Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

Hi sebs lovely to hear from you if only for a quick update! So glad you've made a decision that works for you and that you're feeling so much better. Big smiley hug hon xx

just hope the feeding goes well and little Scottie does what he needs to do. Not long till you're home now, fingers crossed.

snoopy I agree with the others on not giving up on things to look forward to. I've put off doing so many things over the last two years (and the 18 months before ds) that I've lost count! And some things I'll never get back and should have done. Having something to look forward to on this shitty rmc journey is what keeps you going!

brummie just wanted to say how so happy I am for you again. You and sebs were the people who got me on this thread and without it I'd be stuffed! So pleased for you and your dp (who must have super swimmers to do it first time!)

Thanks brummie.

I would never cancel the holiday, DH booked it as a surprise for my birthday. But I'm not sure about TTC before we go in case we do get pregnant. That's what scares me, would you actively TTC before going away?

DH hs complete faith in the doctor and that it will be ok if we got pregnant but I have visions of spending my 30th shopping for pads and painkillers and sitting in a hotel bathroom waiting for it to happen.

I know this is disordered thinking but I can't help it.

sun sorry you are not feeling hopeful, still crossing everything for you.

spam the main thing is that ds 2 is in the system, so he can have his assessments and so on and you can hopefully take it one day at a time. Sending you positivity vibes.

brummie woo hoo! I thought tbay first pic had a shadow on it. I agree with March, if you are 12 dpo that makes you more than 3+3. What cd day do you think you O'd on? Also that's not a faint line, its a normal visible one. Join me in the land of headf**k...

sebs nice to see you. I am very glad you are feeling better mentally, and hoping you go from strength to strength.

just good luck scott, go on little one...

snoopy Where you thinking of a holiday? If you do decide to go, maybe make sure it is a place with good medical care to reduce worry. I have put off alot of things due to rmc. It sucks.

mrsd over 10 weeks already?! When is your next scan?

That. Not tbay.

Sorry snoopy - I see what you mean. I don't know..depends on where you are going. I think personally I may ttc, and then ensure I had information on where to go etc should the worst happen. I'd probably carry pads etc just in case, and to relieve the anxiety. It does sound stressful though. Its a really personal decision I think.

Brummie that's bloody marvellous. Was reading your posts thinking "but the boobs are never wrong!" I have everything crossed for you.

Welcome to the newbies. I am sorry things have been so hard. Spam you and your family have been through such an awful time. Trying desperately to come up with something wise to say but it all sounds like platitudes. Anyway, I hope we can give you all some support or an extra venting-outlet here. I have not been on this thread long, but this group of ladies are a marvel - it can be so hard to talk about losses in real life and I have defintely found it helpful to have somewhere to wail from time to time.

Sebs it sounds like you have made a good decision. I don't know whether you felt like this, but I started to wonder a couple of years ago whether I was addicted to ttc. It had been 8 years or so that we had been trying, and I wasn't sure whether I knew how to stop. So stepping off the treadmill and just being happy as we are was not easy, but was a relief. Admittedly our recent accident and Mc has reopened that door, but at least it is a conscious choice to step back on, and I think the break from it all did us a load of good in lots of ways (as a couple and family, as well as being good for me individually).

I am currently overseas visiting family, and thinking about next steps for us. DH has agreed he wants to ttc again, and so we've said we'll give it a go for a year and then reassess. I am determined not to let it take over my life this time, if I can.

I've also done some reading on T13 and while I am worried that my eggs might be shit, and I am upset that there was something that severe wrong with the baby, I do think it was better it ended when it did. It does just leave me with the concern about my eggs and my Dh's sperm - am wondering about whether DHEA might help. Does anyone know anything about it?

Spartacus I think for me turning 40 just switched something off in me. I was chasing the end of my thirties and when I fell pregnant on the cusp of 40 I honestly thought I was going to get my rainbow baby as I had some stupid idea that eggs at 39 would be fine, eggs at 40 wouldn't. Well we know that's total bullshit as some eggs at 29 can be faulty and some eggs at 45 can be great.

This recent loss due to Downs has just kicked the final bit of stuffing out of me. I have my beautiful amazing son and my totally gorgeous DP and I don't want to piss on another stick ever again or have any more head tilts from professionals who couldn't give a shit. Two years is long enough to live in toe week increments I think.

This is the first month we have had sex when we fancied. I deleted my app so I have no idea when my period was, where I am in my cycle on when my period is due. It's fucking amazing and I'm finally sleeping again without having panic attacks and palpitations.

Everybody has their own journey and for some they can deal with all the ups and downs of TTC without it tainted everything else. Personally it was starting to make me ill and I was getting some really dark thoughts that had to stop.

This group is producing so many BFPs I think it's amazing. I've been on lots of groups over two years and this is definitely the most prolific for members getting pregnant. Hopefully it will be a positive omen for everyone and it will be like the lucky chair in a supermarket where everyone on till 10 gets duffed lol.

Brummie I am so pleased for you. I did think about suggesting you test again when you said you weren't even expecting AF until Tuesday, as it sounded like you had tested rather early!!

Agree with other posters, that is not a faint positive on the frer, I have never had a BFP go anywhere near the darkness of the control line, even with ds2.

Re progesterone, I wouldn't worry about missing 2 days. As far as mr watts is concerned, he prescribed it for me from BFP. Although I'm tempted to start taking it earlier than BFP myself as pretty sure something is currently trying to implant here, and can't help but think the amount of coventry bfps can't just be coincidence! He prescribed me with 400mg so sure he would be doing the same for you, and I have to give them top marks for the speed that they arranged the prescription for me, I emailed them and then collected it the next day. Do you have enough left over from Coventry prescription to tide you over? Are you able to get out of work and go to the hospital this week?

Ps brummie, told you you had done enough DTD at the right time, only takes the one lol!!!....and hope your DP gets back in the saddle tonight now he knows he has succeeded, as suspect he might overcome his issues rather quickly now

congratulations brummie, very excited for you! glad your gut feel was more accurate than the poas...

freckle hope your bottle of menses goes well! mine took six days for results which was good!

baking, wow faith is a super cutie! hope she had a brill birthday. my cousin's son had seizures from three months and they told to prepare for him not surviving the year. he was put on this super high fat diet for his brain (consists of only very high fat foods - told her breast milk was bad for him?!) but is doing fine now, 14 months later. not sure if this is at all helpful or whether this high fat diet is what has helped but just in case it is useful info...

notspartacus have you read "It starts with the egg"? It costs about a fiver for the Kindle version via amazon and is pretty excellent in terms of laying the research in front of you to make your own informed decisions. I changed up my whole supplement schedule based on it and that's a whole chapter on DHEA. There's also tips to increase sperm quality.

i'd be keen to hear the supplements people take and recommend. i feel like maybe there's some magical combination out there that'll work, but probably not. i originally took the supplements listed on there (fertility.ca/wp-content/uploads/2012/09/Supplements-Women.pdf) plus tips from MN, BC and FF but then read much contradicting evidence so stopped some (and saving £ now with less supplements). sorry if this has been discussed already...

empty stomach: 240mg r-lipoic acid (600mg is recommended but never seen to have an empty stomach twice a day)

AM with food: 400mg co-enzyme q-10, 200iu vitamin e, 600mg n acetyl l cysteine, 1000iu vitamin d3, omega-3 EPA (125mg) & DHA(250mg) (vego), 1000mcg methyl cobalamin (vit b12), 800mcg folate (metafolin), 500mg vitamin c, 2g myo inositol

PM with food: rainbow light pre-natal multi (vegetable source vitamins for easier digestion incl 800mg folate), 200mg co enzyme q 10, omega-3 EPA (125mg) & DHA(250mg), 2g myo inositol

DH takes 400mg coq10, 1000mg vit c, multi-vit, royal jelly

So, otherwise visited Coventry on friday and prof b was most excellent. he said i wasn't his standard case apparently as mcs aren't around implantation but with my thin lining (6mm) i should at least benefit from the treatment plan. curious to hear back in 5-6 weeks on the results. very relieved my second cycle post-mc3 finally arrived so i could go and definitely wish i lived closer!

& my stats:
mc1 mar14 - 12w (MMC 9w6d)
mc2 aug14 - 12w (MMC 6w)
mc3 jan15 - 9w2d (MMC 9w1d)
rmc bloods normal. mc3 karotype normal. hidden c negative. very low AMH. undergoing treatment for lifecode positive for ureaplasma. awaiting next month's hysteroscopy. hoping to ttc again jul/aug.

Wow texta that's a lot of supplements! Really interesting though- I was wondering what people were taking. I only do a preg multivitamin, omega 3 and vitamin e. I'd like to take co q10 but it's so expensive! Dh takes zita west men's vits and vitamin c as he's had issues with poor morphology in the past. I really need to try and sort my eggs though I realise at 40 I'm probably flogging a dead horse there!

spartacus my acupuncturist has talked about dhea for egg quality. She's had two clients get pg on it- one natural and one IVF. She said its very controversial though and you have to make sure you find a reputable site to buy from. She also said her clients both got very bad acne with it. Don't know whether that helps much!

hey minnie they're bloody expensive! but i got these last time www.amazon.co.uk/Swanson-Ultra-Coq10-200mg-Capsules/dp/B002GC0EVU/ref=sr_1_14?ie=UTF8&qid=1432571144&sr=8-14&keywords=co-enzyme+q10 and sometimes they're around £8 for 90. these aren't the best i don't think as they're better absorbed with some fat so you need to eat fat morning and night with them... i used to get them suspended in oil from justvitamins but they had a big price hike (and weren't veg) so have downgraded to these weird orange ones...

Texta I also had 6mm lining as well.

The supplements I took are:

Royal jelly
Zinc
Vitamin E
L'arginine
Iron
Folic acid/ vitamin D

ps minnie no dead horse flogging! my workmate was told at 43 she had bad eggs and should expect the menopause soon, and then got pregnant with a daughter six months later, naturally (think she was at the lister). some research also suggests that we aren't born with our all ours eggs and we can encourage growth (i keep hoping this). and well my DH is always poking fun at the supplements "activating the mitochondria" but that's the kind of nerdy jokes we tell in our household... this was a nice egg health/IVF story in the news recently: time.com/3849127/baby-stem-cells-augment-ivf/

really brummie? do you get medium/light periods as well? if so, did you find taking the progesterone has made them heavier? mine last 2-3 days followed by some spotting...hoping the hysterscopy will help them be fuller / improve the lining too...

I had very short light periods Texta - often only 3 days and quite dark in colour.

After the hysteroscopy my period was 5 days and bright red the whole way through. Can't comment on them with the progesterone because this was our first attempt post a 4 month forced break after mc number 3 so is my first cycle with them

Was that the keto diet texta ? It is sometimes used for F's type of seizures but usually only if the medication fails, and we were lucky with the first one we tried. Glad it was successful for him.

Hope Scott is doing well without his tube, just. Do you get to stay in with him a few nights to get feeding established?

Wave sebs so glad to hear you sounding better.

On going away. I travelled to and round Australia between weeks 5 and 8 this time. I didn't relish the flying but it did me no harm and actually being away helped the time pass abnd gave me time to relax which, who knows, might have helped. This was third attempt at that trip. Twice I cancelled it as was due to be past 24 weeks but never reached that stage. I agree it sucks the way it takes over everything. I never did get to visit my friends in Argentina and they are coming back soon after 2 years aaway

Omg, brummie! I go away for the day and you get yourself a BFP! Excellent news! Congratulations and the very best of luck to you xxx

texta i take Q10, D3, fish oil (Zita West DHA), berocca (useful as it has lots of B vits and vit C in one hit) and 800 whatevertheyares of folic acid. Also spatone when I feel run down (which is most days). Plus I usually eat a low carb diet (because I get fat on bread, not because of ttc). Have a copy of that egg book somewhere - will dig it out and see what it says re DHEA.

Sorry been a bit quiet over the past few days as think the likelihood of another MC has hit me at the same time as symptoms have really ramped up. Anyway a day of gardening whilst dd was camping with grandparents has sorted me out.

Welcome to the newbies, hope you find us a supportive bunch.

Sebs, glad to hear you sounding so well. Dh and I have set ourselves a two year deadline to have a sibling, which will run out at the end of this year, so I know where you're coming from. Everyone is different but we know when we've reached the end of the journey.

Longest, I remember you being in Australia, as it was when I had just joined the thread. I was very impressed how cool you were at the time!

Just, hope Scott has gone well without the tube. I do find boy babies take longer to get into feeding. Hopefully will mean he will be a chilled baby for you!

Waves at everyone else x

Big hugs girlie

Big big hugs Girlie

I'm already scared to go to the loo because of what I might see when I wipe

This fear never ever leaves you.

I watched Bones earlier (I love Sky Living trash telly) and the episode opened with the main characters Booth and Brennan doing a test and screaming with joy at it being positive.

Oh the innocence!!!

texta my last loss died at about 9+4 wks, picked up on a scan at 9+5 after a great scan at 9 weeks (I was kind of under two places). I had assumed this meant that implantation wasn't an issue for me, in that one at least, but Prof B said it could still mean that my lining and developing placenta just wasn't strong enough to get through the 'stress test' that happens when the forming placenta gets flooded with blood at around this time. But I also had a tfmr after a bad 12 week scan, where the cause of the problems were unknown. Prof B couldn't say why it may have happened (occurred well before going to Coventry).

Sometimes the not knowing WTF has been going on drives me mad. I didn't read Dr Beer's 'is your body baby friendly" because we would never be able to afford the treatments, and I know if I started it I would get obsessed by little details and make a huge effort to understand it. I gather it is not an easy read and just didn't want to do it to my brain. It sounds a bit crazy writing that. There's been so many other things going on in my life, (ie quite stressful difficult things) so I have tried to focus on them, to solve tbem and feel instant guilt when I hear of something new that I hadn't come across regarding RMC. As if I have neglected it somehow. Similarly with the supplements and acupuncture, I kind of banned myself as things are financially tight - then feel guilt again. I don't really know why I am posting this, other than to see if there is anyone else with similar madness?

On another topic, Prof B had said I could try hcg Injections next time (so this time) which I can try to get prescribed later in the week.at the location scan. I have done a bit of googling and keep seeing references to possible birth defects, but can't find many details. Anyone know anything about this? Back to more google for now..and maybe an e-mail to Coventry...

Sometimes I am tempted to chuck all the meds and dr google and books in the bin, and just see what happens

Sorry, really long me me post.

longest how are you feeling?

And hugs girlie from me too x