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Miscarriage/pregnancy loss

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Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

999 replies

Justonemoretime · 08/04/2015 08:39

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

OP posts:
girliesaints · 25/04/2015 19:48

Enjoy the wine Brummie??????

sebsmummy1 · 25/04/2015 19:50

Good girl Brummie Wine

SashaKerr · 25/04/2015 19:59

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cloudjumper · 25/04/2015 20:35

shasha I have not gone to Coventry. The two our of my four mcs that were tested turned out to be chromosomal abnormalities, one was trisomy 2, the other trisomy 18. I can fall pregnant usually quite easily, so in my case, it probably is really just due to my age (I'm 43). Also, I am now on progesterone and heparin anyway, which is what Coventry gives you if you don't have high NK cells. The progesterone is more or less standard for RMC issues, and the heparin I have to take because I had a DVT a few years ago. So I didn't really see what Coventry could have done for me... Even their protocol can't do anything about chromosome issues.
I agree with baking, though, although age has certainly an effect on egg quality, your fertility does not fall off a cliff the minute you turn 35! I had a very long chat with a consultant about this, and he reckons that I have about a 50% chance of a healthy pregnancy. Once you get to 45, the mc risk really shoots up - but I really don't think that I will be able to keep going that long.
RMC testing will look at your DH's chromosomes, too. Are you getting the thrombophilia panel tests, which look at blood clotting etc.? That is a very common cause of rmc.

Brummie That's more like it! Upwards and onwards. Go girl, have a great night!

Right, I will now go and indulge myself with an episode of Game Of Thrones (last series, not the current one). Have a good night all.

barkingtreefrog · 25/04/2015 20:41

Go brummie, have one for me! I've been swimming and have just finished a lovely dinner. The woodburning stove and my knitting are calling, nothing would drag me out tonight! Grin

Me2Me2 · 25/04/2015 20:52

WineGrin enjoy brummie

SashaKerr · 25/04/2015 21:20

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SashaKerr · 25/04/2015 21:22

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cloudjumper · 25/04/2015 21:27

sasha The karyotyping for you and your DH, as well as the thrombophilia screen, progesterone should all be done under the standard RMC testing by the NHS. They should also give you an ultrasound to check your uterus and ovaries. I would save the private cover for when something comes up that is not covered by the NHS - or if you need something done quickly. For example, I managed to get a private consultation of an RMC specialist and a resulting MRI scan covered by BUPA. I would check with your NHS hospital and GP what tests they can offer you.

SashaKerr · 25/04/2015 21:40

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bakingtins · 26/04/2015 07:58

I think everything listed as covered by BUPA I had done on the NHS, and for some of it ( definitely the hormones, poss also clotting etc) you need to be minimum 6 weeks post MC. I got karyotyping done for me and DH but have read more recently of NHS clinics refusing it. I'm not sure how the BUPA cover works, is there a 'pot' of money to spend on any eligible tests with an upper limit, or will they continue to cover any eligible procedures? If it's the former I wouldn't waste any on tests the NHS will do for you. The time frame is largely set by waiting for hormones to settle and if you go for karyotyping it takes months. Resign yourself to 3-4 months off to get the tests completed, which gives you plenty of time to get NHS testing, go to Coventry if you want to and use BUPA if you need hysterosalpingogram or MRI etc. I know that feels difficult if your biological clock is screaming ticking, but it can be hugely beneficial, particularly if you can get healthy, recuperate mentally and have a firm plan in place by the time you try again.

SashaKerr · 26/04/2015 08:09

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bakingtins · 26/04/2015 08:35

I think that's unlikely. The egg can only potentially be fertilised for 24-48 hours after ovulation. There can be a problem if you have a short luteal phase ( time between ovulation and AF) which doesn't allow for implantation, but I think that would affect chances of getting pregnant in the first place rather than causing MMC.
Much sympathy for the bad timing re friends babies. Due dates are hard enough to get through without baby bombs from all sides.

Justonemoretime · 26/04/2015 09:23

Morning all, quick update, back in hospital with another bleed. Baby fine, doesn't seem to be early labour, but they're keeping me in for the moment. Sad

OP posts:
AndCounting · 26/04/2015 09:28

Sorry you're in again, just. But pleased they are keeping an eye on you. Rest up. Nearly there.

sebsmummy1 · 26/04/2015 09:32

just big hugs. The important thing is the baby is fine. How many weeks do you have left?

CheesyMash · 26/04/2015 09:32

just glad you are baby are ok. You're not have it easy are you Sad Hope it settles down very soon and you can be discharged.

sasha your due dates sound extra painful and difficult with all the others due at the same time Sad

girliesaints · 26/04/2015 09:33

Fingers crossed Just, you're in not too long this time, how many weeks are you now? X

Justonemoretime · 26/04/2015 09:36

I'm 31 weeks now, so not long to go. Hopefully this isn't anything serious, just got to sit here and be monitored for 48 hours or so. Time to catch up on iPlayer...

OP posts:
Purplefrogshoes · 26/04/2015 09:41

Sorry your back in hospital just

Re baby bombs, I still find myself hiding people and hiding scan pics on fb

Consultant isn't going to do my elcs until I'm 39&4 because there isn't a theatre slot until then so I'm very anxious I go into labour, baby is breech so that's making my anxiety worse. So all going well baby will be born 12th may

Hugs to all having a tough time

longestlurkerever · 26/04/2015 09:51

Sorry to hear that Just. Hope you get out soon. You're in a much better place now at 31 weeks should anything happen but i hope it doesn't.

sasha Just to warn you my rmc didn't do karotyping for me and dh. I didn't actually mind. It's rare to show anything and if it did, there would have been a choice between just trying again and hoping for a lucky combination of genes and selective ivf. I would have gone for the former as I have a healthy dd so knew a healthy pregnancy was possible so it wouldn't really have changed anything to know. That might not be the case for you and if you push you might get it but it's no longer standard, I don't think. In fact I paid for some tests privately and Mr Rai didn't even recommend it then.

longestlurkerever · 26/04/2015 09:52

Sorry to hear you're anxious purple. Just make sure you get yourself to hospital at first sign of labour. You're bound to have plenty of time to organise an emcs that hopefully wouldn't be a panic.

Brummiegirl15 · 26/04/2015 09:56

Just plenty of rest for you, and purple

You are both so close!!

Minnie74 · 26/04/2015 09:59

just sorry you've ended up back in hospital- it sounds like they're keeping a good check on you though. Not long to go either.

sasha so sorry you're having a hard time at the moment. I totally feel your need of wanting to find answers. It's on your mind all the time isn't it. Due dates are awful too without the added baby bombs you've got.

purple hope baby stays out till the 12th- very exciting!

I've got my first RMC appointment tomorrow. Not really sure what to expect. I assume they'll go through the test results from mc3 and ask us some questions/get some blood (a nightmare in its self as DH is phobic about needles so will be in a right state! He was sick on the way to the dentist once!)
Are there any questions I should be specifically asking do you think? Should I mention that I'm considering going to Coventry? I'd like to know if they're open to their protocol (although I'm vaguely thinking freckle said they might be?)
I'm not sure whether I'm excited to finally be getting things moving or terrified to be told some awful news. It's also bringing back the crappy memories of mc3 which is making me feel a bit sad today. Hopefully it'll be onwards and upwards tomorrow!

AllThereIs · 26/04/2015 10:07

Hi all, I've had a look through the thread and am so sorry for the position you are all in. I'm looking for a bit of help and advice if possible.

I MC on 14/2/15 at 6+1, MC2 on 20/4/15 at 5+4 (baby measuring 4 weeks). I have a DC who is 3.

I am back at the EPU for a follow up scan this week. What do I ask for? What help can I have? What do I do next time I get pregnant? Should I wait longer before TTC again?

Tia.