Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

[Brummiegirl15]

New thread for us if it's worked on phone! Will paste stats

Girlie and Sun will be thinking of you both today.

MrsD good luck with the camping, just done 3 days last weekend and the glamour of having to p*ss into a bowl 3 times a night was just too much for me... I think I'm hanging up my camping hat for about another 5 years until DS isn't up at 4.50 with the birds have fun though, anything to get through these never ending scanxiety weeks xx

Yes I do the breathing check too. DS still comes into bed with us in the middle of the night, like clockwork, which actually is helpful - close quarter checking.

Sorry, I am about to be needy. Can I ask if people think not taking the hcg is a reasonable decision? Given the lack of evidence and the vague reference to birth defects (very vague, and I know some give it instead of progesterone, and I am already on progesterone). I think Prof B was offering me something else to chuck at it, and now I am pulling back a bit he is going with that as, as he said 'there is no right or wrong answer'. I do worry about 'just in case' meds, as there are still so many unknowns, and in the one trial with Bhcg I didn't fall into the subcategory of women it made a difference for.

Sorry to be me me me and pathetic, but I can't discuss this with dp - he is useless on this stuff - and no-one else knows I am pg, plus you ladies understand more than anyone.

Thinking of you today girlie, big hand hold xx

Also already on progesterone, heparin and prednisolone.

Sorry, hand hold to you too sun

Good luck today girlie and sun xxx

bootles sorry you are having to stress about whether to take the hcg and unsure what's for the best. I'm afraid I'm no help in that I don't know what I'd do either. However, prof B has years of experience about miscarriage and I bet he also know lots of other experts who he may speak to for 2nd opinions/ideas etc, so I think I'd be inclined to put my trust and faith in him and go with what he says. I know it's easier said than done though. So hard when there is so much unknown about everything. xxx btw you're not being needy, don't be silly, it's what this thread is for

jady great news on your scan!

I also check on DS breathing before bed. I was terrified of cot death before mcs though so think I'm like that anyway. I also give him a kiss once I've strapped him in the car seat, just in case anything happens...

freckle ha ha ha! Your analogy of boobs reminds me of my brothers choc lab, lovely but thick as fuck, and his golden lab is the clever one that causes mischief but gets choc lab into trouble! My boobs are a bit like it these days, the only thing they do is produce milk when they shouldn't!

Sure I've missed lots of people off....sorry

It is a really tricky one Bootles. From my quick Google there is evidence of it being prescribed by many doctors for rmc going back a few years, but not much said about these risks of birth defects. Think I'd be inclined to not use it if this is first time on program of heparin, pred and prog.

bootles I'd probably feel very relieved prof b has suggested not taking it. I think it's a completely reasonable decision to make, especially the way he's explained it. I'd trust him completely. I do!

Thanks guys. The thing I read was this:

www.drugs.com/hcg.html

No pressure to look! Just in case anyone is interested, but it seems odd as I realise it has been prescribed for a while. I think I tried to make my e-mail to him open to taking or not, just expressing my concerns (epu wouldnt prescribe it and I was asking what to do), and I do trust him so am sort of deciding he has made the decision. I just imagine my body trying to do what it should, then being confused by all the extra hormones (unscientific of me)...and then I imagine this failing because I haven't taken it. Second time on these meds, didn't work last time.

Just ARGH to RMC and impossible no-win situations.

Cross post mrsd, yes that's how I feel, but you know how it is, fear everywhere.

wadsy good luck for your app today. Holiday was lovely thank you, didn't want to come home. I'm anxious about taking the injections, I dreamt of prof Q the other night and she was telling me to inject my foot!!

Random Q but has anyone flown with injections and had to administer them mid flight?
The reason I ask is I'm thinking of going to see my bro in Sydney in nov, so therefore potentially pg and taking heparin. I'm fed up of planning life around potentially being pregnant so just going to do it, and if I am pg by then, then it will just have to fit round my plans, not the other way round. Also dreading my 30th as I had mc1 a couple of days before (and mc2 dd is sep) so want this to be my 30th treat and just get away from home(can't go for my actual bday as bf is over from nz).

Bootles, I really feel for you. You want to throw everything at it and hope it sticks, but the extra meds added into an already heady mix would have me in a spin too. I also trust Prof B more than anyone else to do the right thing, but with the caveat that he won't be as invested in it working as you. Keep talking to us, that's what we're here for x

I have always checked for breathing when they're young and panic if they ever sleep late in the morning. With Bertie, I do leave him to sleep alone during the day (against advice) so my anxiety must be lessening, but I do check his breathing every 10-20 mins!

Freckle my puppies have long become spaniels ears

I love camping, and hopefully we'll get our first weekend away soon. It might help DH and I to be away without pressure.

Hmm. I can see why that page makes you not want to take it bootles. I agree that you should go with prof b's decision in the end, particularly if you're worried about taking it. Remember there is still a chance that the last one was a genetic issue and not a treatment failure, so I do think it's worth giving it another shot on that protocol. You always have the hcg as a back up plan (and hopefully you'll never need it). Such a hard decision (and realise this is the opposite of what i said yesterday, which just proves how indecisive I am about it!)

Bootles it sounds a very reasonable and grown up decision. There's no evidence it would work for you so it may as well be lucky socks really (not that I am knocking the lucky socks).

Am waiting with bated breath for all the scan news. Special hugs for girlie who is a hero of poise and bravery.

I think maybe all parents do the breathing check. I do and dd is nearly 4. Even if dh has just been in I still like to go in and watch her sleeping with her mountain of teddies for a few moments. The one time she is calm and peaceful!

Thanks for the excitement guys! Yes, it's my due date tomorrow though starting to think she is hanging on for Thursday's induction. Don't mind waiting except that it's annoying being on tenterhooks the whole time. Am not relishing dragging my neighbours out of bed in the night. A daytime sign that she is on her way would be much appreciated.

Lazy day on the sofa planned today as dd is at holiday club. Was going to cut the grass but it's pissing it down so sadly it'll have to wait!

Just so pleased Scott is getting the hang of it. Do you have a pic you can pm me? X

Cheesy I've already looked this up because of travelling this month.

You can carry any syringe through security as long as it's in it prescribed packaging with your name on. So you couldn't carry them loose if that makes sense.

Virgin Atlantic/BA state that you can carry medication on board but you can't use the fridges to keep it cool. However if you do need to keep it cool then will provide ice for cool bags. But heparin doesn't need to be kept cool anyway.

When you need to do your injection just take your syringe in say a washbag to the loo and do it there.

But as long as you carry in original packaging in a see through plastic bag you are fine. Oh and it doesn't have to be included in your liquids plastic bag it can be separate as it's prescribed medication

cheesy Further to brummie's advice, I would also strongly recommend that you get your GP or consultant to write a letter stating that it is your medication and that you need it. I would maybe ask the airline what requirements they have - just a thought.

Thanks everyone :) Scott had a good night and has gained over a pound at this morning's weigh in. I'm just waiting for the Dr to come and do the rounds and make the final decision. DH is doing the final preparations at home... Very hopeful that we can finally go home today.

Longest, hope Shortest makes a conveniently timely appearance! I'll post a pic when I'm back home on my laptop.

Positive vibes to those getting scanned or feeling the weight of it all today.

Yay just! That brilliant news. Bet you can't wait to get him home and settle in with him. Fingers crossed the doc gives you the all clear x

Lol on the boobs front mine look like big saggy gorilla boobs lol and they point down at my belly that is a big saggy W shape lol :) good luck to those having scans, tests and treatments atm xx

Just I hope you get to take your baby boy home :) xx

Lovely news Just, very hopeful for you too!

Enjoy your lazy day Longest, hope Shortest doesn't keep you waiting. Is it bd'ing and raspberry leaf tea that are meant to help?

Good luck to everyone with scans and appointments today. Sending good sticky vibes x

cheesy I do the extra car seat kiss too (I'm so glad I'm not actually mad!) holiday to oz sounds fab! When are you 30? I loved being in my early 30's (wish i still was!)

bootles I agree with the others in trusting Prof B. You're on a good bunch of meds anyhow and if there's no guarantees probably no need for it. I asked my rmc consultant about it as I know the other Leeds consultant (I think freckle said it) uses it instead of prog. My consultant said (after a long sigh and headshake) that she doesn't think there is any point in giving it to women over 40 as there's no proof it works at all. Not sure how old you are but it seems like maybe an added extra which may not really do anything. Sorry that probably didn't help!

longest hope shortest is on the move soon!

Thank you so much everyone. It makes me want to cry (in a good way) that I can post a question and get such supportive responses. (Hormonal? Moi?)

Minnie interesting she said that about over 40..I am 41.

Right that's it then, going to forget about hcg. For now.

longest hoping for a day-time start to labour, and a sofa day sounds like actual heaven to me!

just fingers crossed. You mentioned a picture? I would love to see a picture (just ignore me if that's too intrusive)

cheesy and brummie I second cloud, definitely get a letter (I thin the Coventry one would suffice? P!us maybe Gp one sayi g you are currently using it)

Longest so excited that shortest is soon going to be here! I went into labour with Bertie just after breakfast on a Saturday, so it does happen!

freckle to boob comment, hope mine don't spring to attention unexpectedly, they would take someone's eye out from over the road. If I ever need to smother an intruder, they'll be perfect.

just great news on Scott's weight gain, home today is home day.

longest enjoy the sofa time

jady great scan news
girlie & sun thinking of you today, and someone else? wadsy? Sorry brain not functioning.

bootles I am with the others, I think you should leave the hcg this time but it's a tough call.

[waves] to everyone else. Nearly the weekend!

Dh has cancelled our camping trip hooray due to the torrential rain we're currently experiencing. We'll do a mix of diy and fun days with ds this weekend instead.

just so so close. Fingers crossed this is the day, but if it isn't it really won't be long now. Eek! How exciting...

girlie and sun hope you're both ok xx