Recurrent Miscarriage Support Thread 23 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Thanks all. Confusing thing is, I definitely have what I would describe as symptoms but maybe I just feel rough and maybe it's the progesterone.

Admit I am starting to feel a little sore now when I wipe so will be glad to be off the progesterone if I don't need it

This is quite useful for an overview of fertilization and implantation health.howstuffworks.com/pregnancy-and-parenting/pregnancy/conception/conception-process2.htm

Just had an email from prof B, he thinks early c-section was the right decision as he agrees that the placenta was failing. I bet there's a connection between this and my RMC profile. Hoping for a big fat 'I told you so' to the testing after #3 MCs school of thought in 10 or so years when the research catches up to my gut instinct of what the problem was.

brummie - hate that confusing in between time when you're not sure one way of the other. I've only used clearblue, not frer but for what it's worth when I've had a bfn there has been no line, shadow, squinter - nothing. Hope you get some more clarity tomorrow. X

Thanks Sun

At the moment, I'm doubting myself whether there was even a shadow or a line!!

Well I will know soon enough when AF turns up!

Thanks Loopy I'm going shopping later so will get some of the cream and pads as suggested! In answer to your question about progesterone my understanding is that every woman makes and uses progesterone differently so creating a normal amount isn't always enough to sustain. My levels of progresterone always appeared fine in blood tests but only by suplementing with progesterone was I able to concieve and maintain a pregnancy.

Baking you deserve a medal for continuing with bf despite those issues, you're a superstar. My mum and I are going to a bf workshop at the hospital next week, a local bf outreach worker will be there as well as local ladies who act as bf buddies. Hopefully they will be able to help if I'm struggling!

Hugs Brummie, not being sure is just the worst. Are you 13DPO? Could you have ovulated late, explaining the feint line? I'm keeping everything crossed that the squinter line becomes more distinctive soon.

Sasha have you ever tried follicle tracking? If the issue is hormonal / ovulatory then it can sometimes help to get to the bottom of things as it looks at the follicle developing and can pinpoint when the egg is released. It's about 700 a cycle if done privately but uncovered some answers for me.

Cat one if the things I wish I'd been told about bf is that at some point in the first couple of weeks you will feel like giving up. This is normal. A mixture of sore nips, crying baby, sleeplessness and hormones will combine to make you feel like stopping. But it will pass and you will succeed.

Ah thanks Tanny, that's just what my friend said actually. I will give it a good shot as really want to bf if I can! Hope you' re keeping well and little one is growing nicely. xxx

Sorry been a bit quiet over past few days as been getting used to idea that likely to have another MC to add to my stats (although still praying for my miracle!)

Had a small piece of good news today that my Response trial nurse has been able to get karotyping organised on the NHS if I have surgery next week. Not sure what miracle she has been able to organise as it's the hospitals policy is still not to test at all. Although it doesn't appear to have helped me, I'm so glad I've done the trial as I'm definitely getting lots of support.

Enough of me, Few call outs;

Cat another bf tip I have is to get a breastfeeding cushion to help support kitten. If you're both comfy, helps no end!

Jady, glad to hear you had a good scan.

March, sorry to hear yesterday was a pants day. Hope to hear today is better.

Hi girlie - that's good news that at least the response trial is being supportive. Am still keeping everything crossed for you though for next week. x

Forgot to say Brummie, stay away from the tests as much as possible. Although I'm hoping its of course a positive x

Hi everyone

I'm sorry I haven't read the thread or been around much lately, but I have just had my test results from my last MC and I have to get it out. He had patau syndrome (T13) so pretty much incompatible with life. I guess it would have been far worse for things to progress further and find out later but I feel so shat on by the universe.
We tried and tried for two years, and I miscarried a baby that was clearly not quite right (the hospital kept accusing me of getting my dates wrong, but I didn't) and then two whole years later I got pregnant again by accident and everything looked great, perfect and he had a hb and then this happened. I know that I am lucky enough to have my girls, but honestly this many losses.... I don't know what to feel or think or do.

Sorry, I kow you've all been there and I know some people have it far worse, but this has so knocked me for six. I was getting over it until I got these results, and even though the MC might have been the best thing in the circs, I feel sad all over again.

Hello everyone, I don't know if I'll be able to keep up with you chatty lot or if I'm currently in the right frame of mind to reciprocate the amazing support you guys offer here but I need your help.

I'm 29 and I'm going through my third miscarriage in six months.

My first was a mmc at 11 weeks in December 14. The second was at five weeks in February. This one got to six and a half weeks before I had brown spotting which is now bleeding and HCG level falling.

A GP has now referred me to rmc clinic so I'm waiting for that.

I had a feeling something wasn't right after the second mc so I paid to see Dr Shehata privately. He diagnosed NK cells and recommended steroids, intralipids, aspirin and cyclogest. Unfortunately I was already pregnant for the third time so didn't start the steroids until 4+4 and this is how its ended.

My maternal health history isn't great auto immune wise. Between mum, aunties and grandma they have psoriatic arthritis, Addison's disease, fatal childhood leukaemia and sarcoidosis.

I have been diagnosed hypothyroid, although it apparently isn't auto immune and is well managed.

I just feel lost. When I look at my future I don't see anything. I regret not trying for kids sooner and I'm petrified that I'm never going to have children.

DH is trying to be positive, we can get pregnant which is a huge hurdle for so many but how many times can we go through this. What if I have a balanced translocation, I can't afford Ivf.

I feel as though my whole life has been devastated. I'm a police officer on a response team answering 999 calls. After the last two times I was railroaded into going back to work when I didn't feel ready because we're so short staffed. but I'm putting my foot down this time and calling OH. I don't think I can go back. I feel like enough of a failure personally without having to deal with all that. The doctor in a and e couldn't believe I was still working shifts.

Anyway I've waffled enough, I just needed to write some of it down.

Please tell me I can have a baby.

Welcome Snoopy and sorry for your losses. Although I can't predict that you will definitely have your baby we have a growing collection of thread babies, with a few more due shortly. So there's always hope x

Arghhh just lost post. Shortened version:
Good to hear from you Spartacus, but so sorry it's feeling so fresh again. We've all walked different paths and are at different stages of our journey, but we all deserve to be here. Stay and gather some hugs and

Welcome Snoopy, but so sorry you find yourself here. Don't go back to work until you feel ready and be kind to yourself. x

girlie I'm glad the Response team are supporting you. I hope you are getting through the days ok.

spartacus I don't think there is good news or an easy thing to hear about genetics on a lost LO. Difficult to hear there was a genetic issue, equally hard if baby was perfect and it's "your fault". I hope once you come to terms with it, it will give you some closure.

snoopy I'm so sorry you are in a position to join us You absolutely should take whatever time you need to recuperate and take stock for a while. A break from TTC whilst getting the tests done has been really beneficial for a lot of us. I have tried to make it a rule not to say at least to anyone in a shitty situation, but I am breaking it to say to you that at least you are young you have lots of time, a good 10 year advantage on lots of us. Please do not beat yourself up for leaving it too late when you are not even out of your twenties! If you can find the emotional resilience to keep trying, you have an excellent chance of taking home your baby.

My SIL has whispered she is 7 weeks pregnant after IVF today. I am for her, but I wish there wasn't a voice in my head saying not to count your chickens. She's not broadcasting it, she's only told immediate family. I am on tenterhooks on her behalf now! bloody miscarriage, ruins pregnancy forever ....

Snoopy welcome and so sorry for your loss. I had 3 in 8 months so I really can identify as can lots of the ladies on this thread.

All I can say is we are here for you, lots of support and there is always hope. Remember the night is darkest just before the dawn and the sun will always come up. There is always hope.

Lots of us have been Coventry (myself included) and found that incredibly uplifting and encouraging so it might be worth considering.

Spartacus big hugs. I'm so sorry. I know the news doesn't always make you feel any better xx

Sorry for your losses Snoopy. If you're 29 I'd say you've still got time on your side. Don't beat yourself up for not starting sooner, hindsight is a wonderful thing but the decisions we make are right at the time.

Thanks for the kind words everyone.

brummie would it be creepy for me to say I remember you from the TTC after miscarriage thread and I've really been rooting for you to get your bfp?

To add insult to injury my brother called me at work three days ago to tell me my sil is pregnant. My mum asked him not to and that she would tell me but he insisted despite knowing what I'm going through. I just about removed myself from the room and had thirty seconds to cry in the toilet before going to a call.

I don't begrudge my sil her happiness and wish her all the best but I can't believe my brother was so callous. And now I'll have a constant reminder of what could have been.

Sorry, I'm not usuall this 'woe is me'.

monten's getting married in the morning! ding dong the bells are gonna chime! good luck, lovely - hope you have a wonderful day!

Ooh I love weddings, good luck Monten x

Thanks Baking, keeping my head firmly in the sand to ignore what's going on, with retail shopping for dd today.

snoopy just wanted to send you hugs, it is such a terribly hard journey and doing a terribly hard job alongside makes it all the more difficult. It sounds like you have a lot on your plate, health-wise, but all of that is important information to find the right protocol for you. I really believe there will be one. Hang on in there.

Welcome snoopy I'm so sorry to hear all you've been through and in such a short space of time. Your head must be spinning. Glad you are trying to get some time off work - makes me angry that we are all just expected to keep ploughing on, even though inside we are falling apart. I really feel positive you will have a baby. Mr Shehata has an 85 percent success rate at his clinic. I'm under his care (I have factor V leiden blood clotting issues) I had a very early loss under his care recently but I'd only just got on aspirin etc so I haven't lost hope.

Monten So excited for you - have a wonderful wedding day! There should be a champagne smiley for times such as this!

Spartacus I'm so sorry to hear your news. It's a lot to take in. I hope you're being looked after in RL and you are doing what you can to be gentle with yourself.

Girlie Hope you are doing as well as you can at the moment, You've had a pretty horrendous few weeks in limbo land.

Waves to everyone else

AFM thanks for all your hand-holding. You really have kept me sane. I had a location scan today and thank God it isn't another ectopic. Yay! It's only measuring 5 weeks and all they could see was a gestational sac. No yolk sac seen yet. But tonight I am just breathing easier I'm not dealing with another ectopic. xxx