and my bump is measuring too small for 36 weeks. Got to go for a growth scan but they can't get me in until Wednesday next week so got a full week of worrying to do now x

Apologises in advance, rant coming up.....

My incompetent local epu unit has again refused to refer me to the rmc clinic because I was on the Response trial ??

Only found out because the rmc study nurse rang me to have an introductory chat as the Response trial have passed on my details and whilst she was checking my notes found a referral wasn't made last week and instead they have discharged me. The Response team can't refer me either as they are a research team and the RMC nurse can't take me on until I have a referral. So back off to the GP to ask them to refer me.

Thankfully the RMc nurse has said she will look out for the referral once it's done and get me an cancellation appointment.

This is the second time the epu unit has failed to refer me correctly and last time as a result took me 6 months before I got my appointment. Feel a complaint coming on as the added stress is not something anyone needs at this time.

Cat, try not to worry. With DD I was back and forward whether I was measuring correctly or not. The last scan with her I was told at 37 was she was already 7lb and a week later when she was born she was only 5
Lb 13oz!

Speaking to a family friend who's a sonographer she told me that the base measurements they use are taken from studies completed in the 1950's and since then the machine's have got better and babies' weights have increased due to changes in diets, which combine to mean the accuracy of the scans is slowly being reduced.

My bump was also considered too small and DS was 7lb 8oz (from memory!!!). I has very string stomach muscles and he was well tucked in under my rib cage (ouch)

*strong

Hi all, I haven't had a chance to catch up since I was here last but wanted to give an update on my current situation.

I have just called the consultant and spoke to her secretary. Placental histology and all blood tests, swabs etc are still not completed and the general time frame for results is 12 weeks from date of miscarriage.

This means potentially another 8 weeks to wait before I can see the consultant. I know there are processes and waiting times etc but how can I begin to move forward with life in general when I still have no answers.

Any of you ladies that have been through this and can tell me how to get a grip then please do. I feel like I am stuck in this rut and can't see a way out. For anyone that doesn't know my story, Baby Jack was born sleeping at 18+4 on the 2nd May 2015 after dying at 18+1.

Cat not a me post at all. Hopefully as the others say it's nothing. Big hugs

Girlie that is crap! You can't wait that long again. Hopefully your GP can get this sorted ASAP

Cat - correcy me if i am miss-remembering, arn't you quite lean? And if so, bollocks to it! Two of my matrs who are slender and very fit had the same issue, they just had a very petit bump, which was natural for tgeir frame.

Girlie....fecking incompetence in the nhs! Damn them!

Spam, i really feel for you and other ladies on here that have lost further along, (pop**). In some way it means also that i feel unable to advise you. You deserve that information, whether or not it provides any relief is another thing. I don't know what can sooth the pain, but i hope with all my heart you do get to move forward and find a better place than just now to be in. Hang around - i know we will all want to support you xxx

Sorry typos!!!!!

Thanks freckle I just don't know anything about anything to do with my situation! And the worst bit is I wouldn't even know what to ask for.

Girlie how have they managed to mess this up again? I get so annoyed with the units when stuff like this happens. As you say it's stressful enough without having to battle. I would say send a copy of your strongly worded complaint letter to your MP and CCG CEO. That might get em to pay attention!

Massive hug to you Spam it's so cruel to lose a baby so late and then to be made to wait all that time to get some answers is just awful. Have you been offered any form of counselling or access to a support group? I would certainly ask your GP if not. There are some ladies on here who sadly lost in second trimester too, I hope that between us we can be a helping hand and support to you.

Thanks to all you lovely ladies for posting abt my measurement and scan. Good to know they aren't always right!

Freckle I am tall and slim and before getting pregnant did a lot of exercise and sport so I think that might be contributing, although I have measured normal until now. I think it could also be that I've lost some fat these last few weeks thanks to acid reflux making me sick in the night and putting me off my evening meals.

I know it's easier said than done but try not to worry about the measurements cat. They are very subjective and I don't think it's a massively reliable indicator. Hopefully it will have evened itself out next time you're checked.

spam, so sorry to hear you're having to wait so long. I know it must be very frustrating when you just want some answers. Are they referring you for rmc testing as well? I can't even imagine how hard it must be for you and how helpless you must feel. I second the suggestion that you consider some counselling. Wish i could say something more helpful as I remember how hard it was to think anything about the future until appointments started to happen after mc3 for me, and you've had so much more to deal with.

Is anyone else having problems with mn today? Mine has started displaying as if it's the main site rather than the mobile one and the resizing all the time is a nightmare!

spammit It's such a long time to wait for answers.

Girlie what incompetence! Definitely worth a strongly worded letter if you have the time.

The travelling plan is a sod it thing. We've spent more than 3 years waiting for a baby to come along and we're close to the end of our options. The original plan was to quit ttc in June, as this is now 3.5 years. However, having the frosties and deciding to go for the nk cells testing has meant more delays. We'll keep ttc but expectations are not high and we need to plan for life whether a baby comes along or not. We're thinking some time properly exploring the Scottish Highlands and Islands (all the places I've always wanted to go but couldn't face the driving time there and back) and then leave the dog with family and spend a few months in South America. As we're both teachers (or I was until I quit for ttc reasons) we've both done plenty of travelling in our holidays, the last 5 years together, going away for 4+ weeks each summer. Neither of us have done South America though .

barking your travelling plan sounds fab. I totally love the western isles (my dad was from arran) and have just booked a week in mull for end July. I went to Argentina and Brazil for my honeymoon and had an amazing time.

girlie and spammit so sorry you are having to chase appointments and results. Like you say it's the last thing you need.

cat pah to bump measurements. Mine measures pretty small too but the scans show 68th percentile. It's a very unreliable measurement.

Well I am sitting in a park waiting for induction to kick in. Plenty of back ache but nothing different from what I have had the last couple of weeks and apparently cervix was still closed and high. Still, it's been an ok experience so far. Have been wandering around Highgate cemetery which I have never been to before. It's very nice in a slightly morbid kind of way. Dh can stay as long as he likes but will probably send him home to get some rest if nothing happens by bedtime.

Will miss dd though if I am stuck in for days. Haven't ever spent a whole night away from her before. Maybe she will come and visit if I am still just waiting tomorrow.

Good luck longest. Nearly there now; definitely on the home straight. Hope it starts ramping up soon

massive hugs to you spam xx

longest am so excited for you. Can't wait to hear your good news soon.

freckle I know what you mean! And, as I said, a lot of it seems completely contradictory (eg eat dairy, don't eat dairy)! However, am now on: wobenzym for my scarring, agnus castus for my hormone imbalance, vitamin d as doc said I was deficient, l'arginine to help with the lining, and folic acid just in case we decide to eventually try again. I think I will rattle soon! Am going to add vitamin b complex in to next month as well as the b6 etc looks helpful for the hormones. Most of this is to do with me wanting to get my cycle sorted, regardless of whether or not we try again. Am also trying to be 'sensible' with my eating and exercise a bit more (also need to do this regardless of ttc as I've put on a lot of weight in the past 18 months!) AF started today and it's definitely heavier than the others I've had since mc in Feb, and cycle went from 26 days last month to 31 days this month so hoping this is the agnus castus trying to regulate things (or could be positive effects of scratch at Coventry?) From what I've read, the ac takes about 3 months to really start working. I was a bit reluctant to try all this at first but then I thought why not?!?

spam I am really sorry you've not got any results yet. They really should have told you at the time of your loss and when you agreed to the pm and histology that it would take a while. Do you have a pm nurse to contact to ask where things are up to or a bereavement nurse that could do the same? Leeds were really good in that sense and the pm nurse was just one of the nicest people I've ever met. I really do hope your hospital has given you some contacts and also lists of local organisations like SANDS that are on hand to talk to any time you feel ready to or need to. Please be really kind on yourself and remember that it is still really, really, really early days for you. I lost my dd at the beginning of February and still feel that I'm in the midst of things. You have experienced a major shock and bereavement, and a particularly cruel type of loss. You must give yourself time. This is what my counsellor repeatedly says to me and I have clung to this mantra in my darkest/saddest moments.

Pop and Spam I wish there was something I could say.

Big love to you both xx

Longest looking forward to hearing about Shortest's arrival!! Thinking of you

Hope they are looking after you and keeping you comfortable in there longest. Fingers crossed you'll be delivering the baby soon so you can get home and start your newly extended family life.

Hopefully the growth scan will put my mind at rest and indicate all is ok. Keep worrying now that something isn't right, I'm obsessing over movements and all sorts xxxx

Contractions definitely happening! Hopefully she will be here tomorrow

Eek longest! Hope you've progressed over night x

Ooo, longest

On tender hooks longest ??