Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

Sorry but I just can't keep up with this thread, boys go back to nursery this week so hopefully I will get a bit more time to read the posts.

Apologies for entirely me me post...I stayed away from the tests yesterday, but POAS FRER this morning and it's just as faint as Saturday mornings one, so not feeling very positive about this one now. I think I should be 12 dpo today, although might be out by a day as fertility friend wasn't much help this month, so could be 11 dpo I suppose, but I would have thought there would be significantly more of a result today than 2 days ago? So am now fairly convinced this is going to be classed as a chemical pregnancy/5th mc. Was really hoping this would be our one to work, what with the removal of adhesions and the benefit of the d&c, and taking progesterone earlier, and getting such stronger symptoms. Now feel so negative about it all. Will speak about it all with consultant later, (Brummie I'm seeing him at Worcester, I think he only ever goes to Kidderminster to do operations) but not sure what else he can suggest. Will test again in a couple of days, but if nothing has improved by then then it'll be time to stop the progesterone I guess.

Don't give up hope yet loopy. I know how disheartening it is but the amounts of hcg are still small at this stage so even a drink late at night could have made it more dilute and affect the results (I've never had a bfp before 11dpo, so i thought you were doing incredibly well to get one at 9 ) I think it's a good plan to test again in a couple of days and hopefully you will see a stronger line then. Everything crossed for you x

Good luck bythesea x

Loopy, as March says don't give up.
It's still very early days and you never know what's going on in your tummy x

Loopy i had very faint bfp at 9dpo, but it didn't get as strong as control line until 17dpo, cd34. Have hope.

loopy I agree. The line is not going to get stronger that quickly. I can remember doing daily tests when I was pregnant with DS and it took about 10 days if not longer for the line to get strong.

Hello everyone. Thanks for the thoughts. No news here. Last day to myself though as have dd with me tomorrow and weds and induction on Thursday if nothing happens by then. Dsis is staying tonight and wed so sod's law says she'll arrive tomorrow night.

loopy I agree with the others. Hcg levels are doubling every few days but at first it's doubling such a tiny number it doesn't make much difference to the line.

Minnie sorry your post was a while back but I didn't take progesterone until 8weeks because first consultant didn't recommend it until promis trial results were back (whatever happened to those). I was annoyed though and took agnus castus instead to try and boost progesterone levels.

Barking Thanks for your mammoth update and good luck with the scratch and agnus castus.

Welcome newbies and hugs to all that need them.

Barking also very sorry about your dad's fall. Hope he makes a swift recovery.

Bootles hope your anxiety about outing yourself is short lived. Thinking of you too xx

Oh and good luck bythesea!

Just managed to get on to photo thread. Awwwwwww!!!

Good luck bythesea. Hope all goes really well.

longest, hoping shortest gets a shifty on for you

loopy - I definitely agree with others that the line won't necesaarily darken that quickly. Mine certainly didn't, hence my weekly testing with the cb digital (although I know there are mixed views on this one! ).

barking - hoping your dad shows some improvement today lovely.

x

barking So sorry to hear about your dad, not what you need right now! Do you live far away from him?
And good luck with Coventry!

bythesea Hope all goes well with your scan today! You're half-way there now...

loopy A line is a line! Pregnancy tests are not meant to be qualitative, the only one that might get close to that is a digital, but even then I would be cautious. Today you are pregnant!

Minnie I've always taken the progesterone from BFP. Hope that helps!

brummie We never dtd in the first trimester because I am either too scared or too sick to even think about it! But I would go with your gut feeling - if it makes you anxious, wait until you are further along and feel more confident about it. No point doing it if it send you into a vortex of anxiety afterwards!

longest Sending labour-inducing vibes your way

sebs I am so glad that you are happy with your decision - I think that it is really important to hear those stories, too! Wishing you all the best!

I am 10 weeks today! Feels surreal... After all the stress and anxiety of the last few weeks, I really crashed yesterday, felt so rotten. Unfortunately, it was the day of DS's birthday party... I managed to get through and even make the cake (this year's theme was 'Minion').
Feeling a bit concerned about my 12-week scan - I will be 12 weeks on the 15th, and we are going away on holiday for 2 weeks on the 13th (this was booked a year ago, so no way of planning!). So either they squeeze me in on the Friday before I leave (it'll be just within the testing window, which starts at 11+3 at my hospital), or they do the scan when I come back at 14+ weeks (they do the nuchal etc until 14+6, but that's really quite late). If they scan me before the holiday, I will be on tenterhooks while away about getting 'that phone call' with the Down's risk results - which is when it all started going downhill last time... If they wait, it might be too late for the testing. Of course, there is always the Harmony test, but that is so expensive...
I wish they would just hurry up and give me the scan date, at least then I would know what I am dealing with.

Ladies that have followed the Coventry protocol, when did you stop your clexane and progesterone? The letter and advice was at 12 weeks. I'm tempted to continue until my dating scan (still waiting for date) then assuming it's ok oh god am I tempted fate by asking stop the clexane and wean myself off the progesterone over a few days. I can't wait to stop taking them, but at the same time it's pretty scary thinking about stopping if they've helped this time. I know the placenta will have taken over but it still feels a bit eek to stop everything at the same time. Will I feel crap after I stop taking them? Thanks

cloud can you call them to chase the date because you're going away? I assume if it comes for when you're away you'd have to call them to change it anyway. Two weeks away will be nice!

cloud good luck on the scan date. I think if you call and explain the date issue and your previous history they might take pity? Not ideal waiting for the call on your holiday but then you'll be worrying about the scan when you get back if you wait anyway. Does your hospital offer harmony if your results come back below a certain odds? Mine did if I was less than 1 in 1000 - it was part of a trial.

mrs d - I didn't follow Coventry but I stopped the progesterone at about 13 weeks. I pretty much stopped dead, though by then the placenta is producing progesterone so you shouldn't need it, and shouldn't feel too grim coming off it.

littlebear I forgot to say I have not had shingles but a friend had chicken pox in pregnancy (for the second time) and her ds was just fine. Your immune system is low in pregnancy and shingles can rear its head at any time when the immune system is suppressed. I doubt it's anything to do with the steroids. Hugs anyway, you could certainly do without it.

sebs I agree it's great to hear you happy with your decision. Thanks for sharing and love to you and your ds. x

MrsD I was naughty and came off them a bit earlier. I tapered out the prog, from 400 twice a day to 200 twice a day to 200 once a day, and the clexane I just stopped. No nasty side effects coming off those but pred was bloody awful!

God, I really can't keep up! I'm on my phone in a play barn hell, so forgive me for not saying more...

littlebear the NHS says "If you develop shingles when you’re pregnant, it’s usually mild and there’s no risk to you or your baby."

Thank you . I feel like the spinster Aunt clapping cheerily from the side lines, it's actually quite fun when you don't feel personal invested.

I even had a lovely conversation with my son's key worker about her maternity leave and her new baby this morning. No twinges, no nothing. I am a work in progress don't get me wrong, but I have acceptance now which I've found out is a pretty important thing.

Fingers crossed for the 12 week scabs coming up and for bythesea today.

March acupuncture could definitely be bringing ov forward and balancing out your cycles. It's not too late if you jump Dh tonight! I usually ov 36 hours after a +opk.

cloud I'm about 1.5-2 hours away from my parents depending on traffic. Not ideal to visit in an evening but I'll be back over next weekend.
10 weeks! Hope you get your scan date soon.

I'm going to Thornbury in Sheffield rather than Coventry tonight for the nk cells biopsy so it's going to be very interesting to compare experiences!!

barking hope today goes well. Very impressed with your mammoth catch up! Totally off topic, we have a converted van as a camper so might be different but Brentacre have been really good for our insurance. Hope your dad improves a bit over the next few days, what a horrible thing for him on top of everything else.

girlie glad you have a plan, I do think it can really help to keep you looking forwards.

lauren welcome and sorry that you have been through so much.

Snoopy hugs, you’re in a hard place. I hope you find or read something to give you a little glimmer of hope again.

patience congratulations

littlebear hope you feel better soon, sounds horrible!

loopy too early to give up yet, fingers crossed!

longest exciting times

cloud yey for double figures! Hard with being away just as you would have the scan, hope once you know the date you can find the positives in either way.

sebs nice to hear from you and hear you sounding happier. Good for you. Xx

Thank you all for your good wishes for the scan. It was all fine
The sonographer realised as soon as I went in that I was pretty nervous and was really nice about giving a quick check over everything and then going through in more detail so I could pay attention knowing there was at least a heart beat and a head (they seemed the important parts)!! Anyway, 21+4 today and hoping I can start to feel a little more excited now…..
Thank you again for the hand holding

Yeay bythesea! XX

Yay bythesea. How exciting. Hopefully things will start to seem more relaxed now x

Amazing news by the sea!

barking good luck today. I'm very impressed by your catch up, that's commitment!

march make sure you dtd tonight, and hope the 2ww isn't too much of a headf!£k.

seb you sound very relaxed and happy. I'm so chuffed for you!

mrsD mr shehata recommends progesterone until 16 weeks.

loopy my chemical in April showed the tests getting lighter until it turned to a bfn at 4w3. I still have hope for you.

snoopy sorry you are feeling so low. Hope you are finding ways of looking after yourself.

port good luck back at work. Hope it's easier than you expect.

bootles I'm glad your Epu is good and you've got another scan booked. How are you feeling? Coming out about mc does feel very exposing but on the whole I've found most people supportive and caring. I've only had the odd clanger, mainly from my mum!

Afm this time tomorrow I'll be in a scan to check for a heartbeat. I'm so scared, my heart feels like it's taken up residence in my mouth. I should be 6w3 today. I've been feeling more sick the last couple of days so I know something must be happening, but just scared it's not happening as it should. And feeling like you want to puke is a symptom of anxiety as well as pregnancy, isn't it? X

wadsy good luck tomorrow

Congrats bythesea I'm glad they've been so reassuring.

Wadsy will be thinking of you all the way, I had exactly the same nerves, and still do!

Afm, had my 9 wk scan today, all looks good, right size and hb. Still nervous as my losses were 9.5 and 12 wks, but really trying to be optimistic. Got to get thru DS's 3rd bday party on Sunday looking like a bloated whale whilst avoiding awkward 'next baby' questions, but will find some Spanx and a loose dress and all will be fine x

Oh that's amazing news bythesea well done lovely xx

Of course I jinxed my happy posts by saying the word miscarriage at DS's pre school today and of course getting tearful In my defence I was having a lovely conversation with his new key worker who had completed an assessment and declared him 'very normal' lol, so there was a large dose of relief in there. But she said 'he's an only isn't he?' and I said yes, that's why I have enrolled him at an earlier age than most to help with socialisation and hopefully encourage his speech. She was saying that without siblings they do often speak later and I was trying to explain that I had started and then left toddler groups because of the MCs and the upset I then felt trying to go back with everyone knowing or just dealing with babies etc etc. Well of course I got all choked up and made a small tit of myself.

Luckily most of the other Mums had left and no one seemed to notice so I think it won't reflect too badly on me. Grrrrr I wish words wouldn't trigger such emotion, they are only words FFS!!!