Recurrent Miscarriage Support Thread 23 - tests, treatment, trying again.

[bythesea82]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

girlie I'm sorry your scan wasn't better news

Good luck to all of you having scans today, crossing everything for you!

barking Do you think that you'd have to move abroad to improve your DH's situation, or could you compromise to moving somewhere within the UK, or even Europe? It's such a difficult situation, I feel for you.
I have lived abroad from my family for nearly half my life now, but they are in Switzerland and Germany, so not too far away. My father was diagnosed with and subsequently died of a brain tumour 4 years ago, and while it was certainly a difficult time, trying to travel to Switzerland as often as possible to see him, he did not want any of us to change the living situation (my siblings are in Germany). He was most happy when we were happy.
It is a tough decision, trying to weigh up people's happiness against each other... Hope you are OK, feel free to pm me, if you want a chat.

bootles How is that line coming along?!

I had some bright red spotting this morning, and can I just say that I AM FED UP WITH THIS! Argh! It's all gone again now, but I just hate it! Constantly having to fear the worst when going to the toilet is not my idea of fun I know that the heparin and aspirin can increase the likelihood of spotting, and they did not see anything on the scan that gave reason to worry. But still - just stop, will ya already?! I promise I will keep on freaking out throughout my pregnancy anyway, no need to give me extra reason.

Rant over. Sorry.

x-post, girlie I'm so sorry Do you think that there is any chance it might improve? Twins grow more slowly! How many weeks are you?

girlie I'm sorry it's not become clearer. Can truly understand just wanting to move on and now you've another week and a bit to wait xx

It seems insensitive following your post with my scan news (I'm sorry). Everything was fine. Measuring a few days behind my last scan but spot on my dates 9+4. Was a different sonographer to last time (ridiculously bloody cheery and heavily pregnant).

Omg dh just opened the envelope to look at the scan pic which I can't do and she's included 19! Wtf...

cloud it's so bloody unfair. You deserve a break. Could it be irritated cervix or something. I think I'm actually drinking less just to avoid going to the loo because knicker watch is taking over my life.

diddly Great news on your scan! 19 photos, though?! Blimey... Especially as you really can't see anything at this stage! But hey-ho

Sorry again about the limbo girlie. Know that feeling of resignation so well

Great scan news diddly. It's not insensitive, we're all here for good and bad news so don't feel bad. X

Sorry to hear you've had spotting again cloud. I know it's absolutely terrifying to see red, even when you've only just had good scan news. Fingers crossed it stays the feck away from now on

So sorry that you did not get better news girlie.

Cloud it's so hard not to dread going to the loo, I know that all to well. Fingers crossed it's nothing to worry about lots of people spot apparently it's just when you are a rmc lady it's really hard!

Great news mrsd sounds all good ??

My scan was inconclusive there was a sac with a foetal pole measuring 6 +2 so bang on dates but no clear heartbeat, we thought we saw one at one angle the sonographer too but she said it's not clear enough to call so I have to wait 2 weeks! She spotted an area nowhere near the sac that could be where old blood is coming from but it's so light ie hardly at all and very light brown (sorry tmi) she said it's normal. I pointed out that after 5 mc's normal is hard to swallow. I did see that that is a cyclogest symptom but when I mentioned this she said she didn't know. Keeping everything crossed that it was a heartbeat and that all is good.

girlie sorry it was inconclusive again, I can understand how you just need to know

mrsd good news on your scan
confused it's still quite early for a heartbeat so hopefully you'll see a strong one next time

I'm really sorry it wasn't better news Girlie and to now have to wait over a week. It's just so shit. I still hold some hope though for slow developing twins.

And Cloud sorry you're spotting again. I agree you deserve a break. Spotting, go do one!!

So glad you had a good scan Diddly
I've booked a private scan for tomorrow. So major scanxiety here too.

Ahh sorry yours was inconclusive too Confused. Fingers crossed for you. 2 weeks seems an eternity though I bet. Did she say anything about the position it's implanted?

girlie & confused, sorry for inconclusive scans and more waiting.
mrsD great news , 19 pictures?! She was keen!
cloud sorry you have more spotting, really hope it's just the drugs but not what you need.

Good luck tomorrow jady, how far should you be?

6+5 tomorrow Bythesea

Oh Girlie I'm so sorry it's not better news. Same to you Confusion

Why is this not easier?????!!!!

Firstly Diddly, don't worry you aren't being insensitive I'm really pleased you had a good scan. We deserve some luck on here!

Confused, sorry it wasn't more conclusive, but hopefully next time it will be.

Cloud, sorry to hear you've had some spotting. Hopefully it all goes away again.

Thanks for the kind words. I'm still praying for my miracle that suddenly they'll have a growth spurt but as now 8wks + 2, I've been told it's very unlikely even though it's twins. The twin aspect apparently means the previous mcs aren't likely to be linked, if this does fail. Also means I am more likely to have twins again in the future!

Can I ask has anyone had to arrange their own karotyping testing and if so, who do they use? Found out today that my pct don't ever do the testing or arrange it privately. So if I do want to get it done, then I'll need to arrange it myself- ggrh!

the company they used was via path at st thomas' hospital I'm not sure you can do your own with them, but no harm in asking

central customer service department on 020 7188 9684 - See more at: www.viapath.co.uk/customer-service#sthash.TyUpMwVK.dpuf

Girlie and Confu3sed*, sorry about the inconclusive scans. Hand holding to get you through to the next one.

Cloud, hope the spotting clears up.

Just been reading about the new miscarriage research centre Tommy's are setting up. Sounds like exactly what we need. They aim to identify as many treatable causes of mc as possible after #1 to save people from having to wait for #3. I can't post the link on my phone, but I will try to remember to do it later. I expect its on their website.

Thanks Bubbly, spoken to them and they don't do self referrals.

Sasha, was this organised by your consultant, or you?

Also spoken to the miscarriage association and they don't recommend any companies for the testing but they did say they were surprised the hospital doesn't test at all as they are unaware that any hospital has this policy. So it seems my local hospital is very at odds with common policy's. Ggrh!

girlie and confu3ed so sorry to hear that the scan didn't provide any clear answers.

diddly that is fab news, I am really pleased for you.

cloud it is just so hard, isn't it? The roller coaster of RMC. It's a really crap one.

www.tommys.org/the-tommys-new-centre-for-reduction-of-early-miscarriage

Found it Just - I see the deadline for expression of interest has passed. I would like to think both Coventry / University of Warwick and Birmingham Women's Hospital / Uni of Birmingham would have expressed an interest.

It's a great idea and is absolutely needed. Part of my job is attracting international events to the UK so they impact the economy etc and there are some fantastic conventions out there that focus on this area and I would love for the UK to bid for them and having more stuff like this makes it much more likely!

I have to say I am shattered though being away from home and I just want to be home now and doing a test. I just want to know so if it's a bfn, I can put it to one side and concentrate on our next attempt. DP and I haven't done the deed since he couldn't finish - I think he's dreading it and is worried it will keep happening.

Just how did you get on today feeding Scott?

Really interesting into the Tommy research centre, particularly the info on research around the placenta, which hasn't been talked about in the past.

Just, how's Scott feeding? Is he turning into a boob man?

girlie and confused so sorry the scans weren't conclusive. The waiting game is shit. Hoping for good news for you both.

diddly great news on the scan (and 19 pics!- she definitely was keen, hope you get her at your 20 weeks scan!)

cloud hope the spotting gives you a break soon! Just not what you need.

just and brummie the new centre sounds exactly what we've all been needing. And they'll test after 1- such good news if it all happens.

flen hope the tww wait flashes by! I hate how ttc impacts on every flaming week of the month. There's never a time where there's a break from thinking about it!

I've been called to my GP to chat about my RMC appointment. Was going to go anyway to discuss the Coventry protocol though probably won't have results by then as its in 3 weeks. Sadly the best GP at the surgery as now left and I was banking on her as she was brilliant when I saw her for an initial fertility consult-got every single test done with no fuss. Hoping the one I see will be just as good-some are very old school by the book. Although Prof Q said she was good friends with my RMC consultant and that Id have no probs getting the drugs from her (not the impression she gave me at the time but hopeful anyway.)

You chatty bunch! I can't keep up hehe.

Flower so sorry it's bfn. It's soul destroying at times and so hard to pick up when you've been trying so long. Only you can decide when enough is enough but we kept going and even though it took 6 years it was worth it in the end. I hope you and the other lovely ladies on here get your sticky beans very soon.

Not long to go now longest. I hope the cold buggers off in time.

Huge hugs to you girlie I'm so sorry the scan wasn't looking optimistic. I can't believe that your PCT won't offer that test when most areas do, postcode lotteries are disgusting. Could you contact your MP's office to see if they can help you challenge it?

Pleased to hear things were measuring right confused. I know it's frustrating to not see heartbeat but that's quite normal this early on. Fingers crossed you see it next time!

Really glad to hear your scan was all good MrsD. When will your next scan be?

Sorry to hear you're spotting again cloud I had the same thing with this pregnancy but they never figured out why and my baby seems to still be growing fine. Hopefully you will have the same!

Good luck for scan tomorrow Jady.

Sorry to anyone I've missed! X