Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

Wow barking, that is dedication
:-)

Thanks Freckle, DH is pretty special but of course I don't tell him & give him a hard time!

Snoopy- big hugs I was reck after the last MC as it was totally out of the blue having seen a hb. This time feels different as it feels like it never really got going and the three weeks of inconclusive scans meant I had time to get used to it. Give yourself as much time as possible and there's no rush x

Girlie don't let your age put you off. I'm 39 in October - same as Sun and Loopy so being. 38 end of year is no probs!

I swear by acupuncture - it's fab!

Brummie, don't worry I'm not letting age put me off despite the doctors keep mentioning it!

For us its more that we've already have put our lives on hold for two years (5 career wise since having dd) and realistically I think we can do it for another 9 months before we'll need to move on. We're already lucky to have dd, so we've decided we need to have a time limit before it starts to impact her any more than it has already.

barking hoping all goes well with the scratch tomorrow,and its fitted in just in time before AF. I really, really, hope that you find elements of the old barking again one day, that you miss at the moment. Of course this process will have, and is changing you, but I very much hope one day you can look back with a babe in arms and feel it was worth it. Re spending money on ttc/keeping pg's, instead of moving house, I totally see where you are coming from.. If I win the lottery some is coming your way!

girlie sounds like a plan

lauren when you say a mmc after 8 weeks, do you know at what point it died?(sorry) its around 9 weeks thst tbe placenta really starts to take over, and gets flooded with blood and oxygen. If the lining wasn't quite good enough, problems can occur - my last loss was at 9 weeks and this is one possible explanation i was given. Re testing on foetus, yes many of us had foetal chromosomes tested. Of my 5 losses, 4 were tested, 2 were normal, 1 they couldn't get results, and one was trisomy 22 (most likely random). Its useful info as a chromosomal abnormality gives a reason for the loss. If chromosomes are normal, something is tbe cause. Unfortunately the cause is often unknown. Hope that helps and sorry if its brief/you already know that info. So sorry you have had such a rough time.

wadsy yes my epu are very good and will scan me again in 10 days ish. And you?

Although that said I worry about being 40 next year so i don't know who I'm trying to kid!

Waving to all. Ive been away all week for half term and just spent hrs catching up.
girlie so sorry to hear ur news. I quickly skimmed the threads to find ur news as I knew u had a scan while I was away. Really sad for u.
cloud great news all going well.
brummie congrats what amazing news for u, esp after all the fretting.
Are there anoyher 2 BFPS over last few days?? So much happening so quickly here.
Not much happening with me, I have a scan coming up next week just to ensure nothing left following mc. Im back to work kn Tues after 3 weeks off. Not looking forward to that.

Ha ha! I'll hold you to that bootles

Just got off the phone to my mum. My dad is no better, couldn't see the physio today as his blood pressure was too low and he's still on the oxygen . It's not bloody fair. He's led such a fucking healthy life and this is what happens?

Just quick check in to say good luck for later today Barking. Do hope it goes ok and all gets done in time. I too will be interested to hear about your progesterone levels. Short LP was / is part of my my issue and sounds like it could be part of yours too. So sorry to hear about your dad being so poorly

It's 2am and I'm sat up in my hotel. Due to acid reflux I haven't eaten anything after 5pm for over a month now but I gave in tonight and had an evening meal. Terrible idea as I can't sleep but the food was delicious and worth it on one level!

Hugs to all you lovely ladies. Will catch up when I'm back home later this week. XX

barking keep us updated about today - its another thing to get tested and ticked. Sorry your dad is so unwell - you are right, its not bloody fair. Thinking of you and family.

snoopy I missed your post last night. Sorry you are feeling so low. If staying in bed is helping you, then do that. I don't know how your work is about you having time off, but I realise your job is pretty high pressure and hope you are able to take the time off that you need. Knowing how long you can keep going is something only you know. Obviously no-one knows how it will end, but I do feel you have a good chance of success. As Coventry say, the only way to get a baby (bio!ogically obviously) is to get pregnant. You are getting pregnant and you are young - these are big positives. I know that hopeless feeling, I really do, and I don't want it to sound like empty platitudes, but I hope you are encouraged by just, who has had Scott after 3 mc, and cat who is due soon with her first, and there are plenty of others. I'm not trying to do an annoying 'jolly along' thing - it is normal and appropriate to feel devastated by your losses, and you need to grieve. I have hope for you though. Hugs.

girlie its hard to know when to stop isn't it..I feel the same, that we are so lucky to have DS, I don't want it to affect him any more than it has - he is 4 and we have been trying for over 3 years now. At 41 though, I guess my age will be a deciding factor too, that I can't do much about. Hope you are holding up ok.

Sorry about the refluxcat, not too long to go!

Thinking about you rather a lot longest....

Bootles thanks for that and so sorry for all your losses, I was 8.5 on the day and he was bang on size so had just happened they said, the smaller sack measured 4-5 weeks. My hcg had been low from the start; 2,955 at 30dpo (Betabase says average is 16,000 for that point) I should hear this week if they found anything. Sending a sample of menstrual blood to serum Athens for 10 in 1 test and hidden c

Wow that was an epic catch up Barking! Glad you had a good holiday, but so sorry to hear about your Dad. Good luck today.

Congrats on more BFP's

How is the shingles Littlebear? My friends Dad had it recently and it didn't sound pleasant at all. Also had a recent scare when I visited a friend and when I arrived her son had a rash they thought might be chicken pox. Thankfully wasn't, but DP wasn't happy with me for visiting friend. Sorry GP made you feel shit

Snoopy agree with others, give yourself time to grieve and be kind to yourself. I have hope for all of us here. Your DH sounds lovely and supportive.

Cat reflux sounds horrible. My dad's partner has the same, they've not found a cause yet, but it really gets her down.

Have a feeling someone was getting a scan today. Good luck for all scans and tests this week.

barking just wanted to say that I hope today goes well and really sorry to hear about your dad, it really isn't fair. Hugs.

snoopy your OH won't thank me for this, but getting a kitten after mc3 was brilliant. (See here: thingsaboutmiscarriage.wordpress.com/2014/12/30/things-about-miscarriage-no-21-hopes-and-plans/) Hang on in there, you will get through it, although I know it doesn't feel like that right now.

girlie I haven't said how sorry I am to hear about your loss. Hugs.

bythesea hope it goes well today.

lauren my last message should have said 'if chromosomes are normal then something ELSE is the cause. Statistically I know it said that getting past 8 weeks is a very positive sign but sadly many of us on here have had losses after that. Chromosome abnormalities can cause a loss at any time, and the implication is that issues with the placenta may be responsible after 9 weeks ish. Most of us on here have testing at the gp or rmc - for hormonal, throid, and clotting issues. I imagine they would have looked at this with your ivf? Many here have have had their own and their partners chromosomes looked at for translocations etc that can lead to mc - again with donor egg ivf this may have been looked at? Sorry its not an area I know very much about. When everything comes back normal, as it often does, many of us go to the implantation clinic in Coventry (self funded NHS) to test for intrauterine natural killer cells. If high (as mine were) the treatment is prednisolone on top of the progesterone and heparin that tends to be used for everyone there, to improve the lining and protect placenta cells. It didnt work for me last time, but has worked for others. Some here are trying for their first child, some of us have a child. .many more of us have a ds than a dd - there are immune theories linked to this strange fact (that rmc is more likely after a ds than a dd) which again consultants dont agree about. Things like the samples you are sending to Athens I dont know much about - texta has also mentioned it, there is always so much more to learn.

Sorry if you know all this and its not what you were asking, I wasn't sure from your post a few dats ago. And its just a rough overview - I sure others can add more. Its so cruel to have infertility and mc's. Hugs x

On phone so probably mistakes in there...

bythesea hand holding..

So much to catch up on. Before i forget, good luck for the scan today bythesea

Also good luck for 'your Coventry' barking. Hope you don't find it too ouchy. Great to get it out of the way and have the benefit of the scratch for hopefully a lovely surprise bfp next month . Really sorry you're dad is not much better. I hope he improves today so he can start his physio. Oh, and i totally agree about mthfr. I just read it as motherfucker. Don't even trip over the word, that's just what it is to me !!

Snoopy, sorry you are still feeling so low. Give yourself some time to come out of the fog before you make any big decisions about what to do. I'm sure you will find the strength to try again but you just need some time at the moment. You sound totally wrung out. It's how i felt after no 3, when i stopped believing that this was 'just bad luck'. An enforced break will probably do you some good if you're waiting for test results (although obv at the time it doesn't feel like it). Re informing work, make sure they put it down as pregnancy related. I'm not sure where you Are in the country, but Every time I've gone off sick with a mc they have put it down as not pg related and I've had to ask them to correct it. I actually had to argue on the phone with a woman from HR the first time, as she insisted it came under gynae and wasn't pg related (!?!)

girlie, glad you have been able to bake some plans. I'm very much a planner too, so completely understand that and i think you have a good plan. Can highly recommend acu as well.

cat, sorry to hear about your acid reflux. I had it with dd and it was horrid. I must have drink about a gallon of gaviscon a week and my head was propped up with pillows at night (quite uncomfy when you can only sleep on your side). Glad the meal was worth it though

Bump-bombed by SIL yesterday... & Kim Kardashian West today! (Who must be about 5 mins pregnant if diagnosed on a blood test?!)

I think it's bythesea who has her 20wk scan today, good luck bythesea!

So sorry to hear about your dad barking, that's so shitty and unfair. I hope he's getting good care and improves soon. Hope your biopsy goes well tonight, good luck.

snoopy totally normal to feel so sad and like its never going to happen. I think being on the verge of tears all the time is a sign you need more time off work though if you can do this. I hope you feel more positive in time, but you have been through so much in such a short space of time. X

(Congratulations patience) wow, how many do we have on here now...?

Noooooo not Kim kardashian, she's a proper twat!!!

Sorry about the bump bombing morgan, so annoying! It always catches me off guard.

Jadey - shingles rash and itching is manageable in itself. It's the rash in my back near spine that's ever so painful and I'm struggling to walk and stand up (hurts lying in bed). They said it shouldn't cause any problems to the baby in most cases it resolves itself...it's just I'm so unlucky I've convinced myself that I will be a rare case where it goes bad lol. Trying to protect screaming toddler from it hard work when we just moved and she is sharing our bed...permanently got bed sheets on a boil wash. Hope everyone ok xx

Hope the scan goes well bythesea. And good luck at Coventry barking

Still going...
Portmoon, good luck for your first day back tomorrow. Hope it goes ok and that maybe it will help give you something else (hopefully positive) to think about. Big hugs

longest, been thinking of you. Is your induction Thursday If there is no progress before then? Exciting

sebs, you sound like you are in a much better place. So nice to hear you sounding stress free. I'm glad you've found your happy again.

flen, glad the prof has suggested from bfp for you. I think it sounds like the right choice stress wise and you've given it a shot with the 7dpo prog. Keeping everything crossed for next month.

mrsc, sorry af arrived over the weekend. Hope that you're feeling like it's a new start by now. It always takes me a few days to get round to that feeling but hoping this next month will be your lucky one. I think it was wadsy(?) Who said your other fallopian tube can swing round and catch the egg. What? that's incredible! The body really is an amazing piece of machinery.

freckle, what did you decide about Coventry/ttc? Whatever you decided, I hope it works for you. And wishing you all the best

boozle, glad you enjoyed your hols

bootles, good news that you have another scan in 10 days. And i meant to say earlier that i think it can be quite hard to expose yourself like that and tell people. It's like giving them a little insight into your most private thoughts, but normally i find after that initial panic where you feel you shouldn't have told them, it feels better that they know. I hope it's the same for you.

Afm, surprise smiley face on the opk today at cd13. So confused. Cd17 is the earliest I've ever ov. Perhaps the acu has worked particularly well this month or maybe my body knew I was going to be away for the next few days. I should be pleased, but as it's taken me by surprise we've really not timed it well in terms of dtd, so now almost resigned to the fact that is going to be bfn again this month.

bootles Thankyou, I really appreciate you taking the time to reply, I had Gestone, clexane and pred this time which I think helped me get my bfp. Had those empirically though, it's £2,800 for full immunes at my clinic, GP won't do any tests but has referred me to RMC so hopefully get some basic ones done then. Yeah it's donor eggs so hard to do some of the tests, my 2 frozen are from same batch. I had a miscarriage at 8 weeks when I was 20 with my eggs (seperate DP) and my DP now and the egg donor are proven (both have a child already but obviously not together) I have bad endo and im rhesus neg, and I have hydrosalpinx, loads to think about. Trust me to be infertile and have RMC. A donor egg ivf cycle is 9k so I'm terrified of 'wasting' those last 2 embryos as they might be the last I ever have, I have zero chance of a natural pregnancy either

Good luck bythesea

Hope it clears up quickly Littlebear, sounds like a lot of hard work as well as being painful on top of other symptoms. I'm guessing DC hasn't had chicken pox yet then? Hope you don't have the additional burden of looking after a poorly little one too xx

Good luck March with tww. I'm rooting for you!