Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

Great news Bythesea and Erica! I'm with you with the trying to stay optimistic. It's such a relief to have the scan, but it's shortlived. Who was it that said they'd have one in the utility room if they could?

Good luck for tomorrow Wadsy. Have everything crossed. My nausea's gone the opposite way and disappeared the last couple of days, thought it was the travel bands initially, but not worn them yesterday or today. Hoping it means placenta is starting to take over??

Great news bythesea and erica (sorry I missed yours erica)!

Good luck for yours tomorrow wadsy!

jady I know you already know but it's normal for symptoms to come and go. How many weeks are you now?

loopy I agree that tests aren't that accurate when comparing strength of lines. As march says, a drink the night before can affect it. When pg with my son, my first cb digi just before bed said 2-3wks, the one the next morning was 3+, the reason being is I had a few glasses of wine that evening (didn't think I would be pg! ) so even at 5+ weeks pg it can be a week out by having more liquids.

march I'm sure if you're on the ball tonight (excuse the pun, ha!) your timing will be fine.

Great news erica

Good luck tomorrow wadsy. Keeping everything crossed for you.

That key worker sounds a bit more sensible sebs re your son. Don't worry about getting a bit upset. You can't help but feel emotion when you think/talk about it. Anyone would understand that. I'm exactly the same. Good intentions to not cry but then I can't help it. I think the strength of the crying reaction will fade over time, but not sure the feeling behind it ever will.

Yeah I know that Cheesy, just unnerved me today. I'm 8+2, so totally unknown territory for me now. I did read that hormones can start to level out now as the placenta takes on some of the load.

Cross post Seb. Don't beat yourself up for getting emotional after all you've been through. I can only imagine the relief you felt during that conversation. Sometimes you don't realise just how much of a strain and worry something has been on you and then for the keyworker to confirm what you'd thought all along, that your son is very normal. Really happy for you.

Will be back later and not read a single post from above, but quick heads up, frer are buy one get one free on twin packs on boots website at the moment, not sure when the offer ends though.

Great news bythesea, glad you got an understanding one .

Lovely scan news from you as well Erica, just keep taking it one day at a time, you'll pass those danger points soon .

Thinking of you for tomorrow Wadsy

Just at the hospital now. I've taken ibuprofen and paracetamol!!!

Great scan news bythesea and erica.

barking - hope scratch went well.

x

Yay for good scan news from bythesea and Erica.

Will be thinking of you tomorrow wadsy.

seb I'm pleased you guys have finally got a good key worker who sounds like they talk sense.

jady my sickness comes, goes then returns with vengeance. All sounds normal to me. It's great you're in new territory!

Sorry not to name check everyone. Hope everyone is ok. Still struggling and sounding like a broken record

Let us know how the scratch goes barking

Really pleased to hear all the good scan news, long may it continue, and good luck to everyone with scans coming up

seb tears are perfectly normal considering what you've been through, I'm sure the key worker will understand. I think regardless of where you are in this journey the scars are unfortunately going to be there for a long time. I had to choke back the tears a bit today, I was discussing my treatment plan with the doctor and he asked how I was coping and I couldn't lie.

barking did you go to Coventry?! When will you get your results?

This thread is definitely marching on, finding it hard to keep up, but I am thinking of you all

Well the paracetamol and ibuprofen were a little lacking in effect - that was fucking painful! He just seemed to keep cutting?!
Should get the results in 3-4 weeks. The sample goes to check for nk cells and also to examine the hormone levels to see the stage it is at. This might actually give me an official diagnosis of a luteal phase defect (although the treatment would be ivf so that gets me no further forward!)

Mrsd I wish I could fast forward time until a point you felt more comfortable. It's so cruel that none of us can really enjoy pregnancy like those who are naive of the possibilities .

snoopy I went to Thornbury in Sheffield, but it was the same nk cells biopsy.

Hope I get the format OK here:

I'm 36

3 natural miscarriages between 5 and 6 weeks
1 ds born 2011 - perfectly healthy beautiful boy
1 termination due to patau syndrome
2 missed miscarriages at 8 weeks.
12 weeks pregnant & had no scans as feeling sick so terrified of my scan tomorrow since the last 3 scans were awful

Welcome sally, so sad to read what a difficult time you've had, but congrats on your current pg. All the best for a positive scan result tomorrow. Let us know how you get on.

Brummie have I missed your bfp? If so massive congratulations. I was on the same thread as you a while ago and found your story heart breaking. Keeping everything crossed for you x

quick update from me and then I shall start trying to catch up on this thread as am so behind all the posts!

So I went to the consultant appointment today, but they were running so late that I never saw Mr Watts, they had someone else from his team see me. Went through the operation, sounds like was quite a bit of scarring, predominantly in uterus by the entrance to the right tube, but the tube was fine and scarring wasn't in the tube, just near it. From next BFP being confirmed they would put me straight onto clexane and progesterone and then arrange a 6-7 week scan. He suggested PCOS could be a cause for longer cycles and that its believed a strong link between early miscarriages and PCOS. He didn't say if they would do anything re seeing if I have PCOS or not and was rushed appointment so going to email Monica tomorrow. I then told him I think I'm approx 12 dpo and that had v faint result on Sat and today, and concerned that it's not a full on pink line and no change between the 2 days, the test is clearly detecting hcg and that I'm worried it's over before it really got started. He thinks I'm bonkers and that you shouldn't test early or too often. He arranged for my hcg level to be checked today and gave me a form so I can get the test repeated either at my GP or back at the hospital, he suggested that if I haven't had a period in the next week to 2 weeks to get the second bloods done. I don't think he is on this planet. If by some miracle this bean is ok, and just a bit slow in making hcg, then I need to know this info pronto as need to start the clexane and up the progesterone dose, not dawdle for 2 weeks and then get the ball rolling. Will be getting the results from today's blood test tomorrow, then will have a better idea as to where to go from there.

(So won't need a location scan to get the clexane, will get it straight away)

Hi Ladies. Been lurking in the background since this new thread started so finally plucked up the courage to post!

I am 40 and my DH is 33 (lucky me with a toy boy!)

DD born Oct 2011 by EMCS (due to me contracting meningitis whilest pregnant)
MC1 @ 12 weeks Dec 2014- found out at the scan but had a feeling as was bleeding - got a d&c
MC2 @ 6 weeks May 2015 - natural

No testing or anything has been done, they don't do anything in my area unless you lose 3 babies. Think the first one might have been a blighted ovum but hosptial did not say.

Just waiting on my AF. Fed up waiting for AF!

This seems like a lovely supportive place to be. My hubby is great but I think only women who have experienced this kind of grief really understand what we go through.

Thanks for listening, even just writing it down helps ??

Congrats on the good scans Bythesea and erica.

Cloud I would phone re your scan, worst they can do is tell you to wait for the letter.

Wadsy good luck for tomorrow.

Barking that sounds extremely ouchy!

Sally fingers crossed for your scan tomorrow.

Hope everyone else is doing ok

Bunny welcome but sorry you need to be here like the rest of us. Can't you push for tests because of your age? Think some areas are more relaxed if you are older ( not meaning that to come across like you are an old fogey, I will be 40 next year myself!)

Thanks so much Fifi scared to death!!!

Great news Bythesea and Erica good luck Wadsy for tomorrow !

Sally so sorry for your losses but congrats on your BFP.

Bunny welcome and sorry for your losses.
I feel pretty rough today. Had a workshop and the guy sat next to me had coffee - you know, rubbish mass produced coffee - oh my god the smell!!!! I wanted to heave. It was horrendous.

My legs ache lots. It's the progesterone I'm guessing - where it makes you sluggish

Hi loopy, thanks for the welcome. I got the impression that because of my age they would be less likely to test. The nurse implied it would be a bit of a waste of their time

Loopy is it worth speaking to Monica tomorrow? Hmmm not sure other bloke was much help!

Barking yep it really bloody hurts doesn't it?!!! But it's worth it

Brummie I will be sending an email to Monica asking re PCOS and what they would need to do for a diagnosis. Will also be getting blood test results from her. Was a bit annoyed as my appointment was booked with Mr watts and the first I knew that I wouldn't be seeing him was as I was walked through to the back area of Clover suite and the nurse introduced this foreign bloke, didn't catch his name and several times he tried to say something that just didn't make sense, and I had to get him to repeat and clarify what he was trying to say. I'm not doubting he doesn't know his stuff but he was not fluent enough in English and there was a lack of understanding at points of the conversation, and I really wanted to see Mr watts as this was going to be the first time would have actually had a meeting with him, despite him having had me referred under his care since Jan and him operating on me in March!

Loopy - I'm interested in what they told you about PCOS? Did they suggest anything like metformin medication? The convention seems to be linking it to subfertility rather than miscarriages - I don't seem to have an issue (touchwood) with the former but probably am on the PCOS spectrum with long but regular cycles, polycystic ovaries incidentally during preg scans & often horrible skin with PMS! Loosing weight would help but doesn't seem to change those at all so I wonder if metformin would be worth a go...

He didn't say anything re treatment for PCOS, or even how they diagnose, but just flagged it up as something that I might have, so going to raise it with my own consultant. He said recent findings suggest that PCOS is very much linked to early miscarriages, and that they don't think it stops people falling pregnant which he said is what they used to think in the past.