Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

Hello everyone.

Following the pcos discussion with interest.

The other issue that you could consider is thyroid problems, it could cause similar problems with bmi and cycle length/ irregularity. I think Ivf clinic test for it as a formality.

I was fobbed off by doctors for years, told I must be anaemic because I'm pale and then my iron was always fine after blood tests. I ended up collapsing at work a couple of times and that's when I was diagnosed hypothyroid. I didnt have classic symptoms.

brummie it's so hard to know what to do, but I've always been told that flying isn't going to cause a mc. Wish we had little tv screens like teletubbies so we could see what's happening.

jady I think they check for protein in the urine but I could be wrong

Hey brummie - personally I would go, just in order to try to retain some kind of normality.

My mc at 5+3 was really nothing more than a heavy period, although I did have some fairly strong cramping the day it started, I didn't need to take painkillers. So physically you would be able to cope being away. I know that doesn't take away the mental worry though of being so far from home in the unlikely event that something goes wrong.

Also - and I might be wrong in this, but even if something went wrong, I'm not sure you would necessarily start bleeding if you are on progesterone. With mine, the cb digi hadn't moved past 1-2 so I knew it was over, but didn't start bleeding until several days after I stopped the progesterone and the lining was able to break down.

Anyway, hugs with whatever you decide for this weekend. Do you have an early scan booked in soon??

x

Hi Sun I have a scan booked in next Friday when I'll be exactly 6 weeks and they will prescribe the clexane then.

Thanks for reassuring me. I know travelling doesn't cause mc - I was more worried about anything happening whilst away from home. I admit I'm probably overreacting but am going to go to Milan.

I want to go so will just cross my fingers!

Oh that's good that you've got a scan booked next week brummie. My next one is that friday too, so we can go mental with worry together in the lead up to them!

The other thing I take with me when I travel is maternity pads. Totally didn't need them for the last one as normal pads were fine, but just gave me peace of mind that I could survive a taxi ride, flight etc, whatever was happening.

x

Epic fail this morning. Thought I would get my hair done this morning as its got pretty long so toddle off to hairdressers which I've been going to for years. They asked if I was on holiday this week as unusual for me to go In midweek, to which I burst into tears! Poor girls didn't know what to do but did make me look lovely before I left. (I did explain in the end why I was off) Now eating large slice of carrot cake in John Lewis to commiserate!

Brummie glad to hear work is looking after you in terms of making the decision for the later trip. In terms of Milan only you can decide. Would a distraction this weekend help to keep the anxiety at bay? I can't talk I refused to travel overnight as soon as I found out as paranoid about being away but knew deep down it made no difference

girlie that's exactly the kind of innocuous comment that can throw me off track as well. It's like I have a certain patter I can stick to if the conversation is about children and families, but if someone side swipes me with an unexpected comment and I can't think on my feet it takes nothing to reduce me to tears. Huge hugs xxxx

I am avoiding my hairdresser and my hygienist for similar reasons would you believe. My hairdresser asked my Mum this week if I was still trying for a baby, my Mum said she thought so then rambled about kitchen units or something. My hygienist always breezily starts taking to me about TTC every time u see her (and that was every 4 months) because I very stupidly talked to her about us trying for no.2 two years ago. In that time she's known about two of the miscarriages and yet still talks to me about it and about her assistants who are pregnant etc etc. I just can't deal with it anymore and think I'm going to have to find a new dentist

Bloods came back and hcg way too low so they have said its definitely game over, said they expect I should bleed within the next week or so based on hcg being so low. I sent a mammoth email to Monica and she replied to say Mr Watts has said he wants to arrange a scan to see if the bloke yesterday is right re PCOS. I have high bmi and have always put on weight easily and have only ever lost weigh if I cut calories to circa 700 per day which is no fun and not really healthy when ttc/pregnant/breastfeeding so have been big since 2010 when conceived ds1.

My biggest concern is he kept focusing yesterday on the fact I tested positive for lupus anti coagulant, and the fact that it's a treatable condition/cause of miscarriages. But I get no comfort from this as it only becomes relevant if I can actually get pregnant and stay pregnant long enough to start the medications, and with each loss the gestation I have reached has shortened and shortened, with this one being the absolute shortest as it's just a chemical one. Unless it's just bad luck/ bad eggs and my body is doing the right thing in stopping it going further. But surely I wouldn't have so many duff eggs?

Ps Brummie fingers crossed for your scan and I really hope you are at Worcester in Feb.

Girlie sorry for your hairdresser experience.

Hope scan ok Sally.

May revert to lurking for a bit, as not healthy to be thinking quite so much about ttc,as I'm realistically probably not going to be ovulating again until mid July and I feel like it's so far off, and then there will be another 2ww and I think I need to give my brain a couple of weeks at least of not thinking quite so much about it all.

loopy I am so, so sorry. Your questions sound very valid but I'm afraid I don't know the answers. I do know that a huge proportion of eggs are chromosomally abnormal even in perfectly fertile women - normally the lining filters out the bad ones before they implant. I really hope Mr Watts can talk you through all the possibilities. For now hugs and please take care of yourself. xx

So sorry that you have to go through this again, loopy It is so unfair.
Can you ask your consultant about his recommendation regarding the lupus condition? It is a well-known cause of mc, and I would think that you could/should be able to get the heparin from BFP (ie. you have a supply at home). And surely, you should be able to discuss this with an obstetric haematologist as well.
Small comfort right now, I know It really isn't fair.

Just trying to catch up now. This thread is so fast moving :)

Thanks for all the kind wishes.

brummie think we are on identical days. I will be 5 weeks this Fri.

I am in a kind of denial it's happening unlike DP who is jumping for joy. He has zero self-protection filter bless him.

Right will go back to catching upon here...

I have started taking baby aspirin on a 'can't harm but may help' basis. Hope doc doesn't tell me off. Has anyone else done this?

Oh Loopy I'm gutted for you. I can't believe it's game over already. Am so upset for you. Hoping Monica can sort something for you with Mr Watts. I actually emailed Monica today as well - my appt randomly on the 15th is definitely at Kidderminster on that day. Julie from EPAU also rang me to say Mr Watts has done my prescription for clexane but I can't have it until my scan. Grrrrr!! That's next Friday so not too long to wait.

I completely appreciate needing to de-lurk a bit though. Your super long cycles don't help...

Patience ooh date twin!!!

X post Patience I really want to take it "just in case" but was told not to by Coventry. I will be asking Mr Watts next Friday

I took aspirin last time and it didn't help

Oh so sorry loopy. Massive hugs coming your way lovely lady x

Did Coventry say why you shouldn't Brum?

Hey.. thanks for all your supportive messages and so sorry Loopy.

Had my scan this afternoon and it actually went really well! The nuchal measurement was 1.1 which they said was nothing to worry about but the nurse taking my blood said not to tell anyone until the bloods come back as there's still a chance something could be wrong.

Definitely starting to relax though.. has anyone had a good nuchal result and then still had a problem? Would you tell people now or wait until bloods are back?

My son was so amazing bless him, he doesn't know what's going on but could obviously tell I was stressed and kept cuddling & kissing me & climbed onto the scan chair with me. Don't want to tell him yet either!

Good luck everyone xxx

Loopy i am so sorry. So frustrated for you.

Patience Coventry on the subject of aspirin, " We advise against taking aspirin in the early stages of pregnancy as it may interfere with the preparation of the lining of the womb for pregnancy."

loopy I'm so sorry .

girlie I'm exactly the same as Sebs, if the conversation is on my terms I can talk about it fine, but a comment out of the blue is a real sideswipe. Sorry the hairdresser swiped you .

sally great news!!

Patience one consultant at my rmc told me recent studies claim it could be a contributing factor to mc and it's not the safe drug they always thought it was, another one (at the same clinic ) told me to take it just in case it helped.

loopy hugs. I'm sorry the results weren't favourable. Wishing I had a magic wand today. X

girlie John lewis cake... Nom nom nom today my neighbour came round to collect a parcel. They are forever asking about no 2. Like weekly. Today I'd had enough and politely said we're trying but I have had a couple of mc. Shut her up once and for all... Feel so bloody guilty now though. We just can't win.

Super news sally

patience I can't describe it eloquently but I believe research shows aspirin can interfere with implantation. I'm sure someone will explain more fully.

brummie I'd go to Milan. The distraction will be useful.

Lit the fire here hours ago. Bit fed up with the weather. Nice and cosy now though!

sally Ehhmmm, regarding the bloods following the nuchal scan...yeah, that happened to me. I had a really good nuchal measurement at the 12-week scan (think it was 1.3) and everything looked great, but when my bloods came back, the alarm bells started ringing. I had very low Papp-A levels. It didn't end well... Sorry, I don't want to scare you, and everything will very likely be well for you! But it can happen.

Oh loopy, I'm so sorry to hear your news. I had so hoped you'd get a chance to take the meds to see if that worked. I completely get the need to step back for a while. Some investigations into the possible pcos sound like a good idea. Hope you've got lots of support IRL and hope to see you back here when you're ready. We are always here x

Great news on the scan sally